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Posts Tagged ‘Tune In’

Tune in TODAY for Autism Speaks’ Analysis of the DSM-5

January 20, 2012 19 comments

Tune-in today to hear Autism Speaks’ leadership discuss the recently released analysis of the DSM-5, to be published in 2013, and hear about its potential implications for individuals to receive an autism diagnosis and appropriate services.

Read Geri Dawson’s blog post about the DSM-5, The Changing Definition of Autism: Critical Issues Ahead.

Watch Autism Speaks’ Dr. Andy Shih discuss the story on MSNBC “News Nation with Tamron Hall”

Tune in for Jack Robison and Kirsten Lindsmith on NPR

January 17, 2012 Leave a comment

On January 18, 2012 at 3pm EST Jack Robison and Kirsten Lindsmith will appear on NPR’s Talk of the Nation with guest host John Donvan.  They have been invited to talk about autism and growing up as well as other topic’s discussed in The New York Times article ‘Navigating Love and Autism,’ in which they were featured.

Tune-in to ABC’s “Extreme Makeover: Home Edition”

October 27, 2011 6 comments

Tune-in to ABC’s “Extreme Makeover: Home Edition” (EMHE) Friday, October 28, at 8:00 p.m., ET, for an episode featuring the McPhails, an Oregon family with two sons affected by autism. In addition to tackling home improvements, the EMHE team worked with Autism Speaks to rally the local community to raise autism awareness in honor of the family.

The Story Behind Autistic-Like

March 30, 2011 2 comments

This is a guest post by Erik Linthorst is a 13-year veteran of the film business. An award winning documen­tary filmmaker and a produced screenwriter.  Erik founded Pergé Produc­tions in 2006 to make films aimed at helping families with children with special needs.  In his advocacy work, Erik travels worldwide, present­ing his film and advancing the issues it raises.

Throughout April, PBS stations around the country will air a documentary film Erik Linthorst made about searching for the right help for his son, Graham, who doctors called “autistic-like”   Check your local listings for airtimes, or www.autisticlike.com.

Autistic-Like:Graham’s Story started as a project for me, but I now realize it has become something more like a community. Many people have told us our story sounds so familiar, and that’s really why I made the movie: I felt like it shouldn’t be so hard to find the right help for our children.

Our story began in 2005, a very hard year for our family.  Our seventeen-month old son’s quirks were blooming into full-fledged obsessions.  We had experts on one side saying he was clearly and possibly severely autistic.  We had experts on the other side saying he was most likely not autistic. Still others insisted he was too young to diagnose.  We had family and friends on both sides giving us advice that was by turns helpful, misguided and sometimes downright bad.  My wife and I were in an emotional tailspin, alternately propping each other up and freaking each other out with our anxious thoughts.

Then we began the slow process of digging out:  discarding this expert for that one, this treatment for that, this book for that, this piece of advice for another.  And we grew in strength.  Once I was back on my feet, and feeling armed with new understanding, I felt the desire to reach out to families just beginning their hard year.  I felt like sharing our story might help them dig-out faster.  So, being in the film business, I decided to make a documentary about our journey.  I brought out my camera, began to chronicle our lives, and recruited journalist Jody Becker to help investigate the issues, elevating an intimate family story into what we aimed to make a thoughtful report from the edge of the autism epidemic.

Then I sent the film, Autistic-Like: Graham’s Story, out into the world and planned to be done.  But then the emails started coming in.  And they kept coming.  Then the trickle became a wash, several a day, coming in from all over the U.S., and then Canada, and then from all over the world.  And they all had questions.  What did I think about this therapy? that biomedical approach? This doctor? That organization?  I took the time to respond to all of them, because the truth is it helped me feel no so alone, too.

I heard from professionals, as well.  Many told me they use the film as a new parent orientation tool. They shared that they were teaching workshops, and seminars with it.  Schools were holding movie night fundraisers.  But they had questions too:  How could they see the extended interviews from the film?  Did I have an update on Graham’s progress?  workshops?

After much consideration, both for Graham’s sake as well as my wife and my own, I decided to say ‘yes’ to all of the above.

So this month our little movie hits a milestone: the PBS broadcasts include an 8-minute update “Where is Graham Now”; we have translated the film into Spanish to reach more families, and now more insights from the experts are available in a  2 DVD Box set that includes a full-color 12 page guidebook for facilitating professional and community conversations. I’ve traveled with the film, met hundreds of parents and professionals, and like the slowly dawning realization that supporting Graham is a project with no end for me, I see the film that way, too. More families, more conversation, more resources. The story continues.

Join Us For a LIVE Facebook Chat with Dr. Ricki Robinson

Join us on April 5th at 3pm EST to have a live chat with Dr. Ricki Robinson! Dr. Robinson will be at the Autism Speaks headquarters answering questions. All you have to do is head over to the Autism Speaks Facebook Page and join the conversation!

For a little background on Dr. Ricki Robinson and her new book Autism Solutions: How to Create a Healthy and Meaningful Life for Your Child, check out our interview here.

John Robison to Appear on ‘Ingenius Minds’

February 18, 2011 8 comments

Tune in on Thursday, February 24 at 10 p.m. EST to see John Elder Robison appear on Ingenious Minds.

Ingenious Minds enters the lives of savants: individuals who possess an extraordinary ability in areas such as art, music and mathematics, while also suffering from intellectual and developmental disabilities.

John Robison never had a high school degree, but he worked as a highly skilled mechanical engineer designing sound equipment, special effects, cutting-edge toys, nuclear test apparatus, and medical lasers.

John is a savant with Asperger’s Syndrome, which has given him a preternatural understanding of mechanics, but has made his social and work life exceptionally challenging. For more information about this episode, visit here.

 

 

Tune in to ‘The Talk’ today at 2pm ET!

December 16, 2010 Leave a comment

All this week, The Talk has been getting to “The Heart of the Holidays,” making holiday dreams come true for some very special  families. Don’t miss Thursday, December 16th  as Autism Speaks Board Member Holly Robinson Peete and the HollyRod  Foundation bring holiday cheer to a single  mom whose 3 youngest boys are all diagnosed  with autism. Meet this  inspirational mom and get a glimpse into the  family’s life.

Holly Robinson Peete is a member of the Autism Speaks Board

For more information on The Talk visit their website.

Click here for more information on the HollyRod Foundation.

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