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Autism Speaks U “Light It Up Blue” LIVE Q&A Transcript

February 17, 2012 2 comments

On Thursday, February 16, our Autism Speaks U team hosted a LIVE Facebook Q&A for college students across the country. We discussed Light It Up Blue, World Autism Awareness Day, awareness/fundraising event ideas and shared links to awareness and promotions resources. If you were unable to join,  read below for the full transcript. Visit www.AutismSpeaks.org/U for more information.

4:59
Hi everyone, thanks for joining our LIVE Q&A! We’ll begin in 2 minutes.
5:02
This Q&A is intended for college students, faculty and staff.
5:02
It is text only – you’ll interact with us via the live chat client that you are logged into now. When you submit a question or comment there will be a delay from when it appears on the chat client.
5:03
Moderating this Q&A will be Sarah Caminker and Jaclyn Renner from Autism Speaks U.
5:03
Let’s do a roll call, so we know the schools that are being represented.Enter your school name and if you’re an undergrad, grad or staff.
5:03
Comment From Amanda

NYU

5:03
Comment From Theresa

SUNY Albany- undergrad

5:03
Comment From Rosalie

Seattle Pacific University, undergrad of psychology department

5:04
Comment From John

National Univ. San Diego

5:04
Comment From Elisse Bachman

Elisse Bachman, Graduate Student (’13): Bloomsburg Univ of PA (Bloomsburg, PA)

5:04
Comment From Guest

Liberty University – Undergrad

5:04
Comment From sharon moreno

VCU, Richmond, VA – parent of undergrad

5:04
Comment From Jessica

Appalachian State – undergraduate

5:04
Comment From Guest

University of Texas at Austin – undergrad

5:04
Comment From Guest

San Joaquin Delta College undergrade in early child development

5:05
Comment From Rob and LK @ Gettysburg

Co-founders and -presidents of Autism Speaks U Gettysburg College

5:05
Comment From Lori – staff

Bridgewater State University, MA

5:06
Comment From Aspen

Arizona State University Undergrad

5:06
Comment From Susan

Remington College of Nursing, faculty

5:06
Comment From Guest

Smith College, undergrad

5:06
Looks like we have a diverse group here! If anyone comes on later, please post your name and school.
5:07
Comment From Brookie

Meredith College Raleigh NC

5:07
Comment From Katrina Mesina

Chicago Autism Speaks Office

5:07
For those new to Autism Speaks U, it is a program that supports students who
-host awareness, advocacy and fundraising events
-start chapters
-become campus ambassadors.We have 50 official Autism Speaks U Chapters across the country and work with hundreds of students who host events!
5:07
Get more information at www.AutismSpeaks.org/U or email sarah.caminker@autismspeaks.org
5:07
This Q&A will include the following:
-Explanation of Light It Up Blue & World Autism Awareness Day.
-Overview of how to get your campus to participate.
-Event ideas and links to resources.
-Question and answer session.
5:08
Before we dive into our first topic, we’d like to ask….
5:08
Did you know that Monday, April 2 is Light It Up Blue and World Autism Awareness Day?
Yes: ( 73% )

No: ( 27% )

5:09
Thanks for the feedback.For those who answered no, Light It Up Blue is Autism Speaks 3rd annual awareness campaign, where iconic buildings, landmarks and schools across the world are asked to change their lights from white to blue on April 2nd in Honor of United Nations-sanctioned World Autism Awareness Day.
5:09
April 2nd also kicks off Autism Awareness Month which is all throughout April.
5:09
So what does this mean?April 2nd is a BIG deal, and we need your help to turn everything blue!
5:09
Last year, 150 colleges and universities across the country participated in Light It Up Blue by illuminating a building or structure or by hosting events on campus.
5:10
Did your school light it up blue last year?
Yes: ( 11% )

No: ( 89% )

5:10
Here are few images of buildings that went blue in 2011
5:10

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UConn’s Wilbur Cross Building.
5:11

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UC Berkeley’s Campanile
5:11

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Colgate University’s campus chapel.
5:11

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Case Western Reserve University’s Peter B. Lewis building.
5:11

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The Great Buddah at Hyogo in Kobe, Japan. – We know it’s not a school, but this is one of our favorite pictures!
5:12
Other incredible monuments that lit it up blue last year include the Empire State Building, Niagara Falls, Sydney Opera House, Christ the Redeemer Statue, Tokyo Tower and more!
5:12
A new question for everyone…..please vote!
5:12
Is your school planning to light up a building/monument blue this year?
Yes: ( 48% )

No: ( 52% )

5:13
If you answered no, here are 5 easy ways to get your school to participate in Light It Up Blue.
5:13
1. Decide what building you want to light up blue. Determine this BEFORE you ask your school to participate, so you’re prepared when meeting with faculty and staff.
5:13
2. Contact your school’s President and Student Activities Director to ask them to participate. Do this via email or by making an in-person appointment.
5:13
Download a sample letter template that you can modify and send to your school athttp://bit.ly/liubletter.
5:14
3. See if there’s an Autism Speaks U chapter (http://bit.ly/chapterlist) or one of our national philanthropic partners (Αlpha Xi Delta http://bit.ly/azdlistings & Theta Delta Chihttp://bit.ly/tdxcharges) at your school. If so, contact them and work together!
5:14
4. Ask different academic department heads (Psychology, Education, Communication, Speech & Hearing, etc.) to work with you and the school administration to light up your campus blue.
5:15
5. Explain to your school WHY it is important to Light It Up Blue.
5:15
For example, 1 in 110 individuals are on the spectrum and a new case is diagnosed every 15 minutes. All the more reason to educate your campus about this prevalent disability.
5:16
Your campus will also be aligning themselves with prestigious schools, such as Cornell University, Johns Hopkins University, Northwestern, UC Berkeley and Penn State who lit up their campuses blue last year.
5:16
Now….HOW do you actually light up the building blue? There are 2 ways.
5:16
1. The school purchases blue bulbs from a hardware and lighting supply stores and replaces the white bulbs with blue ones.
5:17
Contact your school’s facilities manager for specific details on what type of lights you will need.
5:17
2. Place gels, filters or blue cellophane over the existing lights. These can be purchased from a local lighting supply store.
5:18
A few tips about the gels/filters…
5:18
If the installed lights are very bright white light, then it is recommended to use Roscolux #80 Primary Blue.If the lights have a medium intensity or the surface isn’t highly reflective, use Roscolux #68 Sky Blue.
5:18
The school’s facilities manager will be able to discuss this in more detail, but it’s helpful to have this information on hand.
5:18
If unable to light up a building blue there are other ways to have your school participate.
5:19
If there is an electronic marquee on your campus ask them to display the Light It Up Blue logo and announce that it is World Autism Awareness Day.
5:19

5:19
Encourage students, faculty and staff to all wear blue on April 2, or on another designated day in April. Gather everyone together, take a picture and send it to us!
5:19

5:20
Get a banner hung cross campus or near student housing to let everyone know that it’s World Autism Awareness Day.
5:20

5:20
Does your school have a well-known statue, monument or mascot? If so, decorate it with Autism Speaks U banners, gear and blue balloons!
5:20

5:20
Deck out the campus in blue. See how one school got approval to paint their campus’ tunnel.
5:21

5:21
There are SO many different ways to light up your campus blue! Be creative, think outside the box and don’t forget to send us pictures!
5:22
Now for a QUESTION….please submit a response
5:22
What building(s) or monuments are you planning to light up blue?
5:22
Comment From Caitlyn

The student center

5:22
Comment From Guest

Library, student center, and quad

5:23
Comment From Guest

Dorms

5:23
Comment From Lori – staff

I would love for the University to light up the main administrative building ~ Boyden Hall.

5:23
Comment From Rosalie

Demaray Hall Clocktower

5:23
Comment From Jessica

Mascot statue and our university’s main sign

5:23
Comment From Kimberly

Hey something I haven’t seen … let’s try and get towns or cities lite up blue that day

5:23
Comment From Rob and LK @ Gettysburg

Our main historic Building, Penn hall

5:24
Comment From Guest

I would like to light up College Hall here at Smith College, MA. It is very visible.

5:24
Comment From Theresa

I requested my school to light of the University Hall which is the first building you would see if you walked onto campus or the Campus Center

5:24
Comment From Kasia

We have a building that is a historic building here that just got new led lights so the building is always lit up and they can make them change different colors.

5:24
Comment From Susan

Will encourage everyone to wear blue April 2nd

5:24
Comment From Guest

Main building

5:24
Comment From Jasmine

The preschool I work for, the quad at the college and my house!

5:24
Comment From Kasia

Possibly our Mountaineer statue as well

5:24
Comment From Theresa

University Hall or the Campus Center

5:25
Comment From Guest

We are planning on having a block party on April 2nd. We’ll be having blue bracelets that light up, so we can do a countdown for sunset and have students light theirs up then.

5:25
Comment From Mike

We’re lighting up all the dinning halls on campus blue

5:26
Comment From Brooklyn at ISU
I love that block party idea
5:26
In addition to lighting up a building blue, host an event on April 2, or throughout the month of April!
5:26
To start, download our Light It Up Blue cards at http://bit.ly/liubcards.
5:26

5:27
Print these out and distribute the cards outside the buildings that are lit blue. They are a great way to raise awareness!FYI….we’ll be listing all available materials in a few minutes.
5:27
Event ideas can include, but are not limited to:
5:27
Bake sales
Autism Speaks wristband sale
Blue cupcake eating contest
Walk/run
5:27
Blue hair extensions booth
Spare change campaign
Zumbathon
T-shirt sales
Blue flower sale
5:28
One of our favorites….a blue cake pop fundraiser!
5:28

5:28
They’re easy to make and a big hit. Download the cake pop recipe at http://bit.ly/bluecakepops.
5:29
Or try a puzzle piece campaign.
5:29

5:29
Set up a table on campus and sell puzzle piece cards to students, faculty and staff. Whoever purchases the card, signs his/her name and display the cards in your Student Center.
5:30
Attach fact cards to blue flowers and sell them on campus throughout April. It’s a great way to raise awareness and brighten someone’s day.
5:30

5:31
For more event suggestions, download our “A through Z Event Ideas” guide athttp://bit.ly/q4Ex0w.
5:33
Another QUESTION for everyone….what awareness and fundraising events are you planning for Light It Up Blue & World Autism Awareness Day?
5:34
Don’t be shy….what events are you planning on April 2nd?
5:34
Comment From Rob and LK @ Gettysburg

trying to get the entire campus to wear blue, trying to light up a couple buildings, facts will be written throughout the ground in crayon, and we will be passin out info cards as well as wrapping trees up in blue tape

5:35
Comment From Mike

We’re having an all blue relay race on campus. $20 a team to register. The team with the most creative uniform wins a gift card which was donated.

5:35
Comment From Guest

We are getting shops around the university to post facts, make donations, and decorate their stores blue throughout the month of April.

5:35
Comment From Caitlyn

I was thinking a run/walk race and if that wasn’t possible an Autism Awareness BINGO night where the prizes would be blue

5:35
Comment From Jasmine

I plan on baking blue treats, cupcakes, cookies, cakepops and getting crafty by making blue flower headbands. Also, I plan on wearing blue as much as possible through out April! My 4 yr old son has autism and he makes my whole world a better place!

5:35
Comment From Lori – staff

My hope/plan is to get the involvement started at my campus! I love the ideas people are posting though!!

5:36
Comment From Susan

Blue Sidewalk chalk might be cool

5:36
Comment From Anna

We’re setting up a blue hair extension booth from April 2-6 on campus.

5:36
Comment From Lakesha

A scavenger hunt using puzzle pieces as clue cards, having students and faculty wear blue and having a walk.

5:36
Comment From Theresa

Aside from having a building lit up blue, we are trying to get everyone to wear blue and I was having trouble coming up with an idea but I really love the idea of the cake pop fundraiser attached to fact cards. And Sunday April 1st is our walk.

5:37
Comment From Caitlyn

Also I was thinking of painting a bunch of puzzles blue and hiding the pieces around our student center and the library and the person with the most pieces got a prize

5:37
Comment From Vicky Cid

we will be wrapping trees in blue ribbon, posting fact puzzle pieces into the ground with stakes, chalking facts onto the ground, lighting up a building blue, teaming up with our student body to hold awareness events like a blueberry pie eating contest, trivia bowl, etc… and teaming up with a local bar to raise funds

5:37
Comment From Rosalie

Will try to light up the buidling, blue ribbons around trees, mass emails to student to wear blue, and a fundraiser

5:38
Comment From Kasia

We are celebrating the entire week. We’re going to get a banner and have people sign but I’m liking the puzzle piece campaign better. Selling blue or puzzle piece printed ribbon. Selling wristbands. Giving out prizes to people we see wearing blue in support. Try to do a walk and have a game night. Having a guest speaker. On the 2nd we are also having a party (if the weather is nice) out by the building that we are lighting up blue.

5:38
Comment From Jasmine

My house will be decorated with Light It Up Blue and blue decor inside and out!

5:39
Comment From Michelle

We’re having a powder-puff football game with a few different sororities on campus. All the funds raised go to Autism Speaks! We’re getting the Greek Council & Student Government Assoc. to encourage everyone to attend.

5:39
All awesome ideas! There is one GREAT way to promote your events and that is through texting.
5:39
How many emails do you open? 1 out of every 10.How many text do you open? ALL
5:40
Send a text to 10 people. Include the event info. and ask them to forward the text on to 10 of their friends.
5:40
Create a text messaging campaign to increase attendance and funds raised!
5:41
Comment From Will

That’s a great idea! I never thought of that.

5:41
We’re excited for all you have planned.
5:41
Please remember to send pictures to autismspeaksu@autismspeaks.org of your events and campus lit up blue!FYI, since photos tend to be large, only send one photo per email.
5:42
Once your event is confirmed, we’ll send out awareness materials and a banner. Email autismspeaksu@autismspeaks.org your name, mailing address, event name/time/date/location.
5:42
A few additional tips….
5:42
1. Distribute awareness materials outside the building being lit up, so students connect the color blue to autism and Autism Speaks U.
5:42
2. Remember to take pictures! Contact your school’s newspaper or photography club and ask them take a high resolution picture of the building being lit blue and of your events.
We promote all of the schools that we receive pictures from.
5:43
3. Don’t start from scratch…use our promotional materials to get the word out!
5:43
Click the links below to download the items and print them off.
5:44
Side note: We’ll be posting the transcript from this Q&A later on the Autism Speaks U Facebook (www.facebook.com/autismspeaksu), so you’ll be able to access the links again.
5:44
Customizable Light It Up Blue Posters
• 8.5 x 11 poster- http://bit.ly/liubposter1
• 11 x 17 poster- http://bit.ly/liubposter2
5:44
•How To: Light It Up Blue Flyer- http://bit.ly/liubflyer
• This offers ideas for how you can get your campus involved.
5:44
Light It Up Blue Fact Cards – http://bit.ly/liubcards
5:45
These cards were just made for Autism Speaks U & Light It Up Blue, so use them!
5:45
Autism Speaks U Quarter Cards – http://bit.ly/quartercards
5:45
Fact & School Cards – http://bit.ly/vefknD
5:45
Autism Speaks U Handout – http://bit.ly/xfp6fq
5:46
Remember to email autismspeaksu@autismspeaks.org when your school CONFIRMS what building will be lit up and/or you have a confirmed event planned for Light It Up Blue.
5:47
We promote all the schools that participate in Light It Up Blue and want to include your campus!
5:47
We have a few minutes left, and wanted to take one more poll, before we open it up to questions.
5:47
Do you prefer attending a monthly Facebook Q&A or would you rather have a monthly conference call?
Conference call: ( 11% )

Facebook Q&A: ( 89% )

5:49
Good to know that we all love Facebook!
5:49
Now, please ask any questions about what was discussed or about the Autism Speaks U program.
5:50
We’ll share these questions, so everyone can learn from each other. If you have tips/suggestions please provide those as well.
5:50
Comment From Kim

If I’m having trouble getting my school to Light It Up Blue, who should I contact?

5:50
Kim, please contact your school’s president and/or student activities director. Download a sample letter template that you can modify and send to your school at http://bit.ly/liubletter.
5:51
Comment From Mojdeh

How long does it take to start an Autism Speaks U chapter?

5:51
Mojdeh, it can take some students 1-2 months, while 6 months+ for others. It depends on your school’s process, and if you finish all the required Autism Speaks U paperwork.
5:51
Comment From Isabel

If we’re having an event can we use the Autism Speaks U logo on our flyer?

5:52
We have a specific Autism Speaks U logo that is used for people hosting events. Please email jaclyn.renner@autismspeaks.org, explain your event and we’ll provide the correct logo.
5:53
We do ask that you submit a proof to us of ALL items using the Autism Speaks U logo before it gets printed/distributed.
5:53
Comment From John

To Kim, I have found that getting the Local TV station involved can sometimes push things in the right direction.. Be Nice…

5:53
Comment From Lakesha

I am having trouble getting my school to light it up. The presidents secretary is not letting us get through, and other faculty are not showing up to meetings we have scheduled to talk about plans

5:54
We have had students email the school President directly and explain WHY it is important to light it up blue. Explain to them what this day/campaign means. You can also CC other school administration on the email, so they are appear about it as well.
5:54
Comment From Jasmine

If I host an Autism Awareness/Light It Up Blue party at my house, will you still be willing to send banners and additional materials?

5:55
Absolutely! Email us the details.
5:55
Comment From Kasia

As far as selling t-shirts are we allowed to sell the shirts from the website or does it have to be designed that we created to sell?

5:56
You can sell shirts from the website or from other places that you purchased them. Completely up to you!
5:56
Comment From Kim

John- That’s a great idea. I was thinking of contact our school and local news paper and TV station to see if they would publicize what we’re trying to do.

5:56
Comment From Mojdeh

How to you go about getting sponsors for events? My school has said that once my chapter is approved I am given $200 for the year.

5:58
Contact local businesses, restaurants, shops, etc. Stop by stores close to campus and explain to them what a sponsor for your event/chapter would entail.
5:58
Access our sponsorship guide at http://bit.ly/o2REod.
5:58
It’s a great resource!
5:59
We’re just about out of time. Thank all of you for participating in our Q&A!
5:59
It’s fantastic to see college students so involved in raising awareness and advocating for the autism community.
5:59
Remember to check out www.AutismSpeaks.org/U for more information!
5:59
If we didn’t get to your question or you have a few more, email us at autismspeaksu@autismspeaks.org.
6:00
Thanks, and have a great night!

Boston University’s Hockey Teams Raise Autism Awareness

February 14, 2012 Leave a comment

For the past 8 years, Boston University Men’s Ice Hockey Team has partnered with Autism Speaks to raise autism awareness and compassion. They have invited families to private practice sessions, hosted meet and greets, helped build play grounds, and volunteered for the Greater Boston Walk Now for Autism Speaks. The team has publicized their involvement with Autism Speaks in media guides, blogs, newspapers, interviews, and at awareness nights in its arena.

This year, their partnership has continued to grow and the players are wearing an Autism Speaks puzzle patch on their jerseys for the entire season. This has created a whirlwind of media attention from TV, radio, and online sports reports. Both the men’s and women’s ice hockey teams have set up Puzzlebuilder fundraising pages, so individuals can purchase a $10 puzzle piece from each player. Their goal is to raise $10,000. Coach Parker also shot a Public Service Announcement about the team’s relationship with Autism Speaks and how important it is to get involved.

This weekend, the following games will be dedicated to Autism Speaks. If in the area, please attend and show your support!

BU Men’s Hockey Autism Awareness Game
Saturday, February 18, 7:30pm
Boston University—Agganis Arena

BU Women’s Hockey Autism Awareness Game
Sunday, February 19, 3pm
Boston University—Walter Brown Arena

Tickets can be purchased via Ticketmaster or at the ticket office window during the night of the game.

Autism Speaks is incredibly grateful to Coach Parker and the BU team for being so connected to the mission of the organization.

For additional information, visit www.goterriers.com/autism. Email lea.hadley@autismspeaks.org for questions regarding the games benefiting Autism Speaks.

LIVE Facebook Q&A for College Students on Light It Up Blue!

February 13, 2012 2 comments

The Autism Speaks U team will be hosting a LIVE Facebook Q&A for college students, on Light It Up Blue and Autism Awareness Month this Thursday, February 16 at 5pm EST/2pm PST. 

RSVP at http://on.fb.me/rsvpfeb or join the chat directly at http://on.fb.me/febchat.

Our team will discuss how to get started and ways to get your campus to Light It Up Blue. Plus, you’ll have the opportunity to share ideas with other students from across the country.

We look forward to chatting with you!

To see how you can get involved with the program, visit www.AutismSpeaks.org/U.

Player’s Perspective: Colgate University’s Autism Awareness Project

February 2, 2012 2 comments

The two posts below were written by Caroline and Taylor, members of Colgate University’s Women’s Hockey TeamThe team’s Autism Awareness Project will be on Friday, February 3 at 7pm.  For more information or to make a donation, visit www.colgate.edu/autism.  

As our Autism Awareness game has been fast approaching, we have grown more and more excited by the second. As a sophomore, I have witnessed the first year of our autism project, and have even higher expectations for this year. Every time I see a friend, classmate, or another athlete, I ask them if they will be attending the game. Every response is alongthe lines of, “Of course! Our whole team is coming.” It is such an amazing feeling to hear such words, because we know that the whole community is behind us with this project. Ever since my freshman year at Choate Rosemary Hall, I have been involved with autism. During the month of January and February, my Choate hockey team would skate with mentally handicapped kids every Sunday, including kids with the brain disorder, autism. I became incredibly close with a boy named David. He had a huge heart and he would always tell me stories about his teams, his family, and how we were going to win the championship hockey game. When I graduated Choate, I was sad to leave such an eye-opening project, but I was quickly uplifted when my coach, Scott Wiley, announced our autism project for 2011. Coach Wiley designed this project in honor of Kati Williams, a local teenager from Norwich, who has been an avid fan of Colgate Women’s hockey for several years and now works as the team manager. She and her family have had a huge impact on our team. Last year’s project allowed us to cross paths with Christian Mast, an 11 year old boy who has autism, but also the biggest heart I know. He and his family have grown a part of our team, and we wouldn’t be where we are today without them.   -Caroline Potolicchio, Sophomore, #2

Caroline & Taylor: Members of Colgate University's Women's Hockey Team

Caroline & Taylor: Members of Colgate University's Women's Hockey Team

Before even coming to Colgate, I had already heard wonderful reports about the success of the Autism Awareness game last year. With the game fast approaching it has been fun to be apart of all of the excitement and commotion I am excited to see all of our hard work pay off this coming Friday. I am so thankful to be a part of such a great team that truly cares for a bigger cause. Just this past weekend when we were on a road trip, a St. Lawrence parent approached me, because she wanted us to know her gratitude to what we were doing for autism. She explained that the biggest problem with this disorder is that a lot of people are not educated that it even exists or that they could potential be diagnosed with it. She stated how our game and the publicity that it receives could be responsible for changing someone’s life. I can contest to this first hand, because our biggest fan is eleven-year-old Autistic boy. Just the way that Christian lights up when he comes to a game to see us, makes all of our efforts and time worth while. I am very excited to see the jerseys that Christian designed for our game, and I am thankful that I have been able to be a part of spreading autism awareness.  -Taylor Craig, Freshman, #5

For more information on Colgate University’s Autism Awareness Project or to make a donation, visit www.colgate.edu/autism.  

Colgate University’s Autism Awareness Project

January 30, 2012 1 comment

This blog post was written by Erin Mast, the Chair for the Central New York Walk Now for Autism Speaks. She is an active member of the autism community and a mother of three boys. Erin and her family have cultivated a wonderful relationship with Colgate University’s Women’s Hockey team. For details about Colgate’s Autism Awarenss Project or to make a donation, visit www.colgate.edu/autism.

If you are reading this blog, then most likely you have some connection to autism. I have two wonderful boys, who happen to be on the spectrum. I also chair the Central New York Walk Now for Autism Speaks. Through my volunteer efforts, I was lucky enough to be involved with the first ever Autism Awareness Event at Colgate University, hosted by the women’s ice hockey team in 2011. On February 3 and the 4, the team is hosting their second event. They are planning amazing things and making such a huge difference to the members of their community. But, more importantly than that, they are changing the lives of people with autism. They are blessed with a wonderful manager, Kati, who is a huge part of the team. Kati has autism. But, it has gone further than that. My son Christian went along with me last year and it has honestly changed his life. He is now playing ice hockey with the Rochester Ice Cats, who are a member of the American Special Hockey Association. Christian was also asked to design the jerseys for the Colgate games throughout the weekend, which he did happily. The jerseys will be worn for two games and then auctioned off, the proceeds being donated to Autism Speaks and other local autism charities

If you would have asked me if an ice hockey program could have changed my life, I would have said, “Absolutely not.” How wrong I would have been. Please take a moment to check out all that the ladies at Colgate University are doing to make a difference in the autism community by going to http://colgate.edu/autism. Support the team and all their efforts! Better yet, join us at Starr Rink on Friday, February 3 at 7:00 pm. Their goal is to break last year’s record by having 1200 fans. Wear blue and get in for free!

Call Me Kerry and Never Rain Man

January 3, 2012 8 comments

This guest post is by Autism Speaks staffer Kerry Magro. Kerry, an adult who has autism, is a graduate student at Seton Hall University, and is actively involved with our college program. Autism Speaks U is an initiative designed to support college students in their awareness, advocacy and fundraising efforts.

Do you know that I was once called Rain Man by a college peer? Wow. When I look back at the reason why anyone would say something like that I think of some of the stereotypes of autism. Some think people with autism lack social interaction and others think people with autism are good at math. In the 1988 movie Rain Man, Actor Dustin Hoffman plays a character that is autistic and shows he’s good with numbers but also lacks some communication skills. Because of the popularity of this movie and mainly because autism was still very unknown during the release of the movie it became, for better or for worse, a characterization of what autism could be.

But you know what the problem is here? I’m autistic and I’m nothing like Rain Man. I’m now an adult great with verbal communication, I’m not as good in math and the differences keep piling up. You see, autism is very broad. No one diagnosis is the same and therefore when we think of Rain Man we must think of Rain Man as ONLY Rain Man. He is one symbol of the countless symbols of real people out there that have autism. I think that’s what makes our autism community great. We all are unique in our own way and we all have the opportunity to have our “voices” heard. Sometimes that voice is not a verbal one, sometimes it is heard through our art or music or some other skill or talent we have or simply a smile at our family members. Each and every individual with autism is a new and unique symbol of what autism is today and will be for our future.

So in keeping with the future…

To those who are reading…

Don’t call me Rain Man. Call me Kerry.

Don’t think I’m bad at verbal communication, because in fact in my own way I’m great at communication and I’m getting a Master’s Degree in Strategic Communication to boot.

Don’t think I’ll be ready to help when it comes to numbers, because all I’m going to do is pass you a calculator.

AND, most importantly, just look at me as me. I’m Kerry and there is only one of me. Just like there is only one of you. Let’s embrace the fact that there will only be one Kerry Magro, just like there will only be one Rain Man. We write our own stories based on the biography of life which we are all living through right now. Let’s make sure the chapters we’re writing are good ones, by living it just the way we are.

So please call me Kerry the next time you see me, because that is someone who I  was always meant to be.

I just started a new video blog called “My Autism My Voice,” and this is one of the topics I discuss. Click here for more information. This is one of my Autism Speaks U related blog posts. If you would like to contact me directly about questions/comments related to this post I can be reached at kerry.magro@autismspeaks.org or through my Facebook page here.

Autism Speaks Welcomes National Philanthropic Partner: Theta Delta Chi

December 14, 2011 7 comments

We are thrilled to announced that Theta Delta Chi, one of the nation’s oldest college fraternities, has selected Autism Speaks as its national official philanthropy.  The partnership between Autism Speaks and Theta Delta Chi will engage the thirty-three Theta Delta Chi chapters on college campuses nationwide in autism awareness, advocacy and fundraising efforts as part of our Autism Speaks U college program. Autism Speaks U is an initiative that engages college students in their efforts to support Autism Speaks.  Since its inception in 2008, Autism Speaks U events have raised over $1 million for Autism Speaks research and advocacy efforts. There are more than 45 Autism Speaks U chapters on college campuses nationwide.

We are extremely grateful to Theta Delta Chi for partnering with Autism Speaks.  With the support of its members, autism awareness will continue to grow on college campuses throughout the country.  Theta Delta Chi is the second collegiate society to partner with Autism Speaks through its Autism Speaks U program. In 2009, Alpha Xi Delta sorority selected Autism Speaks as its national philanthropic partner. Since the partnership was established, Alpha Xi Delta’s 120 collegiate chapters have raised over $625,000 for Autism Speaks.

For more information, click here to read the press release.

The Power of a Positive Attitude

December 12, 2011 2 comments

This guest post is by Autism Speaks staffer Kerry Magro. Kerry, an adult who has autism, is a graduate student at Seton Hall University, and is actively involved with our college program. Autism Speaks U is an initiative designed to support college students in their awareness, advocacy and fundraising efforts.

One of the greatest lessons I ever learned in college was the ability to lead through, “The Power of a Positive Attitude.” When I was growing up it was always difficult for me to commit to things, always hard for me to get to that next level. A big part of that was based on my attitude. I didn’t know it back then but I was blind from how my attitude was leading the direction of my life. I struggled so much back when I was a kid it was always tough for me to focus on what was needed to overcome those obstacles.

College did change me though. It made me understand the need to take my attitude that indeed dramatically changed in high school to another level again. This happened when I started to realize there’s a solution to everything. Indeed, some of these solutions are ever changing as our society evolves and gains more knowledge but like what my mom would always tell me, “there are no problems, just solutions.” This helped me tremendously. Whether it was was getting accommodations for classes or even finding a way for an individual with autism such as myself to get a masters degree in strategic communication, the solution was there for me to find.

For all those reading what I hope you take from this is that even though there is a great deal of uncertainty out there involving autism that you understand we must continue to push positivity in everything we do. There are answers out there to help our loved ones succeed, autistic or not. Getting down on ourselves will help no one in our pursuits for a better tomorrow. Our community is in desperate need of this. I know this might be harder for some but for those individuals I ask that you make an effort to lose yourself in your passions to make a difference for yourself and the lives of others.

Tell yourself, there are ways to improve my life. There are ways to help my loved ones. Make these your mantra. We spend so much time sometimes saying what we don’t have, what services we can’t find, what diagnosis’s we can’t get, that we don’t appreciate what we have today. Mahatma Gandhi said, “Be the change you want to see in the world.” Live your life with no more problems but instead strive to find the solutions. And if you can, do it with a smile. It can make a world of difference. It did for me.

This is one of my Autism Speaks U related blog posts. If you would like to contact me directly about questions/comments related to this post I can be reached at kerry.magro@autismspeaks.org or through my Facebook Page here.

Autism Speaks U Chapter Spotlight: George Washington University

December 5, 2011 2 comments

This guest post is by Courtney Hindle, co-president of the Autism Speaks U chapter at George Washington University. Autism Speaks U is a program designed to support college students in their awareness, advocacy and fundraising efforts. To start a chapter on your college campus, visit www.AutismSpeaks.org/U.

My name is Courtney Hindle, and I am a junior at George Washington University (GWU), studying political communications. I am also the current co-president of the Autism Speaks U chapter at my school.  My involvement with autism began early on, when my younger brother was diagnosed and I later became a volunteer for Hunterdon Outreach Programs in my hometown.

Courtney (center), with members of Autism Speaks U GWU.

These programs are designed to teach children with various disabilities how to play a range of sports. I remained a volunteer for the Hunterdon Outreach programs throughout high school and knew I wanted to continue my passion for helping those with autism once I came to college. When I discovered the Autism Speaks U chapter at my school I decided to join.

We have had a chapter at GWU for a year and a half now and are so thrilled with the progress we have made with this incredible organization. The overall GWU student body has been tremendously supportive of our chapter.

Whenever we are hosting events for Autism Speaks, students always stop by to talk about their personal experiences with autism and how appreciative they are for everything Autism Speaks does for raising awareness.  While many students are informed about autism, there is still a large portion of the student body that doesn’t quite grasp autism. We hope that through future awareness events we will be able to reach out to those in our community that don’t quite understand and give them a better understanding of the disorder. The mission of Autism Speaks U at GWU is to raise awareness on campus about autism and Autism Speaks while also looking for volunteer opportunities for students.

Recently, our chapter raised over $2,000 for the National Walk Now for Autism Speaks and placed second out of all collegiate fundraising teams for that Walk.  Leading up to the Walk, we organized several tabling events where we fundraised and registered fellow GWU students to participate in the Walk.

Members of Autism Speaks U GWU at the 2011 National Walk Now for Autism Speaks.

We have also sponsored an event hosted by George Washington University’s Disability Support Services,  about “composing disability.” This symposium focused on how college students with disabilities are viewed and how teachers and students can work to address problems those with disabilities have in the school system.  This was a great opportunity to have our members learn about how our school works with supporting those with disabilities and we were so honored to be one of the symposium’s sponsors.

Being a part of Autism Speaks U has been an incredible experience and our chapter cannot wait to see where we will be a year from now!

For more information about Autism Speaks U and how you can get your campus involved, visit www.AutismSpeaks.org/U or email autismspeaksu@autismspeaks.org.

Get College Students Involved with Autism Speaks U!

November 28, 2011 5 comments

Are you a college student? Do you want to raise awareness about autism while gaining volunteer hours and experience for your resume? If so, join our team at Autism Speaks U to recruit students on your campus to host events benefiting our cause and to start a collegiate chapter. Become a Campus Ambassador at any college! You do not have to be close to an Autism Speaks office. It requires a time commitment of 3-5 hours per week for 3 months during the school year.

Watch our video below and click here for more information.

Autism Speaks U is a program designed to support college students in their awareness, advocacy and fundraising efforts. If you are interested in raising awareness on your college campus, visit www.AutismSpeaks.org/U.

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