Home > Family Services > Creating a Special Education PTA

Creating a Special Education PTA

This post is written by Jennifer Byde Myers and Shannon Des Roches Rosa. For more information please visit SEPTAR and  The Thinking Person’s’ Guide to Autism.

Community is critical for parents of children with special needs. Community gives us critical emotional support and provides information about our kids’ therapeutic, medical, and educational choices. Our communities have the experience and knowledge to weigh in on our decisions; its members empathize and help us keep going when times are hard, and they rejoice with us in our children’s accomplishments.

It’s not always easy to connect with parents like us. These kids we love so much are vulnerable, they need us – and the demands of our extra-intense parenting can leave us feeling drained and isolated. But if you can muster a burst of energy and round up a few like-minded individuals, then you can create your own community: by forming a Special Education Parent Teacher Association, or SEPTA. That is what we did when we helped found SEPTAR, the Special Education PTA of the Redwood City (California) School District.

Most traditional PTAs are attached to a single school. We found that this model didn’t work for us, as most campuses in our district had only one or two special day classes, or a few students in full inclusion. So we made SEPTAR district-wide, including any family with a child with special needs, from Early Start (age three) through eighth grade. We also reached out to
teachers, therapists, staff psychologists, and community leaders.

As parents, we already had a vision of support, education and community. Forming a new PTA also takes resolve, district support, and a lot of attention to detail (at least in the beginning). But it was worth it. SEPTAR is now in our fifth year. We have become a go-to resource for our special education families, with a parent support group, a speaker series, and social events such as weekly park playdates and  “Break from Winter Break” jump house parties.

We have the full support of our District leaders, and put a lot of effort into maintaining open communication, in working with administration rather than against it. And our special education teachers feel supported; we provide grants to help our educators go to seminars, or get our kids the equipment they need. We host a bi-annual conference for parents and professionals on topics that include social skills development, and technology and communication — to help
parents get informed, and contribute to our childrens’ educators’ professional development.

Our name is out in the community now: we hand out business cards, and we attend the local Education Foundation events. During the last election cycle we even hosted a moderated debate by the school board candidates.

Below is a basic how-to for starting a SEPTA. It may look
daunting, but we somehow managed to do all this in less than six weeks:

  • Find at least five people who share a common vision, and are willing to
    pay dues plus meet together many, many times. You can find these people in your
    childrens’ classrooms, or on local email parenting boards. Ask your child’s
    teacher, OT, PT and behavior specialist too!
  • Contact your district’s
    head of Special Education and ask how they would like to be involved. You could
    also contact someone from the Board of Education.
  • Select a secretary and
    a chair from among this first group to undertake responsibilities until officers
    can be elected.
  • Organize temporary bylaws and nominations committees (we
    recommend organizing a communications committee as well).
  • Have your
    chair contact the local district PTA president, or a state representative —
    easily done by going online, and searching for your city name and “District PTA
  • Draft bylaws, working with the local state PTA
    representative the district PTA president helped you locate. This person will
    ensure that you follow state PTA guidelines.
  • Determine officers, meeting
    times, and dues amounts.
  • Set a date for the organizational meeting to
    actually form and charter the new PTA unit.
  • Have the nominating
    committee draft a slate of officers for the new PTA board. This might happen
    quickly, or it might take a while if you need to search for people to fill
    certain positions. At the very least, you must have a president, secretary and
  • Set a date for the meeting, and get this information to
    as many parents as possible. This is why you want to have a communications
    committee, which can determine the best channels for communicating to as many
    people as possible. We announced our first meeting in the local paper, via
    flyers and emails to the schools, and via email to local special needs parenting
  • At the organization meeting, follow parliamentary procedure. The
    original committee chair should call the meeting to order and state that the
    reason for the meeting is to organize a new PTA. Then a motion to start a new
    PTA is made and a vote is taken. If the motion passes (and we’re sure it will) a
    break in the meeting is taken and those present at the meeting join the
  • After the break, the newly formed PTA elects officers.
  • The
    new PTA president takes over the meeting, presents the bylaws, and has the
    association vote on adopting them.
  • The new president may then add other
    items to the agenda.
  • When the meeting is over, the new president needs
    to sign a few papers which make official the new charter.

When the paperwork is complete the state representative who guided you
through the process will call the State PTA to get the official Employee
Identification number (EIN) so the new PTA can open a bank account and begin the
actual work of the PTA — making a difference for your local special needs

At every SEPTAR association meeting, we have parents
lingering, talking, conspiring, connecting – taking part in a community that
understands them and their kids, and wants to support them fully. With a little
organized structure, our PTA provides resources, camaraderie, and the
opportunity to come together as one community.

Please keep in mind that PTAs are non-profits, which must meet certain criteria to maintain
their non-profit status — so please check with your State PTA before randomly
filing taxes and signing checks!

  1. Dadvocate
    November 10, 2010 at 3:28 pm

    This sounds like a great model. Congratulations. Have you considered expanding to include families with high school age children?

  2. Cookies Mom
    November 10, 2010 at 3:42 pm

    A support-group could have filled this function. By forming a separate PTA, you are allowing the regular PTA to continue to ignore special needs and making our kids look like they need all kinds of “separate” services-this is just plain wrong!

  3. November 11, 2010 at 8:20 am

    I find this to be so important for parents who have a child in special education. Parents need to work together in order to make sure their children are receiving their educational rights. Through SEPTA parents form alliances and with numbers comes results when you need help for your child. This also provides a support group for parents and that is very important, because parents need to know that they are not in this alone.


  4. November 13, 2010 at 11:02 am

    Dadvocate, we have a committee actively exploring high school options. They hosted a High School Information Night just this past week, with speakers from all of the local high schools.

    Cookies Mom, Our SEPTA is district wide, because our school district has 17 schools — creating a SEPTA at each school would dilute our effectiveness. We also attend district PTA round tables, regional meetings, and state conventions — we are very visible.

    Most of our kids are in inclusion settings and on integrated campuses, so inclusion and awareness are active campaigns. Our Drawn Together art program has been bringing together kids from typical and special ed classes for three years, and we are currently working on holding screenings of Including Samuel: http://www.includingsamuel.com/home.aspx to reach even more kids. In addition, district parent & professional Diane Levinthal has also been holiding talks in the classroom to increase awareness and open discussions among the kids themselves (and this is something any parent could do): http://thinkingautismguide.blogspot.com/2010/06/inclusion-make-it-open-classroom.html

    Skillful Squad Seraphs: Right on.

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