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Autism Speaks U “Light It Up Blue” LIVE Q&A Transcript
On Thursday, February 16, our Autism Speaks U team hosted a LIVE Facebook Q&A for college students across the country. We discussed Light It Up Blue, World Autism Awareness Day, awareness/fundraising event ideas and shared links to awareness and promotions resources. If you were unable to join, read below for the full transcript. Visit www.AutismSpeaks.org/U for more information.
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Did you know that Monday, April 2 is Light It Up Blue and World Autism Awareness Day?
Yes: ( 73% )
No: ( 27% ) |
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Did your school light it up blue last year?
Yes: ( 11% )
No: ( 89% ) |
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 UConn’s Wilbur Cross Building.
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UC Berkeley’s Campanile
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Colgate University’s campus chapel.
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Case Western Reserve University’s Peter B. Lewis building.
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The Great Buddah at Hyogo in Kobe, Japan. – We know it’s not a school, but this is one of our favorite pictures!
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Is your school planning to light up a building/monument blue this year?
Yes: ( 48% )
No: ( 52% ) |
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Comment From Brooklyn at ISU
I love that block party idea
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Do you prefer attending a monthly Facebook Q&A or would you rather have a monthly conference call?
Conference call: ( 11% )
Facebook Q&A: ( 89% ) |
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LIVE Facebook Q&A for College Students on Light It Up Blue!
The Autism Speaks U team will be hosting a LIVE Facebook Q&A for college students, on Light It Up Blue and Autism Awareness Month this Thursday, February 16 at 5pm EST/2pm PST.
RSVP at http://on.fb.me/rsvpfeb or join the chat directly at http://on.fb.me/febchat.
Our team will discuss how to get started and ways to get your campus to Light It Up Blue. Plus, you’ll have the opportunity to share ideas with other students from across the country.
We look forward to chatting with you!
To see how you can get involved with the program, visit www.AutismSpeaks.org/U.
Call Me Kerry and Never Rain Man
This guest post is by Autism Speaks staffer Kerry Magro. Kerry, an adult who has autism, is a graduate student at Seton Hall University, and is actively involved with our college program. Autism Speaks U is an initiative designed to support college students in their awareness, advocacy and fundraising efforts.
Do you know that I was once called Rain Man by a college peer? Wow. When I look back at the reason why anyone would say something like that I think of some of the stereotypes of autism. Some think people with autism lack social interaction and others think people with autism are good at math. In the 1988 movie Rain Man, Actor Dustin Hoffman plays a character that is autistic and shows he’s good with numbers but also lacks some communication skills. Because of the popularity of this movie and mainly because autism was still very unknown during the release of the movie it became, for better or for worse, a characterization of what autism could be.
But you know what the problem is here? I’m autistic and I’m nothing like Rain Man. I’m now an adult great with verbal communication, I’m not as good in math and the differences keep piling up. You see, autism is very broad. No one diagnosis is the same and therefore when we think of Rain Man we must think of Rain Man as ONLY Rain Man. He is one symbol of the countless symbols of real people out there that have autism. I think that’s what makes our autism community great. We all are unique in our own way and we all have the opportunity to have our “voices” heard. Sometimes that voice is not a verbal one, sometimes it is heard through our art or music or some other skill or talent we have or simply a smile at our family members. Each and every individual with autism is a new and unique symbol of what autism is today and will be for our future.
So in keeping with the future…
To those who are reading…
Don’t call me Rain Man. Call me Kerry.
Don’t think I’m bad at verbal communication, because in fact in my own way I’m great at communication and I’m getting a Master’s Degree in Strategic Communication to boot.
Don’t think I’ll be ready to help when it comes to numbers, because all I’m going to do is pass you a calculator.
AND, most importantly, just look at me as me. I’m Kerry and there is only one of me. Just like there is only one of you. Let’s embrace the fact that there will only be one Kerry Magro, just like there will only be one Rain Man. We write our own stories based on the biography of life which we are all living through right now. Let’s make sure the chapters we’re writing are good ones, by living it just the way we are.
So please call me Kerry the next time you see me, because that is someone who I was always meant to be.
I just started a new video blog called “My Autism My Voice,” and this is one of the topics I discuss. Click here for more information. This is one of my Autism Speaks U related blog posts. If you would like to contact me directly about questions/comments related to this post I can be reached at kerry.magro@autismspeaks.org or through my Facebook page here.
The Power of a Positive Attitude
This guest post is by Autism Speaks staffer Kerry Magro. Kerry, an adult who has autism, is a graduate student at Seton Hall University, and is actively involved with our college program. Autism Speaks U is an initiative designed to support college students in their awareness, advocacy and fundraising efforts.
One of the greatest lessons I ever learned in college was the ability to lead through, “The Power of a Positive Attitude.” When I was growing up it was always difficult for me to commit to things, always hard for me to get to that next level. A big part of that was based on my attitude. I didn’t know it back then but I was blind from how my attitude was leading the direction of my life. I struggled so much back when I was a kid it was always tough for me to focus on what was needed to overcome those obstacles.
College did change me though. It made me understand the need to take my attitude that indeed dramatically changed in high school to another level again. This happened when I started to realize there’s a solution to everything. Indeed, some of these solutions are ever changing as our society evolves and gains more knowledge but like what my mom would always tell me, “there are no problems, just solutions.” This helped me tremendously. Whether it was was getting accommodations for classes or even finding a way for an individual with autism such as myself to get a masters degree in strategic communication, the solution was there for me to find.
For all those reading what I hope you take from this is that even though there is a great deal of uncertainty out there involving autism that you understand we must continue to push positivity in everything we do. There are answers out there to help our loved ones succeed, autistic or not. Getting down on ourselves will help no one in our pursuits for a better tomorrow. Our community is in desperate need of this. I know this might be harder for some but for those individuals I ask that you make an effort to lose yourself in your passions to make a difference for yourself and the lives of others.
Tell yourself, there are ways to improve my life. There are ways to help my loved ones. Make these your mantra. We spend so much time sometimes saying what we don’t have, what services we can’t find, what diagnosis’s we can’t get, that we don’t appreciate what we have today. Mahatma Gandhi said, “Be the change you want to see in the world.” Live your life with no more problems but instead strive to find the solutions. And if you can, do it with a smile. It can make a world of difference. It did for me.
This is one of my Autism Speaks U related blog posts. If you would like to contact me directly about questions/comments related to this post I can be reached at kerry.magro@autismspeaks.org or through my Facebook Page here.
Autism Speaks U Chapter Spotlight: George Washington University
This guest post is by Courtney Hindle, co-president of the Autism Speaks U chapter at George Washington University. Autism Speaks U is a program designed to support college students in their awareness, advocacy and fundraising efforts. To start a chapter on your college campus, visit www.AutismSpeaks.org/U.
My name is Courtney Hindle, and I am a junior at George Washington University (GWU), studying political communications. I am also the current co-president of the Autism Speaks U chapter at my school. My involvement with autism began early on, when my younger brother was diagnosed and I later became a volunteer for Hunterdon Outreach Programs in my hometown.
Courtney (center), with members of Autism Speaks U GWU.
These programs are designed to teach children with various disabilities how to play a range of sports. I remained a volunteer for the Hunterdon Outreach programs throughout high school and knew I wanted to continue my passion for helping those with autism once I came to college. When I discovered the Autism Speaks U chapter at my school I decided to join.
We have had a chapter at GWU for a year and a half now and are so thrilled with the progress we have made with this incredible organization. The overall GWU student body has been tremendously supportive of our chapter.
Whenever we are hosting events for Autism Speaks, students always stop by to talk about their personal experiences with autism and how appreciative they are for everything Autism Speaks does for raising awareness. While many students are informed about autism, there is still a large portion of the student body that doesn’t quite grasp autism. We hope that through future awareness events we will be able to reach out to those in our community that don’t quite understand and give them a better understanding of the disorder. The mission of Autism Speaks U at GWU is to raise awareness on campus about autism and Autism Speaks while also looking for volunteer opportunities for students.
Recently, our chapter raised over $2,000 for the National Walk Now for Autism Speaks and placed second out of all collegiate fundraising teams for that Walk. Leading up to the Walk, we organized several tabling events where we fundraised and registered fellow GWU students to participate in the Walk.
Members of Autism Speaks U GWU at the 2011 National Walk Now for Autism Speaks.
We have also sponsored an event hosted by George Washington University’s Disability Support Services, about “composing disability.” This symposium focused on how college students with disabilities are viewed and how teachers and students can work to address problems those with disabilities have in the school system. This was a great opportunity to have our members learn about how our school works with supporting those with disabilities and we were so honored to be one of the symposium’s sponsors.
Being a part of Autism Speaks U has been an incredible experience and our chapter cannot wait to see where we will be a year from now!
For more information about Autism Speaks U and how you can get your campus involved, visit www.AutismSpeaks.org/U or email autismspeaksu@autismspeaks.org.
Get College Students Involved with Autism Speaks U!
Are you a college student? Do you want to raise awareness about autism while gaining volunteer hours and experience for your resume? If so, join our team at Autism Speaks U to recruit students on your campus to host events benefiting our cause and to start a collegiate chapter. Become a Campus Ambassador at any college! You do not have to be close to an Autism Speaks office. It requires a time commitment of 3-5 hours per week for 3 months during the school year.
Watch our video below and click here for more information.
Autism Speaks U is a program designed to support college students in their awareness, advocacy and fundraising efforts. If you are interested in raising awareness on your college campus, visit www.AutismSpeaks.org/U.
11 Myths About Autism
You’ve probably heard lots of thoughts and ideas about autism, but we want to make sure you know what is true and what is false. Our Family Services and Science department put together 11 myths about autism to help put an end to any misconceptions. All of these are great for students to share with their classmates. If you’re in college, get involved with Autism Speaks U, a program that supports college students in their awareness, advocacy and fundraising efforts.
1. Myth: People with autism don’t want friends.
Truth: If someone in your class has autism, they probably struggle with social skills, which may make it difficult to interact with peers. They might seem shy or unfriendly, but that’s just because he or she is unable communicate their desire for relationships the same way you do.
2. Myth: People with autism can’t feel or express any emotion—happy or sad.
Truth: Autism doesn’t make an individual unable to feel the emotions you feel, it just makes the person communicate emotions (and perceive your expressions) in different ways.
3. Myth: People with autism can’t understand the emotions of others.
Truth: Autism often affects an individual’s ability to understand unspoken interpersonal communication, so someone with autism might not detect sadness based solely on one’s body language or sarcasm in one’s tone of voice. But, when emotions are communicated more directly, people with autism are much more likely to feel empathy and compassion for others.
4. Myth: People with autism are intellectually disabled.
Truth: Often times, autism brings with it just as many exceptional abilities as limitations. Many people with autism have normal to high IQs and some may excel at math, music or another pursuit.
5. People with autism are just like Dustin Hoffman’s character in Rain Man.
Truth: Autism is a spectrum disorder, meaning its characteristics vary significantly from person to person. Knowing one person with autism means just that—knowing one person with autism. His or her capabilities and limitations are no indication of the capabilities and limitations of another person with autism.
6. Myth: People who display qualities that may be typical of a person with autism are just odd and will grow out of it.
Truth: Autism stems from biological conditions that affect brain development and, for many individuals, is a lifelong condition.
7. Myth: People with autism will have autism forever.
Truth: Recent research has shown that children with autism can make enough improvement after intensive early intervention to “test out” of the autism diagnosis. This is more evidence for the importance of addressing autism when the first signs appear.
8. Myth: Autism is just a brain disorder.
Truth: Research has shown that many people with autism also have gastro-intestinal disorders, food sensitivities, and many allergies.
9. Myth: Autism is caused by bad parenting.
Truth: In the 1950s, a theory called the “refrigerator mother hypothesis” arose suggesting that autism was caused by mothers who lacked emotional warmth. This has long been disproved.
10. Myth: The prevalence of autism has been steadily increasing for the last 40 years.
Truth: The rate of autism has increased by 600% in the last 20 years. In 1975, an estimated 1 in 1,500 had autism. In 2009, an estimated 1 in 110 had an autism spectrum disorder.
11. Myth: Therapies for people with autism are covered by insurance.
Truth: Most insurance companies exclude autism from the coverage plan and only half of the 50 states currently require coverage for treatments of autism spectrum disorders.
If you’re interested in raising awareness in college, visit www.AutismSpeaks.org/U.
This Is Why I Speak
This guest post is by Autism Speaks staffer Kerry Magro. Kerry, an adult who has autism, is a graduate student at Seton Hall University, and is actively involved with our college program. Autism Speaks U is an initiative designed to support college students in their awareness, advocacy and fundraising efforts.
“My 5 year old son was just diagnosed with PDD-NOS and has no speech. Will he ever be able to speak?”
Kerry Magro at age 4.
While the young mother stood before me in tears, I felt trapped; trapped because I couldn’t tell her that everything was going to be alright.
When I look back at my life, that 6 year old boy, going into first grade with so much anger, and so many emotions, it was almost too much. I knew back then I was mad. I was lashing out because I didn’t know how to communicate in an appropriate manner. That was almost 16 years ago. I was that 6 year old again. What would it take for her son to be able to speak one day? Would he be as lucky as me?
So, I surprised myself. I hugged her. I hugged this complete stranger for what probably ended up being 5 minutes. No words were said. I could only hear her sobbing and I almost joined her several times. I knew I couldn’t answer her question, but by telling her about my journey, I could give her hope.
I reflected back to the journey that I had had led me to where I am today. The therapies, the special need classrooms, the accommodations, the hate, the ignorance, the awareness, the drama, the acceptance, the struggle, the tears, the heartache, the strength, the friends, my mom, my dad, and above all else the love that has made my journey worth every second.After we hugged I told her my story. I told her about that 6 year old boy and how he became who I was today. 15 minutes later tears of uncertainty had become tears of hope for not only her but for her son.
This is why I speak. Each time I share my story I pray that I’m making an impact on a parent, a family, a friend, etc. for the future of the autism movement. I may not be a scientist, or an expert in the field, I just know what it’s like to grow up–and thrive with autism. So, if you have autism, especially those young adults out there who are trying to spread awareness at the college level or beyond, tell your story.
It’s time for all of us to listen.
*I shared this story with my friend Laura Shumaker on her official website here as well. Thanks Everyone!*
This is one of my Autism Speaks U related blog posts. If you would like to contact me directly about questions/comments related to this post I can be reached at kerry.magro@autismspeaks.org or through my Facebook Page here.
11 Questions Students on the Spectrum Can Ask their College
This guest post is by Autism Speaks staffer Kerry Magro. Kerry, an adult who has autism, is a graduate student at Seton Hall University, and is actively involved with our college program. Autism Speaks U is an initiative designed to support college students in their awareness, advocacy and fundraising efforts.
Below are 11 questions students on the autism spectrum can ask their college/university.
1. As a college student affected by autism, what is one of the main things I need to know?
A big difference between college and high school is that in high school you generally have a structured plan for your accommodations called an “Individualized Education Program.” However, in college that no longer exists, meaning you must advocate to your Disability Support Group on campus to receive your own accommodations
2. What are some accommodations I can receive in my classes?
Individuals on the spectrum receive accommodations only if they register with their Disability Support Group. They will then receive accommodations based on their needs. This can include extended time on tests, tape recorders for classes, individual note takers, etc.
3. Do I have to pay for accommodations?
Under The Americans with Disabilities Act of 1990, colleges are required to provide all learning disabled individuals with “reasonable accommodations.” However, you should check the guidelines in regards to what is and what is not available on your campus.
4. Will faculty or fellow students be informed that I am on the autism spectrum?
Faculty members are not allowed to disclose any information about a student to others without consent from the student. However, students must register as a “disabled student” to receive accommodations – meaning your disability support group would be aware you have a disability. It is then up to you to inform your instructors.
5. Is on-campus living for me?
Accommodations can also factor into your living arrangements on campus which will give you opportunities for a safer environment, like a single room. Ask if your resident assistant will be made aware of your living situation, since he/she can be of help in an emergency.
6. Will tutoring be available for my courses?
Most colleges provide tutoring for all students, but it is important to learn about those services early on to see if it is available and if you need additional support.
7. Are there any restrictions on how many courses I can take?
Some disability support groups require you take less courses in your first few semesters of college to make for an easier transition.
8. Is there a club on campus that raises awareness about autism and provides social opportunities for students affected by autism?
Autism Speaks college program, Autism Speaks U, works with students across the county to start chapters that raise awareness and funds. Some also establish mentoring programs for students and youth on the autism spectrum. To see if a chapter exists on your campus, visit www.AutismSpeaks.org/U.
9. Will my professors have any previous training in educating individuals affected by autism?
There is no requirement at most college for professors to have education in teaching individuals with learning disabilities. You should be prepared to advocate for yourself when a situation deems itself appropriate to do so.
10. Will I be treated differently by fellow students because I have autism?
Like in any other situation where you are around people, there is the possibility of a lack of awareness on their part in dealing with people with learning disabilities. Therefore, spreading awareness is crucial for you and others affected by autism.
11. Is there anything on campus that focuses on post-college plans for individuals affected by autism?
Many colleges have a career program/center that focuses on helping you network with outside companies. You can also look under the Americans with Disabilities Act for information about job accommodations and workshops.
If you are interested in raising awareness on your college campus visit www.AutismSpeaks.org/U.
Autism Speaks U Spotlight: Virginia Tech Chapter President
This guest post is by Kaitlyn Whiton, a senior at Virginia Tech. She is the president of her school’s Autism Speaks U chapter and is working to create a long lasting legacy on campus! Autism Speaks U is a program designed for college students who host awareness, advocacy and fundraising events, while supporting their local autism communities.
Autism was a word that most people had never heard of 20 years ago, when my younger brother, Freddy, was diagnosed. I cannot count how many times my friends would ask me why Freddy would hit himself, not talk to anyone, or only repeat the same lines from the same movies. By the age of 10, autism had already had a huge impact on my life and I knew I wanted to continue to help others, like my brother, grow to their fullest potential. Starting a chapter of Autism Speaks U at Virginia Tech was a perfect opportunity to not only give back, but also inspire others to be involved with a wonderful organization.
Kaitlyn (far right) with her brother Freddy (left) and her father Fred (center).
Even though this is only Autism Speaks U Virginia Tech’s second semester on Hokie stomping ground, we have already made an impact in our community. Last semester we raffled off a football signed by coach, Frank Beamer and a basketball signed by coach, Seth Greenberg. This semester, our big fundraising event is going to be an awareness night at Hokie House, a local restaurant and bar, on Friday, November 4. During the event we are going to be raffling off themed baskets as an extra way to raise money.
Autism Speaks U Virginia Tech, unfortunately has a number of seniors who will be graduating in the spring. Luckily, we have found motivating and inspiring individuals who will continue the mission of Autism Speaks U in the Virginia Tech community. Our old executive board will help train the new executive board throughout the rest of the current semester and will be here to advise the new officers during the spring semester.
My dream would be to come back to Virginia Tech and attend a fundraiser executed by our predecessors. My goal this year is to inspire, motivate and educate the newest members of the executive board so that our organization continues for many years to come.
Members of Autism Speaks U Virginia Tech at their 2011 club fair.
For more information about Autism Speaks U at Virginia Tech, contact the chapter president, Kaitlyn Whiton, at kait6573@vt.edu.
