Home > Awareness > IAN’s Bullying Survey: Addressing a Troublesome Issue

IAN’s Bullying Survey: Addressing a Troublesome Issue

By Connie Anderson, Ph.D. Community Scientific Liaison, IAN Project at the Kennedy Krieger Institute

The Interactive Autism Network (IAN) has launched a national online survey on bullying and children with ASD to begin to address this troublesome issue in the lives of children on the autism spectrum.

As Community Scientific Liaison for this national online autism research project, I hear from families all the time, and bullying is one concern they raise often. Just to make it through a school day, they tell me, a child on the spectrum may have to contend with sensory issues, social challenges, and attention problems. Add bullying into the mix and what was challenging can quickly become impossible, leading to a sense of isolation and failure. I hear of children tormented at lunch or on the playground, when a personal assistant (if any) may be taking a break. I hear of children who are provoked into meltdowns or aggressive outbursts by other children who know how to push their buttons, maybe by attacking a cherished interest. (“Pokemon is stupid.”) I hear about cases where children with meltdowns are accused of being bullies, and may suffer consequences like suspension from school as a result.

I’m also the mother of a teenager with Asperger’s, who has had his sweatpants pulled down around his knees in Tech Ed class, and been tormented at lunch until he wants to hide in the Special Ed Resource room rather than go to the cafeteria. I’m the friend of a mom who decided to home school her daughter with ASD after constant bullying made school a place so wrought with anxiety she could no longer function there.

These stories are all too common. Anecdotes from adults with ASD, children with ASD, and their families indicate that individuals on the spectrum may be especially vulnerable to bullying, and a few small studies have provided some evidence of this. Now, the online Bullying and School Experiences of Children with ASD Survey will collect more in-depth information on a variety of bullying situations from a large number of families to explore the extent of these problems in the lives of children with ASD.

I hope you’ll spread the word about the survey to all who may be interested.

Learn more about the Bullying Survey.

Read an article about bullying and children with ASD.

  1. Ileana Morales
    November 8, 2011 at 10:32 am | #1

    TEACH THEM TO LAUGH WITH OUR KIDS AND…. NO TO LAUGH AT OUR KIDS!!!!
    AUTISM IS AN EPIDEMIC…1 OF 110 KIDS WILL BE DIAGNOSED WITH AUTISM !!!!
    ANYDAY…..AUTISM CAN TOUCH YOUR LIFE
    IT HAS TOUCHED MINE!!!!
    froHELP US STOP BULLYING !!!!
    TEACH YOUR KIDS COMPASSION!!!!!
    m the mother of an Autistic kid….Ileana Morales

  2. Ileana Morales
    November 8, 2011 at 10:41 pm | #2

    HELP US STOP BULLYING!!!
    Teach your kids COMPASSION!!!
    Teach them to LAUGH WITH our kids…and no to laugh at our kids!
    Autism is an epidemic!!
    1 of 110 kids will be diagnosed with Autism..
    Autism can touch your life…anytime
    It has touched mine!!!
    from the mother of an Autistic kid…Ileana Morales

  3. Katie Wright
    November 9, 2011 at 12:22 pm | #3

    Hi Connie,

    Bullying is a terrible problem and it needs to be exhaustingly addressed at every school in America. Every school needs an anti-bullying policy with consequences (they need to be severe) clearly laid out. Our kids are so vulnerable that schools must be specially trained to protect at risk kids and should educate ASD kids about how to deal w/ issue before it even happens.

    However, I thought IAN would be doing more scientific/ specifically medical research. I have been so disappointed that so little of IAN is any way relevant to the severe medical autism my son lives with. I would like to see surveys on regression, how to deal with it, autoimmune dysfunction, ivig, PANDAS, GI disease…All these issues are vitally important and hugely neglected by mainstream autism researchers. Please do more to serve this community. You could start getting involved by going to an ARI conference.

    Thank you

  1. November 16, 2011 at 2:58 pm | #1

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Follow

Get every new post delivered to your Inbox.

Join 1,038 other followers

%d bloggers like this: