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Posts Tagged ‘Autism Speaks university’

LIVE Facebook Q&A for College Students on Light It Up Blue!

February 13, 2012 2 comments

The Autism Speaks U team will be hosting a LIVE Facebook Q&A for college students, on Light It Up Blue and Autism Awareness Month this Thursday, February 16 at 5pm EST/2pm PST. 

RSVP at http://on.fb.me/rsvpfeb or join the chat directly at http://on.fb.me/febchat.

Our team will discuss how to get started and ways to get your campus to Light It Up Blue. Plus, you’ll have the opportunity to share ideas with other students from across the country.

We look forward to chatting with you!

To see how you can get involved with the program, visit www.AutismSpeaks.org/U.

11 Myths About Autism

November 21, 2011 24 comments

You’ve probably heard lots of thoughts and ideas about autism, but we want to make sure you know what is true and what is false. Our Family Services and Science department put together 11 myths about autism to help put an end to any misconceptions. All of these are great for students to share with their classmates. If you’re in college, get involved with Autism Speaks U, a program that supports college students in their awareness, advocacy and fundraising efforts.

1. Myth: People with autism don’t want friends.

Truth: If someone in your class has autism, they probably struggle with social skills, which may make it difficult to interact with peers. They might seem shy or unfriendly, but that’s just because he or she is unable communicate their desire for relationships the same way you do.

2. Myth: People with autism can’t feel or express any emotion—happy or sad.

Truth: Autism doesn’t make an individual unable to feel the emotions you feel, it just makes the person communicate emotions (and perceive your expressions) in different ways.

3. Myth: People with autism can’t understand the emotions of others.

Truth: Autism often affects an individual’s ability to understand unspoken interpersonal communication, so someone with autism might not detect sadness based solely on one’s body language or sarcasm in one’s tone of voice. But, when emotions are communicated more directly, people with autism are much more likely to feel empathy and compassion for others.

4. Myth: People with autism are intellectually disabled.

Truth: Often times, autism brings with it just as many exceptional abilities as limitations. Many people with autism have normal to high IQs and some may excel at math, music or another pursuit.

5. People with autism are just like Dustin Hoffman’s character in Rain Man.

Truth: Autism is a spectrum disorder, meaning its characteristics vary significantly from person to person. Knowing one person with autism means just that—knowing one person with autism. His or her capabilities and limitations are no indication of the capabilities and limitations of another person with autism.

6. Myth: People who display qualities that may be typical of a person with autism are just odd and will grow out of it.

Truth: Autism stems from biological conditions that affect brain development and, for many individuals, is a lifelong condition.

7. Myth: People with autism will have autism forever.

Truth: Recent research has shown that children with autism can make enough improvement after intensive early intervention to “test out” of the autism diagnosis. This is more evidence for the importance of addressing autism when the first signs appear.

8. Myth: Autism is just a brain disorder.

Truth: Research has shown that many people with autism also have gastro-intestinal disorders, food sensitivities, and many allergies.

9.  Myth: Autism is caused by bad parenting.

Truth: In the 1950s, a theory called the “refrigerator mother hypothesis” arose suggesting that autism was caused by mothers who lacked emotional warmth. This has long been disproved.

10. Myth: The prevalence of autism has been steadily increasing for the last 40 years.

Truth: The rate of autism has increased by 600% in the last 20 years. In 1975, an estimated 1 in 1,500 had autism. In 2009, an estimated 1 in 110 had an autism spectrum disorder.

11. Myth: Therapies for people with autism are covered by insurance.

Truth:  Most insurance companies exclude autism from the coverage plan and only half of the 50 states currently require coverage for treatments of autism spectrum disorders.

If you’re interested in raising awareness in college, visit www.AutismSpeaks.org/U.

Autism Speaks U Chapter Spotlight: University of California, Irvine

November 7, 2011 Leave a comment

This guest post is by Elizabeth Montiel and Lindsey Marco, two students who established the Autism Speaks U chapter at the University of California, Irvine. Autism Speaks U is a program designed to support college students in their awareness, advocacy and fundraising efforts.

My name is Elizabeth Montiel, I am currently a fourth-year Psychology major with a History double major, and founding President of the Autism Speaks U, UCI Chapter. My Sophomore year I took a psychology class in which one of the topics was autism. When the teacher asked students if they knew what autism was, I was appalled to see only a few hands raised. A few months later I mentioned to my friend Lindsey Marco that I wanted to start a chapter of Autism Speaks U on our campus because there was a serious lack of awareness. From the beginning she was very enthusiastic about starting the club. I remember her telling me, “I don’t know much about autism, but its about time I learn.” Since then we’ve been a dynamic duo working towards the goal of spreading Autism awareness to every corner of our campus.

My name is Lindsey Marco, I am a third-year Psychology major and founding Vice President of the chapter. Trying to start a club on a campus of 200+ clubs can be difficult and definitely disheartening. Students in their college state of mind are more focused on passing classes and preparing for their future. When clubs are tabling on campus it is easier to walk by and pretend to be on your cell phone rather than risk having to talk to someone for five minutes about why you should join their club. I was one of those people a year ago, focusing only on school work and friends. When clubs tried to get my attention I would ignore them as best I could. I never really found a club that I was passionate about or that was worthwhile of my time. But one day in class, Elizabeth approached me about her dream of starting an Autism Speaks U chapter on campus. The passion for the cause was clearly evident in her eyes. I had never met someone that truly focused and dedicated towards something. Needless to say I caught the fever. It is hard not to catch that passion and dedication when you are working with Elizabeth, her personal experiences and zeal to create awareness and change is truly inspiring. Now I find myself the person talking about why you should join our chapter, Autism Speaks U at UCI.

Chapter Members at the Orange County Walk Now for Autism Speaks

Our chapter is dedicated towards raising autism awareness on our campus and throughout Orange County, offering volunteer opportunities for members in the community so that they can work one on one with children with autism, providing speakers that are involved in the field of autism to educate and inspire, and fundraising for autism research. This year we have huge plans, as a new club last year our autism awareness week in April, Light it Up Blue was a success, but this year we plan on making it even bigger, making it impossible for a student on our campus to miss. Our Light it Up Blue campaign is planned for the first week of April.

Members of Autism Speaks U UC Irvine, gather together to GO BLUE!

It was amazing to see the overwhelming response we had to the “Go Blue for Autism Speaks U” Facebook photo contest, to see our club grow from two or three people to this amazing show of support from over 1,000. This club would be nothing without the support and passion of others on campus and in our community, we are proud to say that this club has a huge heart and passion that is never in short supply.

Our chapter is currently working with Spirit League, a sports organization for children with disabilities. Their organization provides an opportunity for children to play on a sports team just like other children their age at a pace that is attuned to their needs. Members that come back from Spirit League are hooked and cannot wait to return. Currently Spirit League is playing soccer, every Saturday you can see our members running along side children offering encouragement and keeping them involved. Other community service opportunities include the Friday Night Club, Groupo de Autismo Angeles, and we are currently in the process of finding more opportunities that we can get involved with in the community.

At the beginning we had a really hard time with establishing ourselves on our campus and finding the time to make everything happen. We faced many roadblocks like recruiting members, establishing strong community relations, and finding other student leaders that were dedicated to the success of the club. However, through passion and commitment we have been able to rise and now a year later we are stronger than ever.  We have a passionate board of 14 people working with us now and as we prepare to attend our second Walk Now for Autism Speaks Orange County its amazing to see the difference that one year can make in our ability to raise a strong group of passionate student leaders.

For more information about Autism Speaks U and how you can get your campus involved, visit www.autismspeaks.org/U or email autismspeaksu@autismspeaks.org

How Autism and Facebook Work

October 10, 2011 4 comments

This guest post is by Autism Speaks staffer Kerry Magro. Kerry, an adult who has autism, is a graduate student at Seton Hall University. He started the club Student Disability Awareness on campus to help spread awareness and raise funds for those affected by autism. Autism Speaks U is a program designed for college students who host awareness, advocacy and fundraising events.

Oh the almighty power of social media. It all started for me my second semester of college. I went to a charity event near my hometown in Jersey City, New Jersey with a group of friends when someone asked me to “tag them” in a photo I took. I remember being slightly confused for a second until I was later introduced to the social networking tool of our generation called“Facebook.” It was the hip new trend that would evolve the way I communicated forever.

These memories came back to me earlier this month when I received 3 emails from parents within one week about the advantages and disadvantages of their young individuals with autism using Facebook. In the end, like many experts say, face-to-face interaction never plays second fiddle to online communication, but I think that’s easy for some to say when they are not referring to individuals with autism. I’ve been dealing with anxiety for years when it comes to face to face interaction. Between making enough eye contact, worrying about standing too close to someone, to having topics to discuss to avoid awkward silences, it in all essence becomes like a job, and that’s not fun. It’s a chore at times.

That’s why I love Facebook. I can decide to communicate with people during my free time, and when I feel the most comfortable in doing so. Between adding friends, towards starting groups with friends, playing games, instant messaging, adding photos, it gives you a new outlet to I think the main thing to remember is that most things must come in moderation. Facebook can be as much as a confidence builder in helping individuals with autism as it can be a deterrent if it’s over used (1-2 hours daily should be the max). That’s the key. Autism and Facebook work because it is a communication building tool for youth. After time it should help encourage involvement off the web. As I’ve progressed through Facebook I’ve spent less and less time on it, in exchange for hanging out face-to-face.

What are your thoughts on the subject? Do you have a loved one with autism who is just starting out on Facebook? What are your concerns? I know there are also a lot of underlying issues (cyber bullying, procrastination, etc.), so as always feel free to email me or comment below with any questions!

This is one of my Autism Speaks U related blog posts. If you would like to contact me directly about questions/comments related to this post I can be reached at kerry.magro@autismspeaks.org or through my Facebook Page here.

LIVE Facebook Q&A for College Students!

September 19, 2011 Leave a comment

The Autism Speaks U team will be hosting a LIVE Facebook Q&A for our chapters and student leaders this Wednesday, September 21 at 8pm EST/5pm PST.

To join the chat, click here 

This is the perfect time for Autism Speaks U newbies or veterans to ask our team questions about the program, what awareness and fundraising events to host in Fall and how to start/maintain a chapter.

We look forward to chatting with you!

To see how you can get involved with the program, visit www.AutismSpeaks.org/U.

Watch the “Autism in Academia” Live Video Chat!

September 13, 2011 2 comments

More and more young adults on the autism spectrum are looking forward to higher education. Login to CollegeWeekLive tomorrow at 4pm EST to watch “Autism in Academia” featuring Lisa Jo Rudy. Learn how to prepare for the college experience, where to find autism-friendly colleges, and how to access special needs services at the school of your choice.

Lisa Jo Rudy is a professional writer and works with museums, community organizations and families to build access, inclusion and opportunities for people affected by autism. Lisa is also the mother of a fifteen-year-old son with autism and will be speaking at CollegeWeekLive’s Diversity Day.

“Autism in Academia” is part of a larger program called Diversity Day. Admissions reps in charge of diversity and multicultural recruitment from 40 universities across the country will chat live with students of all race, religion, gender, sexual orientation, age, nationality, or disability to address the unique opportunities available on their campuses.

Sign-up now. It’s free and easy. CollegeWeekLive will also giving away a $1,000 scholarship!

To get involved with Autism Speaks college program, visit www.autismspeaks.org/U. Autism Speaks U designed for college students who want to host events, start chapters, volunteer and/or become campus ambassadors! 

Be Who You Are

September 12, 2011 4 comments

This guest post is by Autism Speaks staffer Kerry Magro. Kerry, an adult who has autism, is a graduate student at Seton Hall University. He started the club Student Disability Awareness on campus to help spread awareness and raise funds for those affected by autism. Autism Speaks U is a program designed for college students who host awareness, advocacy and fundraising events.

Have you ever had that day when someone calls you or one of your loved ones awkward, odd, or weird? I think I’ve been called all of those words every year since I was nine. What do these words even mean now anyways? I think the easiest way of thinking of this in today’s society is someone who is away from the “norm.” That one person who does something that doesn’t seem “right.” Society has set us up with a standard that is set for us to judge without reason.

This standard has hurt people with autism for decades. When I was diagnosed with autism at age 4, I would soon have some tendencies that would be far different than the established norm. I was going to have a hard time with eye contact, some difficulty with my motor skills and also would have a hard time speaking in front of crowds. None of this makes me any less of a person as the next. I don’t want the pity that some grant for having a disorder either. I just want to know that at the end of the day I’ll be allowed to be me with no judgment, no questions asked.

That’s why when I write this blog I encourage everyone reading, to lead by example by taking action. If we let ourselves and our loved ones be who they are proudly, we defy and ignore the criticisms of others and hopefully lead to a better, more aware world; autism and all. As a college graduate with autism, does this mean I may have some difficult times from others ahead? You bet. It sure beats the alternative though of not being who I want and was meant to be, and that someone is me.

*What things have people said about who you are you that make you different from the norm? Feel free to comment below!*

This is one of my Autism Speaks U related blog posts. If you would like to contact me directly about questions/comments related to this post I can be reached at kerry.magro@autismspeaks.org or through my Facebook Page here.

College Fashionistas Support Autism Speaks U

September 1, 2011 Leave a comment

The Autism Speaks U Chapter at the University of Michigan’s co-founders (Maressa Criscito & Alex Lewisohn) interviewed collegiate entrepreneurs and twins, Samantha and Morgan Elias. These 21 year old sisters are the brains behind The Vintage Twin. Samantha, a member of Autism Speaks U at the University of Michigan, and Morgan, who attends New York University, recently hosted a trunk show on August 1 in New York City, donating over $550 to Autism Speaks.

Owners of The Vintage Twin with Autism Speaks U Co-Founders at Trunk Show Benefiting Autism Speaks U

The Vintage Twin, which was founded and self-financed in August 2009 with a trunk show in the their mother’s basement, is now a burgeoning brand; the first to use only recycled materials in creating one-of-a-kind original designs. Recreating vintage clothing, home goods, and accessories, TVT is a retail revolution offering people a style that is all their own.

1. Do you have a personal connection to autism? If so, please explain.

Our eldest sister is a speech pathologist and we have each shadowed her in working with children with autism. More close to home, our first cousin has asperger syndrome and we have watched him grow and overcome the hardships of staying in a specialized mainstream school.

 2. Why do you feel it is important to host events for Autism Speaks?

Autism affect MILLIONS of people on varying degrees and the numbers only seem to be growing.   Awareness must be raised, but more importantly, funds must be raised to better the quality of life for those who live a lifetime with it, rather than many medicinal fundraisers that are focused on fatal diseases.

3. How did you become involved with the Autism Speaks U program?

My best friends (Maressa & Alex) started it at The University of Michigan!

 4. What other events have you hosted for Autism Speaks or other charities in the past?

We have previously donated to Project Kids Worldwide.

 5. Why is it important for college students to be educated about autism?

Autism is EVERYWHERE and not going anywhere fast. We need to be aware, able to coexist and assist people in assimilating despite their social challenges. 

6. What kind of impact can the fashion world have on spreading autism awareness?

As the brand grows and we continue to have events benefiting Autism Speaks U, our fan bases can combine to not only raise money for the cause, but also to spread awareness within the vast world of fashionistas and fundraisers.

7. What advice do you have for other students who are also interested in becoming entrepreneurs?

START. Whether it’s selling out of your closet or opening a store, start now!

8. What are your future plans for your business?  Any specific designers/trends or events your fans should keep an eye out for?

Our website is going to be an awesome destination for affordable unique wears for ALL.

 9.  What was the biggest challenge that you faced during the creation of your business?  How did you overcome it?

The website. We raised enough money to afford creating an in-house studio that will fill our website with hundreds of items daily.

10)  Would you be interested in hosting other events with Autism Speaks in the future?

DEFINITELY- namely in Ann Arbor and also online. Last month,  supporters were able to save 10% on their purchase with 10% of the  proceeds  going back to Autism Speaks U.

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College students, faculty and alumni can get involved with our college program, Autism Speaks U, by visiting www.AutismSpeaks.org/U. Autism Speaks U works with college students who host awareness, advocacy and fundraising events, while supporting their local autism communities.

Individuals with Autism in College

August 22, 2011 11 comments

This guest post is by Autism Speaks staffer Kerry Magro. Kerry, an adult who has autism, is a recent graduate of Seton Hall University. He started the club Student Disability Awareness on campus to help spread awareness and raise funds for those affected by autism. Autism Speaks U is a program designed for college students who host awareness, advocacy and fundraising events, while supporting their local autism communities.

A big part of our autism movement is surrounded by the numbers. No matter the organization, a standard that seems to be advertised is in regards to the prevalence of autism in today’s society. It seems like any brochure you open these days will tell you that….

  • 1 in 110 will be diagnosed with autism.
  • 1 in 70 boys will be diagnosed with autism.
  • A new case is diagnosed almost every 15 minutes.

Over the past couple of months I have transitioned to focusing more on the numbers for adults with autism. The problem is we still have a great deal to decode. I have looked through countless websites to try to find a standard but it’s been very challenging. I then decided to just focus on one area which was how many individuals with autism go to college/receive a college degree.

Parents often ask me how someone with autism can prepare for college and how many individuals with autism actually attend college. The number I usually tell them is that 1 in 1040 students was the norm of how many individuals on the autism spectrum attended my alma mater, Seton Hall University (5 autistic individuals out of 5200) because that’s all I know. My hope is that the more we learn about these numbers the more we will be able to assess how much funding should be provided for adult support in the schools. We already have estimates for unemployment (autism spectrum disorder ranges anywhere from 75-98% per diagnosis on the spectrum) adults still living at home (about 80%) or adults who will be on the spectrum in the next decade (estimated around 500,000).

Do you think numbers for “Autism in College” should be addressed more? What are your thoughts on the steps needed to see this become a reality?

This is one of my Autism Speaks U related blog posts. If you would like to contact me directly about questions/comments related to this post I can be reached at kerry.magro@autismspeaks.org or through my Fan Page here.

17 Wishes from an Adult with Autism

July 18, 2011 33 comments

This guest post is by Autism Speaks staffer Kerry Magro. Kerry, an adult who has autism, is a recent graduate of Seton Hall University. He started the club Student Disability Awareness on campus to help spread awareness and raise funds for those affected by autism. Autism Speaks U is a program designed for college students who host awareness, advocacy and fundraising events, while supporting their local autism communities.

If I had to make a list, this is what I would wish for the Autism Community…

1. I wish that acceptance was easier to come by.

2. I wish that loving one another was always on our mind.

3. I wish that an “early diagnosis” remains a high priority.

4. I wish that people would stop calling autism a disease.

5. I wish that communication becomes easier for everyone with autism. We are trying.

6. I wish that we find more treatments to enhance the lives of people with autism.

7. I wish that insurance for autism gets passed in all 50 states.

8. I wish that the government would understand the need for services for the autistic in schools.

9. I wish that autistic individuals can one day live their lives independently.

10. I wish that I was capable of helping more.

11. I wish that people would stop using the words “socially awkward” and “retard” in a negative way.

12. I wish we raise awareness for all with disabilities. Those of us living with a disability are doing our very best.

13. I wish for those who are or love someone who is on the spectrum that you know that we are moving forward every single day.

14. I wish that all of our voices can be heard.

15. I wish everyone will follow the words of one of my favorite performers of all time, Michael Jackson who sang in his song called, “Man in the Mirror”, If you want to make the world a better place, take a look at yourself and make a change.

16. I wish you all knew me when I was 4, when I was diagnosed with autism. For a long time I was lost. Scared of myself and what I was capable of. I never thought I would be where I am today… but I did it. I graduated from Seton Hall University this past May and will be going to Graduate School for Strategic Communications in the fall to boot. So for my final wish:

17. I wish for you all to always live life with hope. I wish that your days are filled with hope for a better tomorrow, and for today no matter how dark life gets sometimes that you realize you’re never alone. I wish this for you…

* I encourage everyone in the Autism Community to remember that we must come together as a true community to put our best foot forward. I know we all have a lot of wishes out there so let’s avoid distractions and focus on progress so we can all, “Make a Difference”. You can also find this article in the SFGate here.

This is one of my Autism Speaks U related blog posts. If you would like to contact me directly about questions/comments related to this post I can be reached at kerry.magro@autismspeaks.org or through my Fan Page here.

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