This is a guest post by Peter Bell, the executive vice president for programs and services at Autism Speaks. He oversees the foundation’s government relations and family services activities and also serves as an advisor to the science division.
For many of us in the autism community, April has become our holiday season. This year, one of the many gifts we received was extensive autism coverage on the popular CBS day time show “The Talk.” It’s probably no secret who played Santa Claus for us behind the scenes. It was none other than Holly Robinson Peete, co-host of “The Talk,” co-founder of the HollyRod Foundation and Autism Speaks Board Member. Holly and her husband former NFL star Rodney Peete are also the proud parents of four beautiful children including RJ who is 13 years old and has autism. “Santa Holly” started planning the autism series months in advance which is obvious when you see all the segments they produced for the show’s Autism Awareness Month.
Holly and her co-hosts kicked off the month on April 1st with a beautiful video about the Peete family’s personal journey with autism. After an emotional chat with her fellow cast members, Holly invited me to talk about what families can do following a diagnosis. We discussed the basics of autism, what it is, what causes it, and what resources are available to families including Autism Speaks’ 100 Day Kit. At the show’s conclusion, audience members were given special blue t-shirts from “The Talk” and many were brought up on stage. After Holly and co-host Julie Chen urged President Obama to light up the White House blue, the ladies of “The Talk” did a countdown which culminated in transforming the set to blue in honor of Autism Speaks Light It Up Blue initiative.
The second installment of “The Talk’s” Autism Awareness Month took place on April 8th and featured an Autism Daddy Roundtable with “Criminal Minds” star Joe Mantegna and Holly’s husband Rodney Peete. The conversation about a dad’s perspective on autism continued with Jimmie Smith, a single father from Baton Rouge who raising two children on his own. He described coming to terms with his son’s autism diagnosis. Although mothers are most often the parent who takes primary responsibility for caring for a child with autism, Holly wanted to shine a light on the important role that fathers can and should take, a view not often portrayed.
On April 15th, Holly introduced us to two amazing teenagers who have overcome the challenges of autism to show the world their remarkable talents. Carly Fleischmann shared her remarkable story that captured the world’s attention when, after never speaking a word, she found her “voice” through the keypad of her computer. We then met 19 year-old Winfred Cooper and his father who shared Winifred’s incredible story accomplishing a 67 yard touchdown in high school football game. The show’s autism segment ended with pediatrician Ricki Robinson, MD offering real and practical solutions about transitioning through the teen years. Dr. Robinson is the author of Autism Solutions: How to Create a Healthy and Meaningful Life for Your Child and serves as a member of the Autism Speaks Scientific Review Panel.
The fourth and final autism segment took place on April 22nd. “Amazing Race” teammates Zev Glassenberg and Justin Kanew joined Holly and Julie to chat about doing another season as well as the triumphs and challenges they faced with Zev having Asperger’s Syndrome. The next segment featured YouTube sensation Jason McElwain (J-Mac) who shared his inspirational story from 2006 when a high school basketball game changed his life forever. Accompanied by his mom Debra, Jason talked about his life today and his hopes for the future as an adult with autism. Finally, Holly and Leah invited me back to talk about the services adults will need and what society can do to help people with autism and their families lead more fulfilling lives. This afforded me the opportunity to highlight the recently introduced Autism Speaks Transition Tool Kit.
Perhaps the best segment of the month is one that most people haven’t seen. After the third show featuring the amazing teens with autism, Holly shared her gratitude with the studio audience while the cameras were still rolling. Throughout her “autism journey,” Holly has always taken a strong stand for autism. She genuinely believes in those who live with autism and wants to shine a bright light on their special talents and skills. She believes in listening to people with autism and helping their families care for them as best as possible. In addition to being remarkably talented, Holly is one of the most compassionate and generous celebrities in Hollywood. On behalf of the autism community, thank you “Santa Holly” for giving us the greatest gifts we could ever ask for – believing in our children and advocating for their futures.
CBS‘s “The Talk” will profile inspiring stories of teens living with autism, including 16-year-old Carly Fleischmann. Although Carly can’t speak, this incredible young woman has a lot to say. She tirelessly advocates for others with autism by communicating her feelings and emotions on an iPad with revolutionary apps such asproloquo2go, using her inspirational Web site and blogs to “speak” to the world.
Check your local listings for the time near you!
At the show’s conclusion, audience members were given blue “The Talk” t-shirts and many were brought up on stage. After Holly and co-host Julie Chen urged President Obama to light up the White House blue, the ladies of “The Talk” did a countdown which culminated in transforming the set from red to blue in honor of Autism Speaks Light It Up Blue initiative.
On Friday, April 8 the next autism segment will highlight fathers including Holly’s husband, former NFL player Rodney Peete and actor Joe Mantegna, start of the CBS hit show “Criminal Minds.” The following Friday (April 15), the segment will showcase special teens with autism who have overcome challenges. A final segment on April 22 will focus on the transition from adolescence to adulthood. Bell will return as a guest along with former high school basketball phenom Jason McElwain who is now 22.
CBS’s popular talk show “The Talk” will feature the first of four weekly segments about autism on Friday’s show. April 1 is not only the eve of World Autism Awareness Day, but it is also the first day of Autism Awareness Month. Holly Robinson Peete, co-founder of the Holly Rod Foundation, Autism Speaks Board member, and co-host of “The Talk” will share her personal story about when her son RJ was diagnosed with autism. Autism Speaks Executive Vice President Peter Bell will then join Holly to discuss autism and what families can do after a diagnosis as well as talk about World Autism Awareness Day and the Light It Up Blue initiative.
Read a release from CBS describing the whole series here.
Check your local listings for the time near you!
‘The Amazing Race:Unfinished Business,’ returns to a cast of familiar faces looking to make good on their mistakes. Tune in for the premier, Sunday February 20, 8/7 EST.
Zev and Justin’s friendship started six years ago when they were working as camp counselors and the two have been very close ever since. Zev has Asperger’s Syndrome, but they don’t let it affect their relationship. They share friends and interests, and the friendship is as mutually beneficial as any could be.
For more on Zev and Justin, check out their ‘Amazing Race’ Biography.
Are you excited about the upcoming season of Amazing Race?
Justin Kanew: We are really excited!
How are you guys connected?
J: We both went to Greylock Camp in Massachusetts as kids and was a little older…
Zev Glassenberg: You are still older than me…
J: (Laughs) I came back as a counselor and we ran a world-class flag football program together.
Why did you choose to come back?
Z: Well, we wanted to come back for redemption and also for an amazing adventure.
J: I was literally praying for the opportunity to return since Camp Zobio when we lost the passport.
What makes you guys such a good pair?
J: Zev says he’s the amazing and I’m the race!
What is the game plan for this season?
Z: Well we just want to win and to have a good time and compete the best we can. We just will rely on each other and not on other people.
J: We also want to keep up a good attitude and just to be good to each other. We do not trust anybody! Just wanted to make sure we were standing on our own feet
Zev, how does having Asperger’s Syndrome affect you as a player in Amazing Race.
Z: The first time I was going into this brand new world and didn’t know what to expect. I had to change my routine and that was bothersome and worrisome. This time I knew more of what to expect, but it was still worried.
What is it like being back on The Amazing Race?
Z: Amazing. I lived my dream twice! I had a blast! I want to do it again and again and again. They should just have us on every season!
J: Ha, Ha, Ha!
So what are your day jobs?
Z: I’m an aspiring actor.
J: I work for National Lampoon making movies. It is a fun place to be.
What are your hobbies and interests?
Z: Reading books.
J: And rooting for the lakers
Z: I’d say that’s an interest.
J: Explain your art
Z: I do stuff with whole punches. I use a special paper and punch holes then glue whole punches into a design.
We have to ask, did you hang onto your passports this time around?
Z: We were checking every 5 minutes.
J: I thought we’d get through one interview without that question! Zev had permission to ask me every 5 seconds. We were constantly checking!
Z: It was like a newborn baby. We wanted to make sure it was there and alive!
Catch up with the guys on Twitter at @zevglassenberg and @justin_kanew