Archive

Archive for the ‘Autism Speaks U’ Category

Autism Speaks U Spotlight: UC Berkeley Chapter President

September 26, 2011 2 comments

This guest post is by Caroline McCloskey, a sophomore at UC Berkeley. She is the president and founder of her school’s Autism Speaks U chapter and is a true ambassador for our cause! Autism Speaks U is a program designed for college students who host awareness, advocacy and fundraising events, while supporting their local autism communities.

Helping those with autism has always held a place in my heart. My older brother Joey was diagnosed with autism at a very young age, and has always been my big “little brother.” Joey has a considerably severe case of autism and is often misunderstood because he has difficulty communicating with others. He lives in the world of a six-year old and still watches Disney movies (his favorite being Peter Pan), Sesame Street and Winnie the Pooh.  One of the truly amazing things about my brother is his ability to complete a 500-piece puzzle in twenty minutes – something I would never be able to do. He will never fail to impress me with his unique gift and now that I’ve gone to college and live 6000 miles away from home, I miss him dearly.

Caroline hikes to the big Campanile to raise autism awareness.

Coming to the University of California, Berkeley was by far the best decision I have ever made. As soon as I got here I knew that I wanted to get involved on campus, so I looked into various student organizations and tried to find one that promoted autism awareness or raised money for scientific research. No such club or organization existed. I thought to myself: of all the hundreds of student organizations that Berkeley has to offer, how is it that not a single one addresses the problem of autism, something that affects 1 in 110 people?

Consequently, some friends and I took the initiative and our chapter of Autism Speaks U at Berkeley was officially founded on March 9th2011. Now we have over 30 active members and have begun to establish a firm presence on campus as of this academic year. The UC Berkeley community has been very supportive of our efforts and during Autism Awareness Month this year we held an awareness campaign and small-scale fundraiser in the Unit 2 Residence Halls. Our biggest achievement so far has been lighting up the Campanile blue on Autism Awareness Day, which we hope to do again in April 2012.

Campanile Lit Up Blue.

Right now we are in the process of planning a benefit concert to be held on November 19, of this year. We are also trying to establish a mentoring program with the Berkeley Unified School District, where members of our chapter would volunteer with children and young adults on the spectrum. Furthermore, we are in the early phases of planning a large-scale walk event on UC Berkeley’s campus, which will be held on April 72012, during Autism Awareness Month.

This year we have a very strong team of officers who are all contributing incredible amounts of time and effort to our cause. It means so much to me that my friends have been so supportive of what I am so passionate about, and I honestly appreciate their help and support more than they will ever know. I know that this year we’re going to go far and it’s all because of them: thank you, guys.

To get involved with Autism Speaks U and/or the UC Berkeley collegiate chapter, contact autismspeaksu@autismspeaks.org.  

Categories: Autism Speaks U Tags: , , , , , , , , ,

Autism Speaks U “Back to School” LIVE Q&A Transcript

September 22, 2011 Leave a comment
On Wednesday, September 21, our Autism Speaks U team hosted a LIVE Facebook Q&A for college students across the country. We discussed topics like how/why to start a collegiate chapter, what events to host,  recruiting strategies, and how to secure event funding. If you were unable to join us last night,  please read below for the full Q&A transcript. You can also visit www.AutismSpeaks.org/U for more information.
7:56
Hello everyone, thanks for joining our LIVE Q&A tonight. We’ll be starting at 8pm EST/5pm PST.
8:01
This Q&A is intended for college students, faculty and staff. The chat is text only – you’ll interact with us via the live chat client that you are logged into right now.
8:01
Moderating this Q&A will be Sarah Caminker and Jaclyn Renner from Autism Speaks U.
8:02
Let’s do a quick roll call, so we know which schools are being represented. Enter the name of the school you attend.
8:02
Comment From Caroline (UC Berkeley)

UC Berkeley
8:02
Comment From Margo Rizzi

Boston College
8:02
Comment From Amanda

Eastern Michigan University
8:02
Comment From Kara

Ohio State University
8:02
Comment From Patty

mansfield university
8:02
Comment From James McDonald

Cisco College
8:02
Comment From Jackie Moreno

University of Southern California
8:02
Comment From Devin Fenyo

SUNY Albany
8:02
Comment From Guest

Community College Of Baltimore County Single Step Program
8:03
Comment From Hailey

Eastern Michigan University
8:03
Comment From Grace

USC
8:04
Looks like we have a great group of schools here tonight! If there are any new comers, please type in your school name.
8:04
Comment From Caroline Williams

Wright State University
8:04
What is your involvement with Autism Speaks U?
I am part of an Autism Speaks U chapter.

 ( 38% )

I have hosted an awareness and/or fundraising event for Autism Speaks U.

 ( 6% )

I have just registered on the Autism Speaks U website.

 ( 6% )

I have just attended a Walk Now for Autism Speaks.

 ( 0% )

I have not done anything yet, but would like to!

 ( 50% )
8:05
Comment From Guest

Allison Love Community College Of Baltimore County Single Step Program.
8:05
During the first part of this chat we’ll focus on 3 topics and then open it up to Q&A.
8:06
The 3 topics will be fall event ideas, event recruitment, and getting funding for events.
8:06
Before we dive into our first topic, we’d like to ask a quick question.
8:06
What is your connection to autism?
My family member has autism.

 ( 35% )

I work with or educate those with autism.

 ( 31% )

My friend’s family is touched by autism.

 ( 8% )

My child has autism.

 ( 27% )

I do not personally know anyone touched by autism.

 ( 0% )
8:07
Now on to fall event ideas!
8:08
If you’re looking to host an event this semester, we’re here to help. We encourage you to be creative, and to get started here are a 4 event ideas.
8:08
1. Dance Marathon: This is the perfect event to dance the night away and raise funds and awareness for autism. Ask your school to donate a venue and have student musicians and DJs donate their time and talent. You can sell tickets, blue glow sticks and deck the event out in blue!
8:08
2. Karaoke Night: Ask a local bar or restaurant to donate their venue. Get prizes donated from local businesses to give to those who come in 1st, 2nd and 3rd place.
8:08
Download the karaoke competition event guide at:
http://bit.ly/karaokenight
8:09
3. Obstacle Course Challenge: If your school has an ROTC obstacle course, see if they’ll let you use it for the day. You can set this up the same way as a walk/run, with teams, vendors and prizes!
8:09
Access our walk/run event guide at 
http://bit.ly/5kwalk3krun
 and add to it!
8:09
4. Autism Awareness Sports Game: Ask a popular sports team on campus to donate a game to Autism Speaks U. Players can wear puzzle pieces, blue uniforms, use blue sports equipment, etc. If a night game, sell blue glow sticks and noisemakers as a fun way to get donations.
8:10
See how Colgate University’s women’s hockey team donated a game to Autism Speaks U!
8:10

Expand
Players sported puzzle piece jerseys and lit up their rink blue!
8:10
What are events you are planning, or would like to host this Fall?
8:11
Comment From Caroline (UC Berkeley)

Benefit concert
8:11
Comment From James McDonald

Planning multiple Pizza Partys and Lock In’s
8:12
Comment From Kara

We’re trying to host a laser tag night as a fundraiser
8:12
Comment From Emily

Battle of the Bands event
8:12
Comment From Devin

Mechanical bull riding competition and on a smaller scale recycling drives and dine-in nights at local restaurants
8:12
Comment From Kara

Once it gets cold outside we’re going to sell hot chocolate outside our student union
8:12
Comment From Allison Love

My program might be hosting a mixer which is a dance for our program to raise awareness for Autism and all other disabilities. They told us at the end of last semester.
8:13
Comment From Caroline (UC Berkeley)

We’re also having a bake sale next week.
8:13
Comment From Michelle

A giant scavenger hunt across campus. We’re competing with another club to see who finishes the fastest.
8:13
Comment From Devin

we did a bake sale too and it was successful
8:13
Comment From James McDonald

We are also trying to have a “Auction” where we will be auctioning off faculty members to the students for 1 day. Still in beginning stages but hoping to make them wrap gifts and stuff for x-mas :)
8:14
Comment From Grace Kim

we are not sure yet but diddy riese is an option
8:14
Comment From Caroline (UC Berkeley)

I like the scavenger hunt idea
8:15
Comment From Michelle

We’re going to have Greek life and sports teams compete against each other for the scavenger hunt and finish with a relay race
8:15
Comment From Guest

St. John’s University- Staten Island Campus – Welcome!
8:15
Our next topic is on recruiting students to attend your events.
8:16
If you are part of an Autism Speaks U chapter, have or will you participate in your schools fall activities fair?
Yes

 ( 86% )

No

 ( 14% )
8:16
Activities fairs are a great way to get your name out on campus. If you were unable to attend your activities fair, then tabeling on campus to pass out flyers promoting your meetings and events is a great way to drum up membership.
8:17
Other ways to recruit students includes “dorm storming” the freshman dorms to distribute flyers advertising your event, chalking up the sidewalks and texting 10 people about your event and asking those 10 to forward the text to 10 of their friends.
8:17
You can also contact various academic departments (Psychology, Special Education, Speech & Hearing, Communication, etc.), and ask the department head to send an email out on your behalf to their listserv….this reaches so many students that might not know about your event.
8:17
Reaching out to a few professors, to if ask if you can make an announcement before class is helpful too!
8:18
Remember to create a Facebook event and invite everyone you know to attend! Have your event planning committee invite their friends to attend the event as well.
8:18
Here are a few photos of students promoting their efforts on campus.
8:18

Expand
8:18
That’s of the Autism Speaks U chapter at Ohio State University. They made Autism Speaks ping pong balls to give away at their fall activities fair!
8:19

Expand
Autism Speaks U chapter at UNC at Chapel Hill tabels on campus to raise awareness!
8:19
If you need an Autism Speaks U banner and materials to pass out (posters, handouts, quarter cards, etc.), emailautismspeaksu@autismspeaks.org.
8:19

Expand
Various Autism Speaks U materials
8:19
What are ways you recruit students to attend your meetings or events
8:20
Comment From Michelle

We flier everywhere and get the on campus television to run free ads for us!
8:20
Comment From Devin (SUNY Albany)

Tabling is a big one for us. Also, we sold those rubber bracelets on campus and they were a huge hit and got us a lot of attention. Facebook has been hugely helpful as well.
8:20
Comment From James McDonald

We just recieved aproval this morning to send a mass email to all students using our “Blackboard” system as well as posting it directly on the schools website. We will also be placing fliers in every classroom on campus
8:21
Comment From Thomas

We can set up posters around campus, right?
8:21
James, of course you can! We have posters that we can send you as well. Include tear offs on the bottom of all posters with your contact information, so students can call/email you directly.
8:22
To get Autism Speaks U posters, emailautismspeaksu@autismspeaks.org with your mailing address.
8:22
Comment From Kara

We bought ping pong balls in bulk and some blue sharpies, and drew puzzle pieces or wrote “Autism Speaks U” or “1 in 110″ on them to spread the word. We also use Facebook and flyers a lot.
8:22
Comment From Grace Kim

we are planning on having the director of campus affairs email the whole school about autism speaks u
8:22
Comment From Caroline (UC Berkeley)

Depends on your campus rules (in regards to posting fliers)
8:22
Comment From Emily

We wear our Autism Speaks U t-shirts to campus the day of our meetings and make announcements at the beginning of class.
8:23
Comment From Chris

Where can materials for tables form Autism Speaks U be requested at?
8:23
Chris, email autismspeaksu@autismspeaks.org - Include your mailing address, school and how you’d like to get involved!
8:24
Now for our last topic…. getting funding for events. And then we’ll open it up to Q&A.
8:24
Comment From Sindia

I like the ping pong ball idea!
8:24
Sindia, we do too!
8:24
Comment From Thomas Lloyd

I support Sindia’s idea.
8:24
If your school offers funding for on-campus clubs or events, contact your Student Government Association to see what paperwork needs to be filled out. Note that they generally have deadlines on when you can apply so check into this well in advance.
8:24
If your school does not offer club funding, here’s a few other options.
8:25
Contact your alumni association and send an email out to all members requesting they support your event’s efforts. Alumni love to see students from their alma mater give back!
8:25
Do you know how to contact members of your alumni association?
Yes

 ( 33% )

No

 ( 67% )
8:26
For those that answered no, visit your school’s Student Activities Office and they’ll direct you to the right person.
8:26
You can also ask local and corporate businesses to sponsor your event.
8:26
Download our event sponsorship guide at
http://bit.ly/sponsorguide
. it offers a ton of tips and resources that you can send out to local businesses.
8:27
Remember to be creative with how people and businesses can partner with your events (whether the donation goes to event expenses or back to Autism Speaks).
8:27
For example, last April, a group of students received a challenge match from an alumna. He offered to donate $1,000 to Autism Speaks, if they could get 100 people to attend their event.
8:27
Other alumna offer to match donations that the event raises (i.e. event raises $2,000 and the alumna matches it with another $2,000).
8:27
Comment From Devin (SUNY Albany)

A lot of businesses are usually willing to help out with any events you may be planning. Even if they just donate gift cards or something small you can use them for raffles prizes, etc
8:28
How have you secured sponsors for your events? Or how are you planning to contact potential sponsors?
8:29
Comment From Devin (SUNY Albany)

Sponsorship packet
8:30
Comment From Thomas Lloyd

Posterboard in student lobby
8:30
Comment From Emily

We contacted a local restaurant and they offered to pay for our event t-shirts as long as we put their logo on the back of the shirt.
8:30
Comment From James McDonald

We have contacted several local businesses who have agreed to help with drinks, food for our events as well as donating raffle items. As a business owner myself it was easier to contact other business owners in my area.
8:30
Comment From Sindia

I am area that major restaurant chains are willing to do nights where they will give a certain percentage of a persons bill back to an organization or charity.
8:31
Yes, places like Pinkberry, Applebees, Qdoba, Fridays, 99 Restaurant, Chick-fil-A, Chilis are examples pf places that students have done dine-in nights in the past
8:32
A student recently did one at Starbucks too! Since Monday nights are slower, anything they raised more than average, they gave 50% back to the Autism Speaks U chapter.
8:32
Comment From Emily

Cheesecake Factory, PF Changs and Dunkin Donuts have always donated to our events also.
8:33
Comment From Hailey

I used to work in non-profit management, and we had a fundraising breakfast using the Benevon model, and we had a bunch of our members invite 10 guests to have breakfast, then there’s a speaker who talks about the cause, and then there’s an “ask” at the end. The ballroom we hosted it in donated space, and the food was extremely discounted for the cause. Do you think that’d work for a student organization as well?
8:34
Sure! Especially if you can get a speaker that students want to come out and hear. Even making it an all-you-can eat pancake breakfast or burger/fries helps appeal to college students on a budget.
8:35
Comment From Thomas Lloyd

Will any restaurant chains in Round Rock support Autism Speaks U as well?
8:36
I’m sure! Start by contacting chains and restaurants on campus or nearby and see if they’ll give a percentage back to Autism Speaks, or offer a special of the day.
8:36
Businesses want to get college students in the door, so leverage that!
8:36
Comment From James McDonald

Johny Carino’s is a statewide sponsor here in Texas for Autism Speaks. We are in the process of talking to them about Autism Speaks U as well
8:37
Comment From James McDonald

I have worked with them when we do our Walk Now for Autism Speaks in April. They are always willing to lend a helping hand when it comes to charity
8:37
In regards to funding for events, student can also participate in our “GO BLUE for Autism Speaks U” Facebook photo contest. Deck out in blue, submit a photo, and get friends and family to like the photo. Top 3 photos win marketing grants for their next Autism Speaks U event.
8:37
Get contest details at 
http://bit.ly/gobluedetails
8:38
See how Autism Speaks U at UC Berkeley went blue! Get creative and send us your photo!
8:38

Expand
Autism Speaks U chapter at UC Berkeley gather together to GO BLUE!
8:38
Comment From Caroline (UC Berkeley)

When you say marketing grants, what exactly do you mean? Would we have to use the money specifically for marketing?
8:38
The grants go toward event expenses for your next Autism Speaks U event.
8:39
Expenses can include marketing, logistics, supplies, etc.
8:39
Comment From Caroline (UC Berkeley)

Okay!
8:39
Will you submit a photo for our “GO BLUE” Facebook photo contest?
Yes

 ( 71% )

No

 ( 14% )

I already have

 ( 14% )
8:40
Deadline to submit photos is Friday, October 14. We encourage you to send them in as early as possible, so you can have friends and family “like” and comment on the picture(s).
8:41
Contest details at 
http://bit.ly/gobluedetails
8:41
Now on to Q&A… Feel free to ask questions about what we discussed or about the Autism Speaks U program in general.
8:41
Students are encouraged to answer each others questions as well!
8:41
Comment From Guest

The business I worked at last year let me do the puzzle peices for 1.00 I no longer work there. any suggestions on how to raise money for the walk in may 2012
8:43
You can still sell the puzzle pieces on campus to students and to local businesses. Other fundraising ideas include bake sales, dine-in nights, loose change campaigns.
8:43
And even asking students to contact their families and networks to donate online!
8:43
Comment From Hailey

Amanda (also in this chat) and I are thinking about starting a chapter at Eastern Michigan University. Besides filing the appropriate paperwork, what else is involved in starting a chapter?
8:44
Please review the 8 steps to creating a chapter document at
http://bit.ly/nj2yhw
. This explains everything that needs to be completed on our end.
8:45
Your school might have other requirements, so contact the Student Activities Office.
8:46
Comment From James McDonald

starting a chapter is easier then renewing your drivers license!
8:46
Comment From Sindia

In response to Hailey’s question: I just started a new chapter on the staten island campus of St john’s University. Aside from the paper work needed from Autism Speaks U, you will need to get approval from your campus’ student organization
8:46
Comment From Hailey

Thank you!
8:46
Comment From Sindia

The process can take quite some time on the schools behalf.
8:46
Comment From Thomas Lloyd

Is Student Activities another name for Student Life? Because at ACC, we call it student life.
8:47
Yes at some schools!
8:47
Comment From Hailey

What is the benefit to the university to have a chapter on campus? We will be asking one of our faculty members to advise our chapter and would like to know what the university might gain from having a chapter with Autism Speaks, versus another autism organization?
8:47
Download our chapter guidebook at 
http://bit.ly/chapterguidebook
and refer to page 6.
8:48
If you have more specific questions, send us an email atautismspeaksu@autismspeaks.org and we’ll brainstorm some ideas with you!
8:48
Comment From Amanda

How do you go about funding? Would you need a separate bank account?
8:49
Sometimes the school will ask you to create a bank account for your organization, but again, that depends on the school. There also might be a minimum amount you need to put into the account to start one (i.e. $50, $75, etc.)
8:49
Comment From Thomas Lloyd

Mr. McDonald. I am 19 years old and I have Aspergers. I’m trying to start a chapter at ACC in round rock. Can I contact you for questions. If so, how?
8:49
Comment From James McDonald

alot of schools will setup an account for your chapter with the business office. All you have to do is ask
8:50
Comment From Sindia

But once you get approval and get the ball rolling its all up to you!
8:51
Thomas, send us an email at autismspeaksu@autismspeaks.organd we’ll connect you with James at Cisco College!
8:51
Comment From Michelle

Where can we order Autism Speaks U shirts?
8:52
Students can order Autism Speaks U shirts at
http://bit.ly/asugetgear
. You can also customize the front and back of them. They are really affordable ranging from $4-$10.
8:53
Comment From Michelle

To students who have started a chapter, I’m new at this, what has been your biggest challenge so far?
8:54
Comment From Devin (SUNY Albany)

for our chapter, it was just getting it off the ground in the 1st place. Our school has a lot of red tape when it comes to new clubs and promoting. We found it was best to be persistent
8:55
Comment From James McDonald

I think the biggest challenge so far for me has been “ok, What next”… Everything is a challenge for me as we are a small community college with locations 75 miles away from each other. Finding recruits, fundraising is the easy part. Getting everything organized for the first yr has been my toughest challenge because we are technically “the new group” on campus
8:55
Comment From Kara

I think our biggest challenge has been getting the word out since our chapter is fairly new too. But we’ve been attending our involvement fairs and making sure to pass out flyers and make announcements before classes
8:56
Comment From Emily

We have so many great ideas but executing them can be difficult. Which is why having a strong executive board is important, so that we can delegate responsibilities.
8:56
Comment From Patty

I want to try to start a chapter at my school. Is it hard to get people involved and join the club? I’d assume it takes a few people just to get it started..
8:58
All it takes is a few students, have them reach out to their friends and you’re off! Also, in our chapter guidebook on pages 7-8 we offer recruitment ideas. Download it at
http://bit.ly/chapterguidebook
8:58
Comment From James McDonald

Thankfully serving on the committee for West Texas Autism Speaks has helped me in tremendous ways because i am use to the funraising and sponsorship atmosphere. I’m sure it can be a little overwhelming at first but having a positive attitude and selecting a great e-board has helped so much
8:58
Comment From Molly

Patty- we are a brand new chapter, just got approval a few weeks ago. It’ll take a little work, but you’ll be surprised how many people will be interested once you get your name out there!
8:58
Comment From Devin (SUNY Albany)

It only took us a small number of people to start but once we started tabling and getting the word out a lot of students approached us.
8:58
Comment From Patty

thanks!
8:59
We would like to thank all of you for participating in our Autism Speaks U Q&A! It’s fantastic to see college students so involved in raising awareness and advocating for the autism community.
8:59
If we didn’t get to your question or you have a few more, email us at autismspeaksu@autismspeaks.org.
8:59
Please be sure to check out www.AutismSpeaks.org/U for more information!
8:59
Have a great rest of the night!
9:00
Comment From Devin (SUNY Albany)

Thanks! You too!
9:00
Comment From Kara

Thanks!
9:01
Comment From Emily

You guys are awesome! Thanks!
9:02
Comment From Patty

you too! thanks :)


Categories: Autism Speaks U Tags: , , , , ,

LIVE Facebook Q&A for College Students!

September 19, 2011 Leave a comment

The Autism Speaks U team will be hosting a LIVE Facebook Q&A for our chapters and student leaders this Wednesday, September 21 at 8pm EST/5pm PST.

To join the chat, click here 

This is the perfect time for Autism Speaks U newbies or veterans to ask our team questions about the program, what awareness and fundraising events to host in Fall and how to start/maintain a chapter.

We look forward to chatting with you!

To see how you can get involved with the program, visit www.AutismSpeaks.org/U.

Categories: Autism Speaks U Tags: , , , , , ,

Watch the “Autism in Academia” Live Video Chat!

September 13, 2011 2 comments

More and more young adults on the autism spectrum are looking forward to higher education. Login to CollegeWeekLive tomorrow at 4pm EST to watch “Autism in Academia” featuring Lisa Jo Rudy. Learn how to prepare for the college experience, where to find autism-friendly colleges, and how to access special needs services at the school of your choice.

Lisa Jo Rudy is a professional writer and works with museums, community organizations and families to build access, inclusion and opportunities for people affected by autism. Lisa is also the mother of a fifteen-year-old son with autism and will be speaking at CollegeWeekLive’s Diversity Day.

“Autism in Academia” is part of a larger program called Diversity Day. Admissions reps in charge of diversity and multicultural recruitment from 40 universities across the country will chat live with students of all race, religion, gender, sexual orientation, age, nationality, or disability to address the unique opportunities available on their campuses.

Sign-up now. It’s free and easy. CollegeWeekLive will also giving away a $1,000 scholarship!

To get involved with Autism Speaks college program, visit www.autismspeaks.org/U. Autism Speaks U designed for college students who want to host events, start chapters, volunteer and/or become campus ambassadors! 

Categories: Autism Speaks U Tags: , , , , , , , ,

Be Who You Are

September 12, 2011 4 comments

This guest post is by Autism Speaks staffer Kerry Magro. Kerry, an adult who has autism, is a graduate student at Seton Hall University. He started the club Student Disability Awareness on campus to help spread awareness and raise funds for those affected by autism. Autism Speaks U is a program designed for college students who host awareness, advocacy and fundraising events.

Have you ever had that day when someone calls you or one of your loved ones awkward, odd, or weird? I think I’ve been called all of those words every year since I was nine. What do these words even mean now anyways? I think the easiest way of thinking of this in today’s society is someone who is away from the “norm.” That one person who does something that doesn’t seem “right.” Society has set us up with a standard that is set for us to judge without reason.

This standard has hurt people with autism for decades. When I was diagnosed with autism at age 4, I would soon have some tendencies that would be far different than the established norm. I was going to have a hard time with eye contact, some difficulty with my motor skills and also would have a hard time speaking in front of crowds. None of this makes me any less of a person as the next. I don’t want the pity that some grant for having a disorder either. I just want to know that at the end of the day I’ll be allowed to be me with no judgment, no questions asked.

That’s why when I write this blog I encourage everyone reading, to lead by example by taking action. If we let ourselves and our loved ones be who they are proudly, we defy and ignore the criticisms of others and hopefully lead to a better, more aware world; autism and all. As a college graduate with autism, does this mean I may have some difficult times from others ahead? You bet. It sure beats the alternative though of not being who I want and was meant to be, and that someone is me.

*What things have people said about who you are you that make you different from the norm? Feel free to comment below!*

This is one of my Autism Speaks U related blog posts. If you would like to contact me directly about questions/comments related to this post I can be reached at kerry.magro@autismspeaks.org or through my Facebook Page here.

Categories: Autism Speaks U Tags: , , , , , ,

College Fashionistas Support Autism Speaks U

September 1, 2011 Leave a comment

The Autism Speaks U Chapter at the University of Michigan’s co-founders (Maressa Criscito & Alex Lewisohn) interviewed collegiate entrepreneurs and twins, Samantha and Morgan Elias. These 21 year old sisters are the brains behind The Vintage Twin. Samantha, a member of Autism Speaks U at the University of Michigan, and Morgan, who attends New York University, recently hosted a trunk show on August 1 in New York City, donating over $550 to Autism Speaks.

Owners of The Vintage Twin with Autism Speaks U Co-Founders at Trunk Show Benefiting Autism Speaks U

The Vintage Twin, which was founded and self-financed in August 2009 with a trunk show in the their mother’s basement, is now a burgeoning brand; the first to use only recycled materials in creating one-of-a-kind original designs. Recreating vintage clothing, home goods, and accessories, TVT is a retail revolution offering people a style that is all their own.

1. Do you have a personal connection to autism? If so, please explain.

Our eldest sister is a speech pathologist and we have each shadowed her in working with children with autism. More close to home, our first cousin has asperger syndrome and we have watched him grow and overcome the hardships of staying in a specialized mainstream school.

 2. Why do you feel it is important to host events for Autism Speaks?

Autism affect MILLIONS of people on varying degrees and the numbers only seem to be growing.   Awareness must be raised, but more importantly, funds must be raised to better the quality of life for those who live a lifetime with it, rather than many medicinal fundraisers that are focused on fatal diseases.

3. How did you become involved with the Autism Speaks U program?

My best friends (Maressa & Alex) started it at The University of Michigan!

 4. What other events have you hosted for Autism Speaks or other charities in the past?

We have previously donated to Project Kids Worldwide.

 5. Why is it important for college students to be educated about autism?

Autism is EVERYWHERE and not going anywhere fast. We need to be aware, able to coexist and assist people in assimilating despite their social challenges. 

6. What kind of impact can the fashion world have on spreading autism awareness?

As the brand grows and we continue to have events benefiting Autism Speaks U, our fan bases can combine to not only raise money for the cause, but also to spread awareness within the vast world of fashionistas and fundraisers.

7. What advice do you have for other students who are also interested in becoming entrepreneurs?

START. Whether it’s selling out of your closet or opening a store, start now!

8. What are your future plans for your business?  Any specific designers/trends or events your fans should keep an eye out for?

Our website is going to be an awesome destination for affordable unique wears for ALL.

 9.  What was the biggest challenge that you faced during the creation of your business?  How did you overcome it?

The website. We raised enough money to afford creating an in-house studio that will fill our website with hundreds of items daily.

10)  Would you be interested in hosting other events with Autism Speaks in the future?

DEFINITELY- namely in Ann Arbor and also online. Last month,  supporters were able to save 10% on their purchase with 10% of the  proceeds  going back to Autism Speaks U.

—-

College students, faculty and alumni can get involved with our college program, Autism Speaks U, by visiting www.AutismSpeaks.org/U. Autism Speaks U works with college students who host awareness, advocacy and fundraising events, while supporting their local autism communities.

Categories: Autism Speaks U Tags: , , , , , , , , , , , ,

Individuals with Autism in College

August 22, 2011 11 comments

This guest post is by Autism Speaks staffer Kerry Magro. Kerry, an adult who has autism, is a recent graduate of Seton Hall University. He started the club Student Disability Awareness on campus to help spread awareness and raise funds for those affected by autism. Autism Speaks U is a program designed for college students who host awareness, advocacy and fundraising events, while supporting their local autism communities.

A big part of our autism movement is surrounded by the numbers. No matter the organization, a standard that seems to be advertised is in regards to the prevalence of autism in today’s society. It seems like any brochure you open these days will tell you that….

  • 1 in 110 will be diagnosed with autism.
  • 1 in 70 boys will be diagnosed with autism.
  • A new case is diagnosed almost every 15 minutes.

Over the past couple of months I have transitioned to focusing more on the numbers for adults with autism. The problem is we still have a great deal to decode. I have looked through countless websites to try to find a standard but it’s been very challenging. I then decided to just focus on one area which was how many individuals with autism go to college/receive a college degree.

Parents often ask me how someone with autism can prepare for college and how many individuals with autism actually attend college. The number I usually tell them is that 1 in 1040 students was the norm of how many individuals on the autism spectrum attended my alma mater, Seton Hall University (5 autistic individuals out of 5200) because that’s all I know. My hope is that the more we learn about these numbers the more we will be able to assess how much funding should be provided for adult support in the schools. We already have estimates for unemployment (autism spectrum disorder ranges anywhere from 75-98% per diagnosis on the spectrum) adults still living at home (about 80%) or adults who will be on the spectrum in the next decade (estimated around 500,000).

Do you think numbers for “Autism in College” should be addressed more? What are your thoughts on the steps needed to see this become a reality?

This is one of my Autism Speaks U related blog posts. If you would like to contact me directly about questions/comments related to this post I can be reached at kerry.magro@autismspeaks.org or through my Fan Page here.

Categories: Autism Speaks U Tags: , , , , ,

LIVE Facebook Chat with Kerry Magro Transcript

August 11, 2011 6 comments
2:52
Hi, I’m Kerry! I am really excited to be here with you today. I am excited to talk to you guys about my experience on the autism spectrum. Please feel free to ask me any questions you would like!
2:53
Comment From Michele

My Granddaughter is six years old, reads at 6th grade reading level, loves music and Pokemon and my question is she is in public school he has part time with special education and part time with her class. She has extreme fits of temper and I worry that she will not outgrow this? What do you remember from being so young and how did your family help and support you?
2:53
Hi Michele!
2:53
Comment From Michele

hi
2:54
From my experience, I had a difficult time transitioning from Public School to Private School. I remember the hardest thing for me was just adapting to change. So what my family did for me was try to focus on a similar routine no matter where I went, in regards to hobbies and activities to keep me focused.
2:54
Comment From Jennifer

My soon – to -be 3 year old was just diagnosed. At this age, she still is not talking. She will babbly out words here and there…but no sentences. Were you this way when you were small?
2:54
Hi there Jennifer
2:55
I was non-verbal til I was about two and a half and once at about that age I was very similar in regards to babbling and trying to pronounce words. It wasn’t until I was first diagnosed, at about 4, when I really started to notice a difference in my pronunciation towards words
2:56
Comment From Guest

Kerry- what was your functional level at 5 and what therapies did you receive (how frequently?) sorry if this is redundant! You’ll probably get this a lot. Congratulations on being a graduate, by the way. :)
2:56
Hi Guest! Thanks for the Congrats!
2:57
I remember when I was 6 I had physical therapy, occupational therapy, and speech therapy. It was the first time I started with those types of therapies. What I think I had the most trouble with was sensory integration with regards to different sounds and I think having the ability to be so involved with different types of therapies really helped me out a lot
2:57
Comment From Michelle C

Hi Kerry did you always have language. I ask because my son had language and was developing above average then suddenly lost skills at 2 and a half. He is now 4 and a half.
2:58
Hi Michelle – I started gaining language after I was about 4
2:58
Comment From Melissa

I am the parent of an 8 yr old with autism. As someone with autism what do you wish your parents and teachers knew. Jacob is high functioning but isnt able to answer questions for me. I feel like we cant completely communicate.
2:59
Hey Melissa – I think what I wish my parents knew was the nuts and bolts of an IEP. I think an IEP was something my parents really didn’t understand at the time and I remember it was difficult because my parents really never knew when I was earlier on the spectrum what kind of services I would need to include in the IEP.
2:59
I would wish that my earlier teachers in public school knew more about how to handle students with a learning disability. Not all of them were trained in special education.
3:00
Comment From April

Although you were young, do you recall anything specific that made talking easier?
3:00
Hi April! I started taking theater when I was about 5 and what I remember the best thing about it was even though it was difficult for me with words, it helped to build my self confidence a lot. It really made a huge difference in my early development
3:01
Comment From Guest

What was challenging in school for you? Are there any strategies that your teachers taught you that were helpful?
3:02
What was challenging in school was for multitasking in being in school. There were a lot of accommodations that I didn’t understand why I needed them. When I started noticing other students didn’t have the same accommodations I did, I thought something was wrong with me. It was hard because I didn’t think I was on the same playing field as them. I didn’t fully understand what autism was in my early years
3:03
In regards to strategies that my teachers always taught me was to always understand that everyone has something that makes them unique. Ideally everyone is going to go at their own pace
3:03
Comment From Guest

I have a grandaughter and she is three. They have not specifically said she has autism but she has alot of the same problems babling and having very uncontrolled mood swings. My question is are any of you guys medicated?
3:05
I was never medicated. My parents never believed in the concept of medicated me and focused strictly on different types of therapies because they were worried about the concept of me, ‘not being myself’
3:05
Comment From guest

what you thimk is best private school or public?
3:06
I think it varies. You really have to put a lot of work in trial and error. Really in talking to the schools and getting a sense where your child fits in. In my opinion, there were good parts in both when I attended public in my earlier years and private for middle and high school
3:07
Comment From Guest

what form of Autism do you have?
3:08
I was diagnosed with PDD-NOS ) Pervasive developmental Disorder Not Otherwise Specified. It is a more mild form of autism and if they don’t clearly have the traits of those with autism or Asperger’s
3:08
Comment From Michele

What did you major in and what are your future plans?
3:09
Hi Michele – thanks for asking. I majored in Sports Management and my future plans as of right now are to continue to work on my first novel, continue working on my website, and to hopefully do something in the field of marketing
3:10
Comment From Zach

Hello, Kerry! I’m Zach Posar, a 19-year-old High School Graduate with Autism. Coming near the end of this month, I will be moving to South Western Michigan College for Graphic Design. I would like some advice on how best to adjust to that kind of life.
3:11
Hi Zach – what I would say is that you really need to figure out your strengths and weaknesses and be prepared to really go through a big change in regards to your overall day. What I did when I moved to college at Seton Hall, I focused on trying to find similar routines that I would do at home that I could implement in college; such as a specific time to do laundry, to eat, etc. and so forth
3:11
Comment From Richard Hackett

Is this thing on? My comments are not being posted.
3:12
Yes it is working! We are trying to get everyone’s questions answered!
3:12
Comment From Mark DiSciullo

Hi Kerry…first off thanks for sharing your time and insights with us. I have a 4 year old son with Autism. (high functioning, non verbal, PDD) … What are your memories of being that young and do you recall any of your frustrations in trying to communicate or having family trying to understand what you were trying to say?
3:13
Hi Mark! Most of my early memories being on the spectrum include difficulty pronouncing words. I had trouble with letters and sounds and I remember being very vulnerable would always seem to have an easier time than I did. It made me less ‘out’ and in some ways avoid them completely.
3:14
Comment From Jenny

My son has PDD NOS and wants to work but doesnt want to go to college probably because his LD is so severe did you struggle with ld at all?
3:15
I had the same problem going into high school. I didn’t think that I wanted to go to college because my LD was going to hold me back. At many times growing up I was told I would never get to college- that it wasn’t a possibility for me. It was definitely hard going through a lot of experts telling me I couldn’t do something. I proved a lot of people wrong and there is a lot to be said for giving your all and accomplishing your goals.
3:15
Comment From Kelly

What kinds of symptoms do you still have? Do you think those will ever go away?
3:17
One symptom that is very apparent in my life today is being touched by other people. It has always been a difficulty for me. I would always refuse hugs and something would tell me that it wasn’t okay. It has gotten a lot better, but when it is a surprise and get a touch or feeling from someone it bothers me. That is one symptom that has stayed with me.
3:17
Comment From Julie

Do you have any anxiety or anger management problems? My 28 year old son seems to escape using video gamd
3:18
Growing up when I was 6 years-old I was referenced by a doctor as emotionally unstable and without proper therapy I would have to spend the rest of my life in a mental institution. My parents spent a lot of time talking to the different therapists I had in regards to making the sessions as nurturing as humanly possible. I think overtime I really conquered my anger management issues. I still get anxiety from time to time but it isn’t as severe
3:19
Comment From Amanda

Hi! My son just turned 7, he has the same (PDD-NOS). At what age is a right time to explain to my son that he has Autism?
3:20
Hi Amanda! I was first told that I had autism when I was 6. The difference for me was I never understood what it meant until I was 11 or 12. My parents would tell me I was autism, but it would never connect that I had something wrong until I matured a bit.
3:20
Comment From Guest

What were your social interactions like? Family, friends, etc.
3:21
My Social interactions in my early childhood were focused specifically on my family only. It was very hard making friends and building my social interactions skills because I moved around from school to school to find the best accommodations for me possible. It wasn’t until middle school where I really found my place where I got to spend a few years in a program when it became easier for me to make friends.
3:22
Comment From Josephine

How long will you chat with people asking questions
3:22
Hey Josephine – I am on until 4 o’clock but I answer emails atkerry.margro@autismspeaks.org
3:22
If a question wasn’t answered today, please feel free to email me and I would love to get back to you!
3:23
Comment From Becky

How do you keep your attention focused on schoolwork? I’m a Sophomore in University with Aspergers, and my hardest thing to deal with is keeping myself focused and not letting my attention wander to things I consider more fun. Any suggestions?
3:25
Hey Becky! I think one thing that helped me a lot was having a recorder for all of my classes and having that accommodation because it gave me more of a safety net that I didn’t have to too focused on paying attention and I can just focus on the most important now and can come back to the other stuff later. That really helped me a lot
3:25
Comment From Karen

What support did you have while in college?
3:26
I had support through a disability support services on my campus. I would say that as a learning disabled student in college I received reasonable accommodations. I had extra time on tests, a laptop in all of my classes, a recorder as I had mentioned, a note-taker(another student who would take notes for me) and a private room to take all of my exams.
3:27
Comment From Brian

Hi Kerry, I’m Brian. I’ve been diagnosed with Asperger’s Syndrome, how important did you feel it was to make friends when you were growing up?
3:28
Hi Brian – I would say that is was somewhat important to make friends when i was growing up. I was an only child and in some instances that hindered my social interactions to a point. It made it more important to focus on making friends. It really didn’t become very important until I was in middle school or high school.
3:29
Comment From Michelle H.

How did you make friends in college?
3:30
I made friends by joining as many organizations as I could within the first weeks of college. My thoughts going into college was always to put myself out there and if I did that then everything else would come easy. So I guess the best advice I could give is to advocate for yourself and try to push yourself to areas you didn’t think you could go to
3:30
Comment From Zach

Incase you didn’t get this: What’s your advice for after College?
3:32
My advice for after college would be to focus on something you know you have a great strength in and pursue those strengths. After college I knew I had a strong interest in sports and marketing. With that in mind I have tried to effectively put that into play. I have an interview with ESPN in 7 days!
3:32
Comment From guest

did kids pick on you
3:34
Bullying has been an ongoing battle for me. Through my entire education experience, from grammar school through college. In public school the kids would pick on me who weren’t in my special education classes. The kids who would pick on me were those who thought I was different. They didn’t know a lot about me and just thought I was different. What was different to them was something they didn’t want to deal with. Early on there was a lot of bullying on. My parents always told me that some people are born with hate and there is really nothing you can do about it. There is nothing wrong with you, you have to ask what is wrong with them?
3:35
Comment From Guest

Did you play any sports?
3:36
Growing up I played tennis, soccer, basketball, bowling, and chess. My parents really tried to advocate for playing sports early on. I had difficulty with motor skills growing up and they saw it as a new brand of therapy, which would ultimately help me in the long run.
3:36
Comment From Melissa

should I home school my child or do you think it best to get him out in the world?
3:37
It really varies depending on the diagnosis of your child in regards to where they fall on the spectrum. If your child is on the high end I would consider letting them go to school just because I think social interaction is very important for individuals on the spectrum to to, but if they are on the low end I would play it by ear and just see what you are more comfortable with and go from there.
3:38
Comment From Crystal

Hey Kerry! Thank you for giving your advice and sharing your personal experiences with all of us! Do you feel like Autism has made you a stronger person?! :)
3:39
I feel like I have been going through a lot of struggles in my life and they have made me who I am today. With autism I know it was hard early on especially with speech and different difficulties, but I think autism has pushed me to become a person always wanting to do more and someone who always just wanting to try for a better tomorrow in many instances
3:39
Comment From Diana

Did you ever have to deal with a major move? Perhaps to another state? What did you do to adjust?
3:40
I was born and raised in New Jersey so I never had to make a major move. In my first four years of grammar school I attended three different schools. It was hard, but it really taught me that there is a lot of variety out there. I understood different types of cultures and surroundings and I think that helped me with my early intervention even though there were difficulties that came along with it.
3:41
Comment From Alexia

When you were younger did you obsess over certain things like certain tv shows or did you have any stims that you could not control? if so have you overcome this now?
3:42
I was obsessed with Teenage Mutant Ninga Turtles and Power Rangers for a good six or seven years and it was one of the biggest obsessions I have had in my entire life. With that I became obsessed with television in general. I started to get double vision when I was about 8. There was a difficult transition from watching a lot of TV to a little bit of TV. I found other interests that helped me pass the time
3:42
Comment From Jenny

Do you tell prospective employers that you are Autistic?
3:44
I don’t tell prospective employers that I am autistic until whether I know I got the job. I do this for several reasons, but one of the main reasons is I am aware that people in the world are not very knowledgeable about what autism is and what it isn’t. I know as an adult I can receive reasonable accommodations in the workplace. If i got the job I would tell them I was autistic, but if they asked me in an interview if I had a disability(which they can’t) I wouldn’t answer
3:44
Comment From Kelli

Did you ever have any pets? I have read that some benefit from therapy dogs at home/school.
3:46
My mom actually had 9 cats and early on I was only comfortable really interacting with holding and touching cats. I definitely think there is a therapy in regards to this with parents who have individuals on the spectrum. It is trial and error, but I have a friend who has an autistic son who is scared of dogs and all animals because of the sounds they make. It really depends
3:46
Comment From Guest

You have been very helpful to us today. Do you plan on becoming an advocat for Autism?
3:47
I hope that I do become an advocate for autism in many instances. Throughout my life I have been very involved in community service and in trying to make a difference in the lives of others. As I mentioned others, if there is any way I can assist in answering emails, please let me know. That is the reason I am here today!
3:48
Comment From Patrick

Do people make fun of you with autism kerry?
3:49
Early on kids would make fun of me because they could obviously see I struggled with a few things here and there. They would act out on that and it was very hard early on, but as I got older and as I started surrounding myself with more mature individuals I noticed a difference. In college, there was a minimum of people making fun of me and people with learning disabilities in general
3:49
Comment From Michelle H.

How did you decide to start the Student Disability Awareness Club?
3:51
I started doing disability awareness because there wasn’t an organization like that on my campus. I wanted to leave my college experience knowing that individuals such as myself with a learning disability would ultimately have someplace they can feel a family/community environment from. That is why I began
3:51
Comment From Greg

Speaking of kids. What are you’re thoughts and/or plans about having children of your own?
3:52
I have thought about this a lot and I really want to have kids someday and I think i will. I don’t think this is going to happen for a while, but I have always kept myself open to the opportunity to do that.
3:52
Comment From Kelli

Do you think that they will a cure someday?
3:53
I am very optimistic. I think that with how much modern science and technology have gone there is the possibility. In the end though, I really think i have embraced having autism and being autistic and I think that as a community we should aspire to, yes it would be great to have a cure one day, BUT we need to also embrace who we are and the concept of equality
3:54
Comment From Guest

What about dating/marriage/kids?
3:55
I didn’t really have my first real relationship until I was about 19 – once I had my first relationship, I didn’t really know what the norm was for relationships at all. All I had at my disposal was what I read about and the internet. Dating has grown leaps and bounds in the past years, but it is still something I am working on.
3:55
Comment From Diana

Did you have difficulty when it came time to learn how to drive?
3:57
I didn’t get my driver’s licence til I was 18 and even then, there were a few difficulties in regards to riding after a certain speed. For about a year I could only drive in and around cities – I was very intimidated of driving on highways where I would have to drive faster. It took a lot of experience to get behind the wheel everyday.
3:57
Comment From Dorrie

what kind of support system do you have? do you come from a large family? do you have supports in a faith?
3:59
I have a great support system at home in regards to my mom and my dad who have done so much for me. In regards to faith, I’ve been a Christian ever since I was 5 years old. Many times I have questioned my faith due to my disability, having autism, and thinking how and why could this happen to me and ultimately why was someone doing this to me. Early on, I didn’t understand why but now I have a better concept of faith because everyone deals with challenges. It is really how you fight through those challenges is what faith and what religion is telling us to do.
3:59
I would just like to thank you all so much. This has been a wonderful experience talking to all of you and hopefully I can answer more questions in the future for you
4:00
My email is kerry.magro@autismspeaks.org if you’d like to reach me and check me out on the Autism Speaks Official Blog!
4:00
Thank you!!!
Categories: Autism Speaks U, Awareness Tags: , , ,

Kerry Magro to Host LIVE Facebook Chat

August 8, 2011 6 comments

Kerry Magro will be here on Thursday, August 11 at 3pm EDT to host a LIVE Facebook Chat. Kerry, an adult who has autism, is a recent graduate of Seton Hall University and active member in our college program, Autism Speaks U. He started the club Student Disability Awareness on campus to help spread awareness and raise funds for those affected by autism. Please join us as Kerry shares with us what it is like to live with autism.

To join the chat, visit our Facebook Tab!

Categories: Autism Speaks U Tags: , , , , , ,

Call it Cheating or Call it Accommodating?

August 1, 2011 23 comments

This guest post is by Autism Speaks staffer Kerry Magro. Kerry, an adult who has autism, is a recent graduate of Seton Hall University. He started the club Student Disability Awareness on campus to help spread awareness and raise funds for those affected by autism. Autism Speaks U is a program designed for college students who host awareness, advocacy and fundraising events, while supporting their local autism communities.

I’ve heard this debate to death. Where do we draw the line? Do individuals with disabilities deserve extended time on tests and other accommodations or does it give those individuals an unfair advantage versus the individuals who do not receive these accommodations? The main stream debate seems to have been focused on the SAT/ACT and quite recently involving the GRE/GMAT/LSAT’s as well.  (Imagine someone with autism with these choices!)  Where do I stand on the question? To be honest I’m not a firm believer in the concept of timed tests at all.

The reason this came up for me quite recently was I was having a discussion with a peer about how individuals with autism may not deserve extended time but other learning disabled individuals may  after all some person’s with Aspergers are off the charts intellectually. It should come down to how does your autism affect your writing skills; how does autism affect your ability to read an exam; and how does autism affect your ability to focus on an exam? While many individuals judge autistic individuals within a certain stereotype of it being a communication/social interaction disability the argument was that maybe it should be focused on those who have a stronger deficit in one of those 3 primary areas previously mentioned more apparent for individuals with Learning Disabilities such as Attention Deficit Disorder, Dyslexia and/or Attention Deficit Hyperactivity Disorder.

In both high school and college I received extended time on tests as an accommodation (in fact, in high School we were given the opportunity to take as long as we wanted/needed with no time limit). In college it was very interesting to see the reaction of my peers when I would tell them that I had extra time that they didn’t. One individual even went to the lines of saying that I was “cheating”. The hope of leveling the playing field is clearly not a belief seen by all.

So where does my opinion lie in this debate? Easy. I think the education system is broken. This is one of the many problems that our education system in theUnited Statesis dealing with. More individuals with disabilities are going to college now than ever before which includes those with autism. Does our patriotic message of “equality all” tarnish with extended time? Yes and no. Autism is a wide spectrum filled with many different types of traits and characteristics that affect us educationally. That means some will deserve this accommodation and some won’t. The problem is when you give someone permission for extended time you are only seeing that they have a disability. All the characteristics mean nothing. You either give it to all who have autism or you don’t.

What are your thoughts on this issue? Are you pro extended time or con for individuals with Autism? Thanks everyone for reading!

This is one of my Autism Speaks U related blog posts. If you would like to contact me directly about questions/comments related to this post I can be reached at kerry.magro@autismspeaks.org or through my Fan Page here.

Categories: Autism Speaks U Tags: , , , , ,
Follow

Get every new post delivered to your Inbox.

Join 1,006 other followers

%d bloggers like this: