Archive

Posts Tagged ‘Facebook’

‘100 Day Tool Kit’ LIVE Facebook Conversation

June 23, 2011 5 comments
5:07
Hi Everyone!
5:08
Thanks for joining the chat today!
5:08
We apologize for our technical issues!
5:08
Today’s chat will focus on supporting families whose child has been recently diagnosed with autism. Most parents wonder: What do I do next? Where can I learn about the diagnosis? How will this affect other family members? Today, we want to help answer these types of questions. We expect to get more questions than we are able to answer, if you still have questions after the chat, please contact the Autism Response Team at 888-288-4762. Thank you for your participation in today’s chat!
5:09
Comment From Jennifer  

Should a child be on an IEP if they have aspergers?

5:09
Hi Jennifer!
5:10
Yes, every child who has developmental concerns should have an IEP involving assessment that determine the child’s strengths and weaknesses
5:10
From there recommendations can be made to support the child in an educational program
5:11
Comment From Guest  

My child is being tested for Autism…He is 2 1/2. What should I expect with the tests?

5:11
Hello Guest
5:12
Good diagnostic assessment treat strengths and weaknesses including language, cognition and other skills
5:12
This will be very important in setting goals and intervention plans
5:12
Comment From Guest  

my grandson is almost 3 and I’m sure is autistic yet his parents won’t acknowledge it at all!! He needs help

5:12
Hi there!
5:13
This is a very common concern of grandparents
5:13
Sometimes it is difficult to know how to approach the parents so that they are open to taking the next steps
5:14
One approach is to recommend to the parents to get an evaluation
5:14
If there isn’t anything there, they can let it be. But if there is something, the child will benefit from early intervention
5:14
It might be good to suggest to them that you will accompany them to the assessment. The more support the better!
5:15
It is also good to give them time to process, but not TOO much time where the child loses the benefit of early intervention
5:15
Comment From Jesse  

My neice has Autism and Im wondering will she ever be able to function in the world when she gets older?

5:15
Hi Jesse
5:15
YES!!!!!!!!!!!!!!
5:15
It is well known that all children with autism make developmental progress
5:16
In terms of how much or how can not always be sure. It is up to the family to make sure the child gets high quality intervention and is in the correct setting. The more support the child gets, the better the outcome.
5:17
Comment From Traci  

I have sent 2 messages and they never show up

5:17
Hi Traci!
5:17
We are trying our best to answer everyone!
5:17
We are so happy that you are all here and asking questions
5:17
Comment From Sandy  

We’ve just been diagnosed yesterday. Our 5 year old son has ADHD and PDD-NOS. Our concern right now is that every resource around here has a 2-4 month wait period. I’m wondering what we can do now before the socialization groups are accessed.

5:17
Hi Sandy
5:18
Have you ordered the 100 Day Kit?
5:18
Here is a link, where you can download it for free
5:19
You may want to ask the professionals who evaluated your son what you can do at home in the meantime
5:19
The more the parents are involved in intervention, the better the outcome
5:19
Stress to the professionals that you need training on how best to intervene
5:19
Comment From Brandi  

HELP! Trying to decide between ABA therapy and floor time therapy. Pros and cons???

5:19
Hi Brandi!
5:20
In this case, you must ask, in what therapy will the child make the most progress?
5:20
Again, this comes out of good assessments in finding what the child’s strengths are
5:20
Based on that you should be able to pick the appropriate intervention that will garner the best outcome
5:20
Comment From Jennifer S  

We are about a month past our First 100 days and I wanted to thank you for our First 100 Days Tool Kit. It is priceless and an amazing resource. I carry it with me everywhere just to show people how amazing Autism Speaks is! Its a great way to get people excited about the walk, it shows where the money goes!

5:21
Hi Jennifer!
5:21
Thank you SO very much!
5:21
Our Mission At Autism Speaks, our goal is to change the future for all who struggle with autism spectrum disorders.
5:22
We want that kit in the hands of every parent at no cost
5:22
Families can call 888-288-4762 to get a hard copy of the kit
5:22
We love how valuable the kit was for you
5:23
Comment From Cynthia  

How can I explain my 5 year old that his brother has autism??

5:23
hi Cynthia
5:23
It is very important that parents explain to siblings that their brother or sister has autism
5:23
It is important to spend time talking with them and explaining what it means
5:24
It is also important to listen to their concerns without judgment
5:24
It is important that you establish the groundwork for an open communication
5:24
Let them know that is is okay to ask any questions and you will be there for them
5:24
The hard part is finding out what age appropriate terms you should use
5:25
I suggest you check out our resource library
5:25
We have lots of books that explain all of this to siblings
5:26
Comment From Emilio  

Hi everyone! Our 3 year old was diagnosed with High Functioning Autism at 2 years and, even before then, we knew something was different due to several milestones he was not making. We immediately began Early Intervention, At-Home Teaching and Training and now, because of our great community-based EI, OT and ST organizations, Artie is doing fantastic! He has made so much progress and is even enrolled in an ELP class and has fully integrated with Mainstream Students! We are SO proud of him! I cannot emphasize enough how important Early Intervention is and how important it is to work with your child at home!

5:26
Hi Emilio
5:26
I cannot emphasize enough how important early intervention is and involving parents.
5:26
THEY ARE KEYS TO SUCCESS!
5:26
Thank you for inspiring other parents with your successes
5:27
Comment From Patty  

What type of doctor is most qualified to make a diagnosis? Have been to 2 neurologists and still not completely comfortable w/their diagnosis.

5:27
Hi Patty
5:28
Starting with your pediatrician, you should be able to get a referral to a developmental pediatrician, neurologist, or psychologist
5:28
Because autism is a behavioral disorder, it is diagnosed through observation
5:28
and a careful history of the child
5:29
It is important to get a second opinion if you have additional questions about the diagnosis
5:29
There is no ‘one siz fits all” for autism spectrum disorders
5:30
Different professionals can see the child differently
5:30
Again, another reason to have more than one opinion.
5:30
Also keep in mind that no one knows your child better than you!
5:31
it is important to bring a support person with you to the evaluation to be sure you are hearing the same information
5:32
Then you can discuss this with the support person after the session. It can be very overwhelming and hard to absorb
5:32
Comment From Marilyn  

Hi my Daughter is 8 years and she just been diagnostic with autism

5:32
Hi Marilyn
5:33
Although this may considered a late diagnosis, you are welcomed to call and get the 100 Day Kit
5:33
It will help you still!
5:33
Comment From Guest  

How do I know the severity of my child’s Autism?

5:34
The process of doing an assessment when developing an IEP will provide us with a description of strengths and weaknesses
5:34
From there you will be able to set appropriate goals and intervention plans
5:35
Although many different healthcare professionals can diagnose autism, it is important that more than one disciplines be involved in assessing your child
5:36
This may not happen at one visit, but the professionals are communicating their prospectives with one another
5:37
This includes psychologist, OT, speech and language therapist, pediatrician, specialty physician, etc.
5:38
The value of these assessments is that the family take back information to the agency or school district so that the agency can better understand the child and advocate for them
5:39
Comment From monica  

iif a child has been diagnosed by doctors saying he’s pddnos but the school says different. what should I do?

5:39
Hi Monica
5:40
There are differences in opinion with diagnosis
5:40
It all traces back to the assessment process and understand those differences and why they exist
5:40
I would recommend that professionals speak to one another about this issue
5:42
Comment From Matt  

I have a problem with the concept of stimming

5:43
Hi Matt
5:43
Stimming is often considered odd repetitive motions that can be very apparent or more subtle
5:43
Unfortunately these behaviors can be very persistent and intense
5:44
The important thing is to understand that the behavior and consult with professionals in order to minimize the behavior that may be interfering with the child’s functional ability
5:44
The idea is to get help to manage the behaviors
5:45
Comment From Brian  

What symptoms can we look for in a child who may have autism?

5:45
Hi Brian!
5:46
The big three areas are communication, social symptoms, and repetitive behaviors
5:46
We have a page that goes into more detail on each
5:46
Comment From Guest  

my brother has autism and i was wondering does autism children have picky diets??

5:47
Hi There
5:47
Many people with autism are picky eaters or have aversions to certain foods
5:48
A great way to work on nutrition is to set up a regular structure for meal time
5:49
In that mealtime, include at least one food that your child has eaten in the past and liked
5:49
BUT also include a food that your child or sibling may have an aversion to
5:50
It’s a good idea to start discussing this with your family pediatrician
5:50
It is important the individual with autism is getting the right nutritional intake
5:51
Comment From Rhonda  

Please explain what things like PDD-NOS mean. Thanks

5:51
Hi Rhonda!
5:52
It is a form of autism spectrum disorder that meets the criteria that of a person with social difficulties, but not in both communication and restrictive repetitive behaviors
5:53
It can also be used to diagnose children under the age of three that don’t have clear difficulties
5:53
Comment From Sarah  

how often should children be re evaluated?

5:53
Hi Sarah!
5:53
This is a really good question
5:53
Typically children get evaluated annually through the IEP process
5:53
As parents you have a right to call an IEP meeting at any time
5:54
You can discuss your concerns – this may include an evaluation. That should be considered by the IEP team
5:55
We recommend parents work closely with their pediatrician and if parents have concerns, the pediatrician can support them in getting their child’s needs met
5:55
Comment From AnQi  

is the 100d ays kits free of charge?

5:55
Yes!
5:55
Anyone can download the Kit for free
5:56
You can request a hard copy of the 100 Day Kit by calling 888-AUTISM2 (888-288-4762). Parents of the child must request the kit.
5:56
We are so happy that we’ve had all of these participants, but are so very sorry we haven’t been able to answer everyone’s questions
5:57
You ALWAYS have the options of calling the Autism Response Team to speak to a coordinator at 888-AUTISM2 (888-288-4762).
5:57
It is so important that you all chose to come here to ask questions
5:57
By asking questions, you are providing vital stepping stones to ensure your loved one with autism has a successful future
5:58
Having a child with autism requires that we are comfortable doing more for our children
5:58
Active intervention on our part is a way of life!
5:59
Here is how you can get a kit
The 100 Day Tool Kit is available to download for free at:http://www.autismspeaks.org/family-services/tool-kits/100-day-kit
Aspergers /High Functioning Autism Tool Kit
http://www.autismspeaks.org/family-services/tool-kits/asperger-syndrome-and-high-functioning-autism-tool-kit
Manual de los 100 Dias
http://www.autismspeaks.org/family-services/tool-kits/manual-de-los-100-d%C3%ADas
Parents whose child has been diagnosed in the last 6 months may request a complimentary hard copy of the 100 Day Kit by calling 888-AUTISM2 (888-288-4762). Parents of the child must request the kit.
5:59
The 100 Day Kit is broken down by sections
6:00
1. About Autism- what to expect, define autism, what causes autism, prevalence2. You, Your Family & Autism- your family- addresses the family’s reaction to their child getting diagnosis, what you and extended family can do

3. Getting Your Child Services- navigating Early Intervention agencies, educational system,etc.

4. Treating Autism- different approaches to treatment, How is autism treated

5. Making It Happen-assembling your team, books ad websites
Appendix:
Action Plan for Next 100 days
Autism Safety Kit
Useful Forms
Glossary
Your local resources- Resources form RG: includes local resources: State Info, Schools, Waivers, Local Autism Orgs, AS Communities

6:00
In addition, another great resource is the Autism Video Glossary
6:01
Online video glossary to help you identify the early signs autism I young children
Glossary contains 150 video clips, available free of charge. It helps to understand words and terms used to describe autism. It also showw examples of social reciprocity, Joint attention, Sensory defensiveness
6:02
Thanks again so much for being here – we look forward to the next chat with you!
6:02
Your advocacy truly makes a difference and we look forward to a future of open dialogue!

Rodney Peete, NFL Star and Autism Dad, to Host Next LIVE Facebook Chat

June 12, 2011 3 comments

Rodney Peete, former NFL Star and author of Not My Boy!: A Father, a Son, and One Family’s Journey with Autism, will be joining us on June 16 at 7pm EST to host a LIVE Facebook Chat! Rodney is the Co-Founder of the HollyRod Foundation, which is dedicated to providing compassionate care to those living with autism and Parkinson’s disease.


Check out our last Family Services hosted chat here!

Join a LIVE Facebook Chat with Our Family Services Department

May 23, 2011 4 comments

On Wednesday, May 25 at 3:30pm EST, our Family Services Department will be hosting a LIVE Chat! Visit our Facebook page and join in the conversation!

While we work to change the future for those who struggle with autism, the Family Services Team is committed to addressing the daily challenges people with autism, their families, and caregivers face today.

Living with autism is often accompanied by a profound sense of isolation and helplessness, for the individual with autism as well as the family. “It is important that families can connect with us, quickly get the information they need, and that they recognize the power of their own advocacy,” states Marianne Sullivan, Assistant Director of National Outreach and Resources.

The Family Services Team supports families by connecting them to resources and information, enabling them to make informed decisions. Information is a powerful tool; it can lead to dramatic improvement in the outcome and quality of life of an individual with autism.

Resources for all Ages
The Autism Speaks online Resource Guide is one of the largest databases of autism resources in the country with more than 36,000 entries and information from all over the United States. Searchable by state or by zip code, resources are organized into over 35 categories.

An online Resource Library provides a variety of autism related information and reference materials including books, blogs, catalogs, and tool kits as well as resources for Spanish-speaking families.

Age-Related Resources
Age-related resources are organized into three categories in the Family Services section of the Autism Speaks website: Diagnosis /Intervention (0-3), School Age/Youth (3-22) and Young Adult/Adult (22 years and older).
A family can quickly get to the information that is relevant to their loved one. We realize families are busy people, short on time, and want to put their finger on information that typically has to do with an individual’s age.

Autism Response Team (ART)
Families have the opportunity to contact the Autism Response Team (ART), who are specially trained to talk and email hundreds of families each month. An ART coordinator can be contacted through a toll-free number, 888-AUTISM2 (288-4762), or by email at familyservices@autismspeaks.org

Tool Kits are free and available to download online

100 Day Kit, available in English and Spanish, provides information for families whose child has recently been diagnosed with autism.
Asperger Syndrome/High-Functioning Autism Tool Kit is also available

School Community Tool Kit
provides information and resources for general education and administrative school staff to support a positive school experience for children with autism.

Talking to Parents about Autism: Action Kit
contains tools to help initiate the critical conversation with parents if someone suspects their child may be exhibiting early signs of autism.

Transition Tool Kit
serves as a guide to assist families on the journey from adolescence to adulthood.

To learn more about additional resources available to the autism community join us for a Live Chat on Wednesday, May 25th at 3:30 EST


LIVE Facebook Chat with “Amazing Race” Finalists Zev Glassenberg and Justin Kanew

Join us on May 12 from 2-3pm EST to have a LIVE Facebook Chat with Amazing Race” finalists and best friends Zev Glassenberg and Justin Kanew! The finale for “Amazing Race” is on May 8th, so you’ll be able to chat with them about their experiences on the show, as well as all of the triumphs and challenges they faced with Zev having Aspergers. 

If you missed the LIVE Facebook chat, you can watch it here.


Make Your Voice Twice As Loud With Serve Donation Match

April 14, 2011 1 comment

Autism Speaks is proud to be partnering with Serve – an American Express Company – to help those struggling with autism. For every dollar you contribute, Serve will match it! You’ve heard that right! Serve will double your donations up to $100,000. It is really that simple!

Serve is an innovative, secure, digital payment and service platform. Super easy to use, all you need to do to take advantage of the match is to create and fund an account (takes a couple of minutes), then donate.  Once you do that, American Express will match whatever you donate! Learn more about Serve here.

If you are looking to make a donation to Autism Speaks this is the perfect time because your money goes twice as far! This campaign goes from now until May 15, 2011, so get involved!

Spread the word to friends and family about this campaign by clicking ‘grab’ and sharing this widget through Facebook, Twitter, or through other social networks or your personal website.

First LIVE Facebook Chat a Success with Dr. Ricki

April 6, 2011 2 comments

 

On Tuesday April 5 Dr. Ricki Robinson, author of Autism Solutions: How To Create a Healthy And Meaningful Life For Your Child, hosted the inaugural Autism Speaks Facebook Chat. Dr. Ricki took an hour to answer questions from the community. There were 944 total participants and 345 questions! Time wouldn’t allow for Dr. Ricki to address each question, but she did however agree to make this a regular occurrence and we couldn’t be happier!

Ali Dyer and Dr. Ricki Robinson

To read the entire transcript, please visit here.

Join Us For a LIVE Facebook Chat with Dr. Ricki Robinson

Join us on April 5th at 3pm EST to have a live chat with Dr. Ricki Robinson! Dr. Robinson will be at the Autism Speaks headquarters answering questions. All you have to do is head over to the Autism Speaks Facebook Page and join the conversation!

For a little background on Dr. Ricki Robinson and her new book Autism Solutions: How to Create a Healthy and Meaningful Life for Your Child, check out our interview here.

Celebrating a Birthday?

This year, celebrate your birthday and raise money for Autism Speaks following these simple steps:

1. Add the Causes application to your Facebook page and select Autism Speaks as your cause.

2. Visit the birthday cause page and follow the three simple steps.

3. By asking friends to donate to your “birthday age” (i.e. $30 if you are turning 30) in lieu of gifts, you can easily raise money for Autism Speaks!

Help us promote your birthday wish – send us a tweet @autismspeaks!

Have you raised money in a creative way for Autism Speaks? E-mail us at editors@autismspeaks.org and stay tuned for more creative fundraising tips to come!

Louisiana Lights It Up Blue!

Louisiana Governor Bobby Jindal has made a proclamation designating April as Autism Awareness Month in Louisiana.  They’ll kick it off with the Old Governor’s Mansion participating in  “Light It Up Blue” and have April for awareness raising efforts and activities.

How will you be Lighting It Up Blue to promote autism awareness, beginning this Thursday and Friday? Visit www.lightitupblue.org to host an event or find one in your area.

Want to Light It Up Blue online? Check out our web downloads, including one you can use as your Facebook profile picture.

Here are suggested status updates you can use on Facebook and Twitter:

April 1:
Light it up blue today for the 1 in 110 children with autism. Visit lightitupblue.org to help us shine a bright light on #autism

April 2:
I am donating my status today for World Autism Awareness Day. Visit autismspeaks.org to learn more and get involved #autism

Stay tuned for more great ideas and be sure to share with us how you plan to Light It Up Blue by commenting below.

Follow

Get every new post delivered to your Inbox.

Join 1,049 other followers

%d bloggers like this: