We have just celebrated the three year anniversary of Autism Speaks’ Global Autism Public Health (GAPH) initiative and what better way to mark this birthday than to see our first official GAPH partner open a new Centre for children with autism in Albania. Over the last two and a half years Autism Speaks has partnered with Liri Berisha, M.D., president of the Albanian Children Foundation (ACF) and wife of the Albanian Prime Minister, on GAPH-Albania and today saw the realization of her vision to provide state-of-the-art clinical and therapeutic care for Albanian families.
Autism Speaks was delighted to play a small part in the opening ceremony for the Centre. Those in attendance included the Albanian Prime Minister, Sali Bersiha, members of his cabinet, international dignitaries, local families and professionals. Mark Roithmayr, president of Autism Speaks, took part in the ribbon cutting ceremony along with Dr. Berisha and Domenick Scaglione, the founder of ACF. Then a selected audience was given a tour of the new Albanian Children Foundation Centre before everyone convened in the main lecture theatre for speeches and presentations of awards. Dr. Berisha spoke of how she hoped the new Centre would be like a “warm home” and a “comfortable retreat” for families to receive the necessary services they deserve. Mr. Roithmayr took great pleasure in announcing that as a result of a competitive grant process, Autism Speaks would be funding a two year study for Deborah Fein, Ph.D. to continue her work with ACF to improve autism screening, diagnosis and intervention for families in the region.
The new Centre is located just outside the Albanian capital of Tirana and is surrounded by lakes and mountains, creating a quiet and idyllic place for families to visit. The Centre will deliver early intervention using Applied Behavior Analysis, as well as diagnostic services by trained multidisciplinary teams. There is a large lecture room on the basement floor, which will allow up to 100 professionals to be trained at any time. On the top floor is a library of books kindly donated by the UK and U.S. research community, as well as technology to support distance learning and supervision. This will be a national Centre to serve families across Albania and will also support regional development through the South-East European Autism Network (SEAN), which Autism Speaks launched with ACF and the Albanian Ministry of Health in 2010.
Dr. Berisha was kind enough to acknowledge that much of the inspiration for the centre has come from meeting her friends Suzanne and Bob Wright, co-founders of Autism Speaks. As part of GAPH-Albania the last two and a half years have seen therapists receive a year’s training in early intensive behavioral intervention; textbooks for parents and teachers have been translated into Albanian, as has the Autism Diagnostic Observation Schedule – Generic (ADOS-G) and the M-CHAT screener. A group of pediatricians in Tirana have been trained to use the M-CHAT to screen for autism as part of a pilot study and international conferences have been held to provide basic training in best clinical practice. All this good work will be supported going forward by the Albanian Ministry of Health who signed onto a national strategy on autism in 2010.
These significant developments are the result of Dr. Berisha’s vision to improve the lives of children with autism in Albania. Autism Speaks has been honored to work with Dr. Berisha over the last few years and her contributions at our World Focus on Autism events have been invaluable. The new centre in Tirana is an amazing achievement and we hope you will join with us in congratulating Dr. Berisha and all her colleagues at the Albanian Children Foundation.
San Francisco 49er Running Back Frank Gore and Recording Stars Pia Toscano & Andy Grammer show their support for Autism Speaks
On November 29th San Francisco 49er Running Back Frank Gore and recording artists Pia Toscano & Andy Grammer participated in a holiday tree lighting at San Francisco’s famed 555 California Street. The free event was open to the public and benefitted Autism Speaks.
The tree lighting was hosted by Vornado Realty Trust, a New York-based real estate investment trust (REIT) and one of the largest owners of commercial properties in the United States.
The event featured musical performances from Pia Toscano and Andy Grammer. Toscano is best known as being a strong finalist in the tenth season of American Idol. Grammer’s debut album was released in June of this year, featuring pop hit “Keep Your Head Up”. The ceremony also included family holiday entertainment from the Dick Bright Orchestra.
Frank Gore, along with a family involved with Autism Speaks, lit the tree and tossed autographed footballs into the holiday crowd.
In order to help raise awareness and funding for Autism Speaks, 16 trees lining California Street are available for sponsorship for the duration of the holiday season. The trees will be lit blue in honor of autism awareness and will offer a branded area for generous sponsors. This year’s leading sponsors include: LRG Capital, Commonwealth Title and Fried Frank. Also, the event inaugurated a virtual fundraising tree and event website www.555treelighting.com. A donation of $250 or more will receive a set of personalized holiday greeting cards from Autism Speaks and those donating $500 or more will receive the card set and their name listed on a plaque on one of the trees lining California Street during the holidays.
The annual 555 California Street tree lighting is a tradition that was reinstated by Vornado Realty Trust in 2007, when it acquired the iconic building. Last year the event featured Vernon Davis of the 49ers and recording artist Natasha Bedingfield. Other previous guests include Hall of Famer Jerry Rice and Gold Medalist Misty May-Treanor.
As one of San Francisco’s largest family holiday events, 555 California featured one of the tallest trees in the region.
On Sunday, December 4, 2011 at select Glimcher malls, the Santa area will reserved just for children with autism. The Santa area will be “sensory friendly,” with lower lighting and quieter surroundings. The events will be held before the malls open to shoppers with a free Santa photo and festive giveaways.
Sensitive Santa® Events to be held at the following Glimcher properties on Sunday, December 4:
The Sensitive Santa® event at Merritt Square Mall in Merritt Island, Florida will take place on Sunday, December 11 from 7:00am-9:00am.
If you or someone you know might have a child that would enjoy one of these events, contact Glimcher Marketing Director, Jessie Fausett at firstname.lastname@example.org.
In this week’s episode ‘Missing‘ of NBC‘s Parenthood, Max’s plans to go to the museum are ruined because both Kristina and Adam have commitments with work. Haddy is left to watch Max, but is involved with a school project. When Haddie is immersed in work and not being vigilant, Max leaves and tries to find his way to the museum.
Has your child ever gone missing? How have you reacted? Do you have protocol in place if a situation like this occurs?
The Experts Speak says,
“A missing child. Fear, panic, seemingly hundreds of phone calls, 911 and a police car outside. Now add Asperger’s to the mix.
In this episode of Parenthood, Max gets tired of waiting for his museum visit, accuses his family of breaking their promises, and decides to take matters into his own hands. So he sets out to go to the museum by himself, sending his entire family into full-blown panic mode. It’s scary enough for any child to be missing, but when you know the child has Asperger’s, you also know the child doesn’t have the usual respect for strangers or fear of danger that protects most kids.
Every year, children with autism spectrum disorders go missing from their families. Most are returned safely. Unfortunately, some are not, and the worst imaginable happens. We read of these cases in the newspaper, and we know that another family is destroyed.”
Also check out, ‘Why Do Children with Autism Wander and Bolt from Safe Places?‘
Some boys with autism have larger brains: study (The New York Daily News)
Abnormal brain growth starting at four months of age occurs in a type of autism in which toddlers lose language and social skills they once had, according to a US study published Monday. Read more.
Local Teacher Given ‘Hero’ Award (Milpitas Patch)
The San Francisco 49ers and Symetra Financial recently honored Stephanie Bentzel, a teacher for Milpitas Unified’s ACCESS program for young adults with special needs, with its ‘Heroes in the Classroom’ award. Read more.
Project Lifesaver is a blessing to those, who will take advantage of it (Grafton, W.V.)
Taylor County Sheriff, Robert Beltner, wants to remind county residents of the program that he and his officers have in place to help in caring for those, who have a loved one with autism, Alzheimer’s, dementia, down syndrome, traumatic brain injuries, or impairments due to stroke, or other cognitive related disorder. Read more.
The Hidden Potential of Autistic Kids (Scientific American)
When I was in fifth grade, my brother Alex started correcting my homework. This would not have been weird, except that he was in kindergarten—and autistic. His disorder, characterized by repetitive behaviors and difficulty with social interactions and communication, made it hard for him to listen to his teachers. He was often kicked out of class for not being able to sit for more than a few seconds at a time. Even now, almost 15 years later, he can still barely scratch out his name. But he could look at my page of neatly written words or math problems and pick out which ones were wrong. Read more.
Autism strategy support (UK)
A support group which helps people with autism and Asperger’s syndrome an information day at the World of Glass. Read more.
This blog post is by Jeanie Caggiano. Her son Enzo has autism and she is an Allstate customer.
My little boy, Enzo, is 7 years old. He was diagnosed at age 3 with pervasive developmental delay. Last year, they gave us a more specific diagnosis that I am still coming to terms with: autism.
Enzo is apparently on the mild end of the spectrum. But that’s not much of a consolation when I get the call from school that he lost it again today and bit a classmate. Or when I go to volunteer at school and a boy in his class comes up to me and says, “You know, Enzo’s crazy.” Or when I call and call and call the other moms in his class to set up a play date and they don’t return my calls. For the parents of a kid with autism, there’s a new opportunity every day for your heart to break.
It’s why Autism Speaks is so essential. Every day, they’re helping families like ours cope with this disability by researching causes and treatments – and advocating for those who can’t speak for themselves.
I’m writing this because I want to tell you about an easy way to help raise money for Autism Speaks. Now through December 31 (we extended the deadline!)
December 14th, when you get any Allstate insurance quote, Allstate will donate $10 to Autism Speaks.
They’ve made a pledge to donate up to $500,000. It’s really easy. You just call 866-998-4488 or visit AutismSpeaks.org/Allstate. Get a free quote on any kind of insurance: car, home, boat, life, motorcycle, business, anything.
Everybody needs insurance. I feel better about getting mine from a company that supports a cause I believe in so much. So please get a quote now through December 31 (we extended the deadline!)
December 14th, and tell your family and friends about it, too.
Elizabeth V. Neumann, M.A., BCaBA
I was recently reflecting on my teaching career when selecting a topic for my master’s thesis. I wanted to focus on an area that could really make a difference for students with ASDs like the ones I had worked with. I believe I was most effective when I worked with administrators who understood what an autism diagnosis truly entails and what best practices are for these students. Now that I educate other school professionals through the nonprofit agency, Autism New Jersey, I have met many other teachers who share this view, as well as administrators themselves who recognize their critical role in this area. So I chose to research public school administrators’ current level of understanding of autism spectrum disorders. My graduate work was consistent with Autism New Jersey’s mission. As a training resource for parents and professionals for decades, my colleagues and I recognize that a key to effective school programs is consistent support from administrators, and we sought to learn more about their specific needs.
For my study, more than 300 public school superintendents, principals, and special services directors completed surveys. Their responses offered a wealth of information about their knowledge of autism, scientifically-validated strategies, and their strengths and challenges insupporting their staff and students. The data showed that most administrators have very little, if any, training in meeting the complex and unique educational needs of students with ASDs. This is through no fault of their own as there are no requirements pertaining to specific special needs in their certification programs, despite the fact that they are responsible for increasing numbers of students with autism. As school leaders, they make budgetary, curricular, staffing, and scheduling decisions that have a direct effect on students with ASDs without being equipped with evidence-based information that could guide them.
These data guided our development of workshop and publication content focused on the following areas: learning about autism and students’ educational needs; maximizing limited resources by identifying evidence-based practices; supporting staff of diagnosed students in all placements across campus; and providing an extensive list of resources across these topics. Through the partial support of an Autism Speaks Family Services Community Grant, we offered ten free workshops specifically tailored to this underserved yet crucial group of stakeholders in the autism community. Autism for Public School Administrators: What You Need to Know was sent to all special services directors in New Jersey as well as all workshop registrants.
This top-down approach to improving educational services has been very well-received by the participating administrators and the autism community at large. Participants have been most appreciative of this information, and it has been encouraging to see their desire to maximize their offerings to students with ASDs, their families, and the school professionals responsible for their education. One administrator summarized, “Your workshop gave me a terrific overview of autism – hopes and challenges – as well as a broader scope of the input and expertise necessary to sufficiently contribute to the independence of a student with autism.”
Parents and teachers, please encourage your superintendents, principals, and special services directors to order a free copy of Autism for Public School Administrators: What You Need to Know by calling 800.4.AUTISM or visiting www.autismnj.org. We hope that this initiative will be a valuable step to helping public school programs meet the intense needs of students with ASDs and are pursuing additional funding to continue and expand it on behalf of students with autism.
Please note that while the survey responses came solely from New Jersey, the information found in the workshops and publication is likely to be of great value to administrators throughout the country.
For more information about the Family Services Community Grants program, visit http://www.autismspeaks.org/family-services/grants/community-grants