Archive

Posts Tagged ‘Individualized Education Program (IEP) Tool Kit’

Family Services Office Hours – 09.21.11

September 22, 2011 1 comment

Office Hours easily connects families to a wide variety of autism-related resources, including Family Services Tool Kits, and the Autism Speaks Resource Guide, an online national database of autism providers and resources searchable by state and zip code.

Family Services Office Hours is designed to quickly provide access to resources that are available and free to the entire autism community.

The Office Hours sessions are staffed by ART coordinators who are specially trained to connect families affected by autism to resources.

In recognition of National Grandparents Day, on September 11th Autism Speaks is celebrating the grandparent connection in families affected by autism. During the month of September, we are asking grandparents to share your experiences, so that other grandparents across the country can benefit from your knowledge and the road you have traveled. 

3:03
Hi Everyone! Welcome to this week’s Family Services Office Hours! We are here to answer any questions you have about our resources and help connect you with others. So ask away!
3:04
Comment From sheila 

is there in sevices in lawrenceburg tn

3:05
Hi Sheila! Here is a link to our Tennessee Resource type! You can check for resources in your area!http://www.autismspeaks.org/community/fsdb/state.php?sid=50
3:05
Comment From Robbin 

I would like to know if there are any extracurricular activities in my area for my 16 year old son with Aspergers?

3:05
Hi Robbin! You can find lots of resources in our Resource Guide. All you need to do is click on your state, select categories like “Recreation and Community Activities” and type in your zip code.
3:06
I also suggest you order our Transition Tool Kit, it was designed specifically to help families of individuals with autism ages 14-22 on the transition to adulthood. It has lots of tips, including more about how ti get involved in the community.
3:06
Comment From Maggie 

Hi Autism Speaks. Thank you for giving us this opportunity to ask questions. I think my three-year-old son has autism. A friend of mine’s son was just diagnosed and I see a lot of his traits in my son. What should my first step be?

3:06
You can order a free copy on our website!
3:07
Hi Maggie! Thank you so much for joining us! There is a page on our website, ‘Learn the Signs.’http://www.autismspeaks.org/what-autism/learn-signsYou should also work closely with your pediatrician to be sure your son is reaching developmental milestones and to track his progress.
3:07
Also, check out our Video Glossaryhttp://www.autismspeaks.org/what-autism/learn-signs
3:09
We would also like to recommend a wonderful book, ‘ Autism Solutions’ by Dr. Ricki Robinson. Dr. Robinson will be here for a LIVE Chat on Monday, September 26th so check back for more!http://drrickirobinson.com/
3:10
Comment From Britt 

Hi Autism Speaks. My son was diagnosed with autism at 3. He is now 4. Lately a lot of people have been asking us what degree he is…and I have no idea. When he was diagnosed no oe mentioned a degree or anything like that that. Is this important to know? Does it make a difference? How would I go about finding this out? Thanks so much.

3:10
Hi Britt. Your pediatrician can help provide you with more information. However, regardless of the formal diagnosis, every child with autism is different so it is more important to focus on your child’s strengths and weaknesses and make decisions about his treatments based on what you see. You know him the best!
3:13
Comment From Connor

My wife and I are having difficulty potty training our daughter who has autism. Do you have any tips for us?

3:15
Hi Connor! Thank you so much for joining our chat. This is often difficult for families! Here are two books that we recommend!
3:15
Teach Toileting: A Revolutionary Approach for Children with Autism Spectrum Disorders and Other Special Needs
by Deborah Bialer http://www.amazon.com/teach-toileting-revolutionary-approach-disorders/dp/0615255523
3:15
Toilet Training for Individuals with Autism or Other Developmental Issues, 2nd Edition
by Maria Wheelerhttp://www.amazon.com/gp/product/1932565493/ref=as_li_ss_tl?ie=UTF8&tag=autispea-20&linkCode=as2&camp=217145&creative=399369&creativeASIN=1932565493
3:15
We haven’t read them ourselves but they have been submitted to our Resource Library by other families that have found them helpful, so I hope they are helpful to you too!
3:20
Comment From Britt

Thank you. Also, How would I go about finding activities for my son do? The state law here has changed for his IEP and it now says that he should have more social interaction…but we are having a hard time finding classes and activities for him that accept and understand kids with special needs. And lastly, do you know of or have any resource information for military families? My husband is AF and its likely that we will be moving again within the next two years. So I would like to get a resourceful connection if I can before then. Thanks you again.

3:21
Hi Britt, please visit our Resource Guide. You can search by state to find activities for your son.http://www.autismspeaks.org/community/fsdb/search.phpYou can also visit our Community Connections, ‘Have Some Fun Today! Recreation, Community Activities, Clubs and More!’http://www.autismspeaks.org/family-services/community-connections/have-some-fun-today-recreation-community-activities-clubs-and-
3:23
The Organization for Autism Research has sponsored a program called, ‘Operation Autism.’ It is a resource guide specifically for military families.http://www.operationautismonline.org/tag/military/
3:25
ACT Today! is a national non-profit organization is a mission to raise awareness and provide treatment services to families that cannot afford the treatments and services their children require.http://www.acttodayformilitaryfamilies.org/
3:25
Comment From Britt

Awesome! Thank you so much!

3:25
Comment From John

My daughter is having a hard time transitioning back to school. She is new in her mainstream class. How can I help her peers understand what autism is and why she has challenges. Thanks so much for taking the time here!

3:26
Hi John! We are sorry to hear that your daughter is having difficulties. We recently created a Community Connections, ‘Back to School: Let’s Get Ready for a Great Year’ that provides tips about how to ease this transition.http://www.autismspeaks.org/family-services/community-connections/back-to-school
3:27
You can also look at our School Community Tool Kit in the section ‘Peers’ for more informationhttp://www.autismspeaks.org/docs/family_services_docs/sk/Peers.pdf
3:27
Comment From Sally

How do I talk with soemone in person.

3:28
Hi Sally! We have an Autism Response Team, and our trained coordinators would be happy to speak to you. You can email them directly at familyservices@autismspeaks.org or call them at 888-AUTISM2. They are available during regular business hours.
3:37
Comment From Liz

I have a 9 year old son with Autism/Aspergers. I have not been able to find a way to explain his autism to him. I need help finding a way to talk to him in a way he will understand. Is there an easy way?

3:38
Hi Liz, this is a struggle for many families. Please visit our Resource Library where we have a list of Asperger Syndrome websites http://www.autismspeaks.org/family-services/resource-library/asperger-syndrome
3:38
We also have an ‘Asperger Syndrome and High Functioning Autism Tool Kit’ Tool Kit that can be downloaded for FREE here!http://www.autismspeaks.org/family-services/tool-kits/asperger-syndrome-and-high-functioning-autism-tool-kit
3:40
Comment From allison

i have a son 24 years old that was diagnosed as high functional with a photographic memory but i feel like he should be re-evaluated

3:41
Hi Allison. Re-evaluation is always a good idea if you feel like his diagnosis may have changed. You are the one who knows your child best, so it may be a good idea to trust your instincts and bring your son back to his doctor.
3:44
Comment From Colleen

What is this CARA thing I keep hearing about? Thanks for your help!

3:44
Comment From Louisa mciver

regarding the legislation that was re-approved yesterday….mandating coverage of autism therapies.

3:45
CARA, which stands for Combating Autism Reauthorization Act, was passed the the House yesterday(YIPEEEE), but we still have to wait for it to make it through Senate. For more information, you can visit this blog post by Judith Ursitt, the Director of State Government Affairs at Autism Speakshttp://blog.autismspeaks.org/2011/09/21/tell-congress-to-pass-the-combating-autism-reauthorization-act/
3:46
We have just a 9 days left to pass the Combating Autism Reauthorization Act (CARA) of 2011 before critical provisions expire on September 30th. On September 20th, the Combating Autism Reauthorization Act passed with a floor vote in the House of Representatives. Now, we need you to switch your focus again back ot the Senate. Contact your Senators to ask themto support this important piece of legislation!
3:46
Comment From Louisa mciver

The info I read says that state operated insurance has to cover autism therapies, etc. Does this also apply to group insurance through an employer?

3:46
You can click on your state to learn what is happening there!http://www.autismvotes.org/site/c.frKNI3PCImE/b.3909861/k.B9DF/State_Initiatives.htm
3:56
Thank you for joining us today! Our next live chat is Monday at 3PM. Dr. Ricki Robinson is going to discuss ASD and its impact on family members. She will have lots of great things to say so don’t forget to tune in!
3:57
As part of the live chat, we will be giving away ten of Dr. Robinson’s new book called Autism Solutions. So join us!
3:58
As always, if you have any other questions, please don’t hesitate to contact our Autism Response Team at familyservices@autismspeaks.org or 888-AUTISM2. Enjoy the rest of your day!

LIVE Q & A Transcript with Co-Founder Suzanne Wright

September 22, 2011 3 comments

Suzanne and Bob Wright are co-founders of Autism Speaks, the world’s largest autism science and advocacy organization. Inspired by the challenges facing their grandson, who suffers from autism, they launched the foundation in February 2005.

Suzanne has an extensive history of active involvement in community and philanthropic endeavors, mostly directed toward helping children. She is a Trustee Emeritus of Sarah Lawrence College, her alma mater. Suzanne has received numerous awards, the Women of Distinction Award from Palm Beach Atlantic University, the CHILD Magazine Children’s Champions Award, Luella Bennack Volunteer Award, Spirit of Achievement award by the Albert Einstein College of Medicine’s National Women’s Division and The Women of Vision Award from the Weizmann Institute of Science.

In 2008, Suzanne and Bob were named in Time 100’s Heroes and Pioneers category, for their commitment to global autism advocacy. They have also received the first ever Double Helix Award for Corporate Leadership from Cold Spring Harbor Laboratory, the NYU Child Advocacy Award, the Castle Connolly National Health Leadership Award and the American Ireland Fund Humanitarian Award. In the past couple of years the Wrights have received honorary doctorate degrees from St. John’s University, St. Joseph’s University and UMass Medical School – they delivered respective commencement addresses at the first two of these schools. The Wrights are the first married couple to be bestowed such an honor in St. John’s history.

The Wrights have three children and five grandchildren.

Click here to read A Grandparent’s Guide to Autism.

12:59
Hi – I’m Suzanne Wright – Co-founder of Autism Speaks and I’m so happy to be joining this web chat today!
1:00
Comment From James McDonald

Good Afternoon

1:00
Comment From sha

thankyou for your time

1:00
Comment From Lucas mom

hi

1:01
I’m here today as Christian’s grandmother – and I’d like to talk about my role as a grandparent and advocate.
1:01
Comment From donna

Good Afternoon all

1:02
We are so excited about our new toolkit which is a grandparent’s guide to autism which can be downloaded for free on our autismspeaks.org website.
1:03
Comment From Emily

Hi Suzanne, I have a brother with Autism and just want to say thank you for your time you put into Autism Speaks.

1:04
Hi Emily.  Thanks for your kind words – I do this for Christian and for all families and individuals affected by autism.  Thanks for joining our discussion today.
1:06
Comment From Lalania Lind

I have a question. Did your family find it hard to get help from the education system for Christian?

1:09
Hi Lalania – very much so. Here is a guide that we provide from autism speaks – a School Community Tool Kit which can give you some advice – and an our IEP – Individual Education Program toolguide – which provides process and practical tips to knowing your child’s rights.
1:09
Comment From Carol

Hello Suzanne! Thank you for coming on to talk with us grandparents today. I was wondering what activities you like to do with Christian.

1:11
Hi Carol! We love to swim with Christian… he loves to go to the playground, he loves to go to the beach and swim in the waves, and he just made a beautiful little necklace for me so we’re starting on some arts and crafts these days.
1:11
Comment From Melissa

My son’s grandmother is a great advocate for our son. He’s now 8 and enrolled in a private Christian school here in Atlanta after spending 3 years in an intensive program at Emory University. I could talk to you all day about all the things she’s done for him and for us. Thank you to Autism Speaks for first jumpstarting our family into seeking treatment for our son back in 2005.

1:13
Melissa, hi. You have a wonderful mom. Speaking as a mom I knew from the get go just how important it was to be there not only for my grandson, but for his parents as well. We are glad that Autism Speaks was able to help your family at a very sensitive and critical time.
1:13
Comment From Sally

How do I share my time with my other grandchildren?

1:15
Hi Sally. This is VERY important. Not only for the sibling of the child affected but for the little cousins too. We as a family take turns with Christian when we are all together so I can spend some time with his brother and cousins. I must say that they are beginning to understand what autism is, and I do spend time trying to explain why special needs.
1:15
Comment From Annie

This Halloween we will trick or treat for Autism Speaks and ask for donations in lieu of candy! My 3 yr old son, Jamey doesn’t like candy, but he is autistic and that’s how I came up with this idea.

1:16
Hi Annie – We LOVE your idea and we’ll be posting it on our website!! I love the fact that you found a way to celebrate Halloween in your own special way.
1:16
Comment From patricia chabra

I am PAtricia Chabra,I have two son with ASD disorder,I have been doing autism walk for years,advocating for children and adults affected,you are such a mentor and inspirational person suzanne,god bless you

1:17
Hi Patricia – even though it’s not possible for me to be at every walk I am always there in spirit. I’m glad to be connecting with you now here – thank you for all your kind words and God Bless you too.
1:19
Comment From Donna McCombs

First, Thank you for giving your time to us for this chat. How can I teach my daughter’s grandparents to be more understanding about her disorder?

1:21
Hi Donna – our new Grandparent Tool Kit addresses this very issue. It will absolutely give you pointers on how to interact with the other set of grandparents who may be as supportive as your own parents. I really hope this helps – I know how difficult it is.
1:21
Comment From Stephanie

I have a grandson named Jaylin and we have been trying to find him weighted blanket he gets to hot if we put the ones he want but wont sleep without them so we was told about the blanket just cant find them.

1:22
Hi Stephanie – we have a list of sensory products on our website.
1:22
Comment From mark

hi Suzanne!:) im mark from the philippines. i’m glad about organizations such as Autism Speaks and really appreciate the facebook account. I have a brother with autism; just wondering, Whats the latest research in autism, such as its cause or new teaching methods given to autistic children?

1:24
Hi Mark! I’ll give you a link to our science which contains the most up to date and cutting edge science news. On another note we have our Light It Up Blue campaign which runs worldwide during the month of April. Can you help me light up some buildings in the Philippines blue?? We want to light up the world!
1:24
Mark – I hope your brother is doing ok.
1:25
Comment From Melanie Hobbs

Hi Suzanne and other parents/grandparents! LOVE Autism Speaks and the Light it up Blue campaign. One thing I’d love to see is resources and ideas for grandparents for toys/gifts. My son is 9 and there are tons of “autism toy” ideas for younger kids, but I would love to find more ideas for older kids. When it comes to birthday time, Grant’s grandparents are always at a loss (and sometimes I am too!). :)

1:26
Hi Melanie! First, thanks for helping us to Light It Up Blue! We actually have a Toys R Us online guide which was specifically created for differently-abled kids.
1:27
Comment From Melissa

It was actually the Autism Speaks series on NBC back in February 2005 that made us realize what we had been dealing with for 18 months despite protests from our pediatrician to the contrary. Our son was then diagnosed with classic autism that April. He’s now mainstreamed with no educational supports, is on the A honor roll, and has become a bit of a musical prodigy much to our delight. We just recently told him about his autism and he’s still wrapping his head around it. We are finding his classmates are beginning to notice his social and behavioral differences and wondered if AS had any suggestions on how to explain what autism is to young non-sibling children.

1:30
Hi Melissa – great question. There’s portion of our School Community Tool Kit devoted to peers. I’m so happy that you were able to see our Autism Speaks series on NBC. In Feb. 2005 no one was talking about autism – now we have our country but the world talking about it. If you are not familiar with our Light it Up Blue campaign I’d love to have your help to shine a light on autism.
1:31
Comment From Sally

At this point in my life it is too hard for me to talk “live” with other grandparents. Are there any Grandparent support chat rooms?

1:33
Hi Sally. We would love for you to check out the grandparent autism network – which provides support and resources for grandparents.
1:33
Comment From Guest

Hi I’m Flo from Germany. I am an SLP who has worked with autism fro many years. It is so encouraging to be able to use the web to support families affected by ASD.

1:35
Hi Flo. Yes it is very encouraging – what would we do with the internet. Please be sure to connect with us on all of our social networks. And also – help us light Germany up blue!
1:37
I need grandparents!! I feel we should have the support of the AARP with the numbers being what they are; 1 in 70 boys and 1 in 110 children. Thousands of grandparents without question are affected by autism. Here is a link to the President of the AARP: the Board.
http://pubs.aarp.org/aarpannualreport/servicesincar2010?folio=18#pg18Please ask them to help Autism Speaks and our grandparent community to raise awareness about the issues that affect our children and grandchildren with autism by making our grandparent tool kit(http://www.autismspeaks.org/sites/default/files/a_grandparents_guide_to_autism.pdf) available on their website and feature an article on autism in their AARP Magazine during the month of April, Autism Awareness Month.
1:40
It’s so important that the AARP join Autism Speaks – because autism affects everyone – the child, the parents, the siblings, the friends, the teachers, and the Grandparents – who often become the child’s emotional rock.
1:43
Comment From Lania

But how do you get a grandparent to come out of denial? We have been trying for years to help our daughters grandparent that she has autism, but she just will not believe us or the doctors.

1:44
Hi Lania – you know, everyone deals with the diagnosis differently, and I certainly feel for your situation. We have a 100 Day Kit which helps families through the newly diagnosed period. As part of the 100 Day Kit – we have a “Learn the Signs” section describes the hallmark signs of autism in detail. So maybe presenting this information to your daughter’s grandparent will help them understand the diagnosis of autism better.
1:46
Comment From Donna McCombs

Our grandparents on both sides say that if she had more discipline she would not have any behavior issues.

1:46
Donna – the misconception is that aspects of autism is about lack of discipline. This is not the case. Please go to our Learn the Signs and our Grandparent tool kit – I really hope this helps.
1:48
You can learn the signs here! http://www.autismspeaks.org/what-autism/learn-signs
1:52
It has been such a wonderful experience chatting with so many of you today. I really hope that our Autism Speaks website offers you the resources that you need as you navigate through the complexity of living with autism. Know that we are here for you and appreciate all your support. The more people who know about autism will be more willing to help ALL families everywhere. And we can raise the global consciousness by lighting up the world blue in April. Thank for the opportunity to chat with all of you today. Happy Autumn Day. Suzanne Wright

Mainstreaming Max

September 21, 2011 10 comments

The last episode, of NBC‘s of Parenthood, follows Max as a mainstream student on his first day at his new school. Here is a recap!

You can watch the full episode of ‘Hey, If You’re Not Using That Baby’ here.

———

Kristina and Adam make the difficult decision for Max to attend a different school as a mainstream student. They both try to prep Max on how best to make friends – look people in the eye and smile and shake hands.

Max’s teacher Miss Mikindoe is giving an assignment when Max loudly calls out his neighbor for writing in her book. When Max won’t let it go, Miss Mikindoe points out that talking out in class is also against the rules. The lesson continues, and Max continues to offend, talking out of turn and correcting other students. And why does he have to raise his hand? Max finally settles down, but sadly, the damage is done, as his classmates begin to make him feel like an outcast.

Max is trying to make friends by looking kids in the eye, introducing himself and extending his hand to shake. Unable to understand why this technique isn’t working for him, a frustrated Max sits down to eat lunch by himself.

Kristina stops by Miss Mikindoe’s classroom and literally begs for a few minutes of her time after not getting a response over email. Within seconds, Kristina’s in tears, describing her worry and the spying incident. Miss Mikindoe reassures her that everything’s going to be okay – but Kristina is going to have to get comfortable with having a little less control.

Kristina visits Max’s teacher for reassurance on the decision to mainstream Max. Click here to view the clip.

Many parents struggle with the decision to mainstream their child. What has your experience been? Can you relate to this?

Have you or your child had difficulty making friends? How do you cope? 

Simon Wallace answers, “My child has joined a ‘mainstream’ classroom but is struggling. What can help?” Click here for his response.

————-

Valuable Resources
In this week’s ‘Experts Speak,’ Roy Q. Sanders, M.D. expresses, “I want teachers and other school personnel to know that parents know their children better than anyone else. The parents are the experts on their child. And I want parents to remember that – even though you may feel intimidated – as parents you have the most knowledge about your child. You are really running the show. You are the expert. Don’t ever allow anyone to take that power away from you.” Visit here for more.

School Community Tool Kit: A tool kit to assist members of the school community in understanding and supporting students with autism.

Asperger Syndrome and High Functioning Autism Tool Kit

Individualized Education Program (IEP): Guide

Family Services Office Hours – 8/24/11

August 25, 2011 5 comments

The Family Services Department at Autism Speaks will now offer online Office Hours each Wednesday, starting August 3, 2011, from 1:00-2:00 p.m. EDT

Office Hours, a new resource available on the web at www.autismspeaks.org will easily connect families to a wide variety of autism-related resources, including Family Services’ Toolkits, and the Autism Speaks Resource Guide, an online national database of autism providers and resources searchable by state and zip code. Family Services’ Office Hours is designed to quickly provide access to resources that are available and free to the entire autism community.

“Having a family member with autism can easily lead to feeling isolated without knowing where to turn. In addition, most families have little free time to search for reliable information about autism, yet they may be in need of timely information. Office Hours offers a quick connection to the Autism Response Team(ART) who can assist you in getting the information you need as quickly as possible,” states Marianne Sullivan, Assistant Director of National Outreach and Resources.

The Office Hours resource is staffed by ART coordinators who are specially trained to connect families affected by autism to resources.

In addition to Office Hours, ART is available by telephone during usual business hours at 888-AUTISM 2 (888-288-4762). You can also reach ART by email at familyservices@autismspeaks.org.

Here is the transcript:

12:58
Hello Everyone!
12:58
Comment From Melissa 

Excited for our chat today! Thank you~

12:58
We are so excited to be on this chat today. As we wrap up summer we can look back over the month of August as we discussed back to school!
1:00
Today we are going to go over some last minute strategies to transition to the new school year. We would like to introduce to you our new ‘Individualized Education Program (IEP): Summary, Process and Practical Tips’
1:00
It is a free, new online guide that provides parents with important and reliable information and advice about navigating the IEP process, created by a team of pro bono lawyers at Goodwin Procter.
1:01
You can download it for FREE here!http://www.autismspeaks.org/sites/default/files/iep_guide.pdf
1:01
Another very variable resource we have comes from a LIVE Chat Gary Mayerson hosted, ‘How To Compromise With Your School District Without Compromising Your Child’
1:02
You can read the full transcript here!http://blog.autismspeaks.org/2011/08/18/transcript-gary-mayerson/
1:02
Comment From Deb 

Did anyone else send their child to school for the first time this year?

1:02
Hi Deb! Can you tell us a little bit about your child’s transition?
1:03
Comment From Deb 

He’s 4, and started pre-k this week.

1:03
How did things go?
1:03
Comment From Deb 

He’s doing well, but his anxiety is through the roof. Overall I’m pleased with his reaction

1:04
This is where transition planning comes in. It is great to prepare him by having routines or going over his day before he goes to school to alleviate some of his anxiety
1:06
Comment From Deb 

We did that, we’ve been getting ready for a couple of months. I just can’t seem to quite reach him to … smooth his feathers.

1:07
Keep trying and don’t give up! Communicate with his teacher- they may have some great ideas and teamwork is key!
1:07
Comment From Jenny 

Any good ways to handel anxiey over homework assignments? My son is in 8th grade and homework is so stressful to him.

1:07
Hi Jenny that is a very common concern.
1:09
Start with communicating with your son’s teacher about what the homework expectation is. I suggest you setup a special time each day to complete his assignments and work with the teacher to create a rewards system that will help him work through and complete his assignments. Remember, just like all other kids, your child is not any different… LOTS of children have trouble completing homework assignments. Ask family members and his teachers for some ideas how to best work through this issue
1:10
Paula Kluth has some wonderful resources that may help as well! Here is her page of ‘Readings’http://www.paulakluth.com/readings/
1:10
Comment From Arden 

We made my grandson, age 4, a book with pictures of his teachers and a story about the schedule of the day. He is in his 2nd year of pre-school throught the Special School District, and he likes going to school.

1:10
Arden that is wonderful! Great planning!
1:11
Kids with autism respond so well to predictability. We are always so glad to see a grandparent involved- keep up the good work!
1:12

The School Community Tool Kit provides information and resources for general education and administrative school staff to support a positive school experience for children with autism.
1:12
The School Community Tool Kit has some great tips and suggestions on classroom management for kids with ASD. Check out the ‘Appendix’ section!http://www.autismspeaks.org/family-services/tool-kits/school-community-tool-kit
1:13
Each section is broken up and you can download each section independently – for FREE!
1:14
Comment From Jenny 

does this explain the special education rights of the parents as well as those of the child?

1:15
Hi Jenny – the IEP Guide explains this, which can be downloaded here http://www.autismspeaks.org/sites/default/files/iep_guide.pdf
1:15
You can also learn more about your child’s rights here!http://www.autismspeaks.org/what-autism/your-childs-rights
1:16
Comment From Jenny 

ok great because I always feel like the schools are not telling everything

1:16
One of the most important things as your role as a parent is to be an advocate. We have provided these resources so you can do your best in parent advocacy
1:17
Comment From Brenda 

My 7 year old son has Asperger’s. He’s entering 2nd grade. Although making progress in leaps and bounds with a great IEP and teachers and professionals, he is still very immature emotionally and tantrums in front of his friends. How can we help education not only his teachers, but his classmates on his condition. He still doesn’t understand himself.

1:18
Hi Brenda- It would be really helpful to look at the School Community Tool Kit in the Appendix section. There are a lot of great resources on how to talk to peers as well as teachers about ASD
1:19
You may also want to look at the Asperger Syndrome and High Functioning Autism Tool Kit. It goes more into the details of the diagnosis!
1:20
Comment From Jenny 

My son had a teacher that played a video about Autism designed for children for her class. it really helped the other kids with how they treat him in a positive way.

1:20
Nice going Jenny and kudos to the teacher who is thinking about the needs of ALL of her students!
1:21
Comment From Jenny 

it was her idea, she was a great teacher

1:23
We have heard some great feedback on the book – ‘Wrightslaw: All About IEPS’
1:23
You can also visit the website which is a wonderful resource for ALL parent advocates
1:24
Comment From Alexis 

My son is going to school for the first time and I’m worried because he doesnt speak yet

1:24
Hi Alexis – thanks so much for this question. How does your son communicate?
1:25
I am assuming that your child’s IEP has communication goals and objectives in it that outline the way in which your child communicates to teachers and peers. It is very important that it is well defined across all of his environments
1:25
In this case it would be important to have a speech therapist involved in your child’s IEP planning
1:26
Many parents have reported great success in using iPad technology as a way of communicating
1:27
The ‘Technology and Autism’ Community Connections is also a great resource http://www.autismspeaks.org/family-services/community-connections/technology-and-autism
1:28
*Many parents have reported great success in using iPad technology as a way of having their child communicate* To be more clear!
1:28
Comment From April Shumard 

Hello! My name is April. I just wanted to ask right quick, I know the IEP is done yearly, but is is done on the yearly annaversary of the last one or is there a specific month. I am forgetful!

1:29
Hi April! I know it can be hard to balance everything! So the IEP is done annually in the same month
1:29
Comment From Sandy 

My son is 9 & going into 4th grade. I’m concerned about his ability to focus on non-preferred tasks in class (i.e. math). We worked on his summer workbook yesterday & it took him at least 45 minutes to complete 10 problems . . . and that is with me right there with him to keep him on task. He can do the work, but is so distracted it takes forever.

1:30
Hi Sandy – I think it would be great to get some support from a behavior analyst who can work to create a behavior plan that will help your son complete his task in a timely manner.
1:31
I would recommend asking your son’s teaching to ask for a functional behavior assessment
1:31
During last week’s chat with Gary MAyerson, he defined what a Functional Behavior Assessment is.
An FBA identifies the target behaviors, tracks and measures the frequency, duration and antecedents of those behaviors, and then, finally, hypothesizes as to the likely function of the target behaviors…and you need to know what the function is before you can develop and design a proper behavior intervention plan
1:33
Comment From Sandy 

Thank you – I will pull up last week’s chat and check in with the people in charge of the IEP.

1:34
Your welcome! We have dedicated the month of August to back to school and we have lots of resources in our Family Services Section so PLEASE be sure to visit!
1:35
Comment From doreen 

my son got dxsd autism and autustic spectrum disorder does he qualify for social security benefits ??

1:35
Hi Doreen – It all depends on your state, but check with your State Developmental Disability Office. Social Security is a little tricky in that it depends on a family’s income, but your son may be entitled based on his disability
1:37
Comment From Arden 

I will be attending the IEP meeting next week. Any streategies that will help me get through the process?

1:37
First of all Arden, good luck!
1:37
It is great that you are thinking about what you can do to make the process more smoothly
1:37
If you look back at earlier posts in this Q & A there are great resources that you can review
1:38
We have a new Individualized Education Program (IEP): Summary, Process and Practical Tips, a free, new online guide that provides parents with important and reliable information and advice about navigating the IEP process, created by a team of pro bono lawyers at Goodwin Procter.
1:38
One thing to remember is to be positive and promote collaboration with your IEP team!
1:39
A positive attitude will go a long way in helping to get services for your child
1:40
Comment From Alexis 

Quick Question Is a child with a developmental disability such as autism entitled to a blue handicapped placard from the DMV

1:42
That is a good question Alexis! I think that depends on that state you are in and the eligibility requirements are listed on your state DMV page
1:42
Comment From Guest 

How do you get the school to participate in the use of the school tool kit?

1:44
Great question! We have had many parents who send the PDF to the Resource Specialist at their child’s school. BEWARE it is 250 pages and it can be expensive to print. Many schools may want to print one copy to keep in a binder to have to use for all of their students with autism
1:45
There is a section for staff training included in the kit
1:45
Great work promoting the Kit to your school! Great advocacy!
1:45
Comment From April Shumard 

Do I have to wait for the yearly IEP? Can I request sooner??

1:45
Absolutely!
1:46
Under IDEA anyone on the IEP can request an IEP
1:46
It is important to put that request in writing to make sure it is well documented and that the person who is responsible receives the document
1:47
If your school is not in compliance with your current IEP it is important that you go ahead and make a request for an IEP meeting
1:48
Comment From Bonnie 

My son was taken out of a regular school in grade 2 he should now be grade 5 level. They have had him in an environment where he is with children who have been banned from all schools here. He has been out of school now for near 2 months with me fighting tooth and nail to try to get him integrated into a regular school with no relief. I have tried through politicians, the autism network in my state education department complaints etc. Any suggestions ?

1:49
Hi Bonnie – you have obviously tried through many different avenues to advocate for your child. You may want to seek an attorney. If you visit the Resource Guide under your state, you can find a list of attorneys in your state.
1:50
It sounds like you have been through a lot and I wish you and your son the best
1:50
Some parents have to move mountains to get the right fit for your child.
1:51
You are doing a wonderful job of being a parent advocate
1:51
Comment From Teresa 

My grandson’s school told my daughter that even though she had an IEP from the end of this past school year that they would still have to evaluate him for 90 days to decide if they are going to impliment the recommendations from his last IEP. Why is it they just don’t go ahead and impliment that IEP while he is being evaluated?

1:52
Hi Teresa – you are absolutely right to question this!
1:52
Assessments should have been completed in the last IEP. I would recommend a new IEP meeting to discuss this issue
1:52
If something has changed or the school is questioning that needs to be discussed in an IEP meeting
1:53
Comment From Teresa 

how do we go about getting them to do this?

1:53
Requesting the IEP meeting through the Resource Specialist at your grandchild’s school is the way to go. Everyone team member has the right to do that
1:54
Comment From Teresa 

Am I able to attend this IEP meeting. My daughter knows nothing about autism.

1:54
ABSOLUTELY!
1:55
Parents have a right to bring support or another family member to an IEP meeting
1:56
Comment From Teresa 

we have been told by the school that I am not able to attend. I actually have three grandsons with autism two that are in school. THANK YOU SO MUCH. Won’t be shut out again. this is sure nice to know.

1:56
We would like to thank you all for visiting Office Hours this week. It is so great to see the autism community so involved and advocating for our kids with autism.
1:57
Please be sure to check out our new Individualized Education Program (IEP)http://www.autismspeaks.org/sites/default/files/iep_guide.pdf
1:57
We are going to be skipping next week, but will be back on September 7 from 3-4pm EDT
1:58
We will be shifting our discussion to celebrate grandparents and their connection to their grandchildren with autism.
1:58
Please know that you can always contact the Autism Response Team (ART) members are specially trained to connect families with information, resources and opportunities.Call us at 888-AUTISM 2 (288-4762) or email us atfamilyservices@autismspeaks.org.
1:59
Comment From Arden 

Thanks for all the info and links

1:59
Comment From Guest 

Thanks to you we have a better acknowledge about Autism !!

1:59
Comment From Jim 

thank-you for having this forum available to us

1:59
WE WISH YOU THE BEST OF LUCK! See you after Labor Day!
Follow

Get every new post delivered to your Inbox.

Join 1,054 other followers

%d bloggers like this: