Lauren Brumbach Rothermel has two sons, 12 and 5, the older of which was diagnosed with PDD-NOS in 2000. Shortly after his diagnosis in December, Lauren visited a DAN! Doctor, started him on the GF/CF diet and began intensive ABA. She continues to work closely with physicians and other experts in trying new methodologies related to finding a cure for autism. She also served as president of the Berks Autism Society and spearheaded the first Walk for Autism Awareness in Berks County, that is in its 8th year.
I’d like to introduce you to a new website, Autism360.org. Autism360 is a web-based tool for parents of autistic children. This website gives parents the ability to build a profile of their child and compare their child to others. This tool actually clusters children who share similar characteristics. The best part is that you can see which treatment options seem to work best for children who look like your child. You can then discuss these treatments with your health care providers or try them on your own.
Initially, basic information needs to be entered into the site to set up your child’s profile. You will add things like height and weight. The next step asks you to enter specific information and history on your child. When you are finished, you can do two things. Click on “others like me” to see a cluster of children like your own. This will show you the treatments that have worked and not worked for this group of children. You can also “generate a report”. This is especially useful for therapists, doctors and anyone working with your child.
My son is now twelve years old. I really wish I had a web tool such as Autism360 to use when he was first diagnosed. I remember feeling completely alone and worried that I was the only one who was experiencing these new things. Autism360 connects you to other children just like your child. You learn that your child is not the “only one” and begin to feel much more connected. And you get some useful ideas about treatment options.
I worked on inputting my son’s data one night after the kids went to bed. It was very easy to do. The great thing about Autism360 is that it saves all of your child’s information so you can come back to it later on. It is completely confidential and will generate reports for you so you don’t have to create them yourself! Plus, it’s totally free and we love that!
I urge you to give it a try, you won’t be sorry!