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In Their Own Words – A Moment in the Sun

January 19, 2012 11 comments

This ‘In Their Own Words’ is by J. Lorraine Martin. She digs deep through laughter and tears in her personal blog on life and motherhood at http://cheeselesspizza.blogspot.com.  She is the mother to three children, one of whom has autism.  She is a writer, graduate student, volunteer/mentor in the autism and refugee/immigrant communities.  

I’m standing on a tennis court in my neighborhood.

Despite trees baring no leaves, the weather belies the time of year as the sun warms our exposed arms.  I have an unlikely tennis partner by my side:  my 17-year-old autistic son. This was his idea today.  A breeze tickles through our hair, birds on a Southerly journey pause to sing, as if for us.

My other son–an avid tennis player capable of sending balls at a fast pace swooshing right by me before my eyes can barely register it–stands on the other side of the court, playing left handed so as to ease the pace of the game and give us a fighting chance.

We have playful rallies.  We work on helping my oldest son by my side call out “mine” or “yours.”  We laugh over mishits, and occasionally my youngest son can’t help creaming a ball at me.  I can’t help trying to return it with equal power, most often hitting the net and hoping I don’t tax my old lady joints too badly.

I ponder the present moment. I am playing tennis with both of my boys. No one is rushing the moment.  No one is embarrassed. No one is anxious.  There are no “scenes.”  My oldest son, who usually surveys his surroundings on heightened guard, seems like that layer of self protectiveness is not required on this day.  He has stepped outside, something he doesn’t do much in our neighborhood, as he prefers the security and comfort of home. Yet on this day he is standing calmly and happily in the sunshine by his own initiative.

My husband, our dutiful ball boy and resident coach, asks our oldest son:  “Why are you smiling so much?”

He answers,  “Because I’m so happy.”

We hit some more.  I feel comfortably wrapped in gratitude and joy.  At the end of our playing time, I hug each son for different reasons; heroes to me in their own unique way.

As my husband and youngest son want to play longer, I ask my oldest son if he would like to walk around to see the other courts, playground and pool closed for the winter.  Normally, he would want to leave and go back home to what feels most comfortable. On this day, he says, “Let’s walk.” And we do.  Strolling, peacefully taking in the view. We end our walk, viewing my husband and other son playing some more, as we stand on a higher platform looking down at them.

And then expectations begin to seep in.  “Maybe you might like to come up to the high school to watch your brother play sometime.”  “Well, maybe,” he answers.  I imagine him sitting in the stands with us; my heart yearns and hopes.  I then bring up that his yoga class will be resuming now that the holiday break is over.  An intruding bit of anxiety hits my son, “I’m not sure if I want to go back to yoga, Mom.”  He is recalling that the instructor had coughed the last time and how that bothered him.  I find myself wanting to say some sort of validating thought coupled with some problem solving advice as I feel yoga is good for my son to cultivate self-awareness and inner calm.  I don’t want him to discount all he loves about a person simply because they coughed as he sometimes tends to do.  I find a bit of sadness creeping into my heart.

And then I suddenly feel quite aware of myself.  Why am I clouding such a perfect moment—the calm and peaceful present—with expectations about the future?  Why would I allow such intrusions?  I switch back to what matters most:  this moment I’ve been given.

The sun.  The breeze gently whispering.  The crisp sound of my youngest son’s racket making contact with a ball as he plays tennis with his dad. My oldest son by my side, entirely calm, having just happily played tennis and taking a leisurely stroll with me.

He then puts his hand up for a minute to gesture for me to pause.  “Listen, Mom to the birds.”  And we stand together and hear their song.

He adds, “I feel so good inside.”  My boy’s song amongst the birds.  A mother’s spirit aloft and soaring.

We stand side by side gripping the iron rails of a fence, looking down at my husband and youngest son playing tennis. My emotions flow forth.  “Oh, Mom is crying,” my husband says with a smile on his face as he looks toward me with understanding.  My son by my side looks at me and offers, “Mom cries when she’s happy, but I only cry when I’m sad.”   My husband replies, “Why do you think she does that?”  He says, “Because she is proud of me.”

Because Every Child Deserves a Chance to Play

June 25, 2011 15 comments

This ‘In Their Own Words,’ is by Shannon Knall, the Autism Speaks Connecticut Advocacy Chair and proud mother of three awesome boys, one of whom is on the autism spectrum.

J walks around in circles in the corner of the tennis court.   His head is down. His hands are busily twitching and flapping.  Every now and then he mutters. A young woman and a young man circle around him, bouncing a tennis ball every now and then. They offer him a racquet, gently encouraging him to join the kids on the court.  He seems not to hear. They back away to give him space.

For the next three hours, the young woman and the young man, the boy’s tennis “coaches”, make repeated futile attempts to bring him into the group. He has two clear words; “nope” and an expletive. 

I watch J and his coaches for a while.  It is obvious that he is horribly uncomfortable, needs his space to adjust. I feel a familiar pit in my stomach. It’s the same one I get when I watch my boy plummet into his own world of autism.

This is the first day of Well Served Tennis Academy for kids with autism; a camp I created with a friend and fellow tennis player with grant funding from the United States Tennis Association (USTA), the Connecticut Council of Independent Living and Jocelyn’s Run, a local autism group.

Hosted on the grounds of the beautiful Ethel Walker School in Simsbury,CT, our goal was to create a social and athletic opportunity for kids with autism – kids who rarely get that opportunity. And by rarely, I mean almost never.

The Perfect Racquet, a local tennis shop donated all of our equipment so that each camper could leave with a racquet to hopefully allow for continued play. Our staff is completely volunteer, even the tennis pros.  Each child has at least one coach helping him with drills; taking a walk with him when he needs to take a break; holding his hand as they run a warm-up lap of the courts; high-fiving when contact is made with the ball.

After the third day of camp, I sent the following in an e-mail to our sponsors:

I felt compelled to write to you tonight after processing the day’s events at camp.

As you know, the autism spectrum is wide and varied, making it ever-more complicated to understand and/or treat effectively.  This certainly applies at Well Served Tennis Academy.

A boy named J started Monday. J has very little language. Monday he spent a great deal of the morning sitting in a corner of the court.  His volunteer coaches did engage him in exercises like sandwich races (two racquets together, ball in the middle – the goal to work on ball control, hand/eye coordination, moving the ball across the space of the racquet) and J did great. That was the only activity he participated in that day. Our goal is about exposure on the kids’ terms.  

After snack, his coaches, Trevor and Catherine figured out that they could have him push the ball against the fence or the court with the racquet and in so doing significantly raise his level of participation. J was squealing with delight.

On Tuesday, J participated in sandwich activity AND walked around the perimeter of the courts, picked up some balls and allowed his coaches to get on the ground with him and bounce the ball to him. I held the racquet with him and hit the ball back. We did this a lot. I was so happy he was ENGAGING!  And more importantly, J was again SQUEALING with joy.

On Wednesday, it rained. Ruh Roh. We went inside to the gym. I was very concerned about the kids’ tolerance for the noise and heat, but they did great. J started off bouncing the ball back and forth with his coaches. Mid-morning, I worked with him on holding the racquet while the coaches bounced a ball to him…and we hit it back. Over and over and over again. Finally, he needed a break so he sat down.

During breaks, J would sit with Catherine and lean against her, rub her hand and try so very hard to say her name. When he was ready again, he said “Trevor run”. AMAZING!

We made a game out of running Trevor around the gym. I guided him as he hit the ball back from Trevor’s tosses…all over the place so that he could watch Trevor RUN!  Suddenly and spontaneously, he stood up and allowed me to guide his racquet in a semi-forehand stroke to HIT THE BALL as it was fed to him. TEN times.  He sat down, and five minutes later did it again. He was so unbelievably happy that he was screeching with delight and well…left me with teary eyes.

I really wanted to share this with you because I want you to know that your support has made a PROFOUND impact on J, his fellow campers and all of us who have the privilege of working with them.  I have seen every kid grow day by day and it has been EXACTLY what I hoped and KNEW this camp could be.

As a mom to a child with autism, I am so grateful for the opportunity you have helped to secure for these children.

Tennis champion Boris Becker said, “I love the winning, I can take the losing, but most of all I love to play.”

Between the two camp sessions, we will give almost twenty-five children with autism a chance to play tennis on their own terms, at their own pace, with all the love and support we can.

Because EVERY child deserves a chance to play.

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“In Their Own Words” is a series within the Autism Speaks blog which shares the voices of people who have autism, as well as their loved ones. If you have a story you wish to share about your personal experience with autism, please send it to editors@autismspeaks.org. Autism Speaks reserves the right to edit contributions for space, style and content. Because of the volume of submissions, not all can be published on the site.

Arthur Ashe and Autism

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