If anyone knows how hectic life can get – WE DO! That’s why we have created the Autism Speaks Weekly Whirl to fill you in on all of the highlights of the week! The last thing we want is for you to be left out of the loop! Please share with friends and family to spread the word about all of the exciting things going on in the autism community. Keep in mind, these updates aren’t limited to Autism Speaks — we will be featuring news from across the community.
A Funny Affair Honoring Tommy Hilfiger
On Monday December 5, 2011 Autism Speaks Co-founders Suzanne and Bob Wright and New York Center for Autism (NYCA) Co-founders Laura and Harry Slatkin honored iconic fashion designer Tommy Hilfiger for his commitment to increasing awareness and support of the autism community at A Funny Affair for Autism – a star-studded evening of fashion and comedy that helped raise over 1.3 million dollars for individuals with autism and their families.
Blue Tie Blue Jean Ball
On December 1, the Los Angeles Chapter held the inaugural Blue Tie Blue Jean Ball. Over 700 people packed the House of Blues on the world famous Sunset Strip to hear the incomparable, beloved and ever gracious Sarah McLachlan sing some of her biggest hits. She was introduced by autism mom and Grammy Award-winning singer Toni Braxton. The show was hosted by comedian Sinbad, who also handled the live auction with humor and zip. Other music performers were “American Idol” contestant Brooke White, Lucy Schwartz and Diane Birch. Attendees included Autism Speaks National Board Member Holly Robinson Peete with her husband Rodney Peete, Matt Dallas, J.K. Simmons, Mark Salling, Ed Asner, and “Parenthood” cast members Mae Whitman, Sarah Ramos, Max Burkholder and Miles Heizer.
Autism Speaks Headed to Albania
Hear from Autism Speaks President Mark Roithmayr as he shares about his trip to Albania for the opening of the Albanian Children Foundation’s Regional Centre for Autism. Liri Berisha, M.D., and her husband the Prime Minister, Mr. Sali Berisha, took every opportunity to note that without Autism Speaks and Suzanne and Bob Wright, none of this would be possible.
QBE $75,000 Gift to Autism Speaks
On December 7, 2011 Autism Speaks received a $75,000 QBE Foundation Grant from QBE Americas. The grant will fund the development of the Employment Tool Kit. We are thrilled and thankful for their generosity!
This post is by Phillip Hain, the West Region Director for Autism Speaks.
On December 1, the Los Angeles Chapter held the inaugural Blue Tie Blue Jean Ball. In looking back at what made the event so amazing, I attribute it to four key elements: vision, focus, determination, and teamwork.
The first was having a vision. In a city the size of Los Angeles, there is an abundance of fundraising dinners that do very well, but often people feel obligated to attend rather than having a true sense of wanting to be there. Years ago while volunteering for Cure Autism Now before it merged with Autism Speaks, I remember helping get ready for an art auction when a gentleman walked into the hotel and wanted to know where to go for an event he was attending with his wife which was taking place that night. I asked what it was for and he said, “I’m not sure. Something to do with kids.” Yes, it was nice to hear he was there to support us, but I also realized that he would not remember the organization the next day.
That took us to the element of determination. Our committee was looking for an event which people wanted to attend because it was fun—and they would look forward to being there again. After settling on a theme of music, we came up with the Blue Tie Blue Jean Ball name because it reflected the ideas of enjoyable, unpretentious, memorable and genuine. We also realized those are the adjectives often used to describe our children affected by autism, making the synergy and concept even more significant.
Because we were working on a shortened timeline, we had to operate as a team. The committee was just the right size to have enough people with contacts, but not too cumbersome to become unwieldy. We chose sub-chairs to handle the various major components. There was no task—big or small—that anyone would not take on. Whether it was getting things donated, pitching sponsors, creating a Facebook page, or stuffing envelopes, everyone pitched in where they could contribute. The group stayed on course and worked collaboratively. Bouncing ideas at a committee meeting where someone suggested it would be great if we could get a jean company as a sponsor resulted in another person saying, “We have a contact at Guess whom we can call.” The result was having the Guess Foundation as the presenting sponsor—for a first year event.
Needless to say we had to focus. One member had strong contacts in the music industry who worked on getting a major name to headline the show. Others started getting cool auction items to fit the music theme. We ended up with really interesting things, such as a bra signed by Fergie, an autographed guitar from Eddie Van Halen, passes to Lollapalooza, and tickets to an Elton John concert in Las Vegas plus an acrylic piece of his piano.
So it wasn’t an accident that over 700 people packed the House of Blues on the world famous Sunset Strip to hear the incomparable, beloved and ever gracious Sarah McLachlan sing some of her biggest hits. She was introduced by autism mom and Grammy Award-winning singer Toni Braxton. The show was hosted by comedian Sinbad, who also handled the live auction with humor and zip. Other music performers were “American Idol” contestant Brooke White, Lucy Schwartz and Diane Birch. Attendees included Autism Speaks National Board Member Holly Robinson Peete with her husband Rodney Peete, Matt Dallas, J.K. Simmons, Mark Salling, Ed Asner, and “Parenthood” cast members Mae Whitman, Sarah Ramos, Max Burkholder and Miles Heizer.
Special guests actor Ed Asner and Lisa Carling from the Theater Development Fund!
Join hosts Matthew Asner and Andrea Nittoli for two hours of talk and interviews Saturdays 3-5PM on KTLK 1150 in Los Angeles.
Want to participate? Call in studio 877-827-1150!
SiriusXM – Matthew Asner and his father, Ed Asner will appear on SiriusXM radio Monday morning on 5 different stations. As you may know, Matthew’s brother and Ed’s other son has autism. Matthew’s own son has autism. They have been doing a personal crusade to spread the word on autism and its prevalence and significance. They will be talking about the great things Autism Speaks does during their interviews.
Morning Jolt 11AM
Ron and Fez 11:50AM
Judith Regan 12:20PM
On July 19, a luncheon was held in Los Angeles to honor actor Ed Asner and his son Matt. Phillip Hain, Executive Director of the Los Angeles Chapter opened the program by giving an overview of what the chapter does in the community and talked about some of the local events. Attendees then heard from Dr. Clara Lajonchere, Vice President of Clinical Programs, who talked about the advances in science that have been made by Autism Speaks and its predecessor, Cure Autism Now, and how the Autism Genetic Resource Exchange (AGRE) has helped researchers be more efficient and collaborative with their studies. Marianne Toedtman, Associate Director of Family Services, talked about her challenges as a mother of a son on the spectrum, Family Services programs, and the current state of Family Services at Autism Speaks, particularly the Baker Summer Camp Program.
Ed talked about his involvement with Autism Speaks and how much work has been done since his son Charlie was diagnosed more than two decades ago. He implored the guests there to support Autism Speaks’ efforts in advocacy, family services, and science.
Matt told the attendees that when he was a teenager he was mad at his dad a lot, because his dad was the kind of guy who always took a stand on something and stuck to it, no matter what the cost was, to himself or others. And often the price he paid was very high. But now he realizes that his father set an example. Having both a brother and son affected by autism, Matt has become a passionate voice for our kids on the autism spectrum, fighting for their right to a fair and equal education in Los Angeles public schools. He noted that attending the Los Angeles Walk Now for Autism Speaks a few years ago gave him the feelings of hope and empowerment to help others.
Councilman Tom LaBonge presented Ed with a proclamation from the city of Los Angeles and Phillip gave Matt a piece of artwork created by a teen with autism, as a thank you for his continuing efforts and support.