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Autism Speaks 1,000,000th Fan HP Notebook Sweepstakes

December 15, 2011 1 comment

Help Autism Speaks reach 1,000,000 fans and enter for your chance to win an HP Pavilion dm1z with a custom Autism Speaks logo!!

TO ENTER:

  1. LIKE the Autism Speaks Facebook Page
  2. SUBMIT your entry by filling out the entry form.
  3. POST “I just entered the @Autism Speaks 1,000,000th Fan Notebook Sweepstakes”

See Official Contest Rules and Prize Details

Hacking Autism LIVE Chat Transcript

September 7, 2011 2 comments

On September 6, the first Hacking Autism LIVE Chat was held, where members of the Advisory Board discussed ideas submitted by the community.

The Hackathon event will bring together Hacking Autism’s Advisory board, experts in Autism, technologist and people on the spectrum. This catalyst event takes the ideas submitted to the Hacking Autism website to a multidisciplinary group to actually create applications for people to use free of charge.

The next chat will take place on September 13, please be sure to join here!

7:02
Welcome to the first live chat for the HP Hackathon!
7:03
This chat is text only – you’ll interact with us via the live chat client that you are logged into at different times. We have a special group of our advisors also on the chat with us – and we’ll introduce them in a a few moments.
7:03
The Hacking Autism Hackathon has pulled together a volunteer group of software developers with leading autism specialists to work together to develop groundbreaking, touch-enabled applications for the autism community.
7:04
Tonight’s chat is all about improving a few of the best ideas and creating a conversation with you about this program. This is the first of our 2 scheduled chats.
7:04
In mid-October, we’ll be at HP offices for the live hackathon, taking the best ideas and matching them up with volunteer development teams to actually build the apps you’ve submitted!So far, we’ve had some 245 ideas submitted! Thank you!
7:05
Have you submitted an idea to hackingautism.org yet?
Yes!

 ( 35% )

No, still thinking of a good one!

 ( 65% )
7:07
How tonight is going to work…The first part of the chat will be fairly structured… we’ll show you 3 separate ideas, and for each idea ask you a few questions and then start to brainstorm on how to improve the idea. More on that in a moment…Meanwhile, I’d like to briefly let you know who you’ll be interacting with tonight from our advisory committee…Phil McKinney with HP
David Canora with Disney
Marc Sirkin with Autism Speaks (and the fast fingers, I’m doing the typing tonight)
Peter Bell with Autism Speaks
Shannon Kay with May Institute
Kate Grandbois with Spaulding Outpatient Center for Children
7:09
Ok, great… here’s how tonight’s chat will work:First, we will present an idea and ask via interactive poll if it is clear what the idea is…Then, we’ll ask for feedback and input on the idea (i.e. do you like it, or not) via another short pollFinally, we’ll brainstorm a little on some good features – just submit your ideas and questions when we prompt you and we’ll share responses with the group as we go…Ok… are you ready? Here’s the first idea…
7:10
Idea 1 Stress Thermometer
7:10
Comment From Quinton Hall

I have a 12 year old brother that has autism like symptoms. What type of applications are available for him. I have been a very important role model in his life thus far.

7:10
Hi Quinton! It is great what you are doing and your brother is lucky to have you. We can send you two place. Autism Speaks has recommended Apps herehttp://www.autismspeaks.org/family-services/resource-library/autism-apps
or you can visit the Hacking Autism App Gallery here -http://www.hackingautism.org/apps
7:11
There were several entries submitted for this concept including:An ap that brings calm for autistic children when they are at high stress level or burn out. Something visually calming- with sounds that calm perhaps starting at a louder volume and automatically slowing down and quieting as their stress level subsides.I’d love to see an app that‰Û_tells caregivers- who do not know about autistic behaviors- how to see the signs of upcoming stress and inturn meltdowns- that are happening to our kids- and how to avert them. IE: a child is clenching their fist…that means they are rageing inside and will be heading toward a meltdown. If we can avert them they will be less. It is called Rumble- Rage and Recovery. We never want the Rumbling to reach the Rage stage.I would love to see an app that allows someone with Autism who is nonverbal to communicate their level of stress and anxiety…a “stress thermometer” where they could mark with their finger their level of anxiety.Take a moment to read the submissions…
7:12
Do you understand the basic concept of “Stress Thermometer?
Yes

 ( 73% )

No, it’s unclear

 ( 27% )
7:13
Do you like this idea?
Yes love it

 ( 67% )

Unsure

 ( 33% )
7:15
Ok.. now it’s your turn… submit ideas to improve the idea, or ask questions!
7:16
“Guest” asked for some more details about this idea… basically, it’s a way for to help someone communicate an absract idea of stress.
7:17
Comment From Guest

The concept of a stress thermometer seems clear enough, I could use one of these myself, and maybe autistic folks could use one for other people. But what would it actually do?

7:19
A stress thermometer could be used as a replacement behavior for inappropriate behaviors (for example, replace aggression with using the “I’m angry” setting. The app could track the usage across times and situations.
7:19
Comment From Betty

Will this thermometer change colors as the person’s mood chsnges??

7:19
Comment From Joeliene

Would this be done through a series of icons almost like emoticons that the child could indicate an emotion or what they are feeling at the moment?

7:19
Joeliene – sure! Great idea.
7:20
Comment From Guest

I like the concept…. and having a way to demonstrate the stress level could be helpful.

7:21
Comment From Valerie K

We use colors, each identifying the stress level. Green=1/calm, blue=2/not so calm, Yellow=3/aggitated, Orange=4/frustrated, Red=5/MAD

7:21
Valerie – excellent!
7:21
Comment From Ronnie

Could it be personalized? perhaps with visuals that are used in their daily life or would they need to be training on this new visual?

7:21
Comment From Cindy

I like the idea!

7:22
Comment From Calebs Mom

agree with Joeliene I Can see that idea working

7:22
Ronnie – Peter Bell from Autism Speaks added that perhaps we could even license characters for the thermometer – Power Rangers, Pokemon etc… Very cool :)
7:23
Comment From julie hudy

Ronnie – cool idea :)

7:23
Ok everyone… let’s transition to the next idea… idea 2 Bullying “Lifealert”I’d love to see an app that‰Û_can protect our children from Bullying! This APP can be a direct message to the school of any incident any time. May be we can even efforce schools to pushish bullying just like they would do for any other asault. “Super B” will enable our kids to feel protected at all times and send a message with names and specific situations to the school and hopefully a copy to their parents. My dream would be fro every teacher to say on the first day of school….Please download “Super B” and use it any time! We will make sure your confidenciality remains protected and Bullyest be held responsable!!Thank you for your consideration!I’d like to see an app that provided children (particularly middle school children) with examples of how to address comments from bullies. I am currently working working towards my Masters degree in speech pathology and Florida State University and help run social skills groups at the Center for Autism and Related Disabilities (CARD) in Tallahassee- FL. In working with middle school-aged children- they have shared with me numerous times that the concepts they learn they can’t apply. They tell me that in middle school “if you’re not cool- no one will talk to you”. So many times- the concepts we teach them- they are not even able to practice because they already feel like they don’t fit in and do not communicate very often to similar age peers. When they do initiate conversation- however- they get made fun of or picked on. I think having an app that can demonstrate appropriate ways to respond to such interactions can be very beneficial and provide concrete examples. This may be done through a combination of a social story with text for additional support and details.
7:23
Take a moment to read…
7:25
Do you like the idea of a lifealert type service for bullying?
Yes

 ( 87% )

No, not really

 ( 13% )
7:26
Comment From Mark Anthony

I love the Super B idea. I worry all the time how my son will deal with Bullying in Junior High.

7:26
What questions or suggestions do you have for this concept?
7:26
Comment From sean

bullying is a reality and anything that can helpful like an application would be beneficial and maybe be intoduced to school

7:26
Comment From Rachel

I love the concept, but unclear how it would help / what it could do.

7:26
Comment From Betty

Yes I LOVE the Super B idea!!!

7:27
Rachel – a simple app with social stories and perhaps even a way to alert teachers/aides about how to respond to bullies
7:27
Comment From Steve-Aspie_Dad

Bullying “Lifealert” – We need more anti-bullying awareness and prevention. Anything to help protect our children would be appreciated greatly!

7:28
Comment From Lynelle Majors

good idea but how can we actually get our kids to use it…. my son would never do it.

7:29
Lynelle – not sure to be honest! That’s why we’re brainstorming about the concept. Some kids might not want to “tattle” but in some situations it could be useful.We’re also wondering if this app could also include “social” stories to help kids learn how to handle different situations.
7:30
Comment From Lindsay

Bullying I think might always be an issue for children with disabilities! A lifealert system would be a great idea!! Expecually since theres alot of autistic children who don’t talk or can’t express they’re feeling or whats going on outside the home

7:30
Comment From Suzi

I think the idea could be a great tool – especially if it offers both a way to alert others – i.e. track occcurances & gives social stories for possible responses.

7:30
Comment From Sherry

My son is in Kindergarten and is already being picked on by kids on the bus

7:31
Comment From Andrew

Thats an amazing idea. I have Aspergers, and I’m quite High Functioning, and the symptoms aren’t there anymore for me, but yes, I think this is a great idea for those who are low-functioning.

7:31
Sherry – that’s terrible. Please alert your school officials!
7:31
One of the things the app could also do is educate parents on how to address the issues, explain their rights and more.
7:31
Comment From Keith Ringled

Would this be an alert that is immediate. So that personel can respond when incident is happing?

7:32
Keith – ideally.. yes!
7:32
Comment From Nexus

i think it may be a good idea, however I see great means of abuse to come from it.

7:32
Another benefit could be tracking both for individuals as well as across a geographic area, school or district.
7:32
Comment From Kelli

would this app be affordable?

7:32
Comment From Darcy

I think that in some instances it could be great. Even if used only when telling is trully needed.

7:33
Comment From Nexus

now are we talking about online bullying or real life bullying

7:33
Nexus – potentially both actually.
7:33
Comment From Calynn

That would be great… I love the idea. My sister gets bullied and she has ASD so i think this is a very useful app

7:34
Comment From Guest

if it were immediate it would be hard to abuse…because officials can respond right away

7:34
Comment From Jerry Scott

Most Jr. High Schools that I’m aware of don’t let kids use phone during the school day – immediacy would be a problem. An app that walked a kid through a re”port of bullying “time, place, etc” might be very useful to get an accurate picture of what happened.

7:36
Jerry – great point although it is possible to get a device like an iphone or ipad written into an IEP accomodation.
7:37
Comment From Sonia

how would this app work for a kindergarten student?

7:38
Comment From donna

I would also like to see the app have features available to teachers, (especially general education teachers) to use to educate/inform their general ed students about how to accept others that are different (those with ASD). If we help to teach awareness and spread information it might cut down on bullying due to misunderstanding.

7:38
Sonia – good point – there is no universal solution to any of these apps!
7:38
By the way.. if you have app ideas…. please submit them at www.hackingautism.org
7:38
Ok… let’s go to idea #3… Storyboarding/Social stories
7:39
I came across a realy cool p[rogram through my6 sons speech therapist. Its for easy story boarding. YOu can use there pictures or your own- including photographs to make a quick story board or evets calender for your chyild. Might be cool to inlude one the kids could use themselves to show us what they want or need.An app that will enable me to write social stories on the fly on my son’s iphone.I’d love to see an app that‰Û_easily allows parents and therapists to create social stories based on a combination of “packaged” pictures and personal photos. It would provide a template for pages with a drag and drop interface to allow the user to develop the story and add appropriate text. It would then be viewable as a sort of slideshow or could be printed. My grandson LOVES his IPAD- so it would be nice if it ran on the IPAD as well as PC systems. A really great addition would be a library of animated icons or pictures to help make the story lively.
7:39
Comment From Leah

Definitely needs to be tailored to different ages.

7:40
Do you understand the basic concept of Storyboarding/Social story
yes

 ( 84% )

no

 ( 16% )
7:40
If you were wondering…. the ideas submitted were copied and pasted here – we didn’t change a thing!
7:40
Comment From Michael Needleman

You could build the app to age appropriateness. One interface for kindergarders, another for middle school, another for high school. Becoming more complex over time.

7:42
Comment From Leah

The storyboard app is an excellent idea. Parents go crazy taking photos and laminating and printing.

7:42
Comment From Suzi

Love this idea!

7:42
Comment From Jerry Scott

I love this idea – if my daughter could select a situation from the screen and then review the story board – it would really help her get through a lot more situations on her own.

7:43
Comment From Lynelle Majors

I think it would be great if the kids could input their own situations and stories….my son has a hard time telling the difference between that actually happened and what he wanted to happen

7:43
Have created your own storyboards?
Yes

 ( 54% )

No

 ( 46% )
7:43
Comment From Keith Ringled

I Struggle as a creative person. I sometime find it hard to put together a social story on short notice. This could be benificial. If the pictures and stories get to generic I know my son would lose interest.

7:44
Comment From donna

It would be good if there were a combo of pre generated pics as well as you can upload/use your own photos. this would make it most relevant

7:45
Comment From Ann

I like Donna’s idea of both generic photos and uploading your own.

7:45
Comment From Guest

The ability to search the internet for images would be great

7:46
Comment From Michael Needleman

Adding location awareness to the app so it would present pictures based on physical location might be a cool feature.

7:46
Comment From Jerry Scott

Maybe we are limiting ourselves in this concept a little – with the video cameras on the phones/pads, why have a story board when you can have a “Social story video”

7:46
Jerry.. yes!
7:47
A bank of good “pre-fab” examples would be great, and then you could replace/edit them with your own images/videos…
7:48
Comment From Jerry Scott

I picture taking a video of my older daughter brushing her teeth the “right way” then having it play while my daughter with autism brushes hers

7:48
Comment From Guest

Having the ability to share your story via email or social networking is also fantastic

7:48
Comment From donna

Great idea Jerry! I enjoy that a lot

7:49
Comment From Ronnie

Jerry that sounds great! But I do think social stories on boards have a place. I had a student who got too caught up in the “business” of a video (whether he was in it or not) and really needed the organization of a 1-2-3-etc picture story

7:49
Comment From Suzi

If video were used, my daughter would likely be upset if the reality didn’t match exactly.

7:49
Ronnie – perseveration is a real issue to consider. You are right.
7:49
Comment From Jerry Scott

I think the ability to share the user-generated content with many of these apps will be one of the most important features. As parents and caregivers, none of us has the time we would like to spend developing these types of things.

7:50
Jerry – amazing concept!
7:50
Sharing social stories with each other, and allowing people to customize them on their own devices, and share them back again. Terrific.
7:51
Ok, let’s transition to some open discussion and questions… submit any questions or comments you have now! We have about 10 minutes left…
7:52
Comment From Joeliene

What is the timeframe on development of an app – once the hackathon is complete?

7:53
We can send you two places! Autism Speaks has recommended Apps here http://www.autismspeaks.org/family-services/resource-library/autism-apps
or you can visit the Hacking Autism App Gallery here -http://www.hackingautism.org/apps
7:53
Joeliene – great question… it all depends on the complexity of the app
7:54
Also, developers are donating their time and efforts!
7:55
Comment From Jerry Scott

I am wondering if we could use computer science students to some of the development. Could we structure the app development in such a what that professors could offer chunks to their students to do as projects?

7:55
Jerry – we’re using professional developers to ensure we’re building quality apps
7:55
Comment From donna

how often are those resources updated with newly found or newly created apps?

7:55
Comment From Guest

price range on the apps?

7:56
Guest… all free!
7:56
Comment From Joeliene

And, then how will they be made available at large – for purchase, free, iTunes

7:56
All depends on what actually gets built!
7:57
Comment From Rachael

have you considered a panel of older ASD individuals to give ideas that would have helped them when they were younger?

7:57
Rachael – John Robison is part of our committee and yes, we’re always looking for suggestions and ideas.
7:58
Wow, that was terrific! We’re going to have to wrap the chat up now… THANK YOU for participating!Next week, we’ll hold another live chat – same place, and same time, 7pm EST with more ideas and more time for discussion.Meanwhile, if you are in the NY/NJ/CT area on Sept 17 and 18, we’ll be at Maker Faire… stop by if you are planning to attend and watch the Autism Speaks Facebook/Twitter/web site for information and volunteer opportunities.
7:58
Comment From Jerry Scott

H.A. – Thanks for your efforts, on behalf of all the parents here we really appreciate it!

7:58
Comment From Joeliene

will this live chat remain available for other to read if they could not participate?

7:59
Yes – there is a live transcript available for the chat.
7:59
Please provide additional ideas on www.hackingautism.org - we are still accepting new ideas!
7:59
Comment From Rachael

thank you so much for looking out for new ways to help our kids :)

7:59
That’s all for tonight – thanks everyone!


Hacking Autism LIVE Chat

August 25, 2011 5 comments

On Tuesday September 13, there will be a LIVE Chat with the community and the  members of the Hacking Autism Advisory Board to discuss YOUR ideas! We want to know what you think and to collaborate with you on refining and selecting the best ideas!

Using technology to give people with autism a voice.

 Partners
HP – Austim Speaks – Doug Flutie Jr. Foundation – Goodby, Silverstein & Partners

Overview

Autism, one of the fastest growing developmental disorders in the U.S., affects 1 in 110 children. Many of these people have difficulty communicating and expressing themselves. We believe technology can help. Technology is in no way a cure. In fact, we’re not out to cure autism. Our goal is to help people today, with the knowledge and skills we have.

WE NEED YOUR IDEAS!

Technology has always promised to make our lives better. Finally, it’s actually doing it. Touch technology is giving people with autism a way to communicate and express themselves like never before. It is giving people with autism a voice. Some, for the very first time.

By working together to create touch applications for people with autism, the HP Hackathon is unleashing software’s potential to adapt hardware and advance technology. It’s an invitation for the tech community to unite. It’s an open call for collaboration that will make a real difference in the lives of a growing community.

WHAT IS HACKATHON?

The Hackathon event will bring together Hacking Autism’s Advisory board, experts in Autism, technologist and people on the spectrum. This catalyst event takes the ideas submitted to the Hacking Autism website to a multidisciplinary group to actually create applications for people to use free of charge.

 

Advisory Board
Phil McKinney – HP
Chris Mertens – HP
David Canora – Disney
Jim St. Leger – Intel
Jennifer Leighton – Spaulding Outpatient Center for Children
Kate Grandbois – Spaulding Outpatient Center for Children
Peter Bell – Autism Speaks
Andy Shih – Autism Speaks
Simon Wallace – Autism Speaks
Shannon Kay – May Institute
John Robison – Autism Speaks

Hacking Autism – Using Technology to Give People with Autism a Voice

August 9, 2011 2 comments

When touch-enabled computing was introduced to the world, no one could have anticipated that this technology might help open up a new world of communication, learning and social possibilities for autistic children. Yet it has.

Hacking Autism is a story of technology and hope and the difference it’s making in the lives of some people who need it most.

Hacking Autism doesn’t seek to cure autism, but rather it aims to facilitate and accelerate technology-based ideas to help give those with autism a voice.

Share Your Idea

If you could design a touch-enabled software application for the autism community, what would it be? Maybe it’s a game or a learning tool or even something that could assist caregivers. We want your ideas.

Visit our Facebook tab and help us hack autism!

HP has teamed up with Autism Speaks and the Flutie Foundation with its Hacking Autism initiative, and now offers special pricing to the autism community. Sign up here to take advantage of these great deals – and read more to get your special coupon code.

Once you register, you can receive an additional $50 off any pre-built TouchSmart PC by entering DTTM2937 at check out! Click here for terms and conditions.

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