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Hacking Autism 9.13.11 Chat Transcript

September 14, 2011 5 comments

On September 13, the second Hacking Autism LIVE Chat was held, where members of the Advisory Board discussed ideas submitted by the community.

The Hackathon event will bring together Hacking Autism’s Advisory board, experts in Autism, technologist and people on the spectrum. This catalyst event takes the ideas submitted to the Hacking Autism website to a multidisciplinary group to actually create applications for people to use free of charge.

7:00
Good evening!
7:01
Welcome to the second live chat for the HP Hackathon! This chat is text only – you’ll interact with us via the live chat client that you are logged into at different times. Your chat host tonight is Marc Sirkin, Chief Community Officer at Autism Speaks and Alison Dyer, Social Marketing Manager also at Autism Speaks. We have a special group of our advisors also on the chat with us – and we’ll introduce them in a a few moments.
7:01
Comment From Cindy 

Good evening! I’m glad to be at this chat!

7:01
The Hacking Autism Hackathon has pulled together a volunteer group of software developers with leading autism specialists to work together to develop groundbreaking, touch-enabled applications for the autism community.
7:02
Tonight’s chat is all about improving a few of the best ideas and creating a conversation with you about this program. This is the second and last of our scheduled chats. 
7:02
In mid-October, we’ll be at HP offices for the live hackathon, taking the best ideas and matching them up with volunteer development teams to actually build the apps you’ve submitted! So far, we’ve had more than 250+ ideas submitted! Thank you! 
7:03
Have you submitted an idea to http://www.hackingautism.org?
Yes!

 ( 22% )

No, still thinking

 ( 78% )
7:04
The first part of the chat will be fairly structured… we’ll show you 3 separate ideas, and for each idea ask you a few questions and then start to brainstorm on how to improve the idea. More on that in a moment… Meanwhile, I’d like to briefly let you know who you’ll be interacting with tonight from our advisory committee… 
7:05
Phil McKinney – HP PSG CTO 
Jim St. Leger – Intel 
Chris Chirco – Doug Flutie Foundation 
Jennifer Leighton – Spaulding Outpatient Center for Children Read more about all the committee members here:http://hackingautism.org/our-mission/our-team
7:06
Ok, great… here’s how tonight’s chat will work: First, we will present an idea and ask via interactive poll if it is clear what the idea is… the ideas you will review are unedited submissions from the community (that’s you!). Please excuse typos and grammar – I’m sure anyone submitting an app idea was so excited about it that they were more focused on the app than spelling things correctly! 
7:06
Then, we’ll ask for feedback and input on the idea (i.e. do you like it, or not) via the comments. Please note that we’ll try to get to everyone’s questions and comments but there are a lot of folks online with us so be patient!Finally, we’ll brainstorm a little on some good features – just submit your ideas and questions when we prompt you and we’ll share responses with the group as we go… 
7:07
Ok… are you ready? Here’s the first idea…
7:07
Idea #1 Stranger/Danger game
7:07
I would love to see an app(s) that would help teach basic safety skills like “stranger danger”- crossing the street- bike safety- water safety- fire safety….all these skills and drills we teach neurotypicals but not special needs kids focused! I think I would use a method of visual modeling…like little strories of real kids making choices and modeling the specific skill! My son has learned so much from video modeling but I haven’t found any resources for safety skills. 
7:08
Do you understand the basic concept?
Yes

 ( 100% )

No

 ( 0% )
7:08
Comment From Richard Tyson

I like that idea

7:08
Comment From Joanne

GREAT IDEA!! NEEDED!

7:09
What are some of your thoughts on this idea to make it even stronger?
7:09
Comment From julie hudy

great. video and maybe just picture with the action.

7:09
Comment From awilda

so simple and logical

7:09
Comment From Guest

I feel that would be great. Just last week my son ran out into the middle of the street and cam within inches of getting hit. He had no idea what happened just knew that I was screaming

7:09
Comment From Jonathan Ezor

Allowing parents to customize/add situations unique to their environments (city/suburban/rural/etc.)

7:10
Comment From Cindy

I would like to see it be animated, colorful, and interactive. My step son loves seeing vivid images and that captures his attention. I wouldn’t want him not to want to use it because its dull.

7:11
Comment From Peggy

what about children who can’t understand a video?

7:11
Comment From Rachel

Definity the idea from Jonathan! My son would definitly connect better if he was familiar with the area in the situation!

7:11
Comment From julie hudy

maybe even taking picture to personalized it further.

7:11
Comment From Joanne

Keep it Simple get the main idea across… don’t go over board. they dont need it to be overly stimulating to get the point acroos. I like J.Ezors idea partents can pick the isues

7:11
Peggy – great question. Visual interaction could be broken down into single images perhaps?
7:12
Perhaps as kids get older we can have different or age appropriate graphics and images. Seems like a great idea to be able to use the device camera to even further customize things.
7:12
Comment From Autism Help

a capability to insert their picture and become the character in the app. “game”.

7:13
Comment From julie hudy

we used picture boards – that kind of thing worked great.

7:13
Comment From Jerry Scott

It would be good to have an interactive feature with some build in (or external) reward function. That is the child is presented with a situation and is rewarded for making the safe choice.

7:13
Jerry – baic gaming concepts are good, but we’d have to be careful about some kids getting over excited about the rewards!
7:14
Comment From Guest

are these apps going to run on PC’s or tablets?

7:14
Guest… totally depends on what apps we pick and who develops them!
7:14
Comment From Joanne

Yeah Like the Wii where we can create our own person! And I like age approperate too.

7:14
Comment From Donna

It could be as simple as teaching basic boundaries to start.

7:15
Comment From Danny

A reward system seems like a good idea, however, it might discourage the child if she doesn’t get a reward.

7:16
Joanne – great point and.. Mii’s do have basic facial features and expressions. Hmmm!!!
7:16
Comment From Tim Chafos

Rewards, even tokens, work great with our son. Would definitely like to see them in an app.

7:16
Comment From Rachel

My son would just get mad if he didn’t get the reward and probably give up on the game. I like the idea of a wii game though, my son loves the wii and it could be like a game where you move up levels.

7:17
Comment From Joe

Is there a way to build the app so parents have a choice between vivid and monochromatic for those that respond better to more lower sensory stimuli

7:17
OK!! Great stuff.. let’s go on to idea #2…
7:17
Idea 2 Fitness/Therapy tracking app
7:17
I’d love to see an app that helps people with autism track fitness efforts and nutrition tips. PWD are in worse shape than the general population. What is family history- BMI- weight- age- cholesterol? What is their regimen or routine (walks- running- swimming etc). How often? Outcomes? What inclusive programs support them? Meals? Calorie intake?
7:17
Do you understand the basic concept?
Yes

 ( 98% )

No

 ( 2% )
7:17
Comment From Jerry Scott

ref rewards. It should just build on basic ABA principles. Repetition and rewards is how we all learn, and especially our lower functioning kids won’t get it any other way.

7:18
What are your thoughts/idea on this fitness idea?
7:19
Comment From awilda

stay active, sports,getting out in the community.

7:19
Comment From Jonathan Ezor

Remember that many kids on the spectrum are on special diets for whatever reason. If you’re including recipes/food lists, they need to reflect those possibilities.

7:19
Comment From Julie

for my son to engage it has to have some music or animated with relevant sounds – if it is too static or just voice over he won’t engage with it

7:19
Is anyone using existing fitness platforms like Wii or XBox games?
7:19
Comment From Guest

In wii fit, more exercises are opened up as you master certain levels and my daughter finds that rewarding and she love creating mii’s for everyone she knows

7:20
Comment From Sherri

Yes, have tried both of those.

7:20
Sherri – how did they work?
7:21
Comment From Autism Help

Expose the child to various activities and gather info from ther on what the child enjoys. Then cultivate that passion so that it doesn’t become just for fitness purposes but also a learning experience.

7:21
Comment From Cindy

I use Wii Fit, and my step son has a very hard time using programs like that and gets frustrated so I don’t use it.

7:21
Comment From Rachel

My son loves the wii fit, something like that would be great.

7:21
Comment From Sherri

Son can keep up for awhile, but then gets board with them.

7:21
Comment From Donna

I think it is a great idea even for a little older kids especilly for portion control , choices,and exercise !!

7:21
Comment From Jonathan Ezor

We have had success making exercise one of the activities on our son’s afternoon “activity schedule.” It becomes part of the routine.

7:22
Comment From Tasha

ya but what about those on the spectrum that are extremely low functioning and would have to use the most simple and basic apps available…i work with 4 autistic boys, all on diff levels of the spectrum..for one of the boys, this program might work better for me as the caregiver, since i honestly dont think he would be able to grasp the idea of any sort of device as this, however the rest of the boys have already started using communication computers in school and they work fantastic

7:22
Tasha – great point, what a huge challenge.
7:22
Comment From Julie

obviously very different for each child – wii is an option as at home it can be controlled with timers to limit and other visuals

7:22
Comment From Jonathan Ezor

Is it possible to tie a pedometer or other metering in via Bluetooth Serial Port Protocol for data gathering?

7:22
Comment From Donna

It is the difference of how functioning the child is it needs to be looked at in all ranges.

7:22
Jonathan – wow, cool idea. Fitbit is a device like that, isn’t it?
7:23
Comment From Rachel A.

My son loves the Wii and he, too, likes making miis of everyone he knows.

7:23
Comment From Donna V

I use a Wii in my classroom and the one game that I have found ALL of my students love, are the dance games…very basic movements, I have not had a student yet who has not enjoyed it. Very basic, enjoyable music, great for all levels I find.

7:24
Comment From Jerry Scott

Tasha – I think having a fitness app for the caregiver is a great idea. Especially for one’s with multiple PWD to take care of. Tracking who is eating what and exercising how must be a big challenge.

7:24
Comment From Donna V

It would be great to see in an app a feature where you can set up a set amount of work time and then a set break time where it beeps to come back.

7:24
Comment From Jonathan Ezor

Nintendo added a Pedometer (aka Pokewalker) to Pokemon Heart Gold and Soul Silver. Using it opened up levels, new Pokemon, etc. Something like that would be good.

7:25
Comment From Jeremy

I think the games that allow multiple students to play are best. Address social skills as well that way.

7:25
Comment From Cindy

I LOVE the pedometer incorporated to a game and unlocking levels etc.!

7:26
Comment From Jeremy

My students also really like MeMoves – fitness/movement with music!

7:26
Comment From Autism Help

Go for a walk and give a child an old camera. He can take pictures along the way. Then you have something to talk about afterwards.

7:26
Autism Help – what a neat idea.
7:27
Comment From Cory and Kristy

Our daughter works well with music if it has music then whatever it is has her att.

7:27
Comment From julie hudy

Austism help – love the camera idea.

7:28
Comment From Jeffery

In my class we use touch screen computers. They are great!! My students with autism has progressed greatly.

7:28
Comment From Donna

I love the walk idea,me and my son go hiking together it works great !

7:28
Excellent discussin on fitness apps… let’s move on to idea #3…
7:28
Comment From Rachel

Autism help, we do the camera thing already and he loves it, and I love seeing the world from his point of view!

7:29
Idea 3 Advanced calendar/schedulingApp to help you fill free moments in their calendar. Children/parents may put in activities available at home/outside and the app may suggest other activities (at home/outside/PC) time indicationI need a simple calendar app that is separate from the included calendar app on the iPad to use for my son. He has very little sense of time- and he needs an organizer that is simple to use with very little extra stuff with it. We have tried using a paper calendar but with little success. As much as he loves anything on a screen- I think he would be much more likely to use it on the iPad (or an iPod touch if I’m ever able to get one for him). I have searched and searched- and there is nothing out there like this.I’d love to see an app that teaches and tests calendar concepts (days of the week- months of the year- how to read a calendar).
7:29
Do you understand the basic concept?
Yes

 ( 97% )

No

 ( 3% )
7:29
What are your thoughts on this idea?
7:30
Comment From Joanne

great idea

7:30
Comment From Rachel A.

How about a little bell sound when it’s time to go somewhere/do something on a certain day?

7:30
Comment From Julie

would see benefits from such an app – but only if somethings had parent/carer control to be moved/deleted – my son is too good at deleting things he doesn’t liek

7:31
Julie – great point
7:31
Comment From charlene

i would love to see this kind of app, def since my son is very digital and computer oriented

7:31
Comment From julie hudy

Hallelujah – calendar with spots to put pictures of whats happening each day. I used to print them out and make my own calendar!!!

7:31
Comment From Cindy

I think this would be great for older children. Therefore I cannot opine. My 6 year old would have no interest in this at all. However, if proven to work, I’m sure we could incorporate it into our daily routine.

7:31
Comment From Donna

I would like to see an app like that via. voice recording ,then reminds them of it later .

7:31
Comment From Jeremy

yes..the ability to “lock” the app would be nice..like in Grembe’s iReward

7:31
Comment From Jonathan Ezor

Even the high-functioning kids need prompting during school, ideally silently. (e.g. at beginning of period take out materials; 5 minutes before end write down homework)

7:31
Comment From Jerry Scott

My daughter uses a visual schedule at school to help her know what activities comes next. That functionality in a app, tied to alarms and real times would be nice. The droid rings, she looks at it and sees a picture of what she is supposed to do next.

7:32
Comment From Jeremy

Also the concept of changes in schedule would be nice to have built-in

7:32
Comment From Jeremy

Jerry Scott – that sounds more like task analysis than a calendar

7:33
Jeremy – there are a bunch of concepts wrapped into this, you are right!
7:33
Comment From Jonathan Ezor

It would also be great if parents/teachers/caregivers could insert and edit reminder elements remotely, and if the app could incorporate an achievement tracker (i.e. “Did you do this? YES/NO) for both incentivizing and data collection.

7:33
A way to input changes to let users know would be crucial
7:33
Comment From Valentino

Daily life skills !!!!!!

7:33
Comment From Rachel

I homeschool, and I think that if I could record my voice or his grandmas voice telling him it’s time to do something, he would love it, and incorporate pictures of what we are doing that day too!

7:34
A block on the app is key also for the caregiver, as well a way to allow users to create their own schedules to give them a sense of control.
7:34
Comment From julie hudy

wow – sounds like the calendar question has alot of wonderful ideas!

7:34
Comment From Cory and Kristy

We like the calender idea , something like that would help her understand more about days months and years than her day after day routines

7:34
Comment From Jeremy

There are apps out there that do some of these functionalities, but it would be nice to have one app that does it all!!

7:34
The concept of time might be worked in here as well – something that counts down to the event/tracks the passage of time.
7:35
Comment From Jeremy

It would be nice if there was a module too for child to review/discuss their day with parent/teacher

7:35
Comment From PKB

Love it! Schedule, reminders, transition prep. all rolled into one.

7:35
Comment From Jeremy

My students complete a daily journal each afternoon to take home

7:36
Comment From Julie

i would implement something like this for my 3.5yr old – he is ready I just don’t know the best way to proceed – if it was on the iPad he would be more interested that wall charts etc

7:36
Comment From Jonathan Ezor

One thing that’s clear from this chat, and in all of these types of efforts, is that autism is not “one-size-fits-all.” Both high- and lower-functioning kids on the spectrum benefit from technology. Just not the same type.

7:36
Comment From Jeffery

Rachel your idea is great because the teachers are absent sometimes and if they had the voice with commands it would be better for them.

7:36
Jonathan – we agree! Have to be little more specific.
7:36
Comment From Jerry Scott

Rachel, I’m 45 and still her my Mom’s voice in my head telling me to wipe my feet before I come in the door. You are right that is the voice that gets the best results . . .

7:36
Comment From Tim Chafos

and teacher notes/communications folder in this app

7:37
Comment From Rachel A.

LOVING the calendar idea!

7:37
Comment From Craig

It would be useful if you had activities that you wanted to achieve that the child or the parent choose from for an activity.

7:37
Comment From Jonathan Ezor

We should also keep in mind which devices are likely to pass district muster. Our district was still recommending Alphasmart Danas a few years ago (and for all I know still is).

7:37
Comment From Guest

My son is 19, but he is constantly asking what happens today, tomorrow or next week over and over, Calender is good

7:37
Comment From maggie

i am wondering if anyone knows how to deal with a high functioning little girl who is so high function she can manipulate anyone into anything and is sooooo good at school but when she comes home she shuts down??? and our school district wont help with a OT. she has sensory issues and i have tried everything. compression, bands, etc.

7:38
Comment From Jeremy

A web platform that coud work on all devices would be AMAZING

7:38
Comment From charlene

I have my daughter who is non verbal and has autism and i think this device would work wonders in her class to help her communicate and to learn the days of the week and months and time, and school has nothing to help with it..

7:39
Comment From Jerry Scott

Jeremy, I agree that would be nice – enter items from my computer and have the result on her phone.

7:41
Comment From Charity

This would be a wonderful idea and the calendar/reminder function would be really wonderful for both of our children at home and at school.

7:41
Ok, let’s transition to some open discussion and questions… submit any questions or comments you have now!
7:42
Comment From Rachel A.

How much would this cost us :)

7:42
Rachel -the idea is to develop some apps that are free via Hackathon.
7:44
Comment From Jerry Scott

We touched on the different needs across the spectrum. I’d like to see some discussion on how we can identify those differences and help people know what apps would be appropriate for their kids.

7:45
great question! there are a ton of apps. Autism Speaks has a list but talk to your local service providers.
7:45
Comment From Craig

Could you elaborate how the hackathon would work?

7:46
Craig – in mid-October developers will literally get together with the top ideas and the Hackathon team to create apps!
7:46
Comment From Tim Chafos

Will the ideas suggested in this chat be posted/accessable somewhere after?

7:46
Tim – yep, all archived at www.autismspeaks.org/hackchat
7:46
Comment From Cindy

I am in LOVE with the idea to have apps. Can we make sure to somehow categorize them based on levels of understanding and interaction?

7:47
Comment From Craig

How well is the developer recruitment coming along?

7:47
Craig – incredible actually!
7:47
Comment From Lise

Are we talking about computer apps, phone apps or both?

7:48
we don’t know yet Lise!
7:48
Comment From Autism Help

Perhaps there could also be appt that is also connected to say a watch device. This will let you know his location at all times and can communicate back to you. Of course it’s by no means a substitute to parental supervision.

7:48
Autism Help – phone devices with GPS could manage this possibly
7:49
Comment From Karen

This will be live on the intenet right? So that I may hear the show? Thanks so much.

7:49
Karen – it’s a text chat only – no audio :)
7:49
Comment From Julie

this sounds like an incredible initiative – so worthwhile. I wish you all success

7:49
The entire team thanks you Juile!
7:50
Comment From Diane

Anyone know of an app that could plug into safari or IE that can be developed to read a word back? My daughter loves reading on her iPad and PC because she can adjust the font size (visually impaired too) but sometimes get frustrated when she doesn’t know a word. It would be great to just touch the word and have the device just say it back to her.

7:50
Diane – this exists – in Chrome for sure… trying to think of the name of the plug in…
7:51
Comment From Jonathan Ezor

Diane: Not sure about browsers, but most operating systems (Windows for sure) have accessibility features including readback.

7:51
Comment From Cory and Kristy

We have 6 kids and something like this would be a great help

7:53
Wow, that was terrific! We’re going to have to wrap the chat up now… THANK YOU for participating!
7:53
If you are in the NY/NJ/CT area on Sept 17 and 18, we’ll be at Maker Faire… stop by if you are planning to attend and watch the Autism Speaks Facebook/Twitter/web site for information and volunteer opportunities.
7:53
Phi will be talking about Hacking Autism on Saturday at 2:30!
7:54
That’s all for tonight – thanks everyone!

Hacking Autism LIVE Chat Transcript

September 7, 2011 2 comments

On September 6, the first Hacking Autism LIVE Chat was held, where members of the Advisory Board discussed ideas submitted by the community.

The Hackathon event will bring together Hacking Autism’s Advisory board, experts in Autism, technologist and people on the spectrum. This catalyst event takes the ideas submitted to the Hacking Autism website to a multidisciplinary group to actually create applications for people to use free of charge.

The next chat will take place on September 13, please be sure to join here!

7:02
Welcome to the first live chat for the HP Hackathon!
7:03
This chat is text only – you’ll interact with us via the live chat client that you are logged into at different times. We have a special group of our advisors also on the chat with us – and we’ll introduce them in a a few moments.
7:03
The Hacking Autism Hackathon has pulled together a volunteer group of software developers with leading autism specialists to work together to develop groundbreaking, touch-enabled applications for the autism community.
7:04
Tonight’s chat is all about improving a few of the best ideas and creating a conversation with you about this program. This is the first of our 2 scheduled chats.
7:04
In mid-October, we’ll be at HP offices for the live hackathon, taking the best ideas and matching them up with volunteer development teams to actually build the apps you’ve submitted!So far, we’ve had some 245 ideas submitted! Thank you!
7:05
Have you submitted an idea to hackingautism.org yet?
Yes!

 ( 35% )

No, still thinking of a good one!

 ( 65% )
7:07
How tonight is going to work…The first part of the chat will be fairly structured… we’ll show you 3 separate ideas, and for each idea ask you a few questions and then start to brainstorm on how to improve the idea. More on that in a moment…Meanwhile, I’d like to briefly let you know who you’ll be interacting with tonight from our advisory committee…Phil McKinney with HP
David Canora with Disney
Marc Sirkin with Autism Speaks (and the fast fingers, I’m doing the typing tonight)
Peter Bell with Autism Speaks
Shannon Kay with May Institute
Kate Grandbois with Spaulding Outpatient Center for Children
7:09
Ok, great… here’s how tonight’s chat will work:First, we will present an idea and ask via interactive poll if it is clear what the idea is…Then, we’ll ask for feedback and input on the idea (i.e. do you like it, or not) via another short pollFinally, we’ll brainstorm a little on some good features – just submit your ideas and questions when we prompt you and we’ll share responses with the group as we go…Ok… are you ready? Here’s the first idea…
7:10
Idea 1 Stress Thermometer
7:10
Comment From Quinton Hall

I have a 12 year old brother that has autism like symptoms. What type of applications are available for him. I have been a very important role model in his life thus far.

7:10
Hi Quinton! It is great what you are doing and your brother is lucky to have you. We can send you two place. Autism Speaks has recommended Apps herehttp://www.autismspeaks.org/family-services/resource-library/autism-apps
or you can visit the Hacking Autism App Gallery here -http://www.hackingautism.org/apps
7:11
There were several entries submitted for this concept including:An ap that brings calm for autistic children when they are at high stress level or burn out. Something visually calming- with sounds that calm perhaps starting at a louder volume and automatically slowing down and quieting as their stress level subsides.I’d love to see an app that‰Û_tells caregivers- who do not know about autistic behaviors- how to see the signs of upcoming stress and inturn meltdowns- that are happening to our kids- and how to avert them. IE: a child is clenching their fist…that means they are rageing inside and will be heading toward a meltdown. If we can avert them they will be less. It is called Rumble- Rage and Recovery. We never want the Rumbling to reach the Rage stage.I would love to see an app that allows someone with Autism who is nonverbal to communicate their level of stress and anxiety…a “stress thermometer” where they could mark with their finger their level of anxiety.Take a moment to read the submissions…
7:12
Do you understand the basic concept of “Stress Thermometer?
Yes

 ( 73% )

No, it’s unclear

 ( 27% )
7:13
Do you like this idea?
Yes love it

 ( 67% )

Unsure

 ( 33% )
7:15
Ok.. now it’s your turn… submit ideas to improve the idea, or ask questions!
7:16
“Guest” asked for some more details about this idea… basically, it’s a way for to help someone communicate an absract idea of stress.
7:17
Comment From Guest

The concept of a stress thermometer seems clear enough, I could use one of these myself, and maybe autistic folks could use one for other people. But what would it actually do?

7:19
A stress thermometer could be used as a replacement behavior for inappropriate behaviors (for example, replace aggression with using the “I’m angry” setting. The app could track the usage across times and situations.
7:19
Comment From Betty

Will this thermometer change colors as the person’s mood chsnges??

7:19
Comment From Joeliene

Would this be done through a series of icons almost like emoticons that the child could indicate an emotion or what they are feeling at the moment?

7:19
Joeliene – sure! Great idea.
7:20
Comment From Guest

I like the concept…. and having a way to demonstrate the stress level could be helpful.

7:21
Comment From Valerie K

We use colors, each identifying the stress level. Green=1/calm, blue=2/not so calm, Yellow=3/aggitated, Orange=4/frustrated, Red=5/MAD

7:21
Valerie – excellent!
7:21
Comment From Ronnie

Could it be personalized? perhaps with visuals that are used in their daily life or would they need to be training on this new visual?

7:21
Comment From Cindy

I like the idea!

7:22
Comment From Calebs Mom

agree with Joeliene I Can see that idea working

7:22
Ronnie – Peter Bell from Autism Speaks added that perhaps we could even license characters for the thermometer – Power Rangers, Pokemon etc… Very cool :)
7:23
Comment From julie hudy

Ronnie – cool idea :)

7:23
Ok everyone… let’s transition to the next idea… idea 2 Bullying “Lifealert”I’d love to see an app that‰Û_can protect our children from Bullying! This APP can be a direct message to the school of any incident any time. May be we can even efforce schools to pushish bullying just like they would do for any other asault. “Super B” will enable our kids to feel protected at all times and send a message with names and specific situations to the school and hopefully a copy to their parents. My dream would be fro every teacher to say on the first day of school….Please download “Super B” and use it any time! We will make sure your confidenciality remains protected and Bullyest be held responsable!!Thank you for your consideration!I’d like to see an app that provided children (particularly middle school children) with examples of how to address comments from bullies. I am currently working working towards my Masters degree in speech pathology and Florida State University and help run social skills groups at the Center for Autism and Related Disabilities (CARD) in Tallahassee- FL. In working with middle school-aged children- they have shared with me numerous times that the concepts they learn they can’t apply. They tell me that in middle school “if you’re not cool- no one will talk to you”. So many times- the concepts we teach them- they are not even able to practice because they already feel like they don’t fit in and do not communicate very often to similar age peers. When they do initiate conversation- however- they get made fun of or picked on. I think having an app that can demonstrate appropriate ways to respond to such interactions can be very beneficial and provide concrete examples. This may be done through a combination of a social story with text for additional support and details.
7:23
Take a moment to read…
7:25
Do you like the idea of a lifealert type service for bullying?
Yes

 ( 87% )

No, not really

 ( 13% )
7:26
Comment From Mark Anthony

I love the Super B idea. I worry all the time how my son will deal with Bullying in Junior High.

7:26
What questions or suggestions do you have for this concept?
7:26
Comment From sean

bullying is a reality and anything that can helpful like an application would be beneficial and maybe be intoduced to school

7:26
Comment From Rachel

I love the concept, but unclear how it would help / what it could do.

7:26
Comment From Betty

Yes I LOVE the Super B idea!!!

7:27
Rachel – a simple app with social stories and perhaps even a way to alert teachers/aides about how to respond to bullies
7:27
Comment From Steve-Aspie_Dad

Bullying “Lifealert” – We need more anti-bullying awareness and prevention. Anything to help protect our children would be appreciated greatly!

7:28
Comment From Lynelle Majors

good idea but how can we actually get our kids to use it…. my son would never do it.

7:29
Lynelle – not sure to be honest! That’s why we’re brainstorming about the concept. Some kids might not want to “tattle” but in some situations it could be useful.We’re also wondering if this app could also include “social” stories to help kids learn how to handle different situations.
7:30
Comment From Lindsay

Bullying I think might always be an issue for children with disabilities! A lifealert system would be a great idea!! Expecually since theres alot of autistic children who don’t talk or can’t express they’re feeling or whats going on outside the home

7:30
Comment From Suzi

I think the idea could be a great tool – especially if it offers both a way to alert others – i.e. track occcurances & gives social stories for possible responses.

7:30
Comment From Sherry

My son is in Kindergarten and is already being picked on by kids on the bus

7:31
Comment From Andrew

Thats an amazing idea. I have Aspergers, and I’m quite High Functioning, and the symptoms aren’t there anymore for me, but yes, I think this is a great idea for those who are low-functioning.

7:31
Sherry – that’s terrible. Please alert your school officials!
7:31
One of the things the app could also do is educate parents on how to address the issues, explain their rights and more.
7:31
Comment From Keith Ringled

Would this be an alert that is immediate. So that personel can respond when incident is happing?

7:32
Keith – ideally.. yes!
7:32
Comment From Nexus

i think it may be a good idea, however I see great means of abuse to come from it.

7:32
Another benefit could be tracking both for individuals as well as across a geographic area, school or district.
7:32
Comment From Kelli

would this app be affordable?

7:32
Comment From Darcy

I think that in some instances it could be great. Even if used only when telling is trully needed.

7:33
Comment From Nexus

now are we talking about online bullying or real life bullying

7:33
Nexus – potentially both actually.
7:33
Comment From Calynn

That would be great… I love the idea. My sister gets bullied and she has ASD so i think this is a very useful app

7:34
Comment From Guest

if it were immediate it would be hard to abuse…because officials can respond right away

7:34
Comment From Jerry Scott

Most Jr. High Schools that I’m aware of don’t let kids use phone during the school day – immediacy would be a problem. An app that walked a kid through a re”port of bullying “time, place, etc” might be very useful to get an accurate picture of what happened.

7:36
Jerry – great point although it is possible to get a device like an iphone or ipad written into an IEP accomodation.
7:37
Comment From Sonia

how would this app work for a kindergarten student?

7:38
Comment From donna

I would also like to see the app have features available to teachers, (especially general education teachers) to use to educate/inform their general ed students about how to accept others that are different (those with ASD). If we help to teach awareness and spread information it might cut down on bullying due to misunderstanding.

7:38
Sonia – good point – there is no universal solution to any of these apps!
7:38
By the way.. if you have app ideas…. please submit them at www.hackingautism.org
7:38
Ok… let’s go to idea #3… Storyboarding/Social stories
7:39
I came across a realy cool p[rogram through my6 sons speech therapist. Its for easy story boarding. YOu can use there pictures or your own- including photographs to make a quick story board or evets calender for your chyild. Might be cool to inlude one the kids could use themselves to show us what they want or need.An app that will enable me to write social stories on the fly on my son’s iphone.I’d love to see an app that‰Û_easily allows parents and therapists to create social stories based on a combination of “packaged” pictures and personal photos. It would provide a template for pages with a drag and drop interface to allow the user to develop the story and add appropriate text. It would then be viewable as a sort of slideshow or could be printed. My grandson LOVES his IPAD- so it would be nice if it ran on the IPAD as well as PC systems. A really great addition would be a library of animated icons or pictures to help make the story lively.
7:39
Comment From Leah

Definitely needs to be tailored to different ages.

7:40
Do you understand the basic concept of Storyboarding/Social story
yes

 ( 84% )

no

 ( 16% )
7:40
If you were wondering…. the ideas submitted were copied and pasted here – we didn’t change a thing!
7:40
Comment From Michael Needleman

You could build the app to age appropriateness. One interface for kindergarders, another for middle school, another for high school. Becoming more complex over time.

7:42
Comment From Leah

The storyboard app is an excellent idea. Parents go crazy taking photos and laminating and printing.

7:42
Comment From Suzi

Love this idea!

7:42
Comment From Jerry Scott

I love this idea – if my daughter could select a situation from the screen and then review the story board – it would really help her get through a lot more situations on her own.

7:43
Comment From Lynelle Majors

I think it would be great if the kids could input their own situations and stories….my son has a hard time telling the difference between that actually happened and what he wanted to happen

7:43
Have created your own storyboards?
Yes

 ( 54% )

No

 ( 46% )
7:43
Comment From Keith Ringled

I Struggle as a creative person. I sometime find it hard to put together a social story on short notice. This could be benificial. If the pictures and stories get to generic I know my son would lose interest.

7:44
Comment From donna

It would be good if there were a combo of pre generated pics as well as you can upload/use your own photos. this would make it most relevant

7:45
Comment From Ann

I like Donna’s idea of both generic photos and uploading your own.

7:45
Comment From Guest

The ability to search the internet for images would be great

7:46
Comment From Michael Needleman

Adding location awareness to the app so it would present pictures based on physical location might be a cool feature.

7:46
Comment From Jerry Scott

Maybe we are limiting ourselves in this concept a little – with the video cameras on the phones/pads, why have a story board when you can have a “Social story video”

7:46
Jerry.. yes!
7:47
A bank of good “pre-fab” examples would be great, and then you could replace/edit them with your own images/videos…
7:48
Comment From Jerry Scott

I picture taking a video of my older daughter brushing her teeth the “right way” then having it play while my daughter with autism brushes hers

7:48
Comment From Guest

Having the ability to share your story via email or social networking is also fantastic

7:48
Comment From donna

Great idea Jerry! I enjoy that a lot

7:49
Comment From Ronnie

Jerry that sounds great! But I do think social stories on boards have a place. I had a student who got too caught up in the “business” of a video (whether he was in it or not) and really needed the organization of a 1-2-3-etc picture story

7:49
Comment From Suzi

If video were used, my daughter would likely be upset if the reality didn’t match exactly.

7:49
Ronnie – perseveration is a real issue to consider. You are right.
7:49
Comment From Jerry Scott

I think the ability to share the user-generated content with many of these apps will be one of the most important features. As parents and caregivers, none of us has the time we would like to spend developing these types of things.

7:50
Jerry – amazing concept!
7:50
Sharing social stories with each other, and allowing people to customize them on their own devices, and share them back again. Terrific.
7:51
Ok, let’s transition to some open discussion and questions… submit any questions or comments you have now! We have about 10 minutes left…
7:52
Comment From Joeliene

What is the timeframe on development of an app – once the hackathon is complete?

7:53
We can send you two places! Autism Speaks has recommended Apps here http://www.autismspeaks.org/family-services/resource-library/autism-apps
or you can visit the Hacking Autism App Gallery here -http://www.hackingautism.org/apps
7:53
Joeliene – great question… it all depends on the complexity of the app
7:54
Also, developers are donating their time and efforts!
7:55
Comment From Jerry Scott

I am wondering if we could use computer science students to some of the development. Could we structure the app development in such a what that professors could offer chunks to their students to do as projects?

7:55
Jerry – we’re using professional developers to ensure we’re building quality apps
7:55
Comment From donna

how often are those resources updated with newly found or newly created apps?

7:55
Comment From Guest

price range on the apps?

7:56
Guest… all free!
7:56
Comment From Joeliene

And, then how will they be made available at large – for purchase, free, iTunes

7:56
All depends on what actually gets built!
7:57
Comment From Rachael

have you considered a panel of older ASD individuals to give ideas that would have helped them when they were younger?

7:57
Rachael – John Robison is part of our committee and yes, we’re always looking for suggestions and ideas.
7:58
Wow, that was terrific! We’re going to have to wrap the chat up now… THANK YOU for participating!Next week, we’ll hold another live chat – same place, and same time, 7pm EST with more ideas and more time for discussion.Meanwhile, if you are in the NY/NJ/CT area on Sept 17 and 18, we’ll be at Maker Faire… stop by if you are planning to attend and watch the Autism Speaks Facebook/Twitter/web site for information and volunteer opportunities.
7:58
Comment From Jerry Scott

H.A. – Thanks for your efforts, on behalf of all the parents here we really appreciate it!

7:58
Comment From Joeliene

will this live chat remain available for other to read if they could not participate?

7:59
Yes – there is a live transcript available for the chat.
7:59
Please provide additional ideas on www.hackingautism.org – we are still accepting new ideas!
7:59
Comment From Rachael

thank you so much for looking out for new ways to help our kids :)

7:59
That’s all for tonight – thanks everyone!


Hacking Autism LIVE Chat

August 25, 2011 5 comments

On Tuesday September 13, there will be a LIVE Chat with the community and the  members of the Hacking Autism Advisory Board to discuss YOUR ideas! We want to know what you think and to collaborate with you on refining and selecting the best ideas!

Using technology to give people with autism a voice.

 Partners
HP – Austim Speaks – Doug Flutie Jr. Foundation – Goodby, Silverstein & Partners

Overview

Autism, one of the fastest growing developmental disorders in the U.S., affects 1 in 110 children. Many of these people have difficulty communicating and expressing themselves. We believe technology can help. Technology is in no way a cure. In fact, we’re not out to cure autism. Our goal is to help people today, with the knowledge and skills we have.

WE NEED YOUR IDEAS!

Technology has always promised to make our lives better. Finally, it’s actually doing it. Touch technology is giving people with autism a way to communicate and express themselves like never before. It is giving people with autism a voice. Some, for the very first time.

By working together to create touch applications for people with autism, the HP Hackathon is unleashing software’s potential to adapt hardware and advance technology. It’s an invitation for the tech community to unite. It’s an open call for collaboration that will make a real difference in the lives of a growing community.

WHAT IS HACKATHON?

The Hackathon event will bring together Hacking Autism’s Advisory board, experts in Autism, technologist and people on the spectrum. This catalyst event takes the ideas submitted to the Hacking Autism website to a multidisciplinary group to actually create applications for people to use free of charge.

 

Advisory Board
Phil McKinney – HP
Chris Mertens – HP
David Canora – Disney
Jim St. Leger – Intel
Jennifer Leighton – Spaulding Outpatient Center for Children
Kate Grandbois – Spaulding Outpatient Center for Children
Peter Bell – Autism Speaks
Andy Shih – Autism Speaks
Simon Wallace – Autism Speaks
Shannon Kay – May Institute
John Robison – Autism Speaks

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