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Posts Tagged ‘Office Hours’

Family Services Office Hours – 12.07.11

December 9, 2011 3 comments
2:58
Hello everyone! Welcome to our Family Services Office Hours! We are here to help answer your questions, and provide you with some great resources!
2:59
Comment From rach

I have two boys with Autism no one in my family has autism why is this? Both boys are from two dfferent Dads and their is also Autism not found on either sides either.

3:00
Hi Rach. That is a great question. We don’t have all of the answers about autism and its causes, however what we do know is that most cases of autism appear to be caused by a combination of autism risk genes and environmental factors that influence early brain development.
3:01
You can email our Science team at science@autismspeaks.organd they are happy to answer more science-specific questions. You can read a lot more about autism and what causes it on our website at www.autismspeaks.org/what-autism
3:02
Alycia Halladay, a member of our Science team, had a live chat earlier this year about Increased Risk of Autism in Siblings. You can read the transcript here:http://blog.autismspeaks.org/2011/08/16/increased-risk-live-chat/
3:02
Comment From Jodie

Hi. I am looking for grants to help pay for an Ipad.

3:02
Hello – There are a number of organizations that have implemneted iPad grants to families. You can find them on our website in the Resource guide.
http://www.autismspeaks.org/family-services/resource-library/autism-apps 
In addition, the Family Services Dept will begin it’s Technology Grant in January, 2012. Check back on our webiste for updates.
3:03
Comment From angie

my son is two and he speaks very little. how old does he need to be before he can be tested for autism or something like it?

3:04
Comment From Guest

Will someone PLEASE call me? My name is Terri Limberg. My home # is 417.681.0397 in Lamar, Missouri…We have private insurance but want to know if there is any assistance offered in having our 7 1/2 year old grandson Ezekiel professionally evaluated by a diagostic team for possible asbergers? We live paycheck to paycheck and just cannot pay the deductibe and out of pocket..

3:04
Hi Angie. Sometimes autism can be diagnosed as early as 18 months or before. If you suspect your son may have autism, you should call your pediatrician for an evaluation. You can read more about the signs of autism, and view videos about some of the symptoms at these 2 links: http://www.autismspeaks.org/what-autism/learn-signs and http://www.autismspeaks.org/what-autism/video-glossary
3:05
Hello Guest
- You can call the Autism Response Team – ART at 888-288-4762, staff are available e to answeer you question.
3:05
Comment From Darlene Baboo

I am the grandmother of an autistic grandson and found there isn’t much available in the state of Delaware any information you may have would be very helpful.

3:05
Hi Darlene. We have a very comprehensive Resource Guide that contains lots of resources and State Information. You can visit our Resource Guide at www.autismspeaks.org/resource-guide, click on Delaware and search within your state.
3:06
We also have a great Support Tool Kit for grandparents, which may be helpful to you. You can view and download the kit for free at http://www.autismspeaks.org/family-services/community-connections/celebrating-grandparents
3:06
Comment From Guest

I have a 10 year old nephew that I baby sit. I cannot get him to sit on the potty to go #2 he would rather dirty his pants. He is very scared of the potty. What can I do to help him and get him trained he will pee in there but not the other nor at school.

3:09
Hello Guest – Potty Training a child with ASD can be a challenage and its important to work closely with his teacher or trained professional to set up a plan that can be implemneted across all enviromenets. There are a number of very helpful links to books on Toilet Training
http://www.autismspeaks.org/family-services/resource-library/books
3:10
Comment From Guest

I am a mother of three boys, all of whom are on the spectrum, and I am looking for resources in Cedar Park, TX (North Austin). We moved here four months ago and don’t know where to look.

3:10
Hi Guest. You can search our online Resource Guide for services in Cedar Park, TX at www.autismspeaks.org/resource-guide. Simply click on Texas, click the category you are looking to search and then type in your zip code along with a mile radius. We suggest putting in a large mile radius because if there aren’t any within 5-10 miles or so, you can contact the ones a bit further away who may be able to help you or to point you to resources closer to you. All of these resources have been submitted by the providers themselves or by families in our community who have found them to be helpful.
3:10
Comment From David

My son is almost 18 now. He was diagnosed at an early age with ASD. His doctor mention to us that we need to think about filing for Social Security Disability for him. We are in Florida. Any advice before we start or what to expect?

3:13
Hi David- Family Services offer a great Tool Kit for free to parents of individuals with ASD. You can order the Kit at:
http://www.autismspeaks.org/family-services/tool-kits/transition-tool-kit The Kit cover all areas related to transition and will give you information on Social Security Benefits. Please order it today!
3:13
Comment From misty

is there services in washington that medical covers

3:13
Hi Misty. We don’t list the services in our Resource Guide by fee schedule or by who takes what but you should search the guide and call the providers to check and see what insurance they take. I also suggest you search the Local Autism Organizations category, because those organizations in your area will most likely be better able to point you in the right direction and give you more specific information about local services.www.autismspeaks.org/resource-guide
3:13
Comment From Rach

Are there any Autism support groups near Frankton, Indiana

3:15
Hello Rach – Family Services Resource Guide is a great resource for local autism services
Click on your state,and then click on a category, you will be asked to enter a zip code in the state you picked. After you enter your zip code and hit the enter key, a map of all the listings of that category in the state will appear.
http://www.autismspeaks.org/family-services/resource-guide 
3:15
Comment From misty

hi i have a boy 8yrs who has PDDnos? dont understand this diagnosis?

3:15
Misty and for those of you with recently diagnosed children. We have a 100 Day Kit and an Asperger Syndrome/High-Functioning Autism Tool Kit that we send our free of charge to families of children diagnosed in the last 6 months to help guide them through the months following diagnosis. You can order a FREE copy by calling our Autism Response Team at 888-AUTISM2.http://www.autismspeaks.org/family-services/tool-kits/100-day-kit
3:16
You can also learn more about autism, its causes, treatments, etc. at www.autismspeaks.org/what-autism
3:17
Comment From Patty

Lately my 7 year old daughter with PDD has been flapping her hands more frequently. Is this something I should be worried about?

3:21
Hi Patty- Its important to understand why your daughter has increased this behavior. I would recommend you speak with her school team or other professionals who can help you to analyze the increase in this behavior . Individuals with ASD oftern use behavior as a way of communicating, and for that reason you will want to know her intentions. Be sure to consult with a professional who understands behavior and has expereince wirking with ASD individuals.
3:21
Comment From Jodie

With all of the cuts to special education, it has become difficult to get the services my son needs. How can I go about finding an advocate for help?

3:21
Hi Jodie. We have a list of advocates in our Resource Guide which you can search at www.autismspeaks.org/resource-guideby clicking on your state and then the Advocates page. We also have lots of information on our website about legal rights, including a comprehensive IEP guide about how to effectively get the services you need in school athttp://www.autismspeaks.org/what-autism/your-childs-rights
3:22
Comment From Rechelle

Wondering if there is any way to motivate an Aspie to do his homework/classwork?

3:24
Hi Rachelle – Since each person’s response is going to be different depending on what motivates them, I would recommend you consult with a professional who understand behavior and the ASD diagnosis.
In additon, Family Services offer a Aspergers’s Syndrome/HFA Tool Kit at
http://www.autismspeaks.org/family-services/tool-kits/asperger-syndrome-and-high-functioning-autism-tool-kit
3:24
Comment From Sheri

Is there any kind of treatment assistance available in Texas that is not based on a parents income?

3:24
Comment From LATOYA

I WAS TRYING TO FIND OUT ABOUT GRANTS TO HELP PAY FOR ABA SERVICES. AND ALSO TO FIND PROGRAMS FOR THE SUMMER. I LIVE IN PLAQUEMINE, LA

3:25
Hi Sheri and Latoya. You can search our Resource Guide for Family Grant Opportunities, as well as Local Autism Organizations in your area who may know of treatment assistance resources at www.autismspeaks.org/resource-guide. We also have a list of family grant and assistance programs in our Resource Library at http://www.autismspeaks.org/family-services/resource-library/families-need
3:25
Comment From julie

My son is 11, high functioning PDD-NOS. Diagnosed in April. He has always coped well in school, but when he gets home it is like he releases all the stress of having to conform all day and can get very angry and likes to be alone in his room for as long as we will let him. Getting him to do his homework is sometimes impossible no matter what sort of boundaries, rewards, disciplines we have tried. How do I tell the school that so it can get in his IEP and affect his homework requirements? They tend to think it must be his home environment since he does “fine” at school.

3:30
Hello Julie- You raise a great question. How can I get something wrritten into your child’s IEP? Any parent has a right to call an IEP meeting and present information and request an assessment? Is the avoidant behavior observred in the classroom as well as the home enviroment? There are many questions you need answers to, as well as a plan that will be used in school and home. The Family Servies IEP guide will help you with this process:
http://www.autismspeaks.org/sites/default/files/gp_iep_guide.pdf
3:30
Comment From Kimbyr

I am looking for grants in New Hampshire to help pay for ABA therapy. Any suggestions?

3:31
Hi Kimbyr! You can search our Resource Guide for Family Grant Opportunities, as well as Local Autism Organizations in your area who may know of treatment assistance resources atwww.autismspeaks.org/resource-guide. We also have a list of family grant and assistance programs in our Resource Library athttp://www.autismspeaks.org/family-services/resource-library/families-need
3:32
Comment From Amy

Any tips on moving a 3-year-old with high-functioning autism from our bedroom to sharing one with his brothers?

3:35
Hi Amy– I would recommend you work with your pedatrician and other professional from your son’s Early intervention Team to come up with a plan that can be successfully implemented over time. You are absolutely right to seek help and advise on this significant transition. I am including links to our Sibling Support Guide and Sleep and Autism webpages.
3:37
Comment From Jennifer

What is a good diet to try my 4yr old son on he has Autism and is nonverbal and he loves to eat snacks over eating real food? What would be a good communication device for him?

3:41
HI Jennifer – I recommend you consult your child’s MD on the issue of nutrition. Children with ASD are known picky eaters, it will take a team effort to come up with a plan that can addresss all of the issues. I would ask your pediatrician for a referral to a professional who has expereince with nutrition with children with ASD
3:41
Here is a link to our Nutrition and Autism page, which has lots of great information and resources:http://www.autismspeaks.org/family-services/health-and-wellness/nutrition
3:42
You can also search the Diet/Nutrition category in our Resource Library http://www.autismspeaks.org/family-services/resource-library/diet-nutrition or search our resource guidewww.autismspeaks.org/resource-guide for professionals in your area
3:42
Comment From Claire Marie

Relocating from PA to DE. Any advise on how to make it a smooth transition?

3:44
Hello I want to let you know about our Resource Guide
http://www.autismspeaks.org/family-services/resource-guide, you can serach the DE resources in a variety of categories.
3:44
You may want to search the state information categories and call the state offices for more information about the resources and policies in DE for children with autism.
3:45
You may want to contact Autism Delaware, a great organization we have heard about in Delaware for families of individuals with autism: http://www.delautism.org/
3:47
Comment From Deborah

My son is 17 and a senior at a public high school. I have some questions: 1. Why is it that it is so difficult to find a professional who knows how to diagnose autism? My son was almost 17 before we found someone who diagnosed him properly and is finally helping him! 2. How do we prevent bullying or deal with it once it’s happened? My son has been bullied almost his entire school career; every day I worry I’m going to get a call about someone else who bullied him. The only response we get from administration is that they need a witness and often no one will come forward! 3. My son wants to go to college. What do we look for in a school that will help him to be successful both socially and academically? 4. Are there any grants or scholarships for Asperger’s or Autism students going to college? Where do I find them?

3:49
Hi Deborah – I want to offer you the link to the Transition Tool Kit,
http://www.autismspeaks.org/family-services/tool-kits/transition-tool-kit 
the kit is available free online to parents whose children are 14-22 years old. You can order a kit online.
3:50
We also have a list of resources for young adults/adults with autism in our Resource Library that includes some college information: http://www.autismspeaks.org/family-services/resource-library/adults-autism
3:50
The Transition Tool Kit is an extremely comprehensive kit that contains a great deal of information about individuals with autism on their transition from school into adulthood. We can send one to you free of charge at the above link.
3:51
Deborah – I want to add a link to 3 articles on bullying and ASD
http://www.iancommunity.org/cs/articles/bullying
3:54
Comment From Laura

I need help finding counseling services for my thirteen year old son that has verbal apraxia with PDD. We are located in central Missouri near St. Louis.

3:54
Hi Laura! I suggest you search our vent comprehensive Resource Guide for services in your area. We have many listed in St. Louis and the surrounding towns: www.autismspeaks.org/resource-guide
3:55
You may also want to order our Transition Tool Kit which is very helpful for families of children with autism on the transition to adulthood: http://www.autismspeaks.org/family-services/tool-kits/transition-tool-kit
3:57
Comment From Laura

Thanks!!

3:57
Thank you all for joining us for Family Services Office Hours today! If we were unable to answer your questions, or you have anything else to ask, feel free to contact our Autism Response Team at 888-AUTISM2 or familyservices@autismspeaks.org.
3:57
We will see you right back here next Wednesday!
Categories: Family Services Tags: , ,

Family Services Office Hours – 11.30.11

December 1, 2011 2 comments
3:02
Hello everyone and welcome to this week’s Office Hours!
3:03
The Autism Response Team is here and ready to answer your questions and provide you with some great resources!
3:08
Submit A Service
Do you have a service you’d like to add to the Autism Speaks Resource Guide? Click here to complete the submission form!
http://www.autismspeaks.org/family-services/resource-guide
3:09
Comment From Bridget

My granddaughter who I raise has P.D.D. N.O S. she screams alot and has started to throw things and kick. Her schedual has be out of wack this week is a strong schedual important for her behavior problems?

3:11
Hello Bridget
YES!! Many children with autism depend on a routine schedule that is predictable. but its also important to mix and vary activities in order for the person to get used to variety of activities.
3:12
Also Bridget – we have recently published a grandparent tool kit
3:12
Comment From Heidi

Hello, my son is high functioning ASD and wiil be getting an iPad soon. I have been looking at various blogs, articles and sites for apps that he can use but was wondering if you have any recommendations? Looking mostly for eye contact, social, and speech. Thanks!

3:12
Hi Heidi! We have a great list of Apps for Autism in our Resource Library. These are apps that have been submitted to us by families or professionals who have found them very helpful! In addition, at the bottom of the page, there are links to many other lists of app recommendations from other autism organizations.http://www.autismspeaks.org/family-services/resource-library/autism-apps
3:13
Comment From amber

my son is 13 and high functioning but still cannot tie his shoes or place on right feet

3:17
Hi Amber – Your son is right at the start of the Transition age- and you are absolutely right to make sure he can complete his self care and dressing himself independently. I would suggest making “shoe tying” a objective in your son’s IEP. There are many different instructional methods to teach these self care skills, it will be important to determine the best one to teach your son.
3:17
Amber- In addition we have have recently published a Transition Tool kit.
3:18
Comment From Bobbie

I am not a parent but I am a psychology major. I am planning to complete my ABA certification in the next two years. I am currently working with Autistic children and their families through local groups and organizations. Are there any “good” or “proven” resource sites/books that you recommend that I use in order to gain information and useful methods for working with these individuals.

3:18
Hi Bobbie. That is great to hear you are working with children with autism. We need more people like you! We do not endorse any very specific resources, however we have lists of books and tools for professionals on our website that people have submitted to us because they have found them helpful in working with children with autism. You can check out these books/tools at the 2 links below: http://www.autismspeaks.org/family-services/resource-library/books#professionalshttp://www.autismspeaks.org/family-services/resource-library/tools-professionals
3:18
Comment From Jennifer S

First off. Thank you for taking the time to help!! Heres my question. My 4 year old son has autism. We are having a really hard time potty training. He will use the potty but ONLY IF he has on NO clothes at all. If he has any article of clothing on he will use the bathroom on himself. We tried going potty every 15 mins, but that still doesn’t help. My husband and I are just out of ideas and really don’t know where to turn to for help..

3:23
Hi Jennifer- Hang in there, all your time and effort will be worthwhile when your child is successfully potty trained! I would suggest you consult with your Pediatrician and your son’s school based team. This is a skill where you need to work with the classroom teacher, to make sure you are both on the same page.
Also, the Autism Treatment Network (ATN) will be publishing a Tool Kit in early 2012 on Potty Training for Individuals with Autism. Check back on their webpage early 2012.
http://www.autismspeaks.org/science/resources-programs/autism-treatment-network/tools-you-can-use
3:23
We do not endorse any specific materials, but here are 2 books that have been submitted to our Resource Library from families who have found them to be helpful with toilet training: http://www.amazon.com/teach-toileting-revolutionary-approach-disorders/dp/0615255523http://www.amazon.com/gp/product/1932565493/ref=as_li_ss_tl?ie=UTF8&tag=autispea-20&linkCode=as2&camp=217145&creative=399369&creativeASIN=1932565493
3:24
Comment From Susan

My daughter takes Vyvanse and Celexa for the past year. I do think they help her but how long is it safe or recommended to remain medicated?

3:24
Hi Susan. Every child is different and every child responds differently to different medications. Our Autism Treatment Network team just released a Medication Decision Aid Tool Kit called Autism – Should My Child Be Taking Medication for Challenging Behavior?. We have gotten great feedback from this resource, as many of families in the Autism Speaks community have found it to be very helpful!
3:25
Comment From Mary

I have a 12 yo aspergers boy. Yesterday was written up for saying a curse at 13 yo girls who were bothering him – the problem is his perception of the situation – he felt attacked. He wasn’t really wrong (per his teacher) but I do need to disapline for the language. I am running out of disaplinary actions (have restricted everything – nothing makes an impact). What can be utilized to get the message across, and help him to have a better perception of situations?

3:27
Hi Mary- As you know, there is no easy answer to your question. Does your son have support in developing appropriate social skills? I would ask to include a social skill goal in his IEP so that it can be addressed and his progress documented.
3:28
In addition, I would suggest 2 tool kits we have: our Asperger Syndrome/High-Functioning Tool Kithttp://www.autismspeaks.org/family-services/tool-kits/asperger-syndrome-and-high-functioning-autism-tool-kit
3:28
and our Transition Tool Kit for children with autism transitioning to adulthood: http://www.autismspeaks.org/family-services/tool-kits/transition-tool-kit
3:30
Comment From Cassie

My son is 19, HF, and rather obsessed with our football team’s win-loss record. we’ve had 0-11, 0-10. gets mighty upset about it. Is there anything I can do besides redirect? Concerned because next year he’ll be living away from home, need to help him do it himself.

3:33
HI Cassie – Does your son have a counselor or a support person he can discuss these kinds of issues on an ongoing basis. It might be a good idea if he is planning a transition to have someone to talk with about his these upcoming changes.
3:33
Here is a link to our Transition Tool Kit. You can order a copy free of charge on our website: http://www.autismspeaks.org/family-services/tool-kits/transition-tool-kit
3:34
Comment From Guest

Hi. Do you have any guidance addressing problem behaviors (ex. hitting, punching, pinching, screaming) in preschool/early school years?

3:37
Hi- I would request an IEP, and ask his Team to address these problem behaviors. It very important to understand the functions of the behaviors and have a detailed plan in place that everyone on the team is in agreement with. Its also important to track the data to make sure the plan is working.
3:37
Here is a link to information about Applied Behavior Analysis from our website: http://www.autismspeaks.org/what-autism/treatment/applied-behavior-analysis-aba There is also a list of other treatments on the left side panel as well.
3:38
If you are looking for resources in your area, we have a list of ABA and other service providers, as well as social skills groups and afterschool programs, in our Resource Guide:www.autismspeaks.org/resource-guide
3:39
We also have a list of books related to teaching increasing social skills and decreasing challenging behavior on the Books page of our Resource Library: http://www.autismspeaks.org/family-services/resource-library/books#socia
3:40
We hope these resources are helpful to you!
3:40
Comment From Guest

my daughter is 7 and has PDD-NOS and tends to repeat phrases a lot. Is there anything that we can do to stop this?

3:42
Hello Guest- I would recommend you request a Speech and Language evaluation, in order to gain a full understanding of your daughter’s echolalia, and a plan to implement. You can locate a Speech and Language professional in our online Resource Guide.
http://www.autismspeaks.org/family-services/resource-guide
3:43
You may also want to include speech therapy in your daughter’s IEP. You can read more about IEP’s and how to get what you and your child need most with them athttp://www.autismspeaks.org/family-services/community-connections/back-to-school
3:44
Comment From debbie

how do I tell if my 15 year old who is failing school by not doing homework and studying is really struggling or is being lazy? I have done everything I can think I can to monitor his grades and homework and he always says he is done.

3:49
HI Debbie- Its sounds like you’ve been working very hard to help your son. I would suggest you get some support by calling an IEP or working together with this teachers. Its important that counselors, teachers, etc., be part of the plan One suggestions might be that he complete his homework at school after school hours. I am including a link to the transition Guide, as a parent you can get a free copy mailed to you.
3:51
Comment From Guest

Hello everyone, my son is 10yrs. HFA . I have not have the talk with him yet of him having autism…how should I start what should i do,,I am afraid of what reaction he might have.

3:52
Hello-IAN – Interactive Autism Network has some great article on Telling Your Child About Autism.http://www.iancommunity.org/cs/articles/telling_a_child_about_his_asd
3:53
In addition we have lots more information about AS/HFA including a section on AS/HFA and your Family in our tool kit:http://www.autismspeaks.org/family-services/tool-kits/asperger-syndrome-and-high-functioning-autism-tool-kit
3:55
Comment From Rechelle

What is a successful way to discipline a child w/Aspergers and HFA? I am not a spanker.

3:58
Dr Tony Attwood, author and therapist, is an expert on this subject–
How do you discipline a child with Asperger’s Syndrome?
http://www.autismsupportnetwork.com/news/how-do-you-discipline-child-aspergers-syndrome-autism-203392344
3:59
Comment From Guest

Any suggestons as to how to explain to my 6yr old that my 4 yr old has autism and he really cant help some of his behaviors. Im just not sure how to start that “talk”.

3:59
Hi Guest. You can read more about disclosing autism to your child and other family members at our IAN site: Telling Your Child. It has a section on telling siblings.http://www.iancommunity.org/cs/articles/telling_a_child_about_his_asd. We have also recently launched a Siblings Tool Kit (in addition to a Parent, Grandparent and Friend Tool Kit) for children ages 6-12 that helps families explain autism to their siblings. You can download the kit for free and view other resources at:http://www.autismspeaks.org/family-services/family-support-tool-kits#siblings. We also have a list of Books for Siblings athttp://www.autismspeaks.org/family-services/resource-library/books#siblings
4:00
Thank you all for joining our Office Hours chat today! If we have not been able to answer your questions, please feel free to call us at 888-AUTISM2 or email us atfamilyservicse@autismspeaks.org.
4:00
We are always happy to help!
4:00
See you next week!

Live Monthly Webchats with Drs Dawson and Horrigan

November 22, 2011 13 comments

The Doctors Are In!
* First Thursday of every month
* 3 pm Eastern (2 Central/1 Mountain/noon Pacific)
* Join via the Live Chat tab at https://www.facebook.com/autismspeaks

Family Services Office Hours – 11.10.11

November 10, 2011 1 comment

Office Hours easily connects families to a wide variety of autism-related resources, including Family Services Tool Kits, and the Autism Speaks Resource Guide, an online national database of autism providers and resources searchable by state and zip code.

Family Services Office Hours is designed to quickly provide access to resources that are available and free to the entire autism community.

The Office Hours sessions are staffed by ART coordinators who are specially trained to connect families affected by autism to resources.

2:54
Hey Everyone! We will be on in a few minutes!
2:58
Ok! We are here and happy to start taking questions!
3:00
Comment From Melissa

How much information is available on the possibility of autism being genetic? From parent child?

3:02
Hi Melissa! Alycia Halladay, Ph.D., hosted a LIVE chat dealing with genetics! Here is the transcript!http://blog.autismspeaks.org/2011/08/16/increased-risk-live-chat/
3:02
She was also interviewed on CNN about autism and siblings, which you can see here:http://blog.autismspeaks.org/2011/08/18/siblings-news-coverage/
3:03
In addition, our Chief Science Officer Geri Dawson did a LIVE Chat about the Genetics of Autism. She is great! Here is that transcript: http://blog.autismspeaks.org/2011/10/27/transcript-dawson-schere/
3:04
Our science team regularly posts blogs explaining new research findings about autism. Stay connected by checking up with us atblog.autismspeaks.org!
3:04
Comment From Shannon

Is PDD-NOS actually a form of autism?

3:04
Hi Shannon! The answer is yes! Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS) is one of the autism spectrum disorders and is used to describe individuals who do not fully meet the criteria for autistic disorder or Asperger syndrome.
3:04
You can learn more about it here!http://www.autismspeaks.org/what-autism/pdd-nos
3:05
Comment From Kathy

Hi! I am the mom of a 10 yr old High functioning son and I am having trouble finding any help since he seems so “normal”. He gets no help in school and limited help through his dr’s. Is there help out there for High functioning Aspy’s?

3:05
Hi Kathy! We have a great Asperger Syndrome/High-Functioning Autism Tool Kit. It is mostly for newly diagnosed families but contains lots of tips and information for all families of children with AS/HFA. http://www.autismspeaks.org/family-services/tool-kits/asperger-syndrome-and-high-functioning-autism-tool-kit
3:05
We also have plenty of resources on our website related to helping people with Asperger Syndrome. Here are a few great links:
3:06
Our Resource Library contains tons of great books, magazines, online software, toys, game, apps and much more!www.autismspeaks.org/family-services/resource-library
3:06
Comment From Haley

Hi! I was just wondering where I could get information or if there was someone I could talk to about careers in autism? I am in college right now and I would like to talk to someone who could help me make sure I’m on the right path….

3:07
Hi Haley! That is so great you are interested in a career in autism. If you are looking to provide direct services, I suggest you search our very extensive online Resource Guide. You can click on your state and find service providers in your area in lots of different fields (schools, therapists, after school programs, recreation activities, etc.) Those providers will most likely have lots of information to help point you in the right direction!www.autismspeaks.org/resource-guide
3:08
Comment From Brenda

I have been reading a PDD and ADHD and how some ADHD medicines, actually help with the PDD. Is there any information you can share on this?

3:08
Many families of children with autism spectrum disorder (ASD) are faced with the option of using medicines to help treat their child’s challenging behaviors. This is a tough medical decision and there is no one right answer.
3:09
Comment From Shannon

I have read the forum in autism speaks and it is great. I just wanted to make sure that when I say my son has autism that I am not exaggerating. It sure feels like it!!

3:09
Shannon, we also have a great Learn the Signs campaign and an Autism Video Glossary that contains lots of videos that show symptoms of autism, compared to neurotypical children. They have been really helpful to so many people.
3:11
Comment From Jane

My son’s father and I are divorced and his father would like me to have him and his nt brother for extended time (for respite) however I don’t have the home which can accommodate his needs. He’s registered with DDD but they are unable to help. Are there any other resources for me to look into?

3:13
Hi Jane – that sounds like a very tough situation you are in. Your ex-husband needs to stick with the rules of the court. You can search our Resource Guide by your state to find a lawyer in your area as well as respite care options.http://www.autismspeaks.org/resource-guide
3:13
Hi Shelly. You are not alone! We hear from lots and lots of families who have grandparents who do not understand the diagnosis or are unwilling to accept it. Everyone responds to the diagnosis differently and many people need time.We would suggest gradually introducing your parents to the idea, and emphasizing how important it is to you that they understand and are able to help you. I’m sure they love their grandchildren so much so will understand that the way they are treating him isn’t working to his benefit.
3:13
Comment From Shelly

I have a three year old with PDD-NOS. I am having a hard time trying to educate my parents (his grandparents) on the subject. They are still in denial and I have even given them the tool kit for grandparents. They refuse to even look at it. They do not even want to make changes in the way they act arond my son (which makes him digress after every one of their visits.) What more can I do?

3:13
Hi Shelly. You are not alone! We hear from lots and lots of families who have grandparents who do not understand the diagnosis or are unwilling to accept it. Everyone responds to the diagnosis differently and many people need time. We would suggest gradually introducing your parents to the idea, and emphasizing how important it is to you that they understand and are able to help you. I’m sure they love their grandchildren so much so will understand that the way they are treating him isn’t working to his benefit.
3:14
Perhaps you want to speak to one of your parents who may be more willing to listen. It is important to stress that a family’s understanding and willingness to help their loved one with autism is crucial to the child’s progression and happiness.
3:15
Comment From elizabeth

I have a non verbal 2 1/2 year old that was just diagnosed with severe autism. where can i get PECS cards that are not going to banrupt me?

3:15
Hi Elizabeth! Have you tried our 100 Day Kit? It is a guide specifically created for families of children recently diagnosed with autism. You can read it here: www.autismspeaks.org/family-services/tool-kits/100-day-kit
3:16
I suggest you call our Autism Response Team at 888-AUTISM2. They can take your information and place your order. It is FREE!
3:17
I also suggest you search our Resource Library for tools like PECS cards. One of our categories is for visual tools that have been helpful to families in our community:http://www.autismspeaks.org/family-services/resource-library/visual-tools
3:18
Comment From Sarah

My “step son” (he is legally my son but not biologically) is Autistic. How likely is it my husband and I will have a child who is Autistic? I know that it affects about 1 in 110 children, 1 in 70 boys, but is it more likely since my husband already had one.

3:19
Hi Sarah! We have a few chat transcripts that you may find helpful. Here is the ‘Genetics of Autism: What It Means for You’ hosted by Geri Dawson, PhD, and Steve Scherer, PhDhttp://blog.autismspeaks.org/2011/10/27/transcript-dawson-schere/
3:20
Recently the High Risk Baby Siblings Research Consortium made the news with the findings that autism recurs in families much more frequently than had been realized. Here is more information! http://blog.autismspeaks.org/2011/08/30/the-babysibs-consortium-important-findings-ahead/
3:20
Comment From Maria

Do you know what therapies can help with behavior problems?

3:20
Hi Maria. We have a list of treatment options on our website in the What is Autism page. These are all treatments with documented science research behind them. In the left column of the page you will see a long list. You can click each of them to learn more about what that treatment involves.http://www.autismspeaks.org/what-autism/treatment. Our Resource Guide lists lots of therapists who specialize in these treatments www.autismspeaks.org/resource-guide. It is important to remember that because every individual with autism is different, not everyone responds well to the same treatments. Be sure to research before you decide what you feel is best for your child. There are lots of helpful tools out there!
3:20
Comment From Sarah

Elizabeth, with our son we found a lot of websites that had picture and stuff. We put them around the house and our son picked up on some of the things and now even says some of those words.

3:21
Thanks so much for adding your insights! We love seeing the community help each other out!
3:21
Comment From Rebecca

My son is 3 and is somewhat verbal. He will ask for things at home but at school he doesn’t ask for things unless he sees the object/thing he wants. It is because of this and his lack of spontaneous language(at school) that they are suggesting we use PECS. We had stated at his IEP that we didn’t want him using this. Our concern is that he would become dependent on this. What is your opinion of PECS? Is it beneficial?

3:22
Hi Rebecca! It is important that your IEP team listens to your needs and what you feel is best for your son. We have recently released an IEP Guide that will help you ensure your son’s needs are being met. You know what is best for him, so it is important that you make sure the school and the IEP team are hearing you loud and clear!
3:23
Here is a book about PECS that was submitted to our Resource Library by a family who found it helpful:http://woodbinehouse.com/main.asp_Q_product_id_E_978-1-60613-015-5_A_.asp
3:24
Comment From elizabeth

thanks! I did order the booklet yesterday. thanks for the links and also your input, Sarah

3:24
Comment From Sarah

Rebecca, I am not an expert by any means but I do have an autistic son as well. Stick with your gut feelings. Make sure the IEP is following what you want! The schools sometimes try to do what THEY want and what’s easiest for them and they can’t! If you end up wanting to use the PECS later, you can then add it to his IEP. You know your child best!

3:29
Comment From Rebecca

Our wishes and concerns have not been heard . At the first IEP the school district told us that all they wee willing to ouffer our son was a place in their Autism preschool program. Eventhough the “school” where he had been presented a report saying that their team thought that it would be in his best interest to continue with his home therapy program. Where can we find Educational Advocates in our area that would help us free of charge. We are in Modesto, California.

3:29
Hi Rebecca. It is important to make sure your concerns are being heard. You are entitled to have your voice heard in all matters related to the IEP. Our Resource Guide contains a list of advocates from across the country. You can search the resource guide at www.autismspeaks.org/resource-guide
3:30
We don’t list them by fee but hopefully they will be able to help you. In addition, you might also want tos earch our Local Autism Organizations category. Those organizations may be better able to point you in the right direction in terms of an educational advocate.
3:31
Comment From Sarah

google advocates in your area. I know here in GA there are not any in our city, but nearby towns.

3:31
Comment From Rebecca

Thank you Sarah

3:38
Comment From Guest

My son’s teacher communicates via email with us (parents). That’s fine, however, the emails are sent to the stepmother at her work’s email address rather than to my son’s father. I’m concerned for my son’s privacy. The school’s position is that they send emails to whatever address is provided. Are there any laws which can protect information regarding my son in this particular situation? SPAN was unable to find any

3:39
Hi Guest, have you tried changing the contact email that your school has listed?
3:40
That seems strange that the only one they send to is your son’s stepmother’s work email. You should make sure to have your email listed on there too, as all parents need to be involved in these decisions.
3:47
Comment From Guest

I don’t know how to explain to kids at the park that my son has autism and i live in NYC do you have any suggestions.

3:48
Hi Guest. Disclosing your child’s autism diagnosis to other people can be tough sometimes. We have a great list of stories on our website for peers that help them to understand more about their friends or playmates who have autism.http://www.autismspeaks.org/family-services/resource-library/books#peers
3:49
Perhaps you could show them these fun picture books, or get ideas from the books on how to best share the diagnosis. All of these books have been submitted by families who have found them to be extremely helpful with peers.
3:52
Comment From Sarah

I have also had troubles explaing to other children why my son isnt “normal”. They don’t understand why he doesn’t want to play with them or why he doesn’t talk back. I always say “God made Cody different (like he does everyone) and Cody just doesn’t always like to play or talk to others. It doesn’t mean he doesnt like or love you, it just means he likes to have his own space. He sometimes prefers to play alone instead….

3:53
Thank you Sarah for your helpful responses. We love seeing families in our community helping each other out. Sometimes listening to people who have had similar experiences as your own is extremely helpful and comforting.
3:54
Our Facebook page is a great way to get conversations started with other families in our community.www.facebook.com/autismspeaks
3:56
Comment From Sarah

You’re welcome. Hopeful I can help other parents. I have had wonderful friends with simiar experiences that have helped me!

3:57
Well we’d like to thank everyone for stopping by today! Remember we are here every Wednesday at 3pm EDT and you can reach us at 888-AUTISM 2 (288-4762) or email us atfamilyservices@autismspeaks.org.

Family Services Office Hours – 10.26.11

October 27, 2011 5 comments

Office Hours easily connects families to a wide variety of autism-related resources, including Family Services Tool Kits, and the Autism Speaks Resource Guide, an online national database of autism providers and resources searchable by state and zip code.

Family Services Office Hours is designed to quickly provide access to resources that are available and free to the entire autism community.

The Office Hours sessions are staffed by ART coordinators who are specially trained to connect families affected by autism to resources.

2:52
Hello: We are about to begin Family Services “Office Hours”, you can ask Family Services staff questions about resources or other questions about autism.
2:55
Comment From charleen

what types of resources for low income families are in the phoenix area?

2:56
Hi Charleen! Thank you for joining us today! We have a long list of resources in the Autism Speaks online Resource Guide. You can search for all different kinds of services in the Phoenix area.www.autismspeaks.org/resource-guide
2:56
You may want to contact local autism organizations, a category in our guide and see what they are aware of.
2:56
You also may want to check in with your Department of Developmental Disabilities to see if your family is eligible for Medicaid waivers.
2:57
Here is a link to the Division of Developmental Disabilities site in Arizona: https://www.azdes.gov/main.aspx?menu=96&id=2454
2:57
Comment From Maria Perez

Hello my son is 7 years old he was diagnosed with autism at 2 1/2 years old he does not speak but just some words but he does repeat alot of movies or cartoons he likes how can I get him to start talking more o saying what he needs o wants is there any programs o softwares that can teach him how to talk more and also how can I get him to stop repeating so much of what he sees thank you so much

3:00
Hi Maria thanks for joining us today. I would recommend that you get a Speech and Language evaluation through your son’s school district or a private evaluations.In order to know what your son’s speech and language needs are, its important to have data and information about his needs.
3:00
Comment From charleen

thank you, i’ve being trying to find something for my son, i’ve even asked his behavioral health palce, but they aren’t much help

3:00
Comment From charleen

thank you for all your help

3:00
Comment From Lisa

I just moved to Texas and I need to find a doctor for my daughter

3:01
Hi Lisa! I suggest you look through our online Resource Guide for doctors and all sorts of other professionals in your area in Texas.www.autismspeaks.org/resource-guide
3:01
Simply click on your state, and select one of our over 70 categories to search. You will be able to enter your zip code. We usually recommend people put it in a wide search radius so you really get to see what is out there.
3:02
Comment From Guest

Hi, my daughter is 7 years old and we are having a hard time bringing the therpy home.. She will eat different foods in food therpy but will not even look at the food at home.

3:02
Hi- Its important that the professional working with your daughter help you to generalize the interventions at home. It would be a good idea to ask the professional to do a home visit… if possible.
3:04
If a home visit isn’t possible, ask for a home intervention plan. These are some ideas to give you a start.
3:04
Comment From Nicki

My son is 4 will be 5 November 4th..I have a few questions actually My son has never been properly diagnosed as Autistic, but he has shown so many signs they said he tested at the “mentally retardation levels” When they said this I became very peeved! I told them what he does and they said I have no idea what I am talking about…My son repeats everything and anything,Don’t know his colors can’t count other than up to 5 and also hardly ever sleeps.They told me to give him Tylenol PM I have and I have also tried melatonin. Nothing is working I can’t get him to sleep at all….What is there I can do? I live in Kansas City Missouri? Some1 please help me he hasn’t slept since he was 2 yrs old other than here and there and he keeps humping everything!

3:05
Hi Nicki. I would recommend that you start with your pediatrician. He/she should be able to make a referral to a developmental pediatrician or a neurologist who can properly evaluate your son.
3:05
The earlier the diagnosis of autism, the better the outcome will be, so it is important that you find someone who will listen to your concerns and help you work through the difficult issues you are having.
3:06
You should also try searching our online Resource Guide for professionals in your area: www.autismspeaks.org/resource-guide
3:06
We have a page of tips and resources related to sleep that may help you as well: http://www.autismspeaks.org/family-services/health-and-wellness/sleep
3:07
Comment From Maria Perez

He is receiving speech therapy at school and also social skills on the weekend is there any computer softwares o pograms that can help me get him to start talking a little more

3:07
Maria, we have lots of great tools in our online Resource Library! One of them is called Online Learning Tools.http://www.autismspeaks.org/family-services/resource-library
3:08
We have TONS of great resources on that page including hundreds of books, some games, sensory products, online learning tools, websites for families, and much much more!
3:10
Comment From Natalie

My 9 y/o was just diagnosed with aspergers 2 weeks ago. What is the best thing to do for him being DX so late? I don’t even know where to begin.

3:10
Hi Natalie- we’ve created the Aspergers Syndrome/ High Functioning Autism Tool Kit. You can download the kit or call 888-288-4762 and order a kit to be delieverd to your home.
http://www.autismspeaks.org/family-services/tool-kits/asperger-syndrome-and-high-functioning-autism-tool-kit
3:13
Comment From Debbie

Hi… I’m Debbie and my son was diagnosed last Dec. Right now, we are looking for local groups so that he can have the opportunity to socialize and make friends. I’ve been trying to advocate for some kind of networking/supportive group for the parents at our school. My question is do I need to advocate somewhere else in the government in our city or can it be successfully done at the local school level?

3:13
Hi Debbie. We have lots of social skills programs, after school programs and recreational activities in our Resource Guidewww.autismspeaks.org/resource-guide
3:14
That is great you are advocating in your school for a support group. Support gruops can be so helpful to families of children with autism. I suggest you speak with other parents in the school who have children with autism or another developmental disability to get started. You will also likely meet lots of parents through these other programs who I’m sure would love to join a group of parents.
3:16
Comment From Guest

It is difficult to discipline my child. He crys incontrollably when I call him out on his bad behavior. Any suggestions?

3:16
Hi- Its important to understand the behavior, when it happens, how often and under what circumstances. Does the behavior occur at school?  I would recommend a Behavioral Assessment completed by a professional who understand autism. Your child’s teacher may be able to recommend soemone. You can also check our Resource Guide.
http://www.autismspeaks.org/resource-guide
3:17
Comment From Jenn

Hello, I happen to be an adult with asperger syndrome. I have an asociate degree & i’d want to work with preschool age kids on the autism spectrum.

3:18
Hi Jenn! That is great to hear you are interested in working with preschool age kids. We do not provide direct services here, however there are lots of preschools and recreation programs, social skills groups, etc. in our Resource Guide.www.autismspeaks.org/resource-guide
3:18
I suggest you reach out to those providers, and also to local autism organizations to find out what is out there. Best of luck to you!
3:18
Comment From Danielle

Hi =) I have a 3 year old little girl with aspergers. She tends to melt down every time you ask her to do anything and sometimes its just when you in speak to her in general – It can even be over something she really likes and it can be positive and she still melts down! Is this typical behavior???

3:20
HI Danielle -Autism Speaks has created an Aspergers Syndrome/ High Functioning Tool Kit. You can order a copy at 888-288-4762.
http://www.autismspeaks.org/family-services/tool-kits/asperger-syndrome-and-high-functioning-autism-tool-kit
3:22
it’s important to work with your daughter’s team to better understand this behavior. A behavioral assessment will give you a much better understanding of the function of the behavior.
3:22
Comment From Liz

I have not been able to go back to work the past year because I have been home with my 2 soon to be 3 year old who has been undergoing therapy for speach delays, developmental delay and sensory issues for the past 12 months. We did not get a diagnosis of Autism until about a month ago…my staying home has taken a huge tole on our family. Dad has had to work full time jobs to keep us afloat. Are their any resources or assistance programs for families like ours?

3:22
Hi Liz. We have a list of resources in our Resource Library for Families In Need which you can see at this link:http://www.autismspeaks.org/family-services/resource-library/families-need … I also suggest you contact local autism organizations which you can find in our Resource Guide who may know of more opportunities at a local level:www.autismspeaks.org/resource-guide.
3:23
Comment From Maria

Hi I have a question should we send our autistic son to preschool? He is high-function knows how to read, write, numbers from 1-100 and additions . I Don’t want him to go to preschool he is already on ABA program and I believe he is going to learn more with them than preschool. We had his IEP meeting and I feel pressure from the school staff.

3:26
Hi Maria – Its important to work with the IEP team on what’s best for your son. You should feel confortable expressing your concerns and also hearing why the team is recomedning pre-school. Pre-school is an opportunity for socializing that a child doesn’t get at home.
3:27
Comment From Jackie Gonzalez

First of all thank you so very much for being a reliable resource for families..

3:27
Comment From Gloria

Does anyone know of any sports organizations in the Dallas area for special needs kids? My son has Autism but loves sports even though he really can’t follow the rules he would love to play with kids his age, any suggestions?

3:27
Hi Gloria – I suggest you check out our Online Resource Guide which has lots of recreation opportunities and after school programs www.autismspeaks.org/resource-guide. We also have a Community Connections page on Recreation that has lots of resources as well http://www.autismspeaks.org/family-services/community-connections/have-some-fun-today-recreation-community-activities-clubs-and-
3:28
We also have a special page in the Health and Wellness section of our website called Fitness that provides lots of information and resources for sports for kids with autism:http://www.autismspeaks.org/family-services/health-and-wellness/fitness
3:28
Comment From Courtney

My son’s pediatrician tested him in office and told us he has high functioning autism. It all makes so much sense now, but we can’t have him seen by a psychologist until March of next year and I feel like I’m lost. My son is 8 and his violent outbursts are getting worse, what should I do until he is able to see someone?

3:30
hi Courtney, I would recommend you start by talking with your son’s teacher. He may need support during the school day, and they may want to complete assessmnets to identify his strengths and areas of needs.
3:31
Comment From Janna

I live in Colorado my work falls under a church plan for insurance which excludes them from ABA services through HIMAT I have been to the head of HR and Bren declined this year or next that try will be adding it as a benefit, how can I get help with ABA without insurance coverage?

3:32
Hi Janna. I’m sorry to hear you are having trouble with insurance coverage for therapy services. This is a major problem in the US. There are now 28 states who have mandated insurance coverage for services for kids and adults with autism. That is a huge goal of our advocacy efforts at Autism Speaks. You can check in on your state at www.autismvotes.org
3:32
You can also email our advocacy/government relations department for more specific help atgovrelations@autismspeaks.org.
3:33
Comment From Jackie Gonzalez

My question is…..any advice for a 4 year old who refuses to share? So much so that he becomes aggressive? Towards himself, his 2 year old brother, classmates and teachers?

3:35
hi Jackie- Its important to know under what circumstances the behavior occurs. Getting an understanding of the behavior is so important, and you may want to consider a behavioral assessment by a professional who is qualified and has worked with other kids with autism.
3:36
Your child’s IEP team can help to identify a Behavioral Analyst, a person who is trained to assess behavior and put a plan in place to change a behavior.
3:37
Comment From MariaH

Should I tell them that I want my son to go to a special Ed preschool ?

3:39
Hi Maria-I would suggest that you and a IEP team member visit a few pre-schools and make a decision based on what you observe and your child’s educational, and social needs.
3:41
Comment From Guest

My daughter is 22 months old. She is currently being evaluated for Autism by TEACCH in NC. She receives speech therapy and OT from the CDSA. The argument with giving her a diagnosis is that one she makes eye contact and two gesturing, she shakes her head yes and no but not always appropriate. She definitely has some sensory issues. She only has about 5 words. I also think she is doing some stimming, spinning, smacking herself in the head and repeating a sound over and over. Melt downs are huge for us in stores and resturants.

3:41
Hi Guest. That is great to hear that you are already working with therapists and professionals on your 22 month old daughters development. Early intervention is an extremely critical component of improvement and it sounds like you are right on track.
3:42
Every child with autism is very different, but the symptoms you are describing are often common in kids on the spectrum. I suggest you check out our Learn the Signs section of our website or view our Autism VIdeo Glossary which shows videos of kids with and without autism. You can check those out at the 2 links below:
3:42
Comment From Guest

Do you know of any organisatons that assist parents who are not able to afford the cost, in getting an ipad for non-verbal children with autism?

3:43
Hi Guest. The Autism Society recently put together a list of organizations that may help in funding iPads for children with autism. You can see the list at: http://www.autism-society.org/news/funding-for-ipads.html
3:44
We have also heard a lot about iTaalk http://itaalk.org/
3:45
Comment From Brandon

I have aspergers autism, I’m high functioning, is there any support groups in Portland, or. ?

3:45
Hi Brandon! Thank you for joining us today. I suggest you search our onlien Resource Guide for Support Groups in your area:www.autismspeaks.org/resource-guide
3:46
We have also heard about an online web support community called WrongPlanet.net http://www.wrongplanet.net/
3:47
We have 2 categories of websites on our Resource Library that may help you: Adults with Autism, and Asperger Syndromehttp://www.autismspeaks.org/family-services/resource-library/asperger-syndrome
3:47
Comment From Guest

Thank you.

3:47
Comment From Brandon

Thank you

3:47
We are happy to help. Thank you all for joining us today!
3:48
if you have additional questions you can call the Autism Response Team (ART), members are specially trained to connect families with information, resources and opportunities.Call us at 888-AUTISM 2 (288-4762) or email us at familyservices@autismspeaks.org.

Family Services Office Hours – 10.12.11

October 13, 2011 3 comments

Office Hours easily connects families to a wide variety of autism-related resources, including Family Services Tool Kits, and the Autism Speaks Resource Guide, an online national database of autism providers and resources searchable by state and zip code.

Family Services Office Hours is designed to quickly provide access to resources that are available and free to the entire autism community.

The Office Hours sessions are staffed by ART coordinators who are specially trained to connect families affected by autism to resources.

2:43
Hi There! We are getting ready for Office Hours! Hang on!
2:59
Welcome to Office Hours! Family Services is taking questions and we are here to help offer resources and guidance!
3:00
Comment From Guest  

My son is in an EIBT program and is currently almost 3. Once he turns 3, the school district is wanting to terminate that program and place him in special ed. He’s currently in a reg preschool with a diagnosis of PDD. He definitely still needs an aid to intervene and redirect. The school district is telling me the funding isn’t there. Any suggestions on who to talk to?

3:02
Hello: Budget cuts across the nation are creating fear and apprehension, and there are real budgetary realities that school districts–all districts–must contend with. On the other hand, the district cannot simply provide services because because of budgetary concerns and if any IEP proposes to do so, again, “stay put” comes to the protection of the parents who have no choice but to move formally to protect their child’s program components
3:04
You may want to work with an advocate who can help guide you through this process. Check out our Resource Guide in the Family Services section at.
www.autismspeaks.org
3:04
Comment From shaun lavalley 

ive got a son with assbergers and never got any help dont know wear to go

3:04
Hi Shaun! You have come to the right place. We have an Asperger Syndrome and High Functioning Autism Tool Kit that would be a good place to start.http://www.autismspeaks.org/family-services/tool-kits/asperger-syndrome-and-high-functioning-autism-tool-kit
3:04
Families whose children have been diagnosed in the last 6 months may request a complimentary hard copy of the 100 Day Kit or the AS/HFA Tool Kit by calling 888-AUTISM2 (888-288-4762) and speaking with an Autism Response Team Coordinator.
3:04
Comment From Guest 

my little girl is 4 an is in headstart she only get 30min of thearapy a week or thats what they tell me and i dont even know what therapy she has been going to school for the past year and hasnt made any progress

3:06
Particularly for children with autism who are often highly distractible, a 30 minute session is not adequate. You may need a private evaluation to measure this problem, and to make recommendations you can then present to the district
3:06
Hi Guest! You will need the school to do an assessment of her strengths and challenges. Based on that assessment you can develop an IEP. You need to get as much information as possible.
3:07
Comment From carla 

my son was recomended to have twice weekly speech, but the school will only give him one, they say its all he needs what can I do

3:08
Hi Carla – you have the right to do an independent evaluation and based on those results you can present that to the IEP Team.
3:09
If you feel differently than the school recommendation, it is best to get an independent evaluation. Parents have the right to recommend therapy and the amount of time the child gets for therapy.
3:09
Comment From melissa  

my little girl is 4 an has autism she is in headstart she only get 30min of thearapy a week or thats what they tell me and i dont even know what therapy she has been going to school for the past year and hasnt made any progress

3:09
Hi Melissa- We answered your question earlier. Do the info we gave help?
3:11
Comment From amy  

Our local school district won’t provide any services for my son because he reads above grade level, so his autism “does not have an educational impact”. He did not speak in sentences at school or write anything. I think that impacts his education, but they kept going back to the reading level.

3:14
Hello Amy – The IEP team members need to be in agreement on the services a child requires. If you feel additional services are needed, ask for an assessment that will give you information about the child’s limitations. Objective data measurements will spell out what services the child requires.
3:14
Comment From melissa 

my daughter is 4 an cant talk she is still in diapers an she is still on the bottle i dont think the school is helping her any what can i do

3:15
Hi Melissa – If your needs are not being met, you have to speak up for your child’s rights. Parents are a VITAL member of the IEP Team! You are your child’s best advocate. Your child is entitled to an education that is tailored to his or her special needs and a placement that will allow them to make educational progress. Here is a link that you may find to be helpful!http://www.autismspeaks.org/what-autism/your-childs-rights
3:17
Comment From Guest 

I have a year old son that attends an Early Interention school for 2 1/2 hours 3 times a week, and during that time they give him a 1/2 our of speech and 1/2 hour of O/T. They speak highly of him and say he is doing great but when I take him to a separate Speech therapy session, he will not cooperate at all screams and cries and hides under the tabe. They suggest I get him a TSS for therapy. I contacted someone they recommended and they sais they have very limited spots available and they are for kids who need 15+ hours or more of TSS services per week. I dont know what to do.

3:19
Hello- It sounds like a professional is making the recommendations for your daughter to receive more services. Ask the professional to put the request in writing, this may give you more leverage to get services faster.
3:19
Comment From Kaydell 

I keep hearing how iPads are making such a difference for some on the Autism Spectrum with the many apps. available. I truly feel that my kiddo would be one of the children that would benefit from this device considering his communication delay. It is a terrible feeling that due to the cost of the iPad I am unable to purchase a device that could make my son’s life easier. Do you know of any organizations that are offering iPads at discounted rates for families in need?

3:21
Hi Kaydell – You are right! iPads have benefited a large part of the autism community. We are thrilled to be giving away iPads in 2012, but you can also find other organizations that do as well. It is just at different times of the year, and you have to keep track! Some parents have negotiated with their school districts to get iPads for their children because they are considered a communication device.
3:22
We have a Community Connections ‘Technology and Autism’ that can give you more information!http://www.autismspeaks.org/family-services/community-connections/technology-and-autism
3:22
Comment From Heidi 

What kind of resources are there in the Pittsburgh PA area for transitioning a child to a new home environment? Any recommendations in making this as easy as possible for my 6 yr old Autistic? FAS grandson.

3:26
Hi Heidi-Sounds like your grandson is moving to a new home, yes, this will require some thought and a transitional plan. I would recruit your grandchild’s school and home team to put a plan in place, and one that can be implemented in different environments.
3:26
Here is our Resource Guide where you can search for services in your state! http://www.autismspeaks.org/resource-guide
3:26
Comment From rachel

was pic day at school, she hated it, first she had somewere els to go, then she saw th dredded line, then it was crouded, then she was made to sit and tri to be happy… ha the photagrapher thankfully was paciant and took 4 pics. or els she would of had a prfessinal pic of her with a angy face and a sock in the air.. lol just wanted to share, thanks for everything you guys r doing

3:26
Comment From Michelle

the communication device would fall under the IEP as assistive technology.

3:27
Hi Rachel! Sounds like a crazy day! Picture day isn’t easy for anyone! Thanks for joining us and your support!
3:27
yes, I have been hearing more and more about iPads being approved by districts. Its certainly worth a try.
3:27
Comment From marisa

My two year old was recently diagnosed with autism & he’s not speaking yet. Any tips/ books on communicating especially for potty training?

3:29
Hi Marisa – If your son was newly diagnosed the 100 Day Kit will be a helpful resource. It was created specifically for newly diagnosed families to make the best possible use of the 100 days following their child’s diagnosis of autism.http://www.autismspeaks.org/family-services/tool-kits/100-day-kit
3:29
You may want to speak to your speech therapist about ways you can work on your child’s communication at home
3:31
As for potty training… that is a major challenge families with autism face. This book by Ashley Hickey, ‘Successful Potty Training,’ is also helpful.http://www.autismspeaks.org/resource/successful-potty-training
3:31
Our Science Team recently tackled this question and you can find what they came up with here!http://blog.autismspeaks.org/2011/09/23/has-anyone-studied-how-to-help-toilet-train-children-with-asd-2/
3:31
Comment From Michelle

I personally found that sign language can help give them a language until the speech therapist and your child can work on the verbal language. There are easy signs for bathroom, food etc that will help take some of the daily frustration away.

3:32
Comment From kevin

i am having an issue with my 10 yr old son, 5th grader in school.. he is a good student, but it something happens during the day that doesnt go his way, sh just shuts down and becomes defiant to teachers and the principal, he is diagnosed with Aspergers

3:33
hi Kevin, We have 2 resources you may want to check out. The first is the School Community Tool Kit
3:35
The Aspergers Syndrome/ High Functioning Autism Tool kit is also available online. The link is in the above post.
3:36
Comment From Guest

i will definetly look into this, but are there any programs that are in the monmouth county// ocean county area in NJ

3:37
Hi Guest! You can search our Resource Guide by your state!http://www.autismspeaks.org/resource-guide
3:41
Hello – Your questions are right on! We have a few resources that will help to answer your questions. You can access the the IEP guide at
http://www.autismspeaks.org/sites/default/files/iep_guide.pdf
The other resource is the WrightsLaw website:http://www.wrightslaw.com/
3:42
Comment From Michelle

I feel for you kevin, my 13 yr old will do the same thing, but it has gotten better. He has improved, keep working with your son. Today he had a terrible meltdown, but it is his first one this school year. All the others have been slight refusals and then he finally did the work. So there is hope

3:42
Hi Tashalee – You are doing the right thing by having your child evaluated. The earlier your child get diagnosed the better. You can begin early intervention and it will make all the difference. He is our 100 Day Kit created specifically for newly diagnosed families to make the best possible use of the 100 days following their child’s diagnosis of autism or AS/HFA.
3:43
Comment From Tashalee

MY 2yr old goes for evaluation next week, we are preparing for what we already know, it all makes sense now. He does’t say much a few words, how do I help he and whats this about Ipads helping?

3:43
Comment From brenda

what do you tell fmaily whos not really been in your childs life for years then all of a sudden they pop in but dont want to do the tthings u suggest with your child?

3:46
Hi Brenda- The Autism Speaks Family Support Tool Kits: Parents, Siblings, Grandparents and Friends will be published this week in eSpeaks. The Guides cover the emotional reactions to having a family member with autism. The question you are asking is covered in the Parent’s Guide. Make sure you check out eSpeaks on Friday.
3:47
Comment From Tashalee

Thank you, its so wonderful to know that we are not alone.

3:47
Tashalee you can always come to us for support! Please check out our Blog: blog.autismspeaks.org and visit our Facebook Page: www.facebook.com/autismspeaks for more community!
3:48
Comment From Guest

We live in Spencer Iowa, and have 2 boys (8yrs and 13 yrs) on the spectrum. We have a couple support groups semi locally and they are helpful, but I am looking for someone that can help me advocate for my children. The support groups have a lot of advice but I don’t know if I am not asking for or requesting for help in the right way. I will admit I can get very wound up, and boisterous when I don’t feel like I am being listened to. I was hoping you can put me in touch with some on who can help me by telling me if I am unreasonable in my request, or possibly join our IEP meetings to back me.

3:50
Hi Guest! You are not being unreasonable at all in requesting to have an advocate in your IEP meeting. You can search our Resource Guide by your state to find an advocate in your area!http://www.autismspeaks.org/resource-guide
3:50
You can also check out our IEP Guide for further information:http://www.autismspeaks.org/family-services/community-connections/back-to-school
3:51
Comment From Amy

We live in Spencer Iowa, and have 2 boys (8yrs and 13 yrs) on the spectrum. We have a couple support groups semi locally and they are helpful, but I am looking for someone that can help me advocate for my children. The support groups have a lot of advice but I don’t know if I am not asking for or requesting for help in the right way. I will admit I can get very wound up, and boisterous when I don’t feel like I am being listened to. I was hoping you can put me in touch with some on who can help me by telling me if I am unreasonable in my request, or possibly join our IEP meetings to back me. Thank you

3:55
We are so excited to welcome Jed Baker to chat with us on Friday! Jed Baker, Ph.D. is the director of the Social Skills Training Project, an organization serving individuals with autism and social communication problems.
3:58
Well thanks to everyone who participated! Our hour has come to an end! You can always call the Autism Response Team (ART) members are specially trained to connect families with information, resources and opportunities.Call us at 888-AUTISM 2 (288-4762) or email us atfamilyservices@autismspeaks.org.
4:00
Have a great day!

Family Services Office Hours – 10.05.11

October 7, 2011 3 comments

Office Hours easily connects families to a wide variety of autism-related resources, including Family Services Tool Kits, and the Autism Speaks Resource Guide, an online national database of autism providers and resources searchable by state and zip code.

Family Services Office Hours is designed to quickly provide access to resources that are available and free to the entire autism community.

The Office Hours sessions are staffed by ART coordinators who are specially trained to connect families affected by autism to resources.

2:32
Hey Everyone! We will be on in 25 minutes! Hang on!
2:57
Just getting ready to go!
3:02
Welcome to Office Hours! Family Services is taking questions and we are here to help offer resources and guidance!
3:03
Comment From Jennifer

My son is 4 and has PDD-NOS. His teacher says she does not see any reason why he can’t be in a regular Kindergarden next year. Is it possibe that his current diagnosis can improve…and then regress as he gets older?

3:04
Hi Jennifer! Children with autism progress at different times. Make sure that he has an IEP in place and be sure to measure his goals and objectives to make sure that he is infect making progress!
3:05
*in fact
3:06
Comment From Guest

My 18 mo old son has just been diagnosed. I’m having a hard time finding treatment options. The state (WI) funding has a 2 yr waiting list and our pivate insurance is self funded so they don’t have to do much. He is in speech therapy 3 x a week and occupational 1 month. What else can I do? He was rated as moderate on the scale.

3:08
Hi Guest! That is great that he is already in those therapies! Early intervention is key! Early Intervention is Federally mandated. Please check out our Resource Guide for your state to find a facility near you. Here is a link!http://www.autismspeaks.org/resource-guide
3:08
Also, here is our 100 Day Kit for further assistance!http://www.autismspeaks.org/family-services/tool-kits/100-day-kit
3:09
Comment From Dawn

Have you heard of Irene law and how it effects grade advancement from third grade forward?

3:10
hi Dawn, I haven’t heard of Irene law. Can you tell me about it?
3:11
Comment From Kristen

I posted earlier Gabe is my 18 month old. With the research I have been doing I have read that there is a higher insidence in siblings. I have a 4 year old, no concerns there, but we also have a 2 month old. How early can you really look for signs of autism?

3:12
Hi Kristen! Clinicians are diagnosing autism earlier in earlier. It is always helpful to learn the signs. Here is a linkhttp://www.autismspeaks.org/what-autism/learn-signs
3:12
Our Video Glossary should also be helpfulhttp://www.autismspeaks.org/what-autism/video-glossary
3:12
Be sure to work with your clinician to follow the progress of your children and to discuss any further concerns
3:15
Comment From melina

I am in England and my 4 year old son has all signs of classic autism, but i cant get a pediatrician to give a diagnosis. any suggestions?

3:16
Hi Melina. You may want to ask your child’s doctor for a referral to a developmental pediatrician or a neurologist. It is very important that you get the diagnosis sooner rather than later. You are doing the right thing by seeking further clarification about your son’s status!
3:17
Comment From Jessica

My son is 4 years old and was diagnosed with autism at the age of 2. He has a HUGE problem with eating his poop and playing in it! I am desperatly asking anyone to help me help him! Thank you

3:18
Hi Jessica. I’m sorry to hear that you are having this difficulty. This is important information for your son’s treatment team to know. You can start by talking to your pediatrician or your son’s IEP team. You should not feel alone with this problem, there are plenty of other parents who have experienced this! Talking to professionals is a key first step to understanding what is causing this to happen.
3:20
Comment From melina

i tried that and the gp who only met my son once for 5 minuets said he couldn’t be autistic because he sat on a chair

3:20
Hi Melina. It is very important that you find a gp or pediatrician who will listen to your concerns and help meet your needs. Do not give up, you are doing the right thing!
3:21
Hi Janine, it important to work closely with your daughter’s clinician and get the support you need to in order to access services.
3:23
Hi Guest and Adrienna! We have a very extensive resource guide that you can use to help find therapists in your area. Simply go towww.autismspeaks.org/resource-guide, click on your state and search among our many categories. Enter your zip code and expand the radius so you can find all possible options in your state.
3:23
Comment From Adrienna

My 3 yr old has been diagnosed with autism and I was wondering if you knew of any sites where I could find behavioral specialists or obtain behavioral intervention in the state of KY?

3:23
Comment From Guest

My son will be 4 next month and is currently recieving Speech and OT therapies but they are now recommending ABA therapy which I am told is very costly, are there any resources in opr around Charlotte,NC that I may check out for this or something else that may assist him?

3:23
Hi Guest and Adrienna! We have a very extensive resource guide that you can use to help find therapists in your area. Simply go towww.autismspeaks.org/resource-guide, click on your state and search among our many categories. Enter your zip code and expand the radius so you can find all possible options in your state.
3:24
You can also find local autism organizations in the resource guide in your state that may have more information for you.
3:25
Comment From Linda

school issues…. getting a one on one aid when starting to help the transition. school wants him in school for a couple weeks before an iep can be set up to see if he needs one. we are afraid to start him without one, afraid of maybe making it very hard as he has not had to do any real transitioning and we feel if he has help for a little while that he may not have to continue to have an aid for a long period. he is high functioning and just needs someone to help him get a start. he is 7 and already a yr behind because of our issues with school.

3:26
Hi Linda! You have the right to call an IEP meeting at any point. You have to be sure to advocate for yourself and child. We have several resources that may be helpful to you. First off, our IEP Guidehttp://www.autismspeaks.org/sites/default/files/gp_iep_guide.pdf
3:27
We also have the School Community Toolkit to assist members of the school community in understanding and supporting students with autism. Here is a linkhttp://www.autismspeaks.org/family-services/tool-kits/school-community-tool-kit
3:28
Comment From donna

my 3 year old son is in the process of being diagnosed and i am having trouble getting his therapy back since he turned 3. he was reciving early intervention and speech therapy but they told me they had to stop because of his age.

3:28
You can also search our Resource Guide for Advocacy in your area http://www.autismspeaks.org/resource-guide
3:28
hi Donna, I am curious. Were there transitional services put in place?
3:30
You early Intervention treatment team should be able to help you make a transition to school based services.
3:32
Donna, you may also want to look up state information in our Resource Guide. Click the categories “State Information – Early Intervention” and “State Information – Preschool” to learn more.http://www.autismspeaks.org/community/fsdb/search.php
3:32
You should also check out our “Your Child’s Rights page”http://www.autismspeaks.org/what-autism/your-childs-rights
3:32
Comment From Courtney

Is there anything comparable to ABA therapy? What can I do to assist him in behavior modifications?

3:32
Hi Courtney! We have a list of various treatment options on our website on the What is Autism page.http://www.autismspeaks.org/what-autism/treatment You can see a list on the left side of the page and read more about each.
3:33
Comment From Andrea

Donna my daughter was two when she was diagnosed and there was a lapse in service when she turned 3 because its defferent providers, but as long as he’s been evaluated by the school district then you’re on the right path.

3:34
Comment From Jessica

anyone know of good neorological doctors in the Indiana area?

3:35
Hi Jessica. Check out our Resource Guide and you can search for lots of resources in Indiana! www.autismspeaks.org/resource-guide
3:35
Comment From Nichelle

My autistic son is 5 and will be 6 next week he is in kindergarten and he has a problem with transitions. He really loved his teachers and friends from pre-k but is really having a hard time in kindergarten so far. His teachers send me notes basically everyday about his not paying attention or disturbing the class or throwing a mouse across the class because he didn’t want to get off the computer. Lately he has been saying shut up at home and school and when he does not get his way he says stupid mom, dad or the teacher. I don’t know what to do. Please help.

3:36
Hi Nichelle! You are right to have these concerns. You are doing the right thing to address these problems early. You should call an IEP meeting with your entire team to address these behaviors. You should not feel alone in addressing problems that he is having at school or at home.
3:37
Check out our IEP guide to learn more about how to work effectively with your IEP team.http://www.autismspeaks.org/what-autism/your-childs-rights
3:37
Your son is reacting and there is a reason for that. Part of the IEP team’s responsibility is to better understand the reason and what the function of those behaviors are for your son.
3:38
Comment From Charteisha

My son is 14 years old and had autism. He has been aggressive at school…hitting students and the teacher. This is his first year at this new school..high school. I am already becoming concern because the school called me yesterday to pick him up because he was aggressive. I don’t want him to be kicked out of school. I plan to increase his medication…Risperdal to hopefully get better control of his behavior. Any other suggestions?

3:38
Hi Charteisha! We are sorry to hear you are having difficulties with your son. This is something your IEP team and a psychiatrist should address to understand the underlying causes.
3:39
We have a great transition tool kit for parents just like you of individuals with autism ages 14-22. It is a guide to help walk you through this often difficult time. We can send it to you for free! Just fill out the form at the link below:http://www.autismspeaks.org/family-services/tool-kits/transition-tool-kit
3:40
I know this may take some tiime but it is so important to have good communication with his teachers and the others who are helping him at school.
3:41
Comment From Amy

I made a comment on how to get a person out of a local trainging center. This person is 40 years of age, counts, knows his color, ABC’s, feeds himself, dresses himself and talks with people. He has Autism and that’s the only reason he is at this trainging center. I would like for him to come live in my home and have a more normal life. Can you help me????

3:42
Hi Amy. Our resource guide has lists of attorneys and advocates that will be able to help you advocate for your friend/family member. Click on your state and then attorneys or advocates and type your zip code. Be sure to expand your search!www.autismspeaks.org/resource-guide
3:43
Hi Adrienna, There is a list of agencies in our resource library.
3:43
Comment From Adrienna

I have tried to look for any financial assistance through on your resource page and everytime I type in my area code and various distances I get nothing. Is there another site I can go to for finding financial assistance?

3:44
You may also want to contact local autism organizations listed in the Resource Guide who may know of other funding sources in your area.
3:44
Comment From Gillian

My son is 2 1/2 and was diagnosed with autism/pdd-nos at the age of 18 months. My husband does a lot of online research and lately all of this information keeps popping up about a link between autism and lyme disease and I wanted to get other mother’s opinions and/or personal experiences with this line of thinking

3:45
Hi Gillian. We are not aware of any relationship between Lyme disease and autism. If you have concerns, you should ask your pediatrician about it. You can also emailresearch@autismspeaks.org to get answers from our science team.
3:46
It is important for all of you to remember that while the internet has lots of perks and is a great source for information, please be careful with what you read, especially about autism. There are a lot of different theories out there, many from untrusted sources!
3:46
Comment From donna

is there any where i can get help to help my family to be able to communicate with my son better?

3:47
Hi Donna! We are in the midst of creating family support tool kits. We had a grandparent guide come out two weeks agohttp://www.autismspeaks.org/family-services/community-connections/celebrating-grandparents
3:47
And now we are working on kits for parents, siblings and friends. They should be out in the next two weeks!
3:48
We also have lots of books in our Resource Library for siblings, parents, and other family members. You can check out our books list at http://www.autismspeaks.org/family-services/resource-library/books
3:51
Comment From Erin

Where does a single parent of a 4yr.old pdd-nos w/3 other children get help for care?No family or friends to help and I work full-time.

3:52
Hi Erin. I am sorry to hear you are having difficulty finding care for your children. We did a Community Connections a few months back that provides lots of information and tips about finding effective respite care. http://www.autismspeaks.org/family-services/community-connections/respite-care-and-autism
3:54
Comment From Guest

My son is 6 and just got a PDD-NOS diagnosis this past summer…Before that he had a ADHD diagnosis which the school did not buy….But NOW they don’t seem to buy the PDD-NOS either?! What can I do to make sure we are all looking at him through the same lense for his next IEP meeting

3:55
Hi Guest. It is important that everyone who works with your son understands his strengths and limitations. This may be done by doing assessments of his different skill sets. The IEP must include lots of assessment data and information about your child’s status.
3:56
The areas of difficulty and strength are much more important than the actual diagnosis since every child on the autism spectrum is so different!
3:57
So it is important to make sure the IEP team and other professionals involved understand all they can about your son. You can read our IEP guide here:http://www.autismspeaks.org/family-services/community-connections/respite-care-and-autism
3:57
Comment From Erin

Is there a possible link between Ulcerative Colitis and Autism?I was diagnosed with UC after the birth of my daughter

3:58
hi Erin- Please email research@autismspeaks.org with your question. They will have articles or recent studies to answer your question.
3:58
Thank you everyone for joining today! Be sure to check out our newest project- a Health and Wellness site that includes lots of tips and resources regarding fitness, sleep and nutrition so your family member can be as healthy as possible!http://www.autismspeaks.org/family-services/health-and-wellness
3:59
We look forward to hearing from you all again next Wednesday at Office Hours! And as always, if you have any questions, please don’t hesitate to contact our Autism Response Team at 888-AUTISM2 or familyservices@autismspeaks.org

Family Services Office Hours – 09.28.11

September 29, 2011 6 comments

Office Hours easily connects families to a wide variety of autism-related resources, including Family Services Tool Kits, and the Autism Speaks Resource Guide, an online national database of autism providers and resources searchable by state and zip code.

Family Services Office Hours is designed to quickly provide access to resources that are available and free to the entire autism community.

The Office Hours sessions are staffed by ART coordinators who are specially trained to connect families affected by autism to resources.

2:47
Welcome to Family Services Office Hours! We are here today to answer any questions you might have and help connect you to resources. Let us know how we can help!
2:55
Comment From Kelly

Hi, I have a 9 year old son that I believe has aspergers. His current official diagnosis is ADHD but he has so many other symptoms. Cincinnati Children’s assessed him several years ago and told us that he was bi-polar. I’d really like to know someplace that I can take him for a full eval. Can you help?

2:56
Hi Kelly! The Asperger Syndrome/High Functioning Autism Tool Kit will be helpful to you. It contains lots of helpful information and resources!
2:58
In addition, the Cincinnati Children’s Hospital is now an Autism Treatment Network site. Here is the contact information: Cincinnati Children’s Hospital Medical Center (Cincinnati, OH)
Contact: Terry Mitchell
Phone: (513) 636-1665
terry.mitchell@cchmc.edu
2:58
Comment From renaye

I am having a difficult time finding a speech therapist for my grandson who is nonverbal .. none of them take medicaid and there is a waiting list for the one that does.. what do I do.. He is 11 non verbal and we want him to use tap to talk or some assisted device

2:59
Hi Renaye! We have a very extensive resource guide on our website that contains lots of speech therapists. You may want to try contacting others in your area to see if they take Medicaid.http://www.autismspeaks.org/resource-guide
3:00
If you’re not having any luck through Medicaid, you should also ask the school district for your grandson to be evaluated for his speech and language needs which can be included in the IEP guide. Check it out here! http://www.autismspeaks.org/what-autism/your-childs-rights
3:01
Comment From Kimberly Rossi

Hello I was looking to find out where I can get information to help a friend of mine a 26 year old male with autism information about dating. He has a belief that “normal” girls won’t date him because he has autism. He says that he wants to date “normal” girls not those with autism. I’m not sure how to help him he refuses to go to any local mixers that happen in the area. Any suggestions?

3:02
Hi Kimberly! We also have a Resource Library with lots of general resources. We have 2 different pages you may want to check out, our Asperger Syndrome page, as well as our Adults and Young Adults page. There are tons of helpful resources there.
3:02
Comment From renaye

we live in indiana,,, northwest part of the state

3:03
Hi Renaye, I still thiink you will want to call Cincinnati Children’s Hospital Medical Center (Cincinnati, OH), and ask if they know of an expert in your local comunity.
3:04
For everyone else out there, we have lots of different resources in our Resource Library that cover a wide range of topics, like toys and games, autism apps, magazines, books and much much more!
3:07
Comment From Guest

I looking for feeding therapy in Illinois south of Springfield.

3:08
Hi Guest! Thanks for joining us. I suggest you search our Resource Guide. We have a category for Diet/Nutrition in there. If that doesn’t help you, I would contact your pediatrician, he or she may have some recommendations for you.http://www.autismspeaks.org/resource-guide
3:09
Be sure to consult with your pediatrician, this is a medical issue that requires a team approach.
3:09
Comment From Jack Dawson

Hi There! I was wondering when the Family Support Tool Kits are being released? Your Tool Kits have SAVED my family!

3:11
Jack we’re SO happy to hear our Tool Kits have been helpful to you! That’s what we’re here for!
3:12
Hi Jack- Family Services relased A Granparent’s Guide to Autism last week. We will release Parents, Sibllings and Freinds in the next few weeks.The Tool Kits are specially designed to help with the emotional and support reactions to having a child diagnosised with autism.
3:13
All of the Family Services Too kits can be found at;
http://www.autismspeaks.org/family-services 
3:13
Comment From meta kane

I need a school for my son who has autism. My son has a photographic memory.

3:17
Hi Meta: You can look in our Resource guide for Private Schools. If you are interested in public school, that is something you will have to work with your IEP team in making an determination of public schools that are available.
http://www.autismspeaks.org/resource-guide 
3:17
Comment From Dana

I’m wondering if there is a Dallas-area toolkit for the Dental community? Or if there is a group specializing in the ASD population? My stepdaughter has Asperger’s Syndrome.

3:17
Hi Dana! We have a great Dental Tool Kit on our website. It has information and helpful tips for families AND dentists. It also has helpful videos. You can see our Dental guide here:http://www.autismspeaks.org/family-services/tool-kits/dental-tool-kit.
3:18
We also have dentists in our Resource Guide that specialize in treating individuals with special needs including autism. Click on your state, then the category Dentists and you can search by your zip code. I hope you find a great one!www.autismspeaks.org/family-services/resource-guide
3:19
Comment From Mari

I live in California and my son is a Jr. in high school. He has not been able to pass the Ca exit exam. What happens next? We would love for him graduate with a diploma and not a certficate.

3:21
Hi Mari- I am going to recommend you request a Transition Tool Kit – a special kit for families whose child are transitioning into adulthood. http://www.autismspeaks.org/family-services 
As far as your son not passing the exit exam, I would recommend you call an IEP meeting in order to specifically address this issue. Our IEP guideline will be a great resource to check out. http://www.autismspeaks.org/family-services 
3:22
Comment From Jennifer

My 4 year old was diagnosed with Autism and is in a special needs pre-k. I”m trying to find help with the state laws that are associated with Special Needs Classes. Regarding class sizes, full days/ half days…ect…

3:22
Hi Jennifer! We have lots of information about eduation laws in our IEP Guide. You can read our IEP Guide that was written by a professional team of lawyers on our Your Child’s Rights page:http://www.autismspeaks.org/what-autism/your-childs-rights. You can also search our Resource Guide for other preschools in your area. www.autismspeaks.org/resource-guide
3:22
Comment From Dana

Your IEP guide is invaluable! We did our first IEP last week, and knew how to advocate for our daughter with Aspergers. Thanks to your site, we were able to include both speech therapy *and* counseling in her IEP, as well as ensuring her caregivers had Autism certifications.

3:23
Thanks Dana! I’m so happy that was helpful to you and your family. We have gotten some great feedback!
3:24
Comment From Mari

Do you anything about a waiver in Ca?

3:25
HI Mari, you can check with your Regional Center. They should be helpful about how to obtain a MediCal waiver. Its great that you are investigating a waiver while your son is making his transition to Adulthood.
3:25
Comment From Catherine Ritter

My family needs a good counselor for helping us cope with our eleven year olds AS/OCD. It has been extremely difficult dealing with the anxiety meltdowns that turn violent and destructive. He has a good pshychologist already. Our eight and four year are having a hard time with their brothers behaviors. It is really bad and we are looking into temporary placement outside of our home for him. It is hard to find doctors who can counsel in relations to the spectrum. Any suggestions?

3:27
Hi Catherine. I suggest you look to you discuss this with your pediatrician to see if he/she can make a referral to a counselor. You can also search our Resource Guide for psychologists/other professionals in your area who may be able to help.www.autismspeaks.org/family-services/resource-guide. It is important to make sure this counselor has experience with autism. But those are 2 great places to start!
3:28
Keep an eye out for a Sibling Tool Kit we are working on that will come out in October. We also have books for Siblings in our Resource Library which you can see here:http://www.autismspeaks.org/family-services/resource-library/books#siblings
3:30
For those of you making comments about issues at school or education-related problems, definitely check out our IEP guide here http://www.autismspeaks.org/family-services/community-connections/back-to-school
3:30
Parent involvement is very important in the IEP process and your child’s education. Make sure you advocate for your child’s rights even though the process may be difficult!
3:31
Comment From Thereasa

My 6yo daughter was recently diagnosed with Aspergers. Do you have information that is easy to explain to my family so they understand what that means? They tend to be rather anti psychobabble and will not accept this diagnosis.

3:32
Hi Thereasa! First off, I suggest you order our Asperger Syndrome/High-Functionig Autism Tool Kit, which we send out for free to families of recently diagnosed children.http://www.autismspeaks.org/family-services/tool-kits/asperger-syndrome-and-high-functioning-autism-tool-kit
3:33
We have family tool kits coming out, but it is normal for different family members to respond differently to the diagnosis. It can take some people longer than others to accept it. I suggest you point families to our website www.autismspeaks.org/what-autismfor information. We’ve suggested that better understanding can lead to more support for you and your family.
3:33
Comment From Catherine Ritter

Our pediatrician does not know of one. I already spoke with him last week. ?? I feel so overwhelmed and stressed, because my family is struggling.

3:34
Catherine, I am so sorry to hear you are struggling. Feel free to call our Autism Response Team at 888-AUTISM2 or email us at familyservices@autismspeaks.org so we can help you.
3:35
It may help you to connect with other parents either through support groups or your child’s school. We don’t want you to feel alone. Sharing your feelings with others going through similar times can be extremely helpful.
3:35
Comment From Mari

Thank you soo much for all the help! Have a Wonderful Day!

3:35
Thanks Mari, we are so happy to help! Hope to see you back next week!
3:36
Comment From Willmom

We have noticed that our 4 year old ASD son is becoming much more stubborn. He is melting down with every no any suggestions?

3:37
Hello Willmom – I am glad you are asking tis question. Its important to understand and have a plan of action when children are having new behaviors.
3:39
You will want to work with a professional, preferably a behavior analyst who is an expert on understating behavior
3:40
http://www.autismspeaks.org/resource-guide 
Our resource guide has a catogory called ABA, take a look!
3:41
Comment From michelle

when our son was that age willmom, we found previewing situations that would have no answers helped. such as we are going to the grocery and there will be things that I am going to say no to. you can get 1 thing, if you do not melt down. (of course all of this is in 4 yr old language) it helped some. didn’t get rid of all them..still had some store meltdowns

3:42
Thank you Michelle! It is so nice to see moms and other parents talking to each other and sharing stories. That is one of the best ways to get support, by sharing information with others who may be going through similar experiences. As many of you know, there are constant chats happening on our Facebook page and lots of parents have been able to connect and help each other!
3:43
Comment From Willmom

Also, our 4 year old son (ASD) is having a very hard time with potty training. Any suggestions?

3:43
Comment From Willmom

Thanks for suggestions

3:43
Comment From Willmom

Michelle, Thanks for reaching out!

3:44
Hi Willmom. There are 2 books that have been submitted to our Resource Library that have been helpful to families who are having difficulty with potty training. Here are the 2 links:
3:44
Comment From Jeni

Willmom – the Book Love and Logic help my family tremendously in dealing with my son’s tantrums when he was your son’s age. We also had a 1:1 ABA therapist that would go to the store with us and help guide me through the situation.

3:45
The Autism Treatment Network is working on a toilet training tool kit that they hope to have out soon. So keep checking back to our Family Services page for its release date!www.autismspeaks.org/family-services
3:47
Comment From Ashley

I was just wondering if there has been any link in genetic disorders and autism? I’m asking because I have two boys who have mutated “X” chromosomes, and as a result they have “symptoms of autism” they cannot say for sure that’s what it is, but that’s what everyone thinks it is. It was passed on to them through me (I have the exact same genetic make-up) and I am afraid my daughter will have to too (already had her tested, just waiting for the test results). Thanks for your time!

3:48
Hi Ashley! That is a great question, but I’m sure you would get a better answer from our Science team. You may want to check out Alycia Halladay’s live chat on siblings and genetics here:http://blog.autismspeaks.org/2011/08/16/increased-risk-live-chat/
3:49
Our science team would be happy to answer your questions atscienc@autismspeaks.org. They are very helpful!
3:50
or you can try research@autismspeaks.org for more specific research-related questions.
3:51
Comment From Gayle

My grandson lives in NC and has been diagnosed as being on the autism spectrum, adhd and I’m not sure of anything else. He takes medications that are costly and also sees a psychologist for dealing with anger issues. He is 7 years old and does well in school and most of his meltdowns are at home. His parents are separated and my daughter is the sole source of financial support. Are you aware of any no- or low-cost services in NC to assist with his medical costs? My daughter has health insurance but the psychologist specializing in children with autism is out of network and the insurance pays very little. My daughter has to pay more than $135/week for the therapy session and his meds are not in the range of what she can afford. Thank you for any assistance you can provide.

3:53
Hi Gayle: You are correct to investigate financial recourses for families. Is your grandson receiving a Home and Community Based waiver? If not, this is the first step you want to take.
3:55
There are so many stressors that family’s face, and financial issues are one of the primary ones that we see in families of children with special needs. There are potential sources of aid…. many of them depend on the state in which you’re living. Many of the services in some of the states are provided for through state agencies.
Through medical insurance if you have a willing physician, you can sometimes get funded for ancillary services that might be covered by your own insurance policy, or through Medicaid, especially if your child has other medical diagnoses such as seizures, GI problems, or special dietary needs. So my recommendation is to mine the services available in your community for funding, and don’t forget about medical insurance. Through medical insurance if you have a willing physician, you can sometimes get funded for ancillary services that might be covered by your own insurance policy, or through Medicaid, especially if your child has other medical diagnoses such as seizures, GI problems, or special dietary needs. Once you know where all your sources of funding might be, then take a critical look at your treatment plan that is required for your child, and see how each element might be covered by each of these resources to put together the most robust treatment plan for your child possible.
3:56
Comment From Guest

hi, i have an 8 year old boy, who has asd and adhd. We have just had our 6 year old duaghter accepted to be screened for autism. shes very intellegent and we feel shows signs of adhd and ocd too. she saves up all her anger, and behaviours for us at home, and we are told, does as she is asked in school! soo frustrating! ive read alot about high functioning girls disgusing their behaviours etc in school, then letting all come out at home.

3:58
Hi guest! This is a very common problem reported by parents. We recommend that there by close communication between you and the teacher so you can learn about what the school is doing to get the success they have. Communication is everything when trying to raise a child who may have autism. Remember, this won’t be easy because the school environment is so structured, but it does help to have this information so you can learn from their success.
3:58
These issues should also be brought up in the IEP team meeting. The teachers/school professionals should have lots of information for you. It is great when teachers and parents are on the same page.
3:59
Thank you everyone for joining us today!! We weren’t able to answer everyone’s questions but I hope all of the participants learned a lot from the questions that we did answer. As always, feel free to call our ART team with questions at 888-AUTISM2. See you next week!!

Family Services Office Hours – 09.21.11

September 22, 2011 1 comment

Office Hours easily connects families to a wide variety of autism-related resources, including Family Services Tool Kits, and the Autism Speaks Resource Guide, an online national database of autism providers and resources searchable by state and zip code.

Family Services Office Hours is designed to quickly provide access to resources that are available and free to the entire autism community.

The Office Hours sessions are staffed by ART coordinators who are specially trained to connect families affected by autism to resources.

In recognition of National Grandparents Day, on September 11th Autism Speaks is celebrating the grandparent connection in families affected by autism. During the month of September, we are asking grandparents to share your experiences, so that other grandparents across the country can benefit from your knowledge and the road you have traveled. 

3:03
Hi Everyone! Welcome to this week’s Family Services Office Hours! We are here to answer any questions you have about our resources and help connect you with others. So ask away!
3:04
Comment From sheila 

is there in sevices in lawrenceburg tn

3:05
Hi Sheila! Here is a link to our Tennessee Resource type! You can check for resources in your area!http://www.autismspeaks.org/community/fsdb/state.php?sid=50
3:05
Comment From Robbin 

I would like to know if there are any extracurricular activities in my area for my 16 year old son with Aspergers?

3:05
Hi Robbin! You can find lots of resources in our Resource Guide. All you need to do is click on your state, select categories like “Recreation and Community Activities” and type in your zip code.
3:06
I also suggest you order our Transition Tool Kit, it was designed specifically to help families of individuals with autism ages 14-22 on the transition to adulthood. It has lots of tips, including more about how ti get involved in the community.
3:06
Comment From Maggie 

Hi Autism Speaks. Thank you for giving us this opportunity to ask questions. I think my three-year-old son has autism. A friend of mine’s son was just diagnosed and I see a lot of his traits in my son. What should my first step be?

3:06
You can order a free copy on our website!
3:07
Hi Maggie! Thank you so much for joining us! There is a page on our website, ‘Learn the Signs.’http://www.autismspeaks.org/what-autism/learn-signsYou should also work closely with your pediatrician to be sure your son is reaching developmental milestones and to track his progress.
3:07
Also, check out our Video Glossaryhttp://www.autismspeaks.org/what-autism/learn-signs
3:09
We would also like to recommend a wonderful book, ‘ Autism Solutions’ by Dr. Ricki Robinson. Dr. Robinson will be here for a LIVE Chat on Monday, September 26th so check back for more!http://drrickirobinson.com/
3:10
Comment From Britt 

Hi Autism Speaks. My son was diagnosed with autism at 3. He is now 4. Lately a lot of people have been asking us what degree he is…and I have no idea. When he was diagnosed no oe mentioned a degree or anything like that that. Is this important to know? Does it make a difference? How would I go about finding this out? Thanks so much.

3:10
Hi Britt. Your pediatrician can help provide you with more information. However, regardless of the formal diagnosis, every child with autism is different so it is more important to focus on your child’s strengths and weaknesses and make decisions about his treatments based on what you see. You know him the best!
3:13
Comment From Connor

My wife and I are having difficulty potty training our daughter who has autism. Do you have any tips for us?

3:15
Hi Connor! Thank you so much for joining our chat. This is often difficult for families! Here are two books that we recommend!
3:15
Teach Toileting: A Revolutionary Approach for Children with Autism Spectrum Disorders and Other Special Needs
by Deborah Bialer http://www.amazon.com/teach-toileting-revolutionary-approach-disorders/dp/0615255523
3:15
Toilet Training for Individuals with Autism or Other Developmental Issues, 2nd Edition
by Maria Wheelerhttp://www.amazon.com/gp/product/1932565493/ref=as_li_ss_tl?ie=UTF8&tag=autispea-20&linkCode=as2&camp=217145&creative=399369&creativeASIN=1932565493
3:15
We haven’t read them ourselves but they have been submitted to our Resource Library by other families that have found them helpful, so I hope they are helpful to you too!
3:20
Comment From Britt

Thank you. Also, How would I go about finding activities for my son do? The state law here has changed for his IEP and it now says that he should have more social interaction…but we are having a hard time finding classes and activities for him that accept and understand kids with special needs. And lastly, do you know of or have any resource information for military families? My husband is AF and its likely that we will be moving again within the next two years. So I would like to get a resourceful connection if I can before then. Thanks you again.

3:21
Hi Britt, please visit our Resource Guide. You can search by state to find activities for your son.http://www.autismspeaks.org/community/fsdb/search.phpYou can also visit our Community Connections, ‘Have Some Fun Today! Recreation, Community Activities, Clubs and More!’http://www.autismspeaks.org/family-services/community-connections/have-some-fun-today-recreation-community-activities-clubs-and-
3:23
The Organization for Autism Research has sponsored a program called, ‘Operation Autism.’ It is a resource guide specifically for military families.http://www.operationautismonline.org/tag/military/
3:25
ACT Today! is a national non-profit organization is a mission to raise awareness and provide treatment services to families that cannot afford the treatments and services their children require.http://www.acttodayformilitaryfamilies.org/
3:25
Comment From Britt

Awesome! Thank you so much!

3:25
Comment From John

My daughter is having a hard time transitioning back to school. She is new in her mainstream class. How can I help her peers understand what autism is and why she has challenges. Thanks so much for taking the time here!

3:26
Hi John! We are sorry to hear that your daughter is having difficulties. We recently created a Community Connections, ‘Back to School: Let’s Get Ready for a Great Year’ that provides tips about how to ease this transition.http://www.autismspeaks.org/family-services/community-connections/back-to-school
3:27
You can also look at our School Community Tool Kit in the section ‘Peers’ for more informationhttp://www.autismspeaks.org/docs/family_services_docs/sk/Peers.pdf
3:27
Comment From Sally

How do I talk with soemone in person.

3:28
Hi Sally! We have an Autism Response Team, and our trained coordinators would be happy to speak to you. You can email them directly at familyservices@autismspeaks.org or call them at 888-AUTISM2. They are available during regular business hours.
3:37
Comment From Liz

I have a 9 year old son with Autism/Aspergers. I have not been able to find a way to explain his autism to him. I need help finding a way to talk to him in a way he will understand. Is there an easy way?

3:38
Hi Liz, this is a struggle for many families. Please visit our Resource Library where we have a list of Asperger Syndrome websites http://www.autismspeaks.org/family-services/resource-library/asperger-syndrome
3:38
We also have an ‘Asperger Syndrome and High Functioning Autism Tool Kit’ Tool Kit that can be downloaded for FREE here!http://www.autismspeaks.org/family-services/tool-kits/asperger-syndrome-and-high-functioning-autism-tool-kit
3:40
Comment From allison

i have a son 24 years old that was diagnosed as high functional with a photographic memory but i feel like he should be re-evaluated

3:41
Hi Allison. Re-evaluation is always a good idea if you feel like his diagnosis may have changed. You are the one who knows your child best, so it may be a good idea to trust your instincts and bring your son back to his doctor.
3:44
Comment From Colleen

What is this CARA thing I keep hearing about? Thanks for your help!

3:44
Comment From Louisa mciver

regarding the legislation that was re-approved yesterday….mandating coverage of autism therapies.

3:45
CARA, which stands for Combating Autism Reauthorization Act, was passed the the House yesterday(YIPEEEE), but we still have to wait for it to make it through Senate. For more information, you can visit this blog post by Judith Ursitt, the Director of State Government Affairs at Autism Speakshttp://blog.autismspeaks.org/2011/09/21/tell-congress-to-pass-the-combating-autism-reauthorization-act/
3:46
We have just a 9 days left to pass the Combating Autism Reauthorization Act (CARA) of 2011 before critical provisions expire on September 30th. On September 20th, the Combating Autism Reauthorization Act passed with a floor vote in the House of Representatives. Now, we need you to switch your focus again back ot the Senate. Contact your Senators to ask themto support this important piece of legislation!
3:46
Comment From Louisa mciver

The info I read says that state operated insurance has to cover autism therapies, etc. Does this also apply to group insurance through an employer?

3:46
You can click on your state to learn what is happening there!http://www.autismvotes.org/site/c.frKNI3PCImE/b.3909861/k.B9DF/State_Initiatives.htm
3:56
Thank you for joining us today! Our next live chat is Monday at 3PM. Dr. Ricki Robinson is going to discuss ASD and its impact on family members. She will have lots of great things to say so don’t forget to tune in!
3:57
As part of the live chat, we will be giving away ten of Dr. Robinson’s new book called Autism Solutions. So join us!
3:58
As always, if you have any other questions, please don’t hesitate to contact our Autism Response Team at familyservices@autismspeaks.org or 888-AUTISM2. Enjoy the rest of your day!

Family Services Office Hours – 09.15.11

September 15, 2011 1 comment

Office Hours easily connects families to a wide variety of autism-related resources, including Family Services Tool Kits, and the Autism Speaks Resource Guide, an online national database of autism providers and resources searchable by state and zip code.

Family Services Office Hours is designed to quickly provide access to resources that are available and free to the entire autism community.

The Office Hours sessions are staffed by ART coordinators who are specially trained to connect families affected by autism to resources.

In recognition of National Grandparents Day, on September 11th Autism Speaks is celebrating the grandparent connection in families affected by autism. During the month of September, we are asking grandparents to share your experiences, so that other grandparents across the country can benefit from your knowledge and the road you have traveled. 

2:53
This month we are focusing on the important role grandparents play in the lives of their grandchild’s life with autism. In addition to weekly Office Hours we will focus on grandparent blogs, development of grandparent resources, and the launch of a Grandparent Support Tool Kit. We are interested in hearing from grandparents who can share their experience what it is like be involved in the lives of their grandchildren who have autism.
3:02
This month’s Community Connections will be focused on Grandparents! If you would like to subscribe, please click this link!
3:02
Comment From Kay

Good Afternoon!

3:02
Hey Kay!
3:02
Are you a grandparent?
3:02
Comment From Kay

Yes, I am…4 times!

3:03
how are things going?
3:03
Comment From Kay

One grandson, 9, lives with mild-to-moderate autism. I’m here to support others

3:04
That is great – thank you so much for joining our Office Hours
3:04
Comment From Kay

Well, it’s hard to say sometimes. It’s not like they come with a meter which tells you if they are being challenged in school to their capabilities or not

3:04
Comment From Kay

IEPs and their goals are a mystery to me. I wish i could attend school with Hunter sometimes, but that would be a huge distraction.

3:05
Kay have you checked our our Individualized Education Program (IEP) Guide? You may find this helpful.http://www.autismspeaks.org/sites/default/files/iep_guide.pdf
3:06
Kay, you may want to consider attending an IEP meeting for Hunter if your son or daughter is okay with that. You are more than welcome!
3:07
That way you can learn more about his IEP and specific goals.
3:07
Comment From Kay

No but I will. I just try to do what I can to expose him to a variety of educational fun things to do, like go to the library, the science museum, etc.

3:08
Comment From Kay

She probably wouldn’t care, but her husband might. When I ask her, she isn’t even sure if they do ABA. She’s not terribly literate on the whole thing, really. I research more than she does.

3:10
Comment From Kay

The other night we went to McDonalds and passed a phone booth. He asked me what it was!! I had to try and explain that some people don’t have phones like Mommy and this is what they use, and the phone book is where you find people’s ph #s. I don’t even think he realized people have phone #s.

3:11
Comment From Kay

At times I get the feeling Hunter’s parents think he’ll just grow out of this…

3:11
That is great that you are teaching him life skills and how to act while out in the community. They are very valuable lesson
3:11
Comment From Ali

My grandchild was just diagnosed last week. Any tips?

3:12
Hi Ali! I know this must be a hard time for you but there are many resources and options available for families.
3:12
The Autism Speaks 100 Day Kit and the Asperger Syndrome and High Functioning Autism Tool Kit were created specifically for newly diagnosed families to make the best possible use of the 100 days following their child’s diagnosis of autism or AS/HFA.
3:13
This may be a confusing time for you family and it may take some time to figure out how you can be helpful. Grandparents do play a vital role in a grandchild and family’s life to be sure to stay involved and supportive!
3:15
Comment From Kay

All the great resources out there make everything less scary, Ali. Be sure to make use of them

3:16
Comment From Caroline

My daughter doesn’t want to face the diagnosis and it is very hard for me to just sit back and do nothing. HELP!

3:16
Comment From Ali

Thanks for the encouragement Kay! It is nice to know there are people out there willing to help.

3:16
It is so nice to see the community supporting each other!
3:18
Hi Caroline! I would encourage you to sit down with your child and discuss the approaches and methods that they have put in place. It is a good time for you to share what you have learned from reading articles or books that you have found helpful. Although it is difficult for you, it probably pays off for you to be patient and let your family grieve and take some time to accept the diagnosis.
3:18
Comment From Oma

I take care of my 5-year old grandson full time… He has high functioning Autism and just started KG. He is still adjusting and it’s taking lots of communication with his IEP team, but I know we will get there. I am getting lots of help and support from local professionals as well as a Parent Advocate, which helps so much, as I am on my own with my grandson. All the resources available from Autism Speaks are such a big help, too.

3:19
Hi Oma! Welcome back!
3:19
Comment From Kay

My daughter depends alot on me, but being older and having more patience has been a blessing.

3:19
Comment From Oma

I do have a question… We need to discuss safety at our next IEP on Friday, as my grandson bolts out of sight of his teacher. He’s a runner and it is scary to think he might run off fat and into danger. Do you have anything that could help at school as well as at home, measures we can take to keep him safe?

3:21
Oma, we have a great resource called the Autism Safety Project. There is a page just for families with tips and resources about how to keep children with autism safe and out of danger.
3:21
We also have a list of safety products in our Resource Library (along with MANY other resources!) that can help you as well.
3:22
Comment From Oma

Wonderful! Thank you!

3:22
Comment From Marcella

My 8 yr olf displays the characteristics of autism, but not diagnosised. where do i need to go?? help

3:22
Comment From Marcella

I’m convinced my son has high functioning autism. He is already in special ed, speedh therapy and occupational therapy in 2nd grade(started last year) all with me pushing the schools. does he need to be diagoned.

3:23
Marcella, we have a great section of our website called What Is Autism. There is lots of information on there and tips to help you learn the signs. We also have a great Autism Video Glossary that will show you the difference in real time!
3:23
Comment From Kay

Caroline, was your grandchild just diagnosed? It may just take time for your daughter to accept it. She may be grieving. She’ll get there.

3:23
Comment From Marcella

thanks

3:24
Comment From Debbie

Kay — same here. For some reason I find caring for my grandson easier than raising my kids. Go figure.

3:26
Marcella, you can also search our Resource Guide for service providers in your area that may be able to help your grandson. Try the category “Where to Get An Autism Diagnosis” or “Psychologists”. There are over 45,000 resources in there across the country!
3:27
Comment From Kay

It seems like for me, I have more of a big-picture view of my grandson than my daughter does. She’s dealing with him day-by-day and frustrated with his behavior and obsessions, but since I only see him 2-3 times/wk I don’t go so nuts and I appreciate his uniqueness more.

3:28
That is exactly why your role is very important! You are a great value to your daughter in giving support the way that you do. It is wonderful that you are able to be an active member in your grandchild’s life.
3:28
It is great that you offer you family a chance to get a break from the day to day challenges, even just a few hours can make a big difference for them!
3:29
Comment From Kay

So I guess it gives not only her a break for me to have him with me, he gets a break from her, too!!

3:31
There is a section in the Grandparent Toolkit coming out Friday, that describes how grandparents can support their grandchild and family
3:32
Comment From Guest

What do u think of a smaller school for autistic kids. My son is in 8th grade and his class has over 600 kids in the 8th grade. He has been diagnosed with pdd and some characteristics of aspergers

3:32
Comment From Lisa

I’m the one who just wrote about a small school

3:33
Hi Lisa! Wow! That’s a big 8th grade! Our School Community Tool Kit may be useful for you. Since every child is different, some children do better in small schools. It all depends on the child.
3:33
You can download the School Community Tool Kit for FREE!http://www.autismspeaks.org/family-services/tool-kits/school-community-tool-kit
3:33
Comment From Sharon

hello everyone… reading everyone’s comments makes me cry… i recently moved over 2000 miles away from my daughter and grandsons. The youngest is 4 and we are waiting for the offical diagnose that he is an aspie… my other grandson who is 10 also is special needs but not autism… I miss them both sooo very much and worry about my daughter now that i am not there to help her

3:34
We are sorry to hear you feel so frustrated being far from your family. However, there are plenty of ways you can continue to help them and stay close to them!
3:36
Technology is an extremely helpful tool. E-mail, chats and especially video chats are great ways to stay involved on a regular basis. Also, I’m sure like all kids your grandsons would love to get letters or treats from you too to know you are always thinking of them!
3:36
Comment From Kay

I look forward to that toolkit. Is there anything like waving in front of your kid’s face yelling, “He’s not just any kid. LEARN something about autism!!”

3:37
Comment From Sharon

i know but just miss the special times w/Mason (4yr old) and w/Alex …

3:37
Comment From Kay

OMG, I would be crying, too! Can you Skype or webchat with them? My grandson loves the computer!

3:40
Comment From Sharon

also i have been trying to find out if there is some place here in the Phnx AZ area that might lend out compression vest for short peroid of time. They are coming here in Oct for my son’s wedding and we will need one for Mason cuz his the ring bearer for the wedding… does anyone know of some org that must help out for a few days w/that?

3:41
Hi Sharon! We also have a great section in our Resource Library for Sensory Tools and Products including weighted blankets and vests. http://www.autismspeaks.org/family-services/resource-library/sensory-tools-products-0
3:41
Have you tried to get in touch with SARRC (Southwest Autism Research and Resource Center)? They are a wonderful organization in Phoenix that may have some other great ideas for you.
3:41
Comment From Caroline

Does anyone have any suggestions for activities I can do with my grandson? He will be 5 next month.

3:42
Hi Caroline! We have some great resources for you! The Grandparent Autism Network offers some useful and practical tips on making the most of the time you spend with your grandchild.www.ganinfo.org
3:43
It would be very important for you to discuss what activities you have had success with. Make sure to ask your children for suggested activities. It is a great place to start!
3:44
Comment From Sharon

Caroline… i found that my grandson loved just going for walks … feeding the ducks… nothing that takes alot of consentration…

3:45
Comment From Caroline

That is a great idea Sharon. I have been trying more exciting activities, but it sounds like walking and going to the park may be better activities for us to enjoy together.

3:46
Comment From Kay

In the fall he might like collecting leaves. Hunter likes to just go to the river and throw sticks and rocks.

3:46
Comment From Caroline

Wow, it is so great to hear ideas from all of you. It makes me feel so much less alone!

3:47
Comment From Kay

When he was 4 or 5 he loved swinging at the playground a LOT!

3:47
Comment From Kay

I take my grandson to the library; we go on birdwatching hikes, Caroline. Things like that. He likes to observe nature. Just kind of try things and see what works. Mostly he’ll like being with you!

3:48
You can connect with other people in the autism community by joining our social network! You can exchange more great ideas by clicking here! http://www.autismspeaks.org/about-us/social-networks
3:48
If you are seeking more support you can search our Resource Guide for groups in your area!http://www.autismspeaks.org/community/fsdb/search.php
3:50
We will continue our grandparent discussion at next week’s Office Hours so please invite other grandparents to join us. We know it makes a huge difference when people are able to connect and share experiences.
3:50
Also be sure to look our for our Topic of the Week!http://blog.autismspeaks.org/2011/09/14/totw-g2/
3:51
Comment From Sharon

nice meeting everyone and ty for the help

3:51
Comment From Kay

I let Hunter be messy too, where his mom doesn’t. We make recipes for playdough and slime and stuff.

3:52
That sounds like fun Kay!
3:54
Comment From Kay

Thanks for this chat

3:54
Your welcome! Thanks so much for joining! Hopefully we see you next Wednesday – Don’t forget to tell your friends to join!
3:56
Autism Speaks is here for you! You can always feel free to call our Autism Response Team at 888-AUTISM2 or email us at familyservices@autismspeaks.org. We are happy to answer your questions!
3:57
We send out different tips and tools each month, and our grandparents newsletter comes out this Friday! Stay tuned!
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