The Doctors Are In!
* First Thursday of every month
* 3 pm Eastern (2 Central/1 Mountain/noon Pacific)
* Join via the Live Chat tab at https://www.facebook.com/autismspeaks
Office Hours easily connects families to a wide variety of autism-related resources, including Family Services Tool Kits, and the Autism Speaks Resource Guide, an online national database of autism providers and resources searchable by state and zip code.
Family Services Office Hours is designed to quickly provide access to resources that are available and free to the entire autism community.
The Office Hours sessions are staffed by ART coordinators who are specially trained to connect families affected by autism to resources.
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2:54
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Hey Everyone! We will be on in a few minutes! |
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2:58
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Ok! We are here and happy to start taking questions! |
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3:00
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Comment From Melissa
How much information is available on the possibility of autism being genetic? From parent child? |
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3:04
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Our science team regularly posts blogs explaining new research findings about autism. Stay connected by checking up with us atblog.autismspeaks.org! |
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3:04
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Comment From Shannon
Is PDD-NOS actually a form of autism? |
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3:04
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Hi Shannon! The answer is yes! Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS) is one of the autism spectrum disorders and is used to describe individuals who do not fully meet the criteria for autistic disorder or Asperger syndrome. |
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3:05
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Comment From Kathy
Hi! I am the mom of a 10 yr old High functioning son and I am having trouble finding any help since he seems so “normal”. He gets no help in school and limited help through his dr’s. Is there help out there for High functioning Aspy’s? |
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3:05
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We also have plenty of resources on our website related to helping people with Asperger Syndrome. Here are a few great links: |
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3:06
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Comment From Haley
Hi! I was just wondering where I could get information or if there was someone I could talk to about careers in autism? I am in college right now and I would like to talk to someone who could help me make sure I’m on the right path…. |
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3:07
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Hi Haley! That is so great you are interested in a career in autism. If you are looking to provide direct services, I suggest you search our very extensive online Resource Guide. You can click on your state and find service providers in your area in lots of different fields (schools, therapists, after school programs, recreation activities, etc.) Those providers will most likely have lots of information to help point you in the right direction!www.autismspeaks.org/resource-guide |
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3:08
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Comment From Brenda
I have been reading a PDD and ADHD and how some ADHD medicines, actually help with the PDD. Is there any information you can share on this? |
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3:08
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Many families of children with autism spectrum disorder (ASD) are faced with the option of using medicines to help treat their child’s challenging behaviors. This is a tough medical decision and there is no one right answer. |
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3:09
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Comment From Shannon
I have read the forum in autism speaks and it is great. I just wanted to make sure that when I say my son has autism that I am not exaggerating. It sure feels like it!! |
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3:09
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Shannon, we also have a great Learn the Signs campaign and an Autism Video Glossary that contains lots of videos that show symptoms of autism, compared to neurotypical children. They have been really helpful to so many people. |
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3:11
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Comment From Jane
My son’s father and I are divorced and his father would like me to have him and his nt brother for extended time (for respite) however I don’t have the home which can accommodate his needs. He’s registered with DDD but they are unable to help. Are there any other resources for me to look into? |
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3:13
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Hi Jane – that sounds like a very tough situation you are in. Your ex-husband needs to stick with the rules of the court. You can search our Resource Guide by your state to find a lawyer in your area as well as respite care options.http://www.autismspeaks.org/resource-guide |
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3:13
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Hi Shelly. You are not alone! We hear from lots and lots of families who have grandparents who do not understand the diagnosis or are unwilling to accept it. Everyone responds to the diagnosis differently and many people need time.We would suggest gradually introducing your parents to the idea, and emphasizing how important it is to you that they understand and are able to help you. I’m sure they love their grandchildren so much so will understand that the way they are treating him isn’t working to his benefit. |
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3:13
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Comment From Shelly
I have a three year old with PDD-NOS. I am having a hard time trying to educate my parents (his grandparents) on the subject. They are still in denial and I have even given them the tool kit for grandparents. They refuse to even look at it. They do not even want to make changes in the way they act arond my son (which makes him digress after every one of their visits.) What more can I do? |
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3:13
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Hi Shelly. You are not alone! We hear from lots and lots of families who have grandparents who do not understand the diagnosis or are unwilling to accept it. Everyone responds to the diagnosis differently and many people need time. We would suggest gradually introducing your parents to the idea, and emphasizing how important it is to you that they understand and are able to help you. I’m sure they love their grandchildren so much so will understand that the way they are treating him isn’t working to his benefit. |
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3:14
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Perhaps you want to speak to one of your parents who may be more willing to listen. It is important to stress that a family’s understanding and willingness to help their loved one with autism is crucial to the child’s progression and happiness. |
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3:15
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Comment From elizabeth
I have a non verbal 2 1/2 year old that was just diagnosed with severe autism. where can i get PECS cards that are not going to banrupt me? |
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3:16
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I suggest you call our Autism Response Team at 888-AUTISM2. They can take your information and place your order. It is FREE! |
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3:18
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Comment From Sarah
My “step son” (he is legally my son but not biologically) is Autistic. How likely is it my husband and I will have a child who is Autistic? I know that it affects about 1 in 110 children, 1 in 70 boys, but is it more likely since my husband already had one. |
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3:20
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Comment From Maria
Do you know what therapies can help with behavior problems? |
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3:20
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Hi Maria. We have a list of treatment options on our website in the What is Autism page. These are all treatments with documented science research behind them. In the left column of the page you will see a long list. You can click each of them to learn more about what that treatment involves.http://www.autismspeaks.org/what-autism/treatment. Our Resource Guide lists lots of therapists who specialize in these treatments www.autismspeaks.org/resource-guide. It is important to remember that because every individual with autism is different, not everyone responds well to the same treatments. Be sure to research before you decide what you feel is best for your child. There are lots of helpful tools out there! |
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3:20
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Comment From Sarah
Elizabeth, with our son we found a lot of websites that had picture and stuff. We put them around the house and our son picked up on some of the things and now even says some of those words. |
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3:21
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Thanks so much for adding your insights! We love seeing the community help each other out! |
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3:21
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Comment From Rebecca
My son is 3 and is somewhat verbal. He will ask for things at home but at school he doesn’t ask for things unless he sees the object/thing he wants. It is because of this and his lack of spontaneous language(at school) that they are suggesting we use PECS. We had stated at his IEP that we didn’t want him using this. Our concern is that he would become dependent on this. What is your opinion of PECS? Is it beneficial? |
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3:22
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Hi Rebecca! It is important that your IEP team listens to your needs and what you feel is best for your son. We have recently released an IEP Guide that will help you ensure your son’s needs are being met. You know what is best for him, so it is important that you make sure the school and the IEP team are hearing you loud and clear! |
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3:24
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Comment From elizabeth
thanks! I did order the booklet yesterday. thanks for the links and also your input, Sarah |
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3:24
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Comment From Sarah
Rebecca, I am not an expert by any means but I do have an autistic son as well. Stick with your gut feelings. Make sure the IEP is following what you want! The schools sometimes try to do what THEY want and what’s easiest for them and they can’t! If you end up wanting to use the PECS later, you can then add it to his IEP. You know your child best! |
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3:29
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Comment From Rebecca
Our wishes and concerns have not been heard . At the first IEP the school district told us that all they wee willing to ouffer our son was a place in their Autism preschool program. Eventhough the “school” where he had been presented a report saying that their team thought that it would be in his best interest to continue with his home therapy program. Where can we find Educational Advocates in our area that would help us free of charge. We are in Modesto, California. |
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3:29
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Hi Rebecca. It is important to make sure your concerns are being heard. You are entitled to have your voice heard in all matters related to the IEP. Our Resource Guide contains a list of advocates from across the country. You can search the resource guide at www.autismspeaks.org/resource-guide |
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3:30
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We don’t list them by fee but hopefully they will be able to help you. In addition, you might also want tos earch our Local Autism Organizations category. Those organizations may be better able to point you in the right direction in terms of an educational advocate. |
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3:31
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Comment From Sarah
google advocates in your area. I know here in GA there are not any in our city, but nearby towns. |
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3:31
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Comment From Rebecca
Thank you Sarah |
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3:38
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Comment From Guest
My son’s teacher communicates via email with us (parents). That’s fine, however, the emails are sent to the stepmother at her work’s email address rather than to my son’s father. I’m concerned for my son’s privacy. The school’s position is that they send emails to whatever address is provided. Are there any laws which can protect information regarding my son in this particular situation? SPAN was unable to find any |
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3:39
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Hi Guest, have you tried changing the contact email that your school has listed? |
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3:40
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That seems strange that the only one they send to is your son’s stepmother’s work email. You should make sure to have your email listed on there too, as all parents need to be involved in these decisions. |
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3:47
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Comment From Guest
I don’t know how to explain to kids at the park that my son has autism and i live in NYC do you have any suggestions. |
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3:49
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Perhaps you could show them these fun picture books, or get ideas from the books on how to best share the diagnosis. All of these books have been submitted by families who have found them to be extremely helpful with peers. |
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3:52
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Comment From Sarah
I have also had troubles explaing to other children why my son isnt “normal”. They don’t understand why he doesn’t want to play with them or why he doesn’t talk back. I always say “God made Cody different (like he does everyone) and Cody just doesn’t always like to play or talk to others. It doesn’t mean he doesnt like or love you, it just means he likes to have his own space. He sometimes prefers to play alone instead…. |
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3:53
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Thank you Sarah for your helpful responses. We love seeing families in our community helping each other out. Sometimes listening to people who have had similar experiences as your own is extremely helpful and comforting. |
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3:56
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Comment From Sarah
You’re welcome. Hopeful I can help other parents. I have had wonderful friends with simiar experiences that have helped me! |
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3:57
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Well we’d like to thank everyone for stopping by today! Remember we are here every Wednesday at 3pm EDT and you can reach us at 888-AUTISM 2 (288-4762) or email us atfamilyservices@autismspeaks.org. |
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Office Hours easily connects families to a wide variety of autism-related resources, including Family Services Tool Kits, and the Autism Speaks Resource Guide, an online national database of autism providers and resources searchable by state and zip code.
Family Services Office Hours is designed to quickly provide access to resources that are available and free to the entire autism community.
The Office Hours sessions are staffed by ART coordinators who are specially trained to connect families affected by autism to resources.
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2:52
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Hello: We are about to begin Family Services “Office Hours”, you can ask Family Services staff questions about resources or other questions about autism. |
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2:55
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Comment From charleen
what types of resources for low income families are in the phoenix area? |
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2:56
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Hi Charleen! Thank you for joining us today! We have a long list of resources in the Autism Speaks online Resource Guide. You can search for all different kinds of services in the Phoenix area.www.autismspeaks.org/resource-guide |
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2:56
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You may want to contact local autism organizations, a category in our guide and see what they are aware of. |
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2:56
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You also may want to check in with your Department of Developmental Disabilities to see if your family is eligible for Medicaid waivers. |
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2:57
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Comment From Maria Perez
Hello my son is 7 years old he was diagnosed with autism at 2 1/2 years old he does not speak but just some words but he does repeat alot of movies or cartoons he likes how can I get him to start talking more o saying what he needs o wants is there any programs o softwares that can teach him how to talk more and also how can I get him to stop repeating so much of what he sees thank you so much |
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3:00
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Hi Maria thanks for joining us today. I would recommend that you get a Speech and Language evaluation through your son’s school district or a private evaluations.In order to know what your son’s speech and language needs are, its important to have data and information about his needs. |
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3:00
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Comment From charleen
thank you, i’ve being trying to find something for my son, i’ve even asked his behavioral health palce, but they aren’t much help |
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3:00
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Comment From charleen
thank you for all your help |
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3:00
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Comment From Lisa
I just moved to Texas and I need to find a doctor for my daughter |
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3:01
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Simply click on your state, and select one of our over 70 categories to search. You will be able to enter your zip code. We usually recommend people put it in a wide search radius so you really get to see what is out there. |
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3:02
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Comment From Guest
Hi, my daughter is 7 years old and we are having a hard time bringing the therpy home.. She will eat different foods in food therpy but will not even look at the food at home. |
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3:02
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Hi- Its important that the professional working with your daughter help you to generalize the interventions at home. It would be a good idea to ask the professional to do a home visit… if possible. |
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3:04
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If a home visit isn’t possible, ask for a home intervention plan. These are some ideas to give you a start. |
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3:04
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Comment From Nicki
My son is 4 will be 5 November 4th..I have a few questions actually My son has never been properly diagnosed as Autistic, but he has shown so many signs they said he tested at the “mentally retardation levels” When they said this I became very peeved! I told them what he does and they said I have no idea what I am talking about…My son repeats everything and anything,Don’t know his colors can’t count other than up to 5 and also hardly ever sleeps.They told me to give him Tylenol PM I have and I have also tried melatonin. Nothing is working I can’t get him to sleep at all….What is there I can do? I live in Kansas City Missouri? Some1 please help me he hasn’t slept since he was 2 yrs old other than here and there and he keeps humping everything! |
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3:05
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Hi Nicki. I would recommend that you start with your pediatrician. He/she should be able to make a referral to a developmental pediatrician or a neurologist who can properly evaluate your son. |
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3:05
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The earlier the diagnosis of autism, the better the outcome will be, so it is important that you find someone who will listen to your concerns and help you work through the difficult issues you are having. |
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3:07
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Comment From Maria Perez
He is receiving speech therapy at school and also social skills on the weekend is there any computer softwares o pograms that can help me get him to start talking a little more |
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3:08
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We have TONS of great resources on that page including hundreds of books, some games, sensory products, online learning tools, websites for families, and much much more! |
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3:10
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Comment From Natalie
My 9 y/o was just diagnosed with aspergers 2 weeks ago. What is the best thing to do for him being DX so late? I don’t even know where to begin. |
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3:13
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Comment From Debbie
Hi… I’m Debbie and my son was diagnosed last Dec. Right now, we are looking for local groups so that he can have the opportunity to socialize and make friends. I’ve been trying to advocate for some kind of networking/supportive group for the parents at our school. My question is do I need to advocate somewhere else in the government in our city or can it be successfully done at the local school level? |
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3:14
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That is great you are advocating in your school for a support group. Support gruops can be so helpful to families of children with autism. I suggest you speak with other parents in the school who have children with autism or another developmental disability to get started. You will also likely meet lots of parents through these other programs who I’m sure would love to join a group of parents. |
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3:16
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Comment From Guest
It is difficult to discipline my child. He crys incontrollably when I call him out on his bad behavior. Any suggestions? |
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3:16
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Hi- Its important to understand the behavior, when it happens, how often and under what circumstances. Does the behavior occur at school? I would recommend a Behavioral Assessment completed by a professional who understand autism. Your child’s teacher may be able to recommend soemone. You can also check our Resource Guide.
http://www.autismspeaks.org/resource-guide |
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3:17
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Comment From Jenn
Hello, I happen to be an adult with asperger syndrome. I have an asociate degree & i’d want to work with preschool age kids on the autism spectrum. |
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3:18
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Hi Jenn! That is great to hear you are interested in working with preschool age kids. We do not provide direct services here, however there are lots of preschools and recreation programs, social skills groups, etc. in our Resource Guide.www.autismspeaks.org/resource-guide |
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3:18
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I suggest you reach out to those providers, and also to local autism organizations to find out what is out there. Best of luck to you! |
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3:18
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Comment From Danielle
Hi =) I have a 3 year old little girl with aspergers. She tends to melt down every time you ask her to do anything and sometimes its just when you in speak to her in general – It can even be over something she really likes and it can be positive and she still melts down! Is this typical behavior??? |
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3:22
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it’s important to work with your daughter’s team to better understand this behavior. A behavioral assessment will give you a much better understanding of the function of the behavior. |
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3:22
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Comment From Liz
I have not been able to go back to work the past year because I have been home with my 2 soon to be 3 year old who has been undergoing therapy for speach delays, developmental delay and sensory issues for the past 12 months. We did not get a diagnosis of Autism until about a month ago…my staying home has taken a huge tole on our family. Dad has had to work full time jobs to keep us afloat. Are their any resources or assistance programs for families like ours? |
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3:23
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Comment From Maria
Hi I have a question should we send our autistic son to preschool? He is high-function knows how to read, write, numbers from 1-100 and additions . I Don’t want him to go to preschool he is already on ABA program and I believe he is going to learn more with them than preschool. We had his IEP meeting and I feel pressure from the school staff. |
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3:26
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Hi Maria – Its important to work with the IEP team on what’s best for your son. You should feel confortable expressing your concerns and also hearing why the team is recomedning pre-school. Pre-school is an opportunity for socializing that a child doesn’t get at home. |
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3:27
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Comment From Jackie Gonzalez
First of all thank you so very much for being a reliable resource for families.. |
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3:27
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Comment From Gloria
Does anyone know of any sports organizations in the Dallas area for special needs kids? My son has Autism but loves sports even though he really can’t follow the rules he would love to play with kids his age, any suggestions? |
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3:28
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Comment From Courtney
My son’s pediatrician tested him in office and told us he has high functioning autism. It all makes so much sense now, but we can’t have him seen by a psychologist until March of next year and I feel like I’m lost. My son is 8 and his violent outbursts are getting worse, what should I do until he is able to see someone? |
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3:30
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hi Courtney, I would recommend you start by talking with your son’s teacher. He may need support during the school day, and they may want to complete assessmnets to identify his strengths and areas of needs. |
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3:31
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Comment From Janna
I live in Colorado my work falls under a church plan for insurance which excludes them from ABA services through HIMAT I have been to the head of HR and Bren declined this year or next that try will be adding it as a benefit, how can I get help with ABA without insurance coverage? |
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3:32
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Hi Janna. I’m sorry to hear you are having trouble with insurance coverage for therapy services. This is a major problem in the US. There are now 28 states who have mandated insurance coverage for services for kids and adults with autism. That is a huge goal of our advocacy efforts at Autism Speaks. You can check in on your state at www.autismvotes.org |
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3:33
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Comment From Jackie Gonzalez
My question is…..any advice for a 4 year old who refuses to share? So much so that he becomes aggressive? Towards himself, his 2 year old brother, classmates and teachers? |
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3:35
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hi Jackie- Its important to know under what circumstances the behavior occurs. Getting an understanding of the behavior is so important, and you may want to consider a behavioral assessment by a professional who is qualified and has worked with other kids with autism. |
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3:36
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Your child’s IEP team can help to identify a Behavioral Analyst, a person who is trained to assess behavior and put a plan in place to change a behavior. |
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3:37
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Comment From MariaH
Should I tell them that I want my son to go to a special Ed preschool ? |
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3:39
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Hi Maria-I would suggest that you and a IEP team member visit a few pre-schools and make a decision based on what you observe and your child’s educational, and social needs. |
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3:41
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Comment From Guest
My daughter is 22 months old. She is currently being evaluated for Autism by TEACCH in NC. She receives speech therapy and OT from the CDSA. The argument with giving her a diagnosis is that one she makes eye contact and two gesturing, she shakes her head yes and no but not always appropriate. She definitely has some sensory issues. She only has about 5 words. I also think she is doing some stimming, spinning, smacking herself in the head and repeating a sound over and over. Melt downs are huge for us in stores and resturants. |
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3:41
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Hi Guest. That is great to hear that you are already working with therapists and professionals on your 22 month old daughters development. Early intervention is an extremely critical component of improvement and it sounds like you are right on track. |
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3:42
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Every child with autism is very different, but the symptoms you are describing are often common in kids on the spectrum. I suggest you check out our Learn the Signs section of our website or view our Autism VIdeo Glossary which shows videos of kids with and without autism. You can check those out at the 2 links below: |
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3:42
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Comment From Guest
Do you know of any organisatons that assist parents who are not able to afford the cost, in getting an ipad for non-verbal children with autism? |
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3:45
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Comment From Brandon
I have aspergers autism, I’m high functioning, is there any support groups in Portland, or. ? |
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3:47
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Comment From Guest
Thank you. |
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3:47
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Comment From Brandon
Thank you |
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3:47
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We are happy to help. Thank you all for joining us today! |
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3:48
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if you have additional questions you can call the Autism Response Team (ART), members are specially trained to connect families with information, resources and opportunities.Call us at 888-AUTISM 2 (288-4762) or email us at familyservices@autismspeaks.org. |
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Office Hours easily connects families to a wide variety of autism-related resources, including Family Services Tool Kits, and the Autism Speaks Resource Guide, an online national database of autism providers and resources searchable by state and zip code.
Family Services Office Hours is designed to quickly provide access to resources that are available and free to the entire autism community.
The Office Hours sessions are staffed by ART coordinators who are specially trained to connect families affected by autism to resources.
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2:43
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Hi There! We are getting ready for Office Hours! Hang on! |
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2:59
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Welcome to Office Hours! Family Services is taking questions and we are here to help offer resources and guidance! |
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3:00
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Comment From Guest
My son is in an EIBT program and is currently almost 3. Once he turns 3, the school district is wanting to terminate that program and place him in special ed. He’s currently in a reg preschool with a diagnosis of PDD. He definitely still needs an aid to intervene and redirect. The school district is telling me the funding isn’t there. Any suggestions on who to talk to? |
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3:02
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Hello: Budget cuts across the nation are creating fear and apprehension, and there are real budgetary realities that school districts–all districts–must contend with. On the other hand, the district cannot simply provide services because because of budgetary concerns and if any IEP proposes to do so, again, “stay put” comes to the protection of the parents who have no choice but to move formally to protect their child’s program components |
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3:04
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You may want to work with an advocate who can help guide you through this process. Check out our Resource Guide in the Family Services section at.
www.autismspeaks.org |
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3:04
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Comment From shaun lavalley
ive got a son with assbergers and never got any help dont know wear to go |
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3:04
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Families whose children have been diagnosed in the last 6 months may request a complimentary hard copy of the 100 Day Kit or the AS/HFA Tool Kit by calling 888-AUTISM2 (888-288-4762) and speaking with an Autism Response Team Coordinator. |
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3:04
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Comment From Guest
my little girl is 4 an is in headstart she only get 30min of thearapy a week or thats what they tell me and i dont even know what therapy she has been going to school for the past year and hasnt made any progress |
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3:06
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Particularly for children with autism who are often highly distractible, a 30 minute session is not adequate. You may need a private evaluation to measure this problem, and to make recommendations you can then present to the district |
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3:06
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Hi Guest! You will need the school to do an assessment of her strengths and challenges. Based on that assessment you can develop an IEP. You need to get as much information as possible. |
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3:07
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Comment From carla
my son was recomended to have twice weekly speech, but the school will only give him one, they say its all he needs what can I do |
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3:08
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Hi Carla – you have the right to do an independent evaluation and based on those results you can present that to the IEP Team. |
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3:09
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If you feel differently than the school recommendation, it is best to get an independent evaluation. Parents have the right to recommend therapy and the amount of time the child gets for therapy. |
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3:09
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Comment From melissa
my little girl is 4 an has autism she is in headstart she only get 30min of thearapy a week or thats what they tell me and i dont even know what therapy she has been going to school for the past year and hasnt made any progress |
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3:09
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Hi Melissa- We answered your question earlier. Do the info we gave help? |
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3:11
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Comment From amy
Our local school district won’t provide any services for my son because he reads above grade level, so his autism “does not have an educational impact”. He did not speak in sentences at school or write anything. I think that impacts his education, but they kept going back to the reading level. |
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3:14
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Hello Amy – The IEP team members need to be in agreement on the services a child requires. If you feel additional services are needed, ask for an assessment that will give you information about the child’s limitations. Objective data measurements will spell out what services the child requires. |
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3:14
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Comment From melissa
my daughter is 4 an cant talk she is still in diapers an she is still on the bottle i dont think the school is helping her any what can i do |
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3:15
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Hi Melissa – If your needs are not being met, you have to speak up for your child’s rights. Parents are a VITAL member of the IEP Team! You are your child’s best advocate. Your child is entitled to an education that is tailored to his or her special needs and a placement that will allow them to make educational progress. Here is a link that you may find to be helpful!http://www.autismspeaks.org/what-autism/your-childs-rights |
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3:17
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Comment From Guest
I have a year old son that attends an Early Interention school for 2 1/2 hours 3 times a week, and during that time they give him a 1/2 our of speech and 1/2 hour of O/T. They speak highly of him and say he is doing great but when I take him to a separate Speech therapy session, he will not cooperate at all screams and cries and hides under the tabe. They suggest I get him a TSS for therapy. I contacted someone they recommended and they sais they have very limited spots available and they are for kids who need 15+ hours or more of TSS services per week. I dont know what to do. |
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3:19
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Hello- It sounds like a professional is making the recommendations for your daughter to receive more services. Ask the professional to put the request in writing, this may give you more leverage to get services faster. |
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3:19
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Comment From Kaydell
I keep hearing how iPads are making such a difference for some on the Autism Spectrum with the many apps. available. I truly feel that my kiddo would be one of the children that would benefit from this device considering his communication delay. It is a terrible feeling that due to the cost of the iPad I am unable to purchase a device that could make my son’s life easier. Do you know of any organizations that are offering iPads at discounted rates for families in need? |
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3:21
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Hi Kaydell – You are right! iPads have benefited a large part of the autism community. We are thrilled to be giving away iPads in 2012, but you can also find other organizations that do as well. It is just at different times of the year, and you have to keep track! Some parents have negotiated with their school districts to get iPads for their children because they are considered a communication device. |
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3:22
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Comment From Heidi
What kind of resources are there in the Pittsburgh PA area for transitioning a child to a new home environment? Any recommendations in making this as easy as possible for my 6 yr old Autistic? FAS grandson. |
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3:26
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Hi Heidi-Sounds like your grandson is moving to a new home, yes, this will require some thought and a transitional plan. I would recruit your grandchild’s school and home team to put a plan in place, and one that can be implemented in different environments. |
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3:26
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Comment From rachel
was pic day at school, she hated it, first she had somewere els to go, then she saw th dredded line, then it was crouded, then she was made to sit and tri to be happy… ha the photagrapher thankfully was paciant and took 4 pics. or els she would of had a prfessinal pic of her with a angy face and a sock in the air.. lol just wanted to share, thanks for everything you guys r doing |
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3:26
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Comment From Michelle
the communication device would fall under the IEP as assistive technology. |
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3:27
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Hi Rachel! Sounds like a crazy day! Picture day isn’t easy for anyone! Thanks for joining us and your support! |
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3:27
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yes, I have been hearing more and more about iPads being approved by districts. Its certainly worth a try. |
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3:27
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Comment From marisa
My two year old was recently diagnosed with autism & he’s not speaking yet. Any tips/ books on communicating especially for potty training? |
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3:29
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You may want to speak to your speech therapist about ways you can work on your child’s communication at home |
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3:31
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Comment From Michelle
I personally found that sign language can help give them a language until the speech therapist and your child can work on the verbal language. There are easy signs for bathroom, food etc that will help take some of the daily frustration away. |
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3:32
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Comment From kevin
i am having an issue with my 10 yr old son, 5th grader in school.. he is a good student, but it something happens during the day that doesnt go his way, sh just shuts down and becomes defiant to teachers and the principal, he is diagnosed with Aspergers |
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3:33
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hi Kevin, We have 2 resources you may want to check out. The first is the School Community Tool Kit |
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3:35
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The Aspergers Syndrome/ High Functioning Autism Tool kit is also available online. The link is in the above post. |
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3:36
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Comment From Guest
i will definetly look into this, but are there any programs that are in the monmouth county// ocean county area in NJ |
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3:42
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Comment From Michelle
I feel for you kevin, my 13 yr old will do the same thing, but it has gotten better. He has improved, keep working with your son. Today he had a terrible meltdown, but it is his first one this school year. All the others have been slight refusals and then he finally did the work. So there is hope |
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3:42
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Hi Tashalee – You are doing the right thing by having your child evaluated. The earlier your child get diagnosed the better. You can begin early intervention and it will make all the difference. He is our 100 Day Kit created specifically for newly diagnosed families to make the best possible use of the 100 days following their child’s diagnosis of autism or AS/HFA. |
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3:43
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Comment From Tashalee
MY 2yr old goes for evaluation next week, we are preparing for what we already know, it all makes sense now. He does’t say much a few words, how do I help he and whats this about Ipads helping? |
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3:43
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Comment From brenda
what do you tell fmaily whos not really been in your childs life for years then all of a sudden they pop in but dont want to do the tthings u suggest with your child? |
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3:46
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Hi Brenda- The Autism Speaks Family Support Tool Kits: Parents, Siblings, Grandparents and Friends will be published this week in eSpeaks. The Guides cover the emotional reactions to having a family member with autism. The question you are asking is covered in the Parent’s Guide. Make sure you check out eSpeaks on Friday. |
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3:47
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Comment From Tashalee
Thank you, its so wonderful to know that we are not alone. |
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3:48
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Comment From Guest
We live in Spencer Iowa, and have 2 boys (8yrs and 13 yrs) on the spectrum. We have a couple support groups semi locally and they are helpful, but I am looking for someone that can help me advocate for my children. The support groups have a lot of advice but I don’t know if I am not asking for or requesting for help in the right way. I will admit I can get very wound up, and boisterous when I don’t feel like I am being listened to. I was hoping you can put me in touch with some on who can help me by telling me if I am unreasonable in my request, or possibly join our IEP meetings to back me. |
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3:50
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Hi Guest! You are not being unreasonable at all in requesting to have an advocate in your IEP meeting. You can search our Resource Guide by your state to find an advocate in your area!http://www.autismspeaks.org/resource-guide |
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3:51
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Comment From Amy
We live in Spencer Iowa, and have 2 boys (8yrs and 13 yrs) on the spectrum. We have a couple support groups semi locally and they are helpful, but I am looking for someone that can help me advocate for my children. The support groups have a lot of advice but I don’t know if I am not asking for or requesting for help in the right way. I will admit I can get very wound up, and boisterous when I don’t feel like I am being listened to. I was hoping you can put me in touch with some on who can help me by telling me if I am unreasonable in my request, or possibly join our IEP meetings to back me. Thank you |
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3:55
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We are so excited to welcome Jed Baker to chat with us on Friday! Jed Baker, Ph.D. is the director of the Social Skills Training Project, an organization serving individuals with autism and social communication problems. |
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3:58
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Well thanks to everyone who participated! Our hour has come to an end! You can always call the Autism Response Team (ART) members are specially trained to connect families with information, resources and opportunities.Call us at 888-AUTISM 2 (288-4762) or email us atfamilyservices@autismspeaks.org. |
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Office Hours easily connects families to a wide variety of autism-related resources, including Family Services Tool Kits, and the Autism Speaks Resource Guide, an online national database of autism providers and resources searchable by state and zip code.
Family Services Office Hours is designed to quickly provide access to resources that are available and free to the entire autism community.
The Office Hours sessions are staffed by ART coordinators who are specially trained to connect families affected by autism to resources.
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2:47
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Welcome to Family Services Office Hours! We are here today to answer any questions you might have and help connect you to resources. Let us know how we can help! |
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2:55
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Comment From Kelly
Hi, I have a 9 year old son that I believe has aspergers. His current official diagnosis is ADHD but he has so many other symptoms. Cincinnati Children’s assessed him several years ago and told us that he was bi-polar. I’d really like to know someplace that I can take him for a full eval. Can you help? |
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2:56
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Hi Kelly! The Asperger Syndrome/High Functioning Autism Tool Kit will be helpful to you. It contains lots of helpful information and resources! |
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2:58
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In addition, the Cincinnati Children’s Hospital is now an Autism Treatment Network site. Here is the contact information: Cincinnati Children’s Hospital Medical Center (Cincinnati, OH)
Contact: Terry Mitchell
Phone: (513) 636-1665
terry.mitchell@cchmc.edu |
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2:58
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Comment From renaye
I am having a difficult time finding a speech therapist for my grandson who is nonverbal .. none of them take medicaid and there is a waiting list for the one that does.. what do I do.. He is 11 non verbal and we want him to use tap to talk or some assisted device |
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2:59
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Hi Renaye! We have a very extensive resource guide on our website that contains lots of speech therapists. You may want to try contacting others in your area to see if they take Medicaid.http://www.autismspeaks.org/resource-guide |
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3:01
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Comment From Kimberly Rossi
Hello I was looking to find out where I can get information to help a friend of mine a 26 year old male with autism information about dating. He has a belief that “normal” girls won’t date him because he has autism. He says that he wants to date “normal” girls not those with autism. I’m not sure how to help him he refuses to go to any local mixers that happen in the area. Any suggestions? |
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3:02
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Hi Kimberly! We also have a Resource Library with lots of general resources. We have 2 different pages you may want to check out, our Asperger Syndrome page, as well as our Adults and Young Adults page. There are tons of helpful resources there. |
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3:02
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Comment From renaye
we live in indiana,,, northwest part of the state |
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3:03
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Hi Renaye, I still thiink you will want to call Cincinnati Children’s Hospital Medical Center (Cincinnati, OH), and ask if they know of an expert in your local comunity. |
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3:04
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For everyone else out there, we have lots of different resources in our Resource Library that cover a wide range of topics, like toys and games, autism apps, magazines, books and much much more! |
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3:07
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Comment From Guest
I looking for feeding therapy in Illinois south of Springfield. |
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3:08
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Hi Guest! Thanks for joining us. I suggest you search our Resource Guide. We have a category for Diet/Nutrition in there. If that doesn’t help you, I would contact your pediatrician, he or she may have some recommendations for you.http://www.autismspeaks.org/resource-guide |
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3:09
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Be sure to consult with your pediatrician, this is a medical issue that requires a team approach. |
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3:09
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Comment From Jack Dawson
Hi There! I was wondering when the Family Support Tool Kits are being released? Your Tool Kits have SAVED my family! |
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3:11
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Jack we’re SO happy to hear our Tool Kits have been helpful to you! That’s what we’re here for! |
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3:12
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Hi Jack- Family Services relased A Granparent’s Guide to Autism last week. We will release Parents, Sibllings and Freinds in the next few weeks.The Tool Kits are specially designed to help with the emotional and support reactions to having a child diagnosised with autism. |
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3:13
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Comment From meta kane
I need a school for my son who has autism. My son has a photographic memory. |
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3:17
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Hi Meta: You can look in our Resource guide for Private Schools. If you are interested in public school, that is something you will have to work with your IEP team in making an determination of public schools that are available.
http://www.autismspeaks.org/resource-guide |
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3:17
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Comment From Dana
I’m wondering if there is a Dallas-area toolkit for the Dental community? Or if there is a group specializing in the ASD population? My stepdaughter has Asperger’s Syndrome. |
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3:18
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We also have dentists in our Resource Guide that specialize in treating individuals with special needs including autism. Click on your state, then the category Dentists and you can search by your zip code. I hope you find a great one!www.autismspeaks.org/family-services/resource-guide |
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3:19
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Comment From Mari
I live in California and my son is a Jr. in high school. He has not been able to pass the Ca exit exam. What happens next? We would love for him graduate with a diploma and not a certficate. |
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3:22
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Comment From Jennifer
My 4 year old was diagnosed with Autism and is in a special needs pre-k. I”m trying to find help with the state laws that are associated with Special Needs Classes. Regarding class sizes, full days/ half days…ect… |
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3:22
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Comment From Dana
Your IEP guide is invaluable! We did our first IEP last week, and knew how to advocate for our daughter with Aspergers. Thanks to your site, we were able to include both speech therapy *and* counseling in her IEP, as well as ensuring her caregivers had Autism certifications. |
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3:23
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Thanks Dana! I’m so happy that was helpful to you and your family. We have gotten some great feedback! |
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3:24
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Comment From Mari
Do you anything about a waiver in Ca? |
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3:25
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HI Mari, you can check with your Regional Center. They should be helpful about how to obtain a MediCal waiver. Its great that you are investigating a waiver while your son is making his transition to Adulthood. |
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3:25
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Comment From Catherine Ritter
My family needs a good counselor for helping us cope with our eleven year olds AS/OCD. It has been extremely difficult dealing with the anxiety meltdowns that turn violent and destructive. He has a good pshychologist already. Our eight and four year are having a hard time with their brothers behaviors. It is really bad and we are looking into temporary placement outside of our home for him. It is hard to find doctors who can counsel in relations to the spectrum. Any suggestions? |
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3:27
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Hi Catherine. I suggest you look to you discuss this with your pediatrician to see if he/she can make a referral to a counselor. You can also search our Resource Guide for psychologists/other professionals in your area who may be able to help.www.autismspeaks.org/family-services/resource-guide. It is important to make sure this counselor has experience with autism. But those are 2 great places to start! |
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3:30
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Parent involvement is very important in the IEP process and your child’s education. Make sure you advocate for your child’s rights even though the process may be difficult! |
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3:31
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Comment From Thereasa
My 6yo daughter was recently diagnosed with Aspergers. Do you have information that is easy to explain to my family so they understand what that means? They tend to be rather anti psychobabble and will not accept this diagnosis. |
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3:33
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We have family tool kits coming out, but it is normal for different family members to respond differently to the diagnosis. It can take some people longer than others to accept it. I suggest you point families to our website www.autismspeaks.org/what-autismfor information. We’ve suggested that better understanding can lead to more support for you and your family. |
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3:33
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Comment From Catherine Ritter
Our pediatrician does not know of one. I already spoke with him last week. ?? I feel so overwhelmed and stressed, because my family is struggling. |
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3:34
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Catherine, I am so sorry to hear you are struggling. Feel free to call our Autism Response Team at 888-AUTISM2 or email us at familyservices@autismspeaks.org so we can help you. |
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3:35
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It may help you to connect with other parents either through support groups or your child’s school. We don’t want you to feel alone. Sharing your feelings with others going through similar times can be extremely helpful. |
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3:35
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Comment From Mari
Thank you soo much for all the help! Have a Wonderful Day! |
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3:35
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Thanks Mari, we are so happy to help! Hope to see you back next week! |
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3:36
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Comment From Willmom
We have noticed that our 4 year old ASD son is becoming much more stubborn. He is melting down with every no any suggestions? |
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3:37
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Hello Willmom – I am glad you are asking tis question. Its important to understand and have a plan of action when children are having new behaviors. |
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3:39
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You will want to work with a professional, preferably a behavior analyst who is an expert on understating behavior |
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3:41
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Comment From michelle
when our son was that age willmom, we found previewing situations that would have no answers helped. such as we are going to the grocery and there will be things that I am going to say no to. you can get 1 thing, if you do not melt down. (of course all of this is in 4 yr old language) it helped some. didn’t get rid of all them..still had some store meltdowns |
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3:42
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Thank you Michelle! It is so nice to see moms and other parents talking to each other and sharing stories. That is one of the best ways to get support, by sharing information with others who may be going through similar experiences. As many of you know, there are constant chats happening on our Facebook page and lots of parents have been able to connect and help each other! |
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3:43
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Comment From Willmom
Also, our 4 year old son (ASD) is having a very hard time with potty training. Any suggestions? |
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3:43
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Comment From Willmom
Thanks for suggestions |
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3:43
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Comment From Willmom
Michelle, Thanks for reaching out! |
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3:44
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Hi Willmom. There are 2 books that have been submitted to our Resource Library that have been helpful to families who are having difficulty with potty training. Here are the 2 links: |
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3:44
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Comment From Jeni
Willmom – the Book Love and Logic help my family tremendously in dealing with my son’s tantrums when he was your son’s age. We also had a 1:1 ABA therapist that would go to the store with us and help guide me through the situation. |
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3:45
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The Autism Treatment Network is working on a toilet training tool kit that they hope to have out soon. So keep checking back to our Family Services page for its release date!www.autismspeaks.org/family-services |
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3:47
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Comment From Ashley
I was just wondering if there has been any link in genetic disorders and autism? I’m asking because I have two boys who have mutated “X” chromosomes, and as a result they have “symptoms of autism” they cannot say for sure that’s what it is, but that’s what everyone thinks it is. It was passed on to them through me (I have the exact same genetic make-up) and I am afraid my daughter will have to too (already had her tested, just waiting for the test results). Thanks for your time! |
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3:51
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Comment From Gayle
My grandson lives in NC and has been diagnosed as being on the autism spectrum, adhd and I’m not sure of anything else. He takes medications that are costly and also sees a psychologist for dealing with anger issues. He is 7 years old and does well in school and most of his meltdowns are at home. His parents are separated and my daughter is the sole source of financial support. Are you aware of any no- or low-cost services in NC to assist with his medical costs? My daughter has health insurance but the psychologist specializing in children with autism is out of network and the insurance pays very little. My daughter has to pay more than $135/week for the therapy session and his meds are not in the range of what she can afford. Thank you for any assistance you can provide. |
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3:53
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Hi Gayle: You are correct to investigate financial recourses for families. Is your grandson receiving a Home and Community Based waiver? If not, this is the first step you want to take. |
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3:55
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There are so many stressors that family’s face, and financial issues are one of the primary ones that we see in families of children with special needs. There are potential sources of aid…. many of them depend on the state in which you’re living. Many of the services in some of the states are provided for through state agencies.
Through medical insurance if you have a willing physician, you can sometimes get funded for ancillary services that might be covered by your own insurance policy, or through Medicaid, especially if your child has other medical diagnoses such as seizures, GI problems, or special dietary needs. So my recommendation is to mine the services available in your community for funding, and don’t forget about medical insurance. Through medical insurance if you have a willing physician, you can sometimes get funded for ancillary services that might be covered by your own insurance policy, or through Medicaid, especially if your child has other medical diagnoses such as seizures, GI problems, or special dietary needs. Once you know where all your sources of funding might be, then take a critical look at your treatment plan that is required for your child, and see how each element might be covered by each of these resources to put together the most robust treatment plan for your child possible. |
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3:56
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Comment From Guest
hi, i have an 8 year old boy, who has asd and adhd. We have just had our 6 year old duaghter accepted to be screened for autism. shes very intellegent and we feel shows signs of adhd and ocd too. she saves up all her anger, and behaviours for us at home, and we are told, does as she is asked in school! soo frustrating! ive read alot about high functioning girls disgusing their behaviours etc in school, then letting all come out at home. |
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3:58
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Hi guest! This is a very common problem reported by parents. We recommend that there by close communication between you and the teacher so you can learn about what the school is doing to get the success they have. Communication is everything when trying to raise a child who may have autism. Remember, this won’t be easy because the school environment is so structured, but it does help to have this information so you can learn from their success. |
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3:58
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These issues should also be brought up in the IEP team meeting. The teachers/school professionals should have lots of information for you. It is great when teachers and parents are on the same page. |
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3:59
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Thank you everyone for joining us today!! We weren’t able to answer everyone’s questions but I hope all of the participants learned a lot from the questions that we did answer. As always, feel free to call our ART team with questions at 888-AUTISM2. See you next week!! |
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Office Hours easily connects families to a wide variety of autism-related resources, including Family Services Tool Kits, and the Autism Speaks Resource Guide, an online national database of autism providers and resources searchable by state and zip code.
Family Services Office Hours is designed to quickly provide access to resources that are available and free to the entire autism community.
The Office Hours sessions are staffed by ART coordinators who are specially trained to connect families affected by autism to resources.
In recognition of National Grandparents Day, on September 11th Autism Speaks is celebrating the grandparent connection in families affected by autism. During the month of September, we are asking grandparents to share your experiences, so that other grandparents across the country can benefit from your knowledge and the road you have traveled.
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2:53
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This month we are focusing on the important role grandparents play in the lives of their grandchild’s life with autism. In addition to weekly Office Hours we will focus on grandparent blogs, development of grandparent resources, and the launch of a Grandparent Support Tool Kit. We are interested in hearing from grandparents who can share their experience what it is like be involved in the lives of their grandchildren who have autism. |
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3:02
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This month’s Community Connections will be focused on Grandparents! If you would like to subscribe, please click this link! |
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3:02
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Comment From Kay
Good Afternoon! |
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3:02
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Comment From Kay
Yes, I am…4 times! |
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3:03
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Comment From Kay
One grandson, 9, lives with mild-to-moderate autism. I’m here to support others |
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3:04
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That is great – thank you so much for joining our Office Hours |
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3:04
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Comment From Kay
Well, it’s hard to say sometimes. It’s not like they come with a meter which tells you if they are being challenged in school to their capabilities or not |
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3:04
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Comment From Kay
IEPs and their goals are a mystery to me. I wish i could attend school with Hunter sometimes, but that would be a huge distraction. |
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3:06
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Kay, you may want to consider attending an IEP meeting for Hunter if your son or daughter is okay with that. You are more than welcome! |
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3:07
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That way you can learn more about his IEP and specific goals. |
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3:07
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Comment From Kay
No but I will. I just try to do what I can to expose him to a variety of educational fun things to do, like go to the library, the science museum, etc. |
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3:08
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Comment From Kay
She probably wouldn’t care, but her husband might. When I ask her, she isn’t even sure if they do ABA. She’s not terribly literate on the whole thing, really. I research more than she does. |
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3:10
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Comment From Kay
The other night we went to McDonalds and passed a phone booth. He asked me what it was!! I had to try and explain that some people don’t have phones like Mommy and this is what they use, and the phone book is where you find people’s ph #s. I don’t even think he realized people have phone #s. |
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3:11
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Comment From Kay
At times I get the feeling Hunter’s parents think he’ll just grow out of this… |
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3:11
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That is great that you are teaching him life skills and how to act while out in the community. They are very valuable lesson |
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3:11
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Comment From Ali
My grandchild was just diagnosed last week. Any tips? |
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3:12
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Hi Ali! I know this must be a hard time for you but there are many resources and options available for families. |
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3:12
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The Autism Speaks 100 Day Kit and the Asperger Syndrome and High Functioning Autism Tool Kit were created specifically for newly diagnosed families to make the best possible use of the 100 days following their child’s diagnosis of autism or AS/HFA. |
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3:13
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This may be a confusing time for you family and it may take some time to figure out how you can be helpful. Grandparents do play a vital role in a grandchild and family’s life to be sure to stay involved and supportive! |
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3:15
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Comment From Kay
All the great resources out there make everything less scary, Ali. Be sure to make use of them |
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3:16
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Comment From Caroline
My daughter doesn’t want to face the diagnosis and it is very hard for me to just sit back and do nothing. HELP! |
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3:16
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Comment From Ali
Thanks for the encouragement Kay! It is nice to know there are people out there willing to help. |
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3:16
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It is so nice to see the community supporting each other! |
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3:18
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Hi Caroline! I would encourage you to sit down with your child and discuss the approaches and methods that they have put in place. It is a good time for you to share what you have learned from reading articles or books that you have found helpful. Although it is difficult for you, it probably pays off for you to be patient and let your family grieve and take some time to accept the diagnosis. |
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3:18
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Comment From Oma
I take care of my 5-year old grandson full time… He has high functioning Autism and just started KG. He is still adjusting and it’s taking lots of communication with his IEP team, but I know we will get there. I am getting lots of help and support from local professionals as well as a Parent Advocate, which helps so much, as I am on my own with my grandson. All the resources available from Autism Speaks are such a big help, too. |
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3:19
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Comment From Kay
My daughter depends alot on me, but being older and having more patience has been a blessing. |
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3:19
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Comment From Oma
I do have a question… We need to discuss safety at our next IEP on Friday, as my grandson bolts out of sight of his teacher. He’s a runner and it is scary to think he might run off fat and into danger. Do you have anything that could help at school as well as at home, measures we can take to keep him safe? |
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3:21
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Oma, we have a great resource called the Autism Safety Project. There is a page just for families with tips and resources about how to keep children with autism safe and out of danger. |
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3:21
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We also have a list of safety products in our Resource Library (along with MANY other resources!) that can help you as well. |
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3:22
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Comment From Oma
Wonderful! Thank you! |
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3:22
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Comment From Marcella
My 8 yr olf displays the characteristics of autism, but not diagnosised. where do i need to go?? help |
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3:22
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Comment From Marcella
I’m convinced my son has high functioning autism. He is already in special ed, speedh therapy and occupational therapy in 2nd grade(started last year) all with me pushing the schools. does he need to be diagoned. |
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3:23
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Marcella, we have a great section of our website called What Is Autism. There is lots of information on there and tips to help you learn the signs. We also have a great Autism Video Glossary that will show you the difference in real time! |
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3:23
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Comment From Kay
Caroline, was your grandchild just diagnosed? It may just take time for your daughter to accept it. She may be grieving. She’ll get there. |
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3:23
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Comment From Marcella
thanks |
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3:24
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Comment From Debbie
Kay — same here. For some reason I find caring for my grandson easier than raising my kids. Go figure. |
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3:26
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Marcella, you can also search our Resource Guide for service providers in your area that may be able to help your grandson. Try the category “Where to Get An Autism Diagnosis” or “Psychologists”. There are over 45,000 resources in there across the country! |
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3:27
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Comment From Kay
It seems like for me, I have more of a big-picture view of my grandson than my daughter does. She’s dealing with him day-by-day and frustrated with his behavior and obsessions, but since I only see him 2-3 times/wk I don’t go so nuts and I appreciate his uniqueness more. |
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3:28
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That is exactly why your role is very important! You are a great value to your daughter in giving support the way that you do. It is wonderful that you are able to be an active member in your grandchild’s life. |
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3:28
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It is great that you offer you family a chance to get a break from the day to day challenges, even just a few hours can make a big difference for them! |
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3:29
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Comment From Kay
So I guess it gives not only her a break for me to have him with me, he gets a break from her, too!! |
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3:31
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There is a section in the Grandparent Toolkit coming out Friday, that describes how grandparents can support their grandchild and family |
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3:32
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Comment From Guest
What do u think of a smaller school for autistic kids. My son is in 8th grade and his class has over 600 kids in the 8th grade. He has been diagnosed with pdd and some characteristics of aspergers |
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3:32
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Comment From Lisa
I’m the one who just wrote about a small school |
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3:33
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Hi Lisa! Wow! That’s a big 8th grade! Our School Community Tool Kit may be useful for you. Since every child is different, some children do better in small schools. It all depends on the child. |
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3:33
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Comment From Sharon
hello everyone… reading everyone’s comments makes me cry… i recently moved over 2000 miles away from my daughter and grandsons. The youngest is 4 and we are waiting for the offical diagnose that he is an aspie… my other grandson who is 10 also is special needs but not autism… I miss them both sooo very much and worry about my daughter now that i am not there to help her |
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3:34
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We are sorry to hear you feel so frustrated being far from your family. However, there are plenty of ways you can continue to help them and stay close to them! |
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3:36
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Technology is an extremely helpful tool. E-mail, chats and especially video chats are great ways to stay involved on a regular basis. Also, I’m sure like all kids your grandsons would love to get letters or treats from you too to know you are always thinking of them! |
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3:36
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Comment From Kay
I look forward to that toolkit. Is there anything like waving in front of your kid’s face yelling, “He’s not just any kid. LEARN something about autism!!” |
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3:37
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Comment From Sharon
i know but just miss the special times w/Mason (4yr old) and w/Alex … |
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3:37
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Comment From Kay
OMG, I would be crying, too! Can you Skype or webchat with them? My grandson loves the computer! |
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3:40
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Comment From Sharon
also i have been trying to find out if there is some place here in the Phnx AZ area that might lend out compression vest for short peroid of time. They are coming here in Oct for my son’s wedding and we will need one for Mason cuz his the ring bearer for the wedding… does anyone know of some org that must help out for a few days w/that? |
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3:41
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Have you tried to get in touch with SARRC (Southwest Autism Research and Resource Center)? They are a wonderful organization in Phoenix that may have some other great ideas for you. |
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3:41
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Comment From Caroline
Does anyone have any suggestions for activities I can do with my grandson? He will be 5 next month. |
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3:42
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Hi Caroline! We have some great resources for you! The Grandparent Autism Network offers some useful and practical tips on making the most of the time you spend with your grandchild.www.ganinfo.org |
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3:43
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It would be very important for you to discuss what activities you have had success with. Make sure to ask your children for suggested activities. It is a great place to start! |
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3:44
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Comment From Sharon
Caroline… i found that my grandson loved just going for walks … feeding the ducks… nothing that takes alot of consentration… |
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3:45
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Comment From Caroline
That is a great idea Sharon. I have been trying more exciting activities, but it sounds like walking and going to the park may be better activities for us to enjoy together. |
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3:46
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Comment From Kay
In the fall he might like collecting leaves. Hunter likes to just go to the river and throw sticks and rocks. |
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3:46
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Comment From Caroline
Wow, it is so great to hear ideas from all of you. It makes me feel so much less alone! |
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3:47
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Comment From Kay
When he was 4 or 5 he loved swinging at the playground a LOT! |
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3:47
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Comment From Kay
I take my grandson to the library; we go on birdwatching hikes, Caroline. Things like that. He likes to observe nature. Just kind of try things and see what works. Mostly he’ll like being with you! |
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3:50
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We will continue our grandparent discussion at next week’s Office Hours so please invite other grandparents to join us. We know it makes a huge difference when people are able to connect and share experiences. |
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3:51
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Comment From Sharon
nice meeting everyone and ty for the help |
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3:51
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Comment From Kay
I let Hunter be messy too, where his mom doesn’t. We make recipes for playdough and slime and stuff. |
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3:52
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That sounds like fun Kay! |
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3:54
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Comment From Kay
Thanks for this chat |
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3:54
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Your welcome! Thanks so much for joining! Hopefully we see you next Wednesday – Don’t forget to tell your friends to join! |
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3:56
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Autism Speaks is here for you! You can always feel free to call our Autism Response Team at 888-AUTISM2 or email us at familyservices@autismspeaks.org. We are happy to answer your questions! |
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3:57
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We send out different tips and tools each month, and our grandparents newsletter comes out this Friday! Stay tuned! |
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