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Posts Tagged ‘Facebook’

How Autism and Facebook Work

October 10, 2011 4 comments

This guest post is by Autism Speaks staffer Kerry Magro. Kerry, an adult who has autism, is a graduate student at Seton Hall University. He started the club Student Disability Awareness on campus to help spread awareness and raise funds for those affected by autism. Autism Speaks U is a program designed for college students who host awareness, advocacy and fundraising events.

Oh the almighty power of social media. It all started for me my second semester of college. I went to a charity event near my hometown in Jersey City, New Jersey with a group of friends when someone asked me to “tag them” in a photo I took. I remember being slightly confused for a second until I was later introduced to the social networking tool of our generation called“Facebook.” It was the hip new trend that would evolve the way I communicated forever.

These memories came back to me earlier this month when I received 3 emails from parents within one week about the advantages and disadvantages of their young individuals with autism using Facebook. In the end, like many experts say, face-to-face interaction never plays second fiddle to online communication, but I think that’s easy for some to say when they are not referring to individuals with autism. I’ve been dealing with anxiety for years when it comes to face to face interaction. Between making enough eye contact, worrying about standing too close to someone, to having topics to discuss to avoid awkward silences, it in all essence becomes like a job, and that’s not fun. It’s a chore at times.

That’s why I love Facebook. I can decide to communicate with people during my free time, and when I feel the most comfortable in doing so. Between adding friends, towards starting groups with friends, playing games, instant messaging, adding photos, it gives you a new outlet to I think the main thing to remember is that most things must come in moderation. Facebook can be as much as a confidence builder in helping individuals with autism as it can be a deterrent if it’s over used (1-2 hours daily should be the max). That’s the key. Autism and Facebook work because it is a communication building tool for youth. After time it should help encourage involvement off the web. As I’ve progressed through Facebook I’ve spent less and less time on it, in exchange for hanging out face-to-face.

What are your thoughts on the subject? Do you have a loved one with autism who is just starting out on Facebook? What are your concerns? I know there are also a lot of underlying issues (cyber bullying, procrastination, etc.), so as always feel free to email me or comment below with any questions!

This is one of my Autism Speaks U related blog posts. If you would like to contact me directly about questions/comments related to this post I can be reached at kerry.magro@autismspeaks.org or through my Facebook Page here.

LIVE Chat with Dr. Ricki Robinson Transcript

September 27, 2011 2 comments

On Monday September 26 Dr. Ricki Robinson, author of  Autism Solutions: How To Create a Healthy And Meaningful Life For Your Child, hosted a LIVA Facebook Chat.

Having a child with ASD can and will have an impact on your immediate family and extended family. While it is easy to be distracted by your child’s often overwhelming needs, it is important to carve out time for your family and friends. Often they can be your best support. Additionally you may need help dealing with many concerns, including those that are emotionally charged, such as how to tell others about your child, whether to have more children, how to incorporate siblings into his program, and practical ones such as financing respite care and just organizing your life and family, as well as getting your own job at work done.

2:34
Hi everyone! We’ll be live with Dr Ricki Robinson in just under 30 minutes, at 3PM EST. In the meantime, feel free to submit questions!
2:42
Type any questions in the box below and hit ‘send’. Don’t worry if you can’t see your question, it goes straight to us!
2:42
We’ll be live with Dr Ricki in 20 minutes!
2:52
Today Dr Robinson will be …..taking questions about Having a child with ASD the impact on your immediate family and extended family.
2:59
Hi Everyone, we’re here with Dr Ricki Robinson. We’re thrilled to have her back after the last live chat she did with us!
3:00
Dr Robinson: I am so pleased to be with you again. My first chat was an exciting, intense hour! I’m a pediatrician and I’ve devoted my practice to the care of children and families affected by autism for the past 20 years.
3:01
Dr Robinson: I have recently published Autism Solutions: How to Create a Healthy and Meaningful life for your child, in which I share with families what I’ve learned over the years that has helped their children move up the developmental ladder, and problem solve the challenges they meet along the way
3:02
Dr Ricki: A portion of the proceeds of the book of course gets donated to our host, Autism Speaks!
3:02
www.DrRickiRobinson.com for more info!
3:03
So without further ado…. first question!
3:03
Comment From Loni Alpino

Is there any monetary aid for an Autistic child for feedback and therapy services?

3:04
Hi Loni!
3:04
You ask a question that plagues every parent and family who has a child with autism.
3:05
There are so many stressers that families face, and financial issues are one of the primary ones that we see in families of children with special needs.
3:05
There are potential sources of aid…. many of them depend on the state in which you’re living.
3:07
Many of the services in some of the states are provided for through state agencies. As an example, I come from California, and children who have been diagnosed with ASD qualify for services through both the educational system and the California department of Developmental Disabilities. So my recommendation is to mine the services available in your community for funding, and don’t forget about medical insurance.
3:08
Through medical insurance if you have a willing physician, you can sometimes get funded for ancillary services that might be covered by your own insurance policy, or through Medicaid, especially if your child has other medical diagnoses such as seizures, GI problems or special dietary needs.
3:09
additionally approximately 25 states have now passed state insurance reform for autism service coverage to provide many of the services that occur in home for your child.
3:10
Once you know where all your sources of funding might be, then take a critical look at your treatment plan that is required for your child, and see how each element might be covered by each of these resources to put together the most robust treatment plan for your child possible.
3:11
For more information about the state supported autism insurance laws in your state, i suggest you go to www.autismvotes.org
3:11
Comment From Guest

My daughter is 2 years old and was diagnosed autistic on April 1st. I have some family members that keep insisting she’s just delayed. They don’t understand it’s more than her not talking yet. She doesn’t respond to her name, doesn’t point to let us know what she wants and really has never babbled. She makes noises, but not what I would call babbling. Any suggestions.

3:12
Your situation is very common in families where a child has been diagnosed with special needs, most especially autism.
3:13
There are so many emotional processes that are occurring for the family as a unit, and for each of you individually after getting this diagnosis.
3:14
Of course there is the initial shock that can send you spiraling into a true grieving process, and each of you in the family will work through this in your own time frame. Part of that process includes a stage of denial as particularly i see this in family members who aren’t living with your child day to day.
3:15
It will take them often longer to come to terms with the diagnosis and along with everything else we have to be patient for these things to happen. I particularly see this in grandparents, whose often have forgotten what it was like in the early years with their children, and the bumps that happen along the way.
3:16
To that end Autism Speaks has published ‘A Grandparent’s Guide To Autism’, that was developed specifically to help grandparents understand and deal with the emotions related to a diagnosis.
3:18
I find that when other family members get some understanding of what autism is, and they can get beyond the autism label to understand what are the strengths and challenges of the child who has autism, and learn about ways in which they can learn to relate and then help their family, that this will put the family members back on track to becoming a support that you might be able to rely on.
3:22
There are also professionals who understand this process who can provide help for those who are really struggling, and sometimes that is necessary. Finding a caring pediatrician with whom you are able to share these issues may provide you the support you need to be able to take the help back to your family members. In my experience having such a case manager for the long term allows you to not only meet both the medical needs of your child and your family, but also your emotional needs.
3:22
Comment From Maureen Early

What is the best way to educate your extended family about autism, especially when it looks like a child is tantruming because they’re “naughty” instead of due to their symptoms of autism.

3:22
Hi Maureen!
3:23
I am so glad that you asked that question, because it is one of my pet peeves.
3:23
So often children, all the way up to adults with autism, are described by their behavior, as you noted.
3:23
and yet…. this behavior often comes the greatest clue that we have to what a child is thinking or feeling.
3:24
and why do I say that? When a child is not able to communicate, and yet has intent, what would we expect them to do?
3:24
Of course they’re going to do something to express themselves.
3:25
So our job is to become a detective, and to try to figure out what they’re trying to tell us. So often these behaviors don’t have intent, but are actually a response to the environment. We know that children with autism have unusual responses to the world around them.
3:26
Additionally one of the senses that we have is how we interpret our own bodies. It’s how we know that we’re hungry or that we have a pain, and where that pain is going to. My hypothesis is that it is just as difficult for children with autism to understand this sense as it is for them to understand the world around them.
3:27
Therefore quite often a change in behavior is related to how your child is feeling at that time. If a behavior is persistent and is effecting his quality of life, then it is my experience that a medical illness must be ruled out. I have covered this issue extensively in my book, for those of you who might be concerned that your child may be experiencing a medical problem.
3:28
However it is important that we “demystify” a child’s behavior for your family members. If you can ask your therapy team to help you with language that is understandable to describe these behaviors to your family members so that they can also begin to understand what your child might be expressing. This can be incredibly helpful.
3:29
Comment From Relonda Supel

What therapies and doctors should a child with autism have in place beside the therapy he gets in school and seeing your usually pediatricians

3:29
Hi Relonda!
3:29
Putting your team together is one of the paramount issues for parents and families.
3:30
Depending on your community, there will be a variety of resources that you can tap into.
3:30
If you happen to be in a community where there are few resources, then Autism Speaks has provided a resource guide to help you identify local resources.
3:31
Here’s a link to that guide:http://www.autismspeaks.org/community/fsdb/search.php
3:31
Depending on the resources available, you still need the manager of your team. In general it becomes one of the parents.
3:32
Sometimes you are able to find a professional on your team who has experience in case management. Pediatricians and other physicians sometimes do have this expertise, and you will want to find out about that.
3:33
Deciding on who your team members will be really comes from understanding your individual child. Nowhere in medicine have I experienced a complex disorder requiring so much individualization of a treatment plan.
3:33
When you determine through your professional consultations what your child’s challenges are, then my approach is that every challenge deserves the proper treatment.
3:35
This means that your treatment team will look like a wheel, with the child, parents and family at the center of the wheel, but the therapists as the spokes of the wheel, and the tire of the wheel are all the challenges and barriers that your child faces. What we know is that these challenges will change over time, especially as your child goes into adolescence and into adulthood, and so this therapeutic team will change accordingly.
3:37
That’s a long way of saying that I can’t tell you how many doctors you will need, and you will be the advocate for that, depending on the challenges that arise. Finding team members where you can have an ongoing dialog where they will listen to your concerns is key to finding the right professionals at the right time. And you, as the parent, are the keeper of that key.
3:37
Comment From Lou Melgarejo

My wife and I fear that when our kids are older, our two neuro-typical kids will resent their autistic sister for the restraints that her condition has put on our lives. Do you have any suggestions for raising siblings without resent?

3:38
Hi Lou! You too ask a question that is on the mind of most parents who have more than one child.
3:38
If truth be told, it’s on the mind of all parents, as typical siblings, as they grow up, often become resentful of their siblings, and their perception of their place in the family.
3:39
For siblings of children with autism, these feelings may come sooner, and are more real.
3:39
because off the 24/7 nature of living and helping a child with autism.
3:40
Although I can’t guarantee that you can’t raise siblings without resentment in any family, there are things we can do. I think they first thing you have to do is to help your siblings understand what is happening for their brother or sister.
3:41
We must always inform siblings as directly as possible using age appropriate language, and be certain to not let our fears and worries be evident, as they are able to pick up on these aswell. I like to describe to them, not in the terms of the autism label, but we have to tell them what that really means for their sibling.
3:43
I find that older siblings, who so much crave to have an interaction with their brother or sister, but don’t know how, can be mentored by giving simple techniques and instructions as to how they might be able to engage their sibling in a meaningful way that will be fun for both of them. I find also that having a sibling with autism is a double edged sword: resentment goes hand in hand with guilt.
3:45
Siblings may feel guilty because they do not have autism, and yet may resent the time that you might have to spend with their brother or sister. These issues are best dealt with if brought to the front and center in a way that will help these children deal with their own emotional journey.
3:47
Studies have shown that siblings who have brothers or sisters with ASD often learn to cope quite well. For many learning to be a helpful member of the family becomes second nature. In fact as an adult a sibling one of the helping careers and may become more skilled than their peers in responding positively to their own emotional needs.
3:48
if you happen to have a child who’s having a difficult time, especially as an adolescent you may also need to consider getting them the support they need to work through these emotional issues.
3:48
Comment From Bobbie Jo

sometimes my son seems as if he is bi polar. I expressed my concern and I am told that it is normal for a child that has autisim?

3:49
Actually Bobbie Jo, what you’re describing, which I presume is mood changes, both highs and lows in your son, can occur in autism, but is not necessarily part of autism.
3:51
Often these mood concerns can interfere with your child’s daily life and absolutely derail learning and interactions. if this is the case, then we do have ways of addressing these issues medically. Certainly your son deserves a full medical evaluation. In this case I would suggest asking your primary care physician first, to refer you to a specialist, which might be a child psychiatric or neurologist, or developmental pediatrician who has expertise in this area.
3:53
Mood issues in autism is considered a co-morbid condition that are overlapping the symptoms of the autism. this is not always easy to sort out, and is why you need a physician with expertise to help you determine what is happening for your child, and the correct treatment approach. Again, if you’re having trouble finding a professional in your community who can help you, please check out the Autism Speaks resources guide:http://www.autismspeaks.org/community/fsdb/search.php
3:54
Comment From Joseph

Do you put any emphasis into the new belief that Autistic kids should now also have included in their therapies joint attention therapy?

3:55
I am so glad you asked that question Joseph.
3:57
For children with autism, who at their core have a delay in social and emotional development, it behooves us as part of their treatment program an approach that helps them gain mastery of social interactions. In order to do that one has to go back to the basics, and help a child develop his ability to attend to another in a meaningful way, in order to engage and interact.
3:57
Recent research has confirmed that children who developed joint attention have greater gains in language than those who have not.
3:59
This underscores the hypothesis that strong foundational social and emotional development is really required for a child to be able to think and create. This at the end of the day is what we hope for all children with ASD. So how are you going to do this? There are many techniques that can supplement what your program is, or can be the primary focus of your program, that will support your child developing joint attention and engagement and reciprocity in play.
4:00
I use the DIR/Floortime approach in order to foster these abilities. I have described them fully in “Autism Solutions, and describe how to implement Floortime in the home throughout the day.
4:03
Other approaches that can help include the Early Start Denver Model. Practitioners of these approaches are increasing around the world. Floortime was designed for parents to learn how to interact with their children by understanding how their child learns about the world, what they’re individual differences are that derails this interaction, and then entering their world with this understanding by following their child’s interests.
4:03
If you wish to pursue this, Autism Speaks has a reference library for books on these subjects.
4:04
Remember, shared emotion with others and relationships that are developed are the glue that supports all that your child does.
4:07
I want to leave you with a final message today: I’m sorry I couldn’t get to all your questions, but I hope to be back in the future for more. Just remember: believe in your strength, creativity and love. Your family will help you meet the challenges of raising a child with autism, so you can help your child be the best that he or she can be!
4:08
Autism Speaks: Thanks everyone for coming, and thanks Dr Ricki for another great chat. Sorry we didn’t get to everyone’s questions.
4:08
You can forward any questions to familyservices@autismspeaks.org, or call our autism response team 888 288 4762
4:10
If you’re interested in Dr Ricki’s book, Autism Solutions, check out her site here: http://www.drrickirobinson.com/
4:11
Thanks everyone!

Kerry Magro to Host LIVE Facebook Chat

August 8, 2011 6 comments

Kerry Magro will be here on Thursday, August 11 at 3pm EDT to host a LIVE Facebook Chat. Kerry, an adult who has autism, is a recent graduate of Seton Hall University and active member in our college program, Autism Speaks U. He started the club Student Disability Awareness on campus to help spread awareness and raise funds for those affected by autism. Please join us as Kerry shares with us what it is like to live with autism.

To join the chat, visit our Facebook Tab!

How to Integrate Your Child in the Community

July 25, 2011 23 comments

Every family has concerns and questions about how to successfully include a family member with autism in their community. Martin, a parent of a child with autism, and an attorney will join us on July 26, 2011 Facebook Q and A to share her own experiences and answer questions about how to step up to community inclusion!

We want to take some of your preliminary questions now! Ask away!

Autism Speaks Facebook Q & A Session

July 18, 2011 7 comments

We hope you join us and our guest Areva Martin, Esq for a live Q & A session on Autism Speaks Facebook page!

TOPIC: In The Community: How to Integrate Your Child

Date: Tuesday, July 26th
Time: 4 to 5 PM/ PST

Every family has concerns and questions about how to successfully include a family member with autism in their community. Martin, a parent of a child with autism, and an attorney will join us on July 26, 2011 to share her own experiences and answer questions about how to step up to community inclusion!

About Areva Martin
Areva Martin is a nationally recognized legal authority and expert on autism who has been featured on many radio and talk shows. She is the author of the Amazon Bestselling book, The Everyday Advocate: Standing Up for Your Child with Autism and Other Special Needs.

A Harvard-educated attorney, she has helped hundreds of families gain access to services and educational programs for their children with autism. She is co-founder and president of the nonprofit Special Needs Network. She lives in Los Angeles with her family, including a ten year old son who has autism.

HOW TO JOIN

At 7:00pm EST on July 26th, visit: Facebook page

If you’ve missed chat sessions you can view transcripts from previous Facebook chats:

Rodney Peete

100 Day Tool Kit

Family Services Inaugural Chat

Can’t make the chat: submit your questions to the Family Services Team or a transcript will be available shortly after the Q&A session is concluded.

You can always contact the Autism Response Team (ART) members are specially trained to connect families with information, resources and opportunities.

Call us at 888-AUTISM 2 (288-4762) or email us at familyservices@autismspeaks.org.

Pin Pals Photo Contest

July 14, 2011 4 comments

Autism Speaks to Young Professionals (AS2YP) is looking to spread awareness and needs your help! They will be holding a photo contest – to participate, all you have to do is email us a picture of you wearing the Autism Speaks pin. It’s that simple! The winner will receive two complimentary tickets to the next Autism Speaks 2 Young Professionals (AS2YP) Event! Their picture will also be featured on the Autism Speaks website and Facebook pages!

Directions:
•         Take a creative picture with the Autism Speaks Puzzle Piece
o   Spreading awareness in different scenarios
  In your office
  At school
  In the gym
  Grocery store
•         Please send your photos to Justine Benisch at jbenisch@autismspeaks.org with ‘Pin Pals’ in the subject!

*Deadline August 1 by 5pm EST!

‘100 Day Tool Kit’ LIVE Facebook Conversation

June 23, 2011 5 comments
5:07
Hi Everyone!
5:08
Thanks for joining the chat today!
5:08
We apologize for our technical issues!
5:08
Today’s chat will focus on supporting families whose child has been recently diagnosed with autism. Most parents wonder: What do I do next? Where can I learn about the diagnosis? How will this affect other family members? Today, we want to help answer these types of questions. We expect to get more questions than we are able to answer, if you still have questions after the chat, please contact the Autism Response Team at 888-288-4762. Thank you for your participation in today’s chat!
5:09
Comment From Jennifer  

Should a child be on an IEP if they have aspergers?

5:09
Hi Jennifer!
5:10
Yes, every child who has developmental concerns should have an IEP involving assessment that determine the child’s strengths and weaknesses
5:10
From there recommendations can be made to support the child in an educational program
5:11
Comment From Guest  

My child is being tested for Autism…He is 2 1/2. What should I expect with the tests?

5:11
Hello Guest
5:12
Good diagnostic assessment treat strengths and weaknesses including language, cognition and other skills
5:12
This will be very important in setting goals and intervention plans
5:12
Comment From Guest  

my grandson is almost 3 and I’m sure is autistic yet his parents won’t acknowledge it at all!! He needs help

5:12
Hi there!
5:13
This is a very common concern of grandparents
5:13
Sometimes it is difficult to know how to approach the parents so that they are open to taking the next steps
5:14
One approach is to recommend to the parents to get an evaluation
5:14
If there isn’t anything there, they can let it be. But if there is something, the child will benefit from early intervention
5:14
It might be good to suggest to them that you will accompany them to the assessment. The more support the better!
5:15
It is also good to give them time to process, but not TOO much time where the child loses the benefit of early intervention
5:15
Comment From Jesse  

My neice has Autism and Im wondering will she ever be able to function in the world when she gets older?

5:15
Hi Jesse
5:15
YES!!!!!!!!!!!!!!
5:15
It is well known that all children with autism make developmental progress
5:16
In terms of how much or how can not always be sure. It is up to the family to make sure the child gets high quality intervention and is in the correct setting. The more support the child gets, the better the outcome.
5:17
Comment From Traci  

I have sent 2 messages and they never show up

5:17
Hi Traci!
5:17
We are trying our best to answer everyone!
5:17
We are so happy that you are all here and asking questions
5:17
Comment From Sandy  

We’ve just been diagnosed yesterday. Our 5 year old son has ADHD and PDD-NOS. Our concern right now is that every resource around here has a 2-4 month wait period. I’m wondering what we can do now before the socialization groups are accessed.

5:17
Hi Sandy
5:18
Have you ordered the 100 Day Kit?
5:18
Here is a link, where you can download it for free
5:19
You may want to ask the professionals who evaluated your son what you can do at home in the meantime
5:19
The more the parents are involved in intervention, the better the outcome
5:19
Stress to the professionals that you need training on how best to intervene
5:19
Comment From Brandi  

HELP! Trying to decide between ABA therapy and floor time therapy. Pros and cons???

5:19
Hi Brandi!
5:20
In this case, you must ask, in what therapy will the child make the most progress?
5:20
Again, this comes out of good assessments in finding what the child’s strengths are
5:20
Based on that you should be able to pick the appropriate intervention that will garner the best outcome
5:20
Comment From Jennifer S  

We are about a month past our First 100 days and I wanted to thank you for our First 100 Days Tool Kit. It is priceless and an amazing resource. I carry it with me everywhere just to show people how amazing Autism Speaks is! Its a great way to get people excited about the walk, it shows where the money goes!

5:21
Hi Jennifer!
5:21
Thank you SO very much!
5:21
Our Mission At Autism Speaks, our goal is to change the future for all who struggle with autism spectrum disorders.
5:22
We want that kit in the hands of every parent at no cost
5:22
Families can call 888-288-4762 to get a hard copy of the kit
5:22
We love how valuable the kit was for you
5:23
Comment From Cynthia  

How can I explain my 5 year old that his brother has autism??

5:23
hi Cynthia
5:23
It is very important that parents explain to siblings that their brother or sister has autism
5:23
It is important to spend time talking with them and explaining what it means
5:24
It is also important to listen to their concerns without judgment
5:24
It is important that you establish the groundwork for an open communication
5:24
Let them know that is is okay to ask any questions and you will be there for them
5:24
The hard part is finding out what age appropriate terms you should use
5:25
I suggest you check out our resource library
5:25
We have lots of books that explain all of this to siblings
5:26
Comment From Emilio  

Hi everyone! Our 3 year old was diagnosed with High Functioning Autism at 2 years and, even before then, we knew something was different due to several milestones he was not making. We immediately began Early Intervention, At-Home Teaching and Training and now, because of our great community-based EI, OT and ST organizations, Artie is doing fantastic! He has made so much progress and is even enrolled in an ELP class and has fully integrated with Mainstream Students! We are SO proud of him! I cannot emphasize enough how important Early Intervention is and how important it is to work with your child at home!

5:26
Hi Emilio
5:26
I cannot emphasize enough how important early intervention is and involving parents.
5:26
THEY ARE KEYS TO SUCCESS!
5:26
Thank you for inspiring other parents with your successes
5:27
Comment From Patty  

What type of doctor is most qualified to make a diagnosis? Have been to 2 neurologists and still not completely comfortable w/their diagnosis.

5:27
Hi Patty
5:28
Starting with your pediatrician, you should be able to get a referral to a developmental pediatrician, neurologist, or psychologist
5:28
Because autism is a behavioral disorder, it is diagnosed through observation
5:28
and a careful history of the child
5:29
It is important to get a second opinion if you have additional questions about the diagnosis
5:29
There is no ‘one siz fits all” for autism spectrum disorders
5:30
Different professionals can see the child differently
5:30
Again, another reason to have more than one opinion.
5:30
Also keep in mind that no one knows your child better than you!
5:31
it is important to bring a support person with you to the evaluation to be sure you are hearing the same information
5:32
Then you can discuss this with the support person after the session. It can be very overwhelming and hard to absorb
5:32
Comment From Marilyn  

Hi my Daughter is 8 years and she just been diagnostic with autism

5:32
Hi Marilyn
5:33
Although this may considered a late diagnosis, you are welcomed to call and get the 100 Day Kit
5:33
It will help you still!
5:33
Comment From Guest  

How do I know the severity of my child’s Autism?

5:34
The process of doing an assessment when developing an IEP will provide us with a description of strengths and weaknesses
5:34
From there you will be able to set appropriate goals and intervention plans
5:35
Although many different healthcare professionals can diagnose autism, it is important that more than one disciplines be involved in assessing your child
5:36
This may not happen at one visit, but the professionals are communicating their prospectives with one another
5:37
This includes psychologist, OT, speech and language therapist, pediatrician, specialty physician, etc.
5:38
The value of these assessments is that the family take back information to the agency or school district so that the agency can better understand the child and advocate for them
5:39
Comment From monica  

iif a child has been diagnosed by doctors saying he’s pddnos but the school says different. what should I do?

5:39
Hi Monica
5:40
There are differences in opinion with diagnosis
5:40
It all traces back to the assessment process and understand those differences and why they exist
5:40
I would recommend that professionals speak to one another about this issue
5:42
Comment From Matt  

I have a problem with the concept of stimming

5:43
Hi Matt
5:43
Stimming is often considered odd repetitive motions that can be very apparent or more subtle
5:43
Unfortunately these behaviors can be very persistent and intense
5:44
The important thing is to understand that the behavior and consult with professionals in order to minimize the behavior that may be interfering with the child’s functional ability
5:44
The idea is to get help to manage the behaviors
5:45
Comment From Brian  

What symptoms can we look for in a child who may have autism?

5:45
Hi Brian!
5:46
The big three areas are communication, social symptoms, and repetitive behaviors
5:46
We have a page that goes into more detail on each
5:46
Comment From Guest  

my brother has autism and i was wondering does autism children have picky diets??

5:47
Hi There
5:47
Many people with autism are picky eaters or have aversions to certain foods
5:48
A great way to work on nutrition is to set up a regular structure for meal time
5:49
In that mealtime, include at least one food that your child has eaten in the past and liked
5:49
BUT also include a food that your child or sibling may have an aversion to
5:50
It’s a good idea to start discussing this with your family pediatrician
5:50
It is important the individual with autism is getting the right nutritional intake
5:51
Comment From Rhonda  

Please explain what things like PDD-NOS mean. Thanks

5:51
Hi Rhonda!
5:52
It is a form of autism spectrum disorder that meets the criteria that of a person with social difficulties, but not in both communication and restrictive repetitive behaviors
5:53
It can also be used to diagnose children under the age of three that don’t have clear difficulties
5:53
Comment From Sarah  

how often should children be re evaluated?

5:53
Hi Sarah!
5:53
This is a really good question
5:53
Typically children get evaluated annually through the IEP process
5:53
As parents you have a right to call an IEP meeting at any time
5:54
You can discuss your concerns – this may include an evaluation. That should be considered by the IEP team
5:55
We recommend parents work closely with their pediatrician and if parents have concerns, the pediatrician can support them in getting their child’s needs met
5:55
Comment From AnQi  

is the 100d ays kits free of charge?

5:55
Yes!
5:55
Anyone can download the Kit for free
5:56
You can request a hard copy of the 100 Day Kit by calling 888-AUTISM2 (888-288-4762). Parents of the child must request the kit.
5:56
We are so happy that we’ve had all of these participants, but are so very sorry we haven’t been able to answer everyone’s questions
5:57
You ALWAYS have the options of calling the Autism Response Team to speak to a coordinator at 888-AUTISM2 (888-288-4762).
5:57
It is so important that you all chose to come here to ask questions
5:57
By asking questions, you are providing vital stepping stones to ensure your loved one with autism has a successful future
5:58
Having a child with autism requires that we are comfortable doing more for our children
5:58
Active intervention on our part is a way of life!
5:59
Here is how you can get a kit
The 100 Day Tool Kit is available to download for free at:http://www.autismspeaks.org/family-services/tool-kits/100-day-kit
Aspergers /High Functioning Autism Tool Kit
http://www.autismspeaks.org/family-services/tool-kits/asperger-syndrome-and-high-functioning-autism-tool-kit
Manual de los 100 Dias
http://www.autismspeaks.org/family-services/tool-kits/manual-de-los-100-d%C3%ADas
Parents whose child has been diagnosed in the last 6 months may request a complimentary hard copy of the 100 Day Kit by calling 888-AUTISM2 (888-288-4762). Parents of the child must request the kit.
5:59
The 100 Day Kit is broken down by sections
6:00
1. About Autism- what to expect, define autism, what causes autism, prevalence2. You, Your Family & Autism- your family- addresses the family’s reaction to their child getting diagnosis, what you and extended family can do

3. Getting Your Child Services- navigating Early Intervention agencies, educational system,etc.

4. Treating Autism- different approaches to treatment, How is autism treated

5. Making It Happen-assembling your team, books ad websites
Appendix:
Action Plan for Next 100 days
Autism Safety Kit
Useful Forms
Glossary
Your local resources- Resources form RG: includes local resources: State Info, Schools, Waivers, Local Autism Orgs, AS Communities

6:00
In addition, another great resource is the Autism Video Glossary
6:01
Online video glossary to help you identify the early signs autism I young children
Glossary contains 150 video clips, available free of charge. It helps to understand words and terms used to describe autism. It also showw examples of social reciprocity, Joint attention, Sensory defensiveness
6:02
Thanks again so much for being here – we look forward to the next chat with you!
6:02
Your advocacy truly makes a difference and we look forward to a future of open dialogue!
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